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Tag Archives: Carer Isolation
Female Informal Caregivers’ Quality of Life: European Perspectives (University of York CHE)
Posted on June 2, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary A significant body of previous research into informal caregiving has pointed to the intense emotional and physical burden for some caregivers. Research by the University of York Centre for Health Economics (CHE) investigated the subjective experience dementia care among female … Continue reading →
Posted in For Researchers (mostly), International, Proposed for Next Newsletter, Quick Insights, Statistics, UK
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Tagged Ageing, Austria, Autonomy, Belgium, Burden on Caregivers, Caregiver Distress, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Carers for People with Dementia, Carers’ Health and Wellbeing, CASP-12 Questionnaire, Centre for Health Economics: University of York, Continental Europe, Control, Control Autonomy Self-Realisation and Pleasure (CASP), Denmark, Disease Burden, English Longitudinal Study of Ageing (ELSA), Europe, Family Carers, France, Germany, Greece, Health and Quality of Life, Health and Quality of Life Variables, Health and Retirement Study (HRS), Informal Caregiving, Italy, Journal of Family and Economic Issues, Long-Term Care Public Expenditure, Measuring Wellbeing, Mental Health and Wellbeing, Mental Wellbeing, Netherlands, Nordic Regions, Northern Europe, Pleasure, Psychological Wellbeing, Quality of Life (QoL), S. Cognetti De Martiis, Self-Assessed Health, Self-Assessed Health (SAH), Self-Realisation, Southern Europe, Southern Mediterranean Countries, Spain, Stress Reduction for Unpaid Family Carers, Subjective Wellbeing, Support for Carers, Survey of Health Ageing and Retirement in Europe (SHARE), Sweden, Switzerland, Università Ca' Foscari: Venezia, Università di Torino: Italy, University of York, University of York Centre for Health Economics (CHE), Unpaid Caregivers (Carers), Unpaid Carers, Wellbeing, Work as Affirmation Hypothesis, Work as Distraction Hypothesis
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Stress Reduction for Unpaid Family Carers via Adult Day Services (British Psychological Society / Penn State / Gerontologist)
Posted on June 1, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary The British Psychological Society (BPS) has recently drawn attention to research conducted at the Dept of Human Development and Family Studies at Penn State, and published in the Gerontologist, which demonstrates that adult day respite care services can reduce … Continue reading →
Posted in Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), International, Management of Condition, Mental Health, Practical Advice, Proposed for Next Newsletter, Quick Insights, Universal Interest
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Tagged Access to Respite Care and Breaks, Adult Day Services, Adult Day Services (ADS), British Psychological Society, Burden on Caregivers, Caregiver Distress, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Carers for People with Dementia, Carers’ Breaks, Disease Burden, Family Carers, Gerontologist, National Institute on Aging, Needs of Carers, Penn State, Penn State University, Penn State's Department of Human Development and Family Studies (HDFS), Respite Care, Stress Reduction, Stress Reduction for Unpaid Family Carers, Support for Carers, Unpaid Caregivers (Carers), Unpaid Carers
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The Queen’s Speech: Briefing (Carers UK)
Posted on May 11, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary The Queen’s Speech (May 2013) included two bills of relevance to carers in the Government’s legislative plans for 2013-14, covering: Social care. Reforms to the state pension. This Carers UK briefing summarises the potential impact of this proposed legislation on … Continue reading →
Posted in Carers UK, Charitable Bodies, For Carers (mostly), For Social Workers (mostly), In the News, National, Quick Insights, UK, Universal Interest
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Tagged Adult Social Care, Adult Social Care Funding, Care and Support Bill, Caregiver Support, Caregivers, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Draft Care and Support Bill, Family Caregivers, Family Carers, Listening to Carers, Needs of Carers, Parliament, Pension Credit, Pensions and Savings, Pensions Bill, Queen's Speech Briefing (Carers UK), Queen’s Speech (May 2013), Single-Tier Pension, Social Care, Social Care Funding, Social Care Reform, State Pension, Unpaid Caregivers (Carers), Unpaid Carers
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Improvements to Carer Support from GPs (BBC News)
Posted on May 11, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary Roughly seven million people in the UK provide unpaid care to relatives or friends who could not otherwise live independently. The Royal College of General Practitioners (RCGP) estimates that one in 20 patients registered with GP practices may be an unpaid carer. Given the known impact of … Continue reading →
Posted in BBC News, Carers UK, Charitable Bodies, Community Care, Depression, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, National, NHS, Practical Advice, Quick Insights, Standards, UK, Universal Interest
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Tagged Auditing, Avoidable Admissions, BBC Health News, Burden on Caregivers, Caregiver Distress, Caregiver Support, Caregivers, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Carers for People with Dementia, Carers Registers in GP Practices, Carers' Champions, Family Caregivers, Family Carers, GP Practices: Carers Registers, GP Surgeries, GPs, Information for Carers, Listening to Carers, Needs of Carers, Preventable Hospital Admissions, RCGP, Royal College of General Practitioners (RCGP), Staying at Home, Stress Reduction, Support for Carers, Supporting Caregivers, Unpaid Caregivers (Carers), Unpaid Carers, Young Carers
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Use of Social Media Among Patients and Carers (BMJ Open)
Posted on May 11, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary There is a large and growing amount of literature concerning the use of social media by patients and caregivers. The authors of this article proposed to “map” and evaluate the state of the existing literature, with a view to … Continue reading →
Posted in Assistive Technology, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), International, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Proposed for Next Newsletter, Quick Insights, Systematic Reviews, Telecare, Telehealth, Universal Interest
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Tagged Adult Social Care, Alberta, Alberta Research Centre for Health Evidence: University of Alberta, Australia, Blogging, Blogs, Canada, Caregivers, Caregiving (Carers), Carer Isolation, Carer Support, Charles Sturt University, Collaborative Projects, Content Communities, Digital Technology, Empowerment, Engagement, Evaluation of Social Media Use, Experiences, Facebook, Faculty of Education: Charles Sturt University, Feedback, Microblogs, New South Wales, Patient and Public Engagement (PPE), Patient Experience, Patient Feedback, School of Information Studies: Charles Sturt University, Self-Management Education, Service User Experience, Short Message Service: SMS, Smartphones, Social Bookmarking, Social Care, Social Exclusion, Social Inclusion, Social Media, Social Media Guidance, Social Media Platforms, Social Networking Sites, Social Sharing, Twitter, University of Alberta, User Experience, Video Sharing, Vimeo, Virtual Worlds, Wagga Wagga, YouTube
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Potential Roles of Social Media in the NHS (NHS Employers)
Posted on May 7, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary This NHS Employers briefing shows how social media is becoming central to the effective working of the NHS and argues for a more open and “permissive” approach (coupled with clarity on professional behaviour and the importance of confidentiality). The guidance in “HR and social media in the … Continue reading →
Posted in National, NHS, For Doctors (mostly), For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), Universal Interest, Acute Hospitals, Community Care, UK, Patient Care Pathway, For Social Workers (mostly), Quick Insights, Practical Advice, Management of Condition, Assistive Technology, Person-Centred Care, Telehealth, Telecare, Integrated Care, Personalisation, NHS Employers
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Tagged Social Care, Carer Support, Carer Isolation, Experiences, Digital by Default, Caregiving (Carers), Patient Experience, Feedback, Patient Feedback, Barriers to Integration, Engagement, Patient and Public Engagement (PPE), Social Media, Facebook, Twitter, YouTube, Public Engagement Exercises, Social Inclusion, Empowerment, Digital Technology, Social Exclusion, User Experience, Staff Engagement, Digital First (Formerly Digital by Default), Service User Experience, Patient and Staff Feedback, Caregivers, Learning and Professional Development, Continuing Professional Development, Digital Exclusion, Barriers to Technology Implementation, Social Media in the NHS, Government Digital Service (GDS), Microblogging, Blogging, Video Sharing, Picture Sharing, Vimeo, Social Bookmarking, Social Sharing, Professional Sharing, Linkedin, Continuing Professional Development (CPD), Social Media Platforms, Social Media Guidance, British Medical Association’s Social Media Guidance, Nursing and Midwifery Council’s Social Media Guidance, Health and Care Professions Council Social Media Guidance, Royal College of General Practitioners’ Social Media Guidance, General Medical Council’s Social Media Guidance, RCN's Social Media Guidance, Leadership Via Social Media Platforms
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Social Media, Mobile Applications and Internet-Based Approaches for Supporting Non-Professional Carers: Systematic Review (US Department of Veterans Affairs)
Posted on May 6, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary This US systematic review investigates the potential of telehealth applications and tools to facilitate caregiving. Consumer health information technology (CHIT) interventions and applications are defined as electronic tools or technologies intended for use by consumers, by patients or family … Continue reading →
Posted in Assistive Technology, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), International, Management of Condition, Person-Centred Care, Personalisation, Practical Advice, Proposed for Next Newsletter, Quick Insights, Systematic Reviews, Telecare, Telehealth, Universal Interest
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Tagged Adult Social Care, AlzOnline, Assisting Carers using Telematics Interventions to Meet Older Persons’ Needs (ACTION), Barriers to Technology Implementation, Brief Symptom Inventory: BSI, Brighton and Sussex University Hospitals NHS Trust, Burden on Caregivers, Burden Scale for Family Caregivers, Burden Scale for Family Caregivers: BSFC, CAI: Caregiver Appraisal Inventory, Caregiver Appraisal Inventory, Caregiver Self-Efficacy Scale: CSES, Caregiver Support, Caregiver-Patient Communication, Caregiver’s Friend: Dealing with Dementia, Caregivers, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Comprehensive Assistance for Family Caregivers Program, Comprehensive Health Enhancement Support System: CHESS, ComputerLink, Department of Veterans Affairs (US), Digital by Default, Digital Exclusion, Digital First (Formerly Digital by Default), Digital Technology, Digital Unite research, Disease Burden, Dr Karim Saad, Empowerment, Empowerment and Dementia, Enhancing Caregiver-Patient Communication, Evidence-Based Synthesis Program (ESP) Center, Facebook, Family Caregivers, Family Carers, Guardian Professional, Healthcare Utilisation Outcomes, Hope Group (Brighton), Information for Carers, Interactive Voice Response: IVR, Internet-Based Approaches for Supporting Carers, Internet-Based Caregiver Support Service: ICSS, Journal of Dementia Care: JDC, Mobile Applications, Mobile Technology, Office of Quality and Performance, Online Family Problem-Solving: OFPS, Peer Communication, Personal Digital Assistant: PDA, Post-Traumatic Stress Disorder, PTSD, Quality Enhancement Research Initiative, Quality Enhancement Research Initiative’s (QUERI) Evidence-Based Synthesis Program (ESP), Quality of Life, Satisfaction with Life Scale: SWLS, Self-Management Education, Service User Experience, Short Message Service: SMS, Smartphones, Social Care, Social Exclusion, Social Inclusion, Social Media, Stress-Related Growth: SRG, Support for Carers, Supporting Caregivers, System Usability Scale: SUS, The Guardian, Traumatic Brain Injury (TBI), Twitter, United States, University Hospitals Coventry and Warwickshire NHS Trust, Unpaid Caregivers (Carers), Unpaid Carers, User Experience, VA Patient Care Services, Veterans Health Administration (VA), Veterans Integrated Service Networks (VISN) Clinical Management Officers, Web Enabled Caregiver Access to Resources and Education: WECARE, Website Analysis and Measurement Inventory: WAMMI, Young Carers
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Breaking the Cycle of Discontent: How Family Carers of People with Dementia Become Dissatisfied with General Hospital Care (BMC Geriatrics)
Posted on March 15, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
Summary Family carers deserve to be engaged by hospital staff, so that they are able to give and receive information about a relative with dementia. They should be offered suitable opportunities to participate and have their say in hospital care. … Continue reading →
Posted in Acute Hospitals, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Management of Condition, National, NHS, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest
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Tagged Acute Hospital Care, Admissions, Assessment, Assessment and Diagnosis, Care in General Hospitals, Care Triad: Patient-Staff-Family/Carer, Caregiving (Carers), Carer Expectations, Carer Fatigue, Carer Isolation, Carer Relationships with Hospital Staff, Carer Support, Carers, Carers Seeking Evidence of Poor Care, Caring for People with Dementia on Hospital Wards, Conflict Over Care). Carers’ Expectations, Cycle of Discontent, Dementia Care in Acute General Hospitals, Dementia Care in General Hospitals, Dementia Care in the Acute Hospital, Dementia Identification, Dementia Qualifications (Skills for Care), Dementia-Friendly Wards, Diagnosis and Assessment, Discharge Planning, Division of Rehabilitation and Ageing: University of Nottingham, Expectations, Family Carers, Family Carers and Health Professionals: Relationship Breakdown, General Hospitals, Hospital Discharge, Hospitals as Dangerous Places, Hospitals as Hazardous Places, Hyper Vigilant Monitoring (Carers), Improving Care in General Hospital Settings, Information for Carers, Interview Schedule: Family and Carers, Multidisciplinary Teams, National Institute for Health Research (NIHR), National Institute for Health Research (NIHR) Service Delivery and Organisation (SDO), Needs of Carers, Negative Experiences of Hospital Care, NHS Culture, NIHR, NIHR Service Delivery and Organisation Programme, Older People's Wards, Organisational and Professional Cultures, Patient Admission, Patient Care, Patient Documentation, Patient Experience, Patient Rights, Patient Safety, Patient-Centered Care, Patient-Staff-Family Carer Triad, Perceived Poor Care, Poor Communication, Problems in Care in English Acute Hospitals, Relationship Breakdowns, SDO Project 08/1809/227, Service Delivery and Organisation (SDO), Skills and Competencies, Skills for Care, Staff Training, Support for Carers (Hospital Discharge), Training, Training Needs Analysis, Triadic Relationship of Care, Underlying Causes of BPSD, University of Nottingham, Unpaid Caregivers (Carers), Unpaid Carers
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Facts About Carers 2012 (Carers UK)
Posted on September 13, 2012 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
[A version of this item appears in: Dementia: the Latest Evidence Newsletter (RWHT), Volume 3 Issue 2, September 2012]. Summary This comprehensive digest and policy briefing from Carers UK presents the key facts and figures about carers. It provides a … Continue reading →
Posted in Carers UK, Charitable Bodies, For Carers (mostly), For Social Workers (mostly), National, Practical Advice, Quick Insights, Statistics, UK, Universal Interest
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Tagged BAME Carers, Caregiving (Carers), Carer Isolation, Carer Satisfaction, Carers, Carers (Equal Opportunities) Act 2004 (England and Wales), Carers Northern Ireland, Carers Scotland, Carers UK Adviceline, Carers UK Research, Carers Wales, Carers’ Breaks, Carers’ Health and Wellbeing, Depression (Carers), Family Carers, Family Carers' Legal Rights, Impact of Caring on Carers, Information and Support for Carers, Needs of Carers, Poverty, Social Exclusion, Support for Carers, Unpaid Caregivers (Carers), Unpaid Carers, Work and Families Act 2006
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Impact of Caring on Carers (Age UK)
Posted on June 22, 2012 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)
[A version of this item appears in: Dementia: the Latest Evidence Newsletter (RWHT), Volume 3 Issue 2, September 2012]. Summary A partnership of eight charities explored the impact of caring on carers’ health and wellbeing through an online survey. This … Continue reading →
Posted in Age UK, Carers UK, Charitable Bodies, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, National, Quick Insights, Statistics, UK, Universal Interest
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Tagged Caregiving (Carers), Carer Fatigue, Carer Isolation, Carers Survey, Carers Trust, Carers Week 2012, Carers’ Breaks, Carers’ Health and Wellbeing, Family Caregivers, Family Carers, Impact of Caring on Carers, Independent Age, Macmillan Cancer Support, Marie Curie Cancer Care, MS Society, Needs of Carers, Parkinson’s UK, Support for Carers, Unpaid Caregivers (Carers), Unpaid Carers
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