Tag Archives: Family Carers

Emergency Services and Emergency Care (Carers UK / King’s Fund / FTN)

Posted on June 12, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary This briefing presents the response of Carers UK to the inquiry into emergency care. It asserts that family carers play an important daily role in the prevention of critical healthcare needs and thereby in preventing the avoidable hospital admissions … Continue reading →

Posted in Acute Hospitals, Carers UK, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, King's Fund, National, NHS, Patient Care Pathway, Person-Centred Care, Proposed for Next Newsletter, Quick Insights, Standards, UK, Universal Interest | Tagged Adult Social Care, Ageing Population, Avoidable Admissions, Avoidable Rehospitalisations, Care Integration, Caregiving (Carers), Carers, Community Support, Delayed Transfers of Care, Emergency Admissions, Emergency Bed Use, Emergency Care, Emergency Departments, Emergency Readmissions, Emergency Services, Empowerment, Engagement, Family Carers, Foundation Trust Network, Health Care Reform, Health Select Committee, Health Select Committee Inquiry, Home and Community Care Services, Hospital Emergency Departments, Integrated Home and Community Care Services, Integration, Integration of Health and Social Care, Length of Stay (LoS), Long-Term Care (LTC), Long-Term Conditions, Long-Term Conditions (LTCs), Multi-Agency Integration, National Health Service, Needs of Carers, Nicholson Challenge, Preventable Hospital Admissions, Preventative Care, Prevention, Prevention Programmes, Preventive Care, Problem Prevention, Reablement, Reablement Services, Rehabilitation, Residential Care Homes, Social Care, Support for Carers, Unpaid Caregivers (Carers), Unpaid Carers, Unplanned Hospital Admissions, Whole System Integration, Whole System Patient Flows, Whole Systems Approach, Whole Systems Design, Whole Systems Redesign | Leave a comment

Female Informal Caregivers’ Quality of Life: European Perspectives (University of York CHE)

Posted on June 2, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary A significant body of previous research into informal caregiving has pointed to the intense emotional and physical burden for some caregivers. Research by the University of York Centre for Health Economics (CHE) investigated the subjective experience dementia care among female … Continue reading →

Posted in For Researchers (mostly), International, Proposed for Next Newsletter, Quick Insights, Statistics, UK | Tagged Ageing, Austria, Autonomy, Belgium, Burden on Caregivers, Caregiver Distress, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Carers for People with Dementia, Carers’ Health and Wellbeing, CASP-12 Questionnaire, Centre for Health Economics: University of York, Continental Europe, Control, Control Autonomy Self-Realisation and Pleasure (CASP), Denmark, Disease Burden, English Longitudinal Study of Ageing (ELSA), Europe, Family Carers, France, Germany, Greece, Health and Quality of Life, Health and Quality of Life Variables, Health and Retirement Study (HRS), Informal Caregiving, Italy, Journal of Family and Economic Issues, Long-Term Care Public Expenditure, Measuring Wellbeing, Mental Health and Wellbeing, Mental Wellbeing, Netherlands, Nordic Regions, Northern Europe, Pleasure, Psychological Wellbeing, Quality of Life (QoL), S. Cognetti De Martiis, Self-Assessed Health, Self-Assessed Health (SAH), Self-Realisation, Southern Europe, Southern Mediterranean Countries, Spain, Stress Reduction for Unpaid Family Carers, Subjective Wellbeing, Support for Carers, Survey of Health Ageing and Retirement in Europe (SHARE), Sweden, Switzerland, Università Ca' Foscari: Venezia, Università di Torino: Italy, University of York, University of York Centre for Health Economics (CHE), Unpaid Caregivers (Carers), Unpaid Carers, Wellbeing, Work as Affirmation Hypothesis, Work as Distraction Hypothesis | Leave a comment

Stress Reduction for Unpaid Family Carers via Adult Day Services (British Psychological Society / Penn State / Gerontologist)

Posted on June 1, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary The British Psychological Society (BPS) has recently drawn attention to research conducted at the Dept of Human Development and Family Studies at Penn State, and published in the Gerontologist, which demonstrates that adult day respite care services can reduce … Continue reading →

Posted in Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), International, Management of Condition, Mental Health, Practical Advice, Proposed for Next Newsletter, Quick Insights, Universal Interest | Tagged Access to Respite Care and Breaks, Adult Day Services, Adult Day Services (ADS), British Psychological Society, Burden on Caregivers, Caregiver Distress, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Carers for People with Dementia, Carers’ Breaks, Disease Burden, Family Carers, Gerontologist, National Institute on Aging, Needs of Carers, Penn State, Penn State University, Penn State's Department of Human Development and Family Studies (HDFS), Respite Care, Stress Reduction, Stress Reduction for Unpaid Family Carers, Support for Carers, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Dying Well at Home: Integrated Working (SCIE)

Posted on May 23, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary This Social Care Institute for Excellence (SCIE) guide is about enabling people to die at home when they wish, and improving the quality of their care. Sections of the guide, online, comprise: Recommendations. Choosing to die at home. Dying … Continue reading →

Posted in Commissioning, Community Care, End of Life Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Integrated Care, National, NEoLCIN, NEoLCP, NHS, Patient Care Pathway, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, SCIE, Standards, UK, Universal Interest | Tagged Accessing Equipment and Services, Advance Decision to Refuse Treatment (ADRT), Advance Directive, Advance Statement, AMBER Care Bundle, Anticipatory Decision-Making, Assessment of Pain for People Dying With / From Dementia, Autonomy and Choice, Bedfordshire Partnership for Excellence in Palliative Support (PEPS), Bungalow Beds: Sandwell, Care Integration, Caregiver Support, Caregiving (Carers), Carer Support, Carers, Central Lancashire Cancer Partnership Group, Choice, Choice and Control Over Decisions, CMC: Coordinate My Care, Community Intravenous Therapy Team, Coordinate My Care, Deaths in Usual Place of Residence (DiUPR), Decision Making, Decision-Making at End of Life, Decision-Making Capacity, Dementia UK, DiUPR: Deaths in Usual Place of Residence, Do Not Attempt Resuscitation (DNAR), Domiciliary Care, Dying at Home, Dying Well at Home: Integrated Working, Easing Decision-Making, End of Life Care, EPaCCS, Extra Care Housing, Extra Care Scheme, Family Carers, Gold Standards Framework (GSF), Housing, Housing Adaptations, Housing for Older People, Housing Learning & Improvement Network (Housing LIN), Housing Learning and Improvement Network, Housing21, Integrated Care Pathway, Integrated Home and Community Care Services, Integration, Integration of Health and Social Care, Integration of Housing Care and Support, International Longevity Centre, International Longevity Centre UK, International Longevity Centre UK (ILC-UK), Lasting Power of Attorney (LPoA), Leicestershire & Rutland Organisation for the Relief of Suffering (LOMOS), Liverpool Care Pathway (LCP), Living Will, Macmillan Cancer Support, Macmillan Nurses, Macmillan Specialist Palliative Care Service, Majlish Homecare Services, Marie Curie Cancer Care, Mental Capacity Act, Message in a Bottle, Message in a Bottle: East Midlands, Midhurst Macmillan Specialist Palliative Care Service, National Council for Palliative Care, National End of Life Care Programme, National End of Life Care Programme (NEoLCP), National Gold Standards Framework Centre in End of Life Care, NEoLCN Resource, NHS National End Of Life Care Programme, Northamptonshire Healthcare NHS Foundation Trust, Partnership for Excellence in Palliative Support (PEPS), Pathways: GSF LCP and PPC, Place of Death, Preferred Priorities for Care (PPC), Sandwell, Sandwell and West Birmingham Hospital NHS Trust, Sheltered Housing Schemes, Skills for Care, Skills for Health, Social Care Institute for Excellence (SCIE), St. Catherine‟s Hospice: Carers' Befriending Service, Sussex Community NHS Trust, Treatment at End of Life, Uniting Carers, University of Leicester, Unpaid Carers, Wirral Metropolitan College | Leave a comment

Changes Needed in the Care Bill for Carers (Carers UK)

Posted on May 13, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary This Carers UK briefing covers amendments which the charity has requested regarding the UK Government’s Care Bill, published last week. “Carers UK has warmly welcomed the Draft of the Bill, published last year, but we have also called for a number of … Continue reading →

Posted in Carers UK, Charitable Bodies, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), National, NHS, Quick Insights, Standards, UK, Universal Interest | Tagged Adult Social Care, Adult Social Care Funding, Adult Social Care: Market Oversight, Assessing and Meeting Needs and Payments, Assessments, Asset Protection, Capping Care Costs, Care Account, Care and Support Bill, Care and Support White Paper 2012, Care Bill 2013-14, Care Costs: Cap and Means Test, Care Funding, Care Integration, Caregiving (Carers), Carer Support, Carers, Charging for Care and Support, Children and Families Bill, Collaborative Care, Continuing Care, Continuing Care Services in the Community, Continuity of Care, Dilnot Commission Recommendations, Dilnot Commission Report on Funding of Care and Support, Direct Payment, Direct Payments, Eligibility Criteria for Social Care, Fairer Care Funding, Family Carers, Funding of Care and Support (Dilnot Commission), Funding Reform, Future Funding Models, Health and Social Care Integration, Health Care Reform, Independent Personal Budget, Local Authorities, Local Authorities (LAs), Means Test, Needs Analysis, Needs Assessments, Needs of Carers, NHS Continuing Care, Parliament, Personal Budgets, Personal Budgets (PBs), Personal Well-Being, Portability of Care, Reform, Reforming Social Care, Social Care, Social Care Funding, Social Care Reform, Support for Carers, UK Parliament, Unpaid Caregivers (Carers), Unpaid Carers, Well-Being, Young Carers | Leave a comment

Government’s Care Bill 2013-14 (HM Government / Department of Health)

Posted on May 12, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary The Care Bill aims to modernise the law and put people’s wellbeing at the heart of the care and support system. The first reading of this bill took place in the House of Lords on May 9th 2013. There are three … Continue reading →

Posted in Acute Hospitals, Community Care, Department of Health, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, National, NHS, Patient Care Pathway, Quick Insights, Standards, UK, Universal Interest | Tagged Adult Social Care, Adult Social Care Funding, Adult Social Care: Market Oversight, Assessing and Meeting Needs and Payments, Assessments, Asset Protection, Capacity and Capability, Capping Care Costs, Care Account, Care and Support Bill, Care and Support White Paper, Care and Support White Paper 2012, Care Bill 2013-14, Care Costs: Cap and Means Test, Care Funding, Care Integration, Caregiving (Carers), Carer Support, Carers, Caring for Our Future, Caring for Our Future: Progress Report on Funding Reform, Caring for Our Future: Reforming Care and Support, Clause 57: the Duty to Promote Research, Coalition Government, Collaboration, Collaborative Care, Commission on Funding of Care and Support, Commissioning Education and Training, Commissioning Research, Consequences of the Francis Inquiry Report, Continuing Care, Cooperation, Decision-Making Capacity, Deferred Payments, Dementia Tax (Alzheimer's Society), Dilnot Commission Recommendations, Dilnot Commission Report on Funding of Care and Support, Direct Payment, Direct Payments, Discharge of Hospital Patients With Care and Support Needs, Discharge Planning, Discharge Support, Draft Care and Support Bill, Education and Training, Eligibility Criteria for Social Care, Extra Care Housing, Fairer Care Funding, Family Carers, Financial Services Products, Francis Inquiry, Francis Inquiry Report, Funding of Care and Support (Dilnot Commission), Funding Reform, Future Funding Models, Gaming the System, Health and Housing Partnerships, Health and Social Care Integration, Health Care Reform, Health Education England, Health Research Authority, HEE: Health Education England, Hospital Discharge, House of Commons Joint Committee on the Draft Care and Support Bill, Housing, Housing and Health Partnerships, Housing for Older People, Housing Policy, Housing Services for People With Dementia, HRA: Health Research Authority, Human Rights Act (UK Parliament 1998), Immigration Control, Implications of the Francis Inquiry Report, Independent Living Fund, Independent Personal Budget, Information and Advice, Integrated Commissioning, Integrated Home and Community Care Services, Integrating Health and Social Care Personal Budgets, Integration, Integration of Housing Care and Support, Local Authorities, Local Authorities (LAs), Local Education and Training Boards, Local Education and Training Boards (LETBs), Market Oversight, Market Oversight in Adult Social Care, Means Test, Mental Capacity, Mid-Staffordshire NHS Trust, Needs Analysis, Needs Assessments, Needs of Carers, NHS Continuing Care, Parliament, Personal Budgets, Personal Budgets (PBs), Personal Well-Being, Preventative Care, Prevention, Prime Minister's Challenge on Dementia, Public Bodies Act 2011, Public Health Funding, Public Service Reform, Reactions to the Francis Inquiry Report, Reduced Gaming of the System, Reform, Reforming Social Care, Repercussions From the Francis Inquiry Report, Responses to the Francis Inquiry Report, Retirement Housing, SAB: Safeguarding Adults Boards, Safeguarding, Safeguarding Adults Boards, Safeguarding Adults Boards (SABs), Service Integration, Social Care, Social Care Funding, Social Care Reform, Social Housing, Social Well-Being, Support for Carers, UK Parliament, Unpaid Caregivers (Carers), Unpaid Carers, Well-Being, Young Carers | Leave a comment

The Queen’s Speech: Briefing (Carers UK)

Posted on May 11, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary The Queen’s Speech (May 2013) included two bills of relevance to carers in the Government’s legislative plans for 2013-14, covering: Social care. Reforms to the state pension. This Carers UK briefing summarises the potential impact of this proposed legislation on … Continue reading →

Posted in Carers UK, Charitable Bodies, For Carers (mostly), For Social Workers (mostly), In the News, National, Quick Insights, UK, Universal Interest | Tagged Adult Social Care, Adult Social Care Funding, Care and Support Bill, Caregiver Support, Caregivers, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Draft Care and Support Bill, Family Caregivers, Family Carers, Listening to Carers, Needs of Carers, Parliament, Pension Credit, Pensions and Savings, Pensions Bill, Queen's Speech Briefing (Carers UK), Queen’s Speech (May 2013), Single-Tier Pension, Social Care, Social Care Funding, Social Care Reform, State Pension, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Improvements to Carer Support from GPs (BBC News)

Posted on May 11, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary Roughly seven million people in the UK provide unpaid care to relatives or friends who could not otherwise live independently. The Royal College of General Practitioners (RCGP) estimates that one in 20 patients registered with GP practices may be an unpaid carer. Given the known impact of … Continue reading →

Posted in BBC News, Carers UK, Charitable Bodies, Community Care, Depression, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, National, NHS, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Auditing, Avoidable Admissions, BBC Health News, Burden on Caregivers, Caregiver Distress, Caregiver Support, Caregivers, Caregiving (Carers), Carer Fatigue, Carer Isolation, Carer Support, Carers, Carers for People with Dementia, Carers Registers in GP Practices, Carers' Champions, Family Caregivers, Family Carers, GP Practices: Carers Registers, GP Surgeries, GPs, Information for Carers, Listening to Carers, Needs of Carers, Preventable Hospital Admissions, RCGP, Royal College of General Practitioners (RCGP), Staying at Home, Stress Reduction, Support for Carers, Supporting Caregivers, Unpaid Caregivers (Carers), Unpaid Carers, Young Carers | Leave a comment

Social Media, Mobile Applications and Internet-Based Approaches for Supporting Non-Professional Carers: Systematic Review (US Department of Veterans Affairs)

Posted on May 6, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary This US systematic review investigates the potential of telehealth applications and tools to facilitate caregiving. Consumer health information technology (CHIT) interventions and applications are defined as electronic tools or technologies intended for use by consumers, by patients or family … Continue reading →

Posted in International, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), Universal Interest, Systematic Reviews, Community Care, Proposed for Next Newsletter, For Social Workers (mostly), Quick Insights, Practical Advice, Management of Condition, Assistive Technology, Person-Centred Care, Telehealth, Telecare, Personalisation | Tagged Supporting Caregivers, Burden on Caregivers, Adult Social Care, Social Care, Support for Carers, Carers, Dr Karim Saad, Carer Support, Carer Fatigue, Carer Isolation, Post-Traumatic Stress Disorder, PTSD, Family Carers, Family Caregivers, Traumatic Brain Injury (TBI), Disease Burden, United States, Digital by Default, The Guardian, Caregiving (Carers), Unpaid Caregivers (Carers), Social Media, Facebook, Twitter, Social Inclusion, Unpaid Carers, Empowerment, Caregiver Support, Digital Technology, Mobile Technology, Social Exclusion, User Experience, University Hospitals Coventry and Warwickshire NHS Trust, Hope Group (Brighton), Empowerment and Dementia, Digital First (Formerly Digital by Default), Smartphones, Service User Experience, Young Carers, Information for Carers, Caregivers, Quality of Life, Mobile Applications, Internet-Based Approaches for Supporting Carers, Veterans Health Administration (VA), Comprehensive Assistance for Family Caregivers Program, Brighton and Sussex University Hospitals NHS Trust, Digital Exclusion, Digital Unite research, Evidence-Based Synthesis Program (ESP) Center, Quality Enhancement Research Initiative, Department of Veterans Affairs (US), Quality Enhancement Research Initiative’s (QUERI) Evidence-Based Synthesis Program (ESP), VA Patient Care Services, Office of Quality and Performance, Veterans Integrated Service Networks (VISN) Clinical Management Officers, Burden Scale for Family Caregivers, Assisting Carers using Telematics Interventions to Meet Older Persons’ Needs (ACTION), Caregiver Appraisal Inventory, Caregiver’s Friend: Dealing with Dementia, Guardian Professional, Journal of Dementia Care: JDC, Burden Scale for Family Caregivers: BSFC, Brief Symptom Inventory: BSI, CAI: Caregiver Appraisal Inventory, Comprehensive Health Enhancement Support System: CHESS, Caregiver Self-Efficacy Scale: CSES, Internet-Based Caregiver Support Service: ICSS, Interactive Voice Response: IVR, Online Family Problem-Solving: OFPS, Personal Digital Assistant: PDA, Short Message Service: SMS, Stress-Related Growth: SRG, System Usability Scale: SUS, Satisfaction with Life Scale: SWLS, Website Analysis and Measurement Inventory: WAMMI, Web Enabled Caregiver Access to Resources and Education: WECARE, Barriers to Technology Implementation, Peer Communication, Self-Management Education, Enhancing Caregiver-Patient Communication, Caregiver-Patient Communication, ComputerLink, AlzOnline, Healthcare Utilisation Outcomes | Leave a comment

The State of Caring 2013 (Carers UK)

Posted on May 4, 2013 by Dementia and Elderly Care News (an online adjunct to Dementia and Elderly Care: the Latest Evidence)

Summary This report presents the results of a survey of over 3,000 carers across the UK. Many carers struggle without advice or support, and find that caring affects their health, finances and careers adversely. Carers UK proposes five challenges to … Continue reading →

Posted in Carers UK, Charitable Bodies, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, National, Practical Advice, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged Avoidable Admissions, Caregiving (Carers), Carer Support, Carers, Carers Survey, Carers’ Breaks, Carers’ Health and Wellbeing, Discharge Planning, Family Carers, Financial Issues, Health and Social Care, Health and Social Care Integration, Health and Social Care Services, Hospital Discharge, Impact of Caring on Carers, Information and Advice, Information for Carers, Information Needs of Carers, Needs of Carers, Patient Discharge, Personal Finances, Personal Independence Payments, Post-Discharge Support, Poverty, Preventable Hospital Admissions, Psychological Support (for Carers), Support for Carers, Support for Carers (Hospital Discharge), The State of Caring 2013: Carers UK, Transforming Your Care Strategy, Unpaid Caregivers (Carers), Unpaid Carers, Welfare Reform Act 2012 | Leave a comment

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