Dementia and Disability (APPG on Dementia / Alzheimer’s Society)

Summary

The All-Party Parliamentary Group on Dementia (APPG) released a report in early Summer 2019 about adopting a “rights-based” approach to tackling dementia as a disability, with a view to understanding – and reducing – societal barriers which adversely affect people living with the condition, on six fronts:

  1. Employment.
  2. Social protection.
  3. Social care.
  4. Transport.
  5. Housing.
  6. Community life.

Full Text Link

Reference

The All-Party Parliamentary Group (APPG) on Dementia 2019 Report: Hidden no more: Dementia and disability. London: All Party Parliamentary Group (APPG) on Dementia / Alzheimer’s Society, April – June 2019.

“This report was compiled by Alzheimer’s Society who provide the Secretariat to the APPG on Dementia”.

Posted in All-Party Parliamentary Group (APPG) on Dementia, Alzheimer's Society, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Scoping Dimensions of Dementia-Friendly Organisations (JGCR / IES / Alzheimer’s Society / RCN / JRF)

Summary

Researchers in Japan have devised an analytical framework, comprising two axes, for improving appreciation of the current and future possible aspects of service, involvement and improvement in dementia-friendly organisations.

Full Text Link

Reference

Takao, M. Maki, Y. Minami, U. [and] Suzuki, T. (2019). Corporate involvement with dementia: a two-axes classification and policy support. Journal of Geriatric Care and Research (JGCR). December 4th 2019, Vol.6(2): pp.53-55.

Potential Workplace Accomodations?

Thoughts on handling dementia at work (as well as adjustments to help people combining work commitments with caring for others):

Full Text Link

Reference

Bevan, S. (2017). Dementia-friendly workplaces. London: Institute for Employment Studies (ies), March 2017. HR Network Paper 130.

See also, a guide from the Alzheimer’s Society Employers Working Group:

Full Text Link

Reference

Creating a dementia friendly workplace: a practical guide for employers. London: Alzheimer’s Society, April 2015.

Concerning support for nurses with dementia at work:

Full Text Link

Reference

Dementia in the workplace. London: Royal College of Nursing (RCN), October 2018.

The summary of a Joseph Rowntree Foundation report:

Full Text Link

Reference

Frost, S. (2015). On the journey to becoming a dementia friendly organisation. York: Joseph Rowntree Foundation (JRF), September 2015.

Posted in Alzheimer's Society, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Joseph Rowntree Foundation, Management of Condition, Mental Health, Models of Dementia Care, National, Person-Centred Care, Quick Insights, RCN, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Facts and Figures on Unmet Needs in Older People in England (Age UK)

Summary

Age UK have produced a statistical report investigating needs and experiences of disadvantage in six key aspects of life’s difficulties:

  1. Ill health.
  2. Care and support.
  3. Poor housing.
  4. Poverty.
  5. Loneliness.
  6. Social isolation.

Full Text Link

Reference

Estimating need in older people: findings for England. An analysis by Age UK. London: Age UK, November 2019.

Posted in Age UK, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Integrated Care, National, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Statistics on Unpaid Carers in the UK: Carers Rights Day 2019 (Carers UK)

Summary

Carers Rights Day 2019 took place on Thursday November 21st 2019. Research shows that two thirds of adults in the UK can expect to be unpaid carers. There is a 50:50 chance of becoming such a carer by the age of 50, but statistically the burden falls disproportionately on women.

“Half of women will care by the age of 46, compared to half of men who can expect to care at 57”.

Full Text Link

Reference

Average UK person just as likely to be unpaid carer as homeowner. London: Carers UK, November 21st 2019.

This relates to:

Full Text Link

Reference

Will I care? The likelihood of being a carer in adult life. London: Carers UK, November 2019.

Posted in Carers UK, Charitable Bodies, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, National, Person-Centred Care, Quick Insights, Statistics, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Dementia Risk Factors Re-Explored / Confirmed (NIHR Signal / BMJ Open)

Summary

A further systematic review indicates that unhealthy behaviours tend to increase dementia risk. Pooled meta-analysis of previous research demonstrate a 20% increase in the risk of dementia from one risk factor, while the co-occurrence of three risk factors doubles the risk of dementia.

“ … findings showed a significant increase in the risk of a dementia diagnosis when three known risk factors were present; this doubled the likelihood of dementia. There was also a reduction in risk conveyed by having fewer risk factors… ”.

Full Text Link

Reference

Wagg, A. (2019). A less healthy lifestyle increases the risk of dementia. London: NIHR Signal / NIHR Dissemination Centre, November 26th 2019.

This relates to:

Full Text Link

Reference

Peters, R. Booth, A. [and] Rockwood, K. [et al] (2019). Combining modifiable risk factors and risk of dementia: a systematic review and meta-analysis. BMJ Open. January 25th 2019; Vol.9(1): e022846.

Posted in Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, NIHR, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Statistics, Systematic Reviews, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Recent Self-Care Resources, Campaign Materials and Comment: Plus Some Speculation (PHE / Self Care Forum / NHS Confederation / JGCR)

Summary

Public Health England is running a “Help Us, Help You” campaign, which aims to support the public in promoting self-care and reduce pressures on the NHS over the winter period. The Help Us Help You campaign is  planned to appear in phases, starting with NHS 111.

Full Text Link

Reference

NHS 111: ‘Help Us Help You – Know What to Do’ campaign launches. [Online]: Public Health England, October 21st 2019.

National Self Care Week 2019: Choose Well (Self Care Forum)

The Self Care Forum’s awareness week, this year, fell between November 18th – 24th 2019. Resources and examples of best practice were made available in advance:

Full Text Link

Reference

Self care: best practice. Online [Bradford; Yorkshire]: Self Care Forum, October 2019.

Self-Care Week: Comment Pieces From the NHS Confederation

Full Text Link

Reference

Bentley, L. (2019). Let’s all share in self-care. [Online]: NHS Confederation, November 15th 2019.

Full Text Link

Reference

Hodge, S. (2019). Wellness and self-care is the only way of achieving a healthy future! [Online]: NHS Confederation, November 19th 2019.

Full Text Link

Reference

Collison, K. (2019). Think self-care for life. [Online]: NHS Confederation, November 20th 2019.

Mental Health Literacy, Books on Prescription and Social Prescribing

A speculative investigation of books on prescription and bibliotherapy services supporting self-care for mental health and other long-term conditions:

Full Text Link

Reference

Books on prescription: the role of public libraries in supporting mental health and wellbeing. Journal of Geriatric Care and Research (JGCR). November 27th 2019, Vol.6(2): pp.47-52.

Posted in Commissioning, Community Care, Department of Health and Social Care (DHSC), Depression, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), Health Foundation, Integrated Care, Local Interest, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, NHS Confederation, NHS England, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Public Health England, Quick Insights, SCIE, UK, Universal Interest, Wales, Wolverhampton, World Health Organization (WHO) | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

SPACE Principles in the Care of People Living With Dementia (RCN)

Summary

The Royal College of Nursing (RCN) has produced a report outlining five principles (SPACE principles) underpinning the commitment to improve care for people with dementia and their families. This report is intended for use across a wide range of health and social care settings (not just hospitals). The main section headings comprise:

  • Principles.
  • Dementia.
  • Symptoms of dementia.
  • Depression.
  • Delirium.
  • The person living with dementia.
  • The role of family carers.
  • SPACE principles:
    • SPACE Principle 1: Staff who are skilled and have time to care.
    • SPACE Principle 2: Partnership working with carers.
    • SPACE Principle 3: Assessment, early identification of dementia and post-diagnostic support.
    • SPACE Principle 4: Care and support plans which are person-centred and individual.
    • SPACE Principle 5: Environments that are dementia friendly.
  • Resources.

Full Text Link

Reference

Commitment to care of people living with dementia: SPACE principles. London: Royal College of Nursing (RCN), November 2019.

There is related ealier research, conducted with the University of Worcester, in the Transforming Dementia Care in Hospitals Evaluation Report, although now, sadly, only the summary version is available:

Full Text Link

Reference

Brooker, D. Milosevic, S. [and] Evans, S. [et al] May 2014. RCN Development Programme: Transforming Dementia Care in Hospitals. Evaluation Report. [Summary version]. Worcester: Association for Dementia Studies at the University of Worcester [and] Royal College of Nursing (RCN), May 2014.

Posted in Acute Hospitals, Commissioning, Community Care, Delirium, Depression, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Local Interest, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, RCN, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment