A Compendium of Patient Information on Parkinson’s Disease (Patient.co.uk / Parkinson’s UK / USA: Multiple)

Summary

Just in time for Parkinson’s Awareness Week 2015 (April 20th -26th 2015), here is a collection of information on Parkinson’s Disease written primarily for patients and the general public.

From Patient.co.uk (UK Independent Health Site)

Parkinson’s Disease. Leeds: Patient.co.uk / ©E M I S (Egton Medical Information Systems Ltd), October 23rd 2014 [2013].

From Parkinson’s UK (UK Charity)

Parkinson’s UK produces a wide range of information leaflets, fact sheets and guides. Here is a list of some of the most recent (presented in date order, newest first):

Resources guide for newly diagnosed people with Parkinson’s. London: Parkinson’s UK, March 2015. (With the sub-title “A guide to our information resources”, this document maps other Parkinson’s UK guides and information sheets in multiple formats and languages).

Occupational therapy and Parkinson’s. London: Parkinson’s UK, March 2015. [Reference No. FS97].

Anxiety and Parkinson’s. London: Parkinson’s UK, March 2015. [Reference No. FS96].

Muscle cramps and dystonia. London: Parkinson’s UK, October 2014. [Reference No. FS43].

Low blood pressure and Parkinson’s. London: Parkinson’s UK, September 2014. [Reference No. FS50].

Restless Legs Syndrome and Parkinson’s. London: Parkinson’s UK, September 2014. [Reference No. FS83].

Parkinsonism. London: Parkinson’s UK, September 2014. [Reference No. FS83].

Talking to Children About Parkinson’s. London: Parkinson’s UK, August 2014. [Reference No. FS66].

Apomorphine. London: Parkinson’s UK, July 2014. [Reference No. FS26].

Diagnosing Parkinson’s. London: Parkinson’s UK, July 2014. [Reference No. FS48].

Talking to people about Parkinson’s. London: Parkinson’s UK, June 2014. [Reference No. FS88].

Wearing off and involuntary movements. London: Parkinson’s UK, June 2014. [Reference No. FS73].

Physiotherapy and Parkinson’s. London: Parkinson’s UK, May 2014. [Reference No. FS42].

International travel and Parkinson’s. London: Parkinson’s UK, April 2014. [Reference No. FS28].

Using computers and the internet. London: Parkinson’s UK, April 2014. [Reference No. FS60].

Depression and Parkinson’s. London: Parkinson’s UK, April 2014. [Reference No. FS56].

Pain in Parkinson’s. London: Parkinson’s UK, March 2014. [Reference No. FS37].

Foot care and Parkinson’s. London: Parkinson’s UK, March 2014. [Reference No. FS51].

Dental and oral health in Parkinson’s. London: Parkinson’s UK, February 2014. [Reference No. FS98].

Fatigue and Parkinson’s. London: Parkinson’s UK, February 2014. [Reference No. FS72].

International Resources (United States)

Parkinson’s Disease: Hope Through Research. [Online]: National Institute of Neurological Disorders and Stroke (NINDS).

Depression and Parkinson’s Disease. [Online]: US Department of Health and Human Services / National Institute of Mental Health, 2011.

Parkinson’s Disease. [Online]: Mayo Clinic.

Parkinson’s Disease. [Online]: Massachusetts General Hospital.

Some other information resources, in the USA, of potential interest:

  1. Michael J. Fox Foundation for Parkinson’s Research. [Online].
  2. Parkinson’s Disease Foundation. [Online].
  3. National Parkinson’s Foundation. [Online].
  4. American Parkinson Disease Association, Inc. [Online].
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Genetic / Biological Foundations of Mental Processing Speed Discovered? (BBC News / Molecular Psychiatry)

Summary

A large international epidemiological study of data from 30,000 people may have identified underlying genetic variants linked to individual differences in the ability to process information. Genetic differences might explain why some people are quicker thinkers in middle age and later life, and may (in future) help shed light on the neurodegenerative processes behind mental decline.

Subjects, aged 45 years and older, without dementia, took cognitive tests to determine how quickly they processed information. People with slower processing speed were found to have variants near the cell adhesion molecule two (CADM2) gene. The CADM2 gene is thought to be involved in communication / information processing between brain cells. This gene’s influence was most pronounced in the areas of the brain involved in thinking speed. The same gene has been linked (elsewhere) to autism and personality traits.

Two other genetic variants, associated with memory performance and general cognitive functioning, were discovered in older adults (based on the same group of participants) recently.

Full Text Link

Reference

Gene study may explain why some remain quick thinkers. London: BBC Health News, April 16th 2015.

This relates to:

Full Text Link (Note: This article requires a suitable Athens password, a journal subscription or payment for access).

Reference

Ibrahim-Verbaas, CA. Bressler, J. [and] Debette, S. [et al] (2015). GWAS for executive function and processing speed suggests involvement of the CADM2 gene. Molecular Psychiatry. April 14th 2015. [Epub ahead of print]. (Click here to view the PubMed abstract).

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Improving Urgent and Emergency Care (NHS Confederation / Urgent and Emergency Care Forum / Emergency Medicine Journal)

Summary

Based on experiences during Winter 2014/2015, the NHS will encounter a winter crisis in 2015/16. NHS organisations need to plan and act on solutions to help prevent this problem. This NHS Confederation report assembles guidance and recommendations, with examples of new emergency care models. The Urgent and Emergency Care Forum assesses progress, one-year on, in the implementation of the Urgent and Emergency Care Review.

Full Text Link

Reference

Rip off the sticking plaster now: enabling the local implementation of sustainable urgent and emergency care models in 2015/16. London: NHS Confederation; Urgent and Emergency Care Forum, April 21st 2015.

EMS Roles and Functions in Caring for OPWD (Emergency Medicine Journal)

Emergency ambulance crews increasingly encounter older people with dementia (OPWD) and encounter difficulties in history taking, pain assessment and accessing alternatives to emergency hospital admission (especially out of hours). This literature review examined the role(s) of emergency medical services (EMS) in the urgent and emergency care of OPWD. This review highlights a gap in research and in the published literature. The authors call for more collaborative (cross-disciplinary) research involving the EMS and dementia care disciplines.

Full Text Link (Note: This requires a suitable Athens password, a journal subscription or payment for access).

Reference

Buswell, M. Martin, S. [and] Lee, C. [et al]. (2015). Unplanned, urgent and emergency care: what are the roles EMS provide for older people with dementia? A literature review and narrative synthesis. (P009). Emergency Medicine Journal. May 2015; 32(5): e4.

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Physical Exercise Versus Diet: Clarification of Public Health Messages (Myths?) on Obesity (BBC News / British Journal of Sports Medicine)

Summary

An editorial written by experts in the British Journal of Sports Medicine asserts that although physical activity almost certainly does have a role to play in the prevention of diseases such as diabetes, heart disease and dementia, it has little impact on obesity. They point out that it is the dietary source of excess calories (in the form of excess sugar and carbohydrates) which is more important in obesity prevention / control.

Full Text Link

Reference

Exercise ‘not key to obesity fight’. London: BBC Health News, April 23rd 2015.

This relates to:

Full Text Link (Note: This article requires a suitable Athens password, a journal subscription or payment for access).

Reference

Malhotra, A. Noakes, T. [and] Phinney, S. (2015). Editorial: It is time to bust the myth of physical inactivity and obesity: you cannot outrun a bad diet. British Journal of Sports Medicine. April 22nd 2015.

Review of the Benefits of Physical Activity

Possibly of background interest, regarding the health benefits of physical activity in the prevention of – and / or the improvements expected for – a wide range of chronic (long-term) conditions, and scale of these improvements:

Full Text Link

Reference

Exercise: the miracle cure and the role of the doctor in promoting it. London: Academy of Medical Royal Colleges, February 2015.

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Lancet Seminar on Parkinson’s Disease (Lancet / Advances in Integrative Medicine / Translational Proteomics / Parkinson’s UK)

Summary

Coinciding with Parkinson’s Awareness Week 2015 (April 20th – 26th 2015), the following Lancet review / seminar covers the clinical features, risk factors, pathology, genetics, pathogenesis, diagnosis and treatment of Parkinson’s Disease.

Full Text Link (Note: This article requires a suitable Athens password, a journal subscription or payment for access).

Reference

Kalia, LV. [and] Lang, AE. (2015). Parkinson’s disease. The Lancet. April 19th 2015. [Epub ahead of print].

Possibly also of interest, concerning research into the genetic biomarkers of prion disease (misfolded proteins):

Full Text Link (Note: This article requires a suitable Athens password, a journal subscription or payment for access).

Reference

Licker, V. [and] Burkhard, PR. (2015). Proteomics as a new paradigm to tackle Parkinson’s disease research challenges. Advances in Integrative Medicine / Translational Proteomics. December 2014, Vol. 4(5), Pages 1–17.

Posted in Acute Hospitals, Charitable Bodies, Community Care, Diagnosis, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, International, Management of Condition, Non-Pharmacological Treatments, Parkinson's Disease, Pharmacological Treatments, Quick Insights, Systematic Reviews, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Mindfulness-Based Cognitive Therapy for Depression? (BBC News / Lancet)

Summary

Mindfulness-based cognitive therapy (MBCT) may be a treatment option for recurrent clinical depression, as a possible alternative to maintenance antidepressant treatment.

The Prevention of Depressive Relapse or Recurrence (PREVENT) Trial tested whether MBCT with support to taper or discontinue antidepressant treatment (MBCT-TS) might be a superior alternative to maintenance antidepressants for prevention of depressive relapse / recurrence in adults (aged 22–78 years). There is no evidence, however, that MBCT-TS is better than antidepressant treatment for the prevention of depressive relapse. Both treatments offer enduring positive outcomes (in individuals without cognitive impairment or dementia at least).

Full Text Link

Reference

Mundasad, S. (2015). Depression: ‘Mindfulness-based therapy shows promise’. London: BBC Health News, April 21st 2015.

“MBCT might offer a similar ongoing protective effect as that of maintenance antidepressants. MBCT therefore provides an alternative effective treatment for patients who cannot tolerate or do not wish to have maintenance antidepressant therapy… it is a group treatment that reduces costs and the number of trained staff needed, it might be feasible to offer MBCT as a choice to patients in general practice”. Mulder (2015).

This relates to:

Full Text Link

Reference

Kuyken, W. Hayes, R. [and] Barrett, B. [et al] (2015). Effectiveness and cost-effectiveness of mindfulness-based cognitive therapy compared with maintenance antidepressant treatment in the prevention of depressive relapse or recurrence (PREVENT): a randomised controlled trial. Lancet. April 21st 2015, 6736(14).

Possibly also of interest:

Full Text Link

Reference

Mulder, R. (2015). Depression relapse: importance of a long-term perspective. Lancet. April 20th 2015. [Epub ahead of print].

Depression Awareness Week

Depression Awareness Week (2015) takes place April 20th – 26th 2015.

Posted in BBC News, Commissioning, Depression, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, Management of Condition, Mental Health, NIHR, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Improving Approaches to Public Involvement in Research (NIHR)

Summary

This National Institute for Health Research (NIHR) report on encouraging public involvement in research recommends a strategic approach to engaging the public in goal-setting for research and research design. It is based on the “Breaking Boundaries” Strategic Review of Public Involvement in the NIHR.

Full Text Link

Reference

Going the Extra Mile: improving the nation’s health and wellbeing through public involvement in research. The final report and recommendations to the Director General Research and Development / Chief Medical Officer (CMO) Department of Health of the ‘Breaking Boundaries’ strategic review of public involvement in the National Institute for Health Research (NIHR). London: National Institute for Health Research (NIHR), March 27th 2015.

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