Synthesis of Outcomes Desired by People With Dementia and Their Carers

Purpose

The table presented on this page attempts to map together 2 key sets of considerations:

A key (shown below) is required to comprehend this intellectual synthesis.

Key:

NICE QS = the NICE Quality Standard(s) which first appeared in the document, “Quality Standard for Dementia“ (2010). [What are these? Click here for a brief summary].

NDS Objective = National Dementia Strategy Objective(s), as later developed in the Department of Health’s revised implementation plan, “Quality outcomes for people with dementia: building on the work of the National Dementia Strategy” (2010). [What are these? Click here for a brief summary].

  Outcome Descriptor NICE QS NDS Objective
A I was diagnosed early. People will have the information they need to understand the signs and symptoms of dementia. The time people presenting symptoms to a doctor and being diagnosed will be as short as possible for everyone. 2, 3 1, 2 
B I understand, so I make good decisions and provide for future decision making. Everyone affected by dementia will get information and support in the format and at the time that best suits them. They will be supported to interpret and act on the information so that they understand their illness and how it will impact on their lives, including any other illnesses they may already have. They will know what treatments are best for them and what the implications are and they will be supported to make good decisions. 3, 5 3, 4, 5
C I get the treatment and support which are best for my dementia, and my life. Everyone living with dementia will receive the best dementia treatment and support, no matter who they are or where they live. They will feel that their personal needs have been appropriately assessed and that their treatment and potential consequences of treatment have been well planned and delivered in a coordinated way that is appropriate to their individual needs and their preferences. They will be able to exercise personal choice in social care and ongoing support will be of a high quality. 1, 4, 5, 7, 8 2, 6, 8, 9, 10, 11, 13, 18
D I am treated with dignity and respect. People living with dementia will report that they are treated with dignity and respect by all those involved throughout their dementia journey. They will also be open about living with dementia without fear of stigma or discrimination. It will be well recognised and understood by the public and professionals that dementia is a condition that increasing numbers of people will live with. 1 1, 13
E I know what I can do to help myself and who else can help me. People living with dementia will be supported to self-manage the consequences of dementia and its treatment, to the degree they are able/wish to. They will know where to turn to get the clinical, practical, emotional and financial support they need when and where they need it. They will feel confident that they can practice their faith and spirituality and that others will help them when they need support. 1, 3, 4, 5 3, 4, 5, 6, 13
F Those around me and looking after me are well supported. People living with dementia will feel confident that their family, friends and carers have the practical, emotional and financial support they need to lead as normal a life as possible throughout the dementia journey. They will know where to get help when they need it. 3, 4, 6, 10 3, 4, 5, 7
G I can enjoy life. People living with dementia will be well supported in all aspects of living with dementia, leaving them confident to lead as full and active life as possible. They will be able to pursue the activities (including work) that allow them to be happy and feel fulfilled while living with dementia. 3, 4 1, 4, 5, 6
H I feel part of a community and I’m inspired to give something back. People who have been affected by dementia and others will feel inspired to contribute to the life of their community, including action to improve the lives of others living with dementia. This includes having the opportunity to participate in high quality research.   1, 5, 16
I I am confident my end of life wishes will be respected. I can expect a good death. People who are nearing the end of their life will be supported to make decisions that allow them and their families/carers to be prepared for their death. Their care will be well coordinated and planned so that they die in the place and in the way that they have chosen. 5, 9 12, 13

This synthesis has been adapted from the table provided in Appendix 1 of the Department of Health’s Good Practice compendium: an assets approach to
“Living well with dementia: a National Dementia Strategy”
(published January 2011).

About Dementia and Elderly Care News

Dementia and Elderly Care News. Wolverhampton Medical Institute: WMI. (jh)
This entry was posted in Acute Hospitals, Community Care, Department of Health, For Doctors (mostly), For Researchers (mostly), For Social Workers (mostly), Guidelines, Management of Condition, Models of Dementia Care, National, NICE Guidelines, Patient Care Pathway, Standards, Universal Interest and tagged , , , , , , , , . Bookmark the permalink.

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