Transforming Health and Social Care for People with Dementia (Department of Health, Dementia Health and Care Champion Group)

[A version of this item appears in: Dementia: the Latest Evidence Newsletter (RWHT), Volume 2 Issue 10, May 2012].

Summary

Health and care organisations are working on improvements to dementia services as defined in the Prime Minister’s Dementia Challenge

The Dementia Health and Care Champion Group includes representatives from the health sector, social care, local government and charities. The group will take a broad approach to tackling the issue of dementia services, looking into better integration of social care services, the NHS and local government organisations.

The programme aims to deliver major improvements in dementia care, dementia awareness and dementia research by 2015. Three ‘Champion Groups’ are being established to lead the work on each strand.

Actions for improving dementia care will include:

  1. Improving early diagnosis.
  2. Recognising, celebrating and spreading best practice.
  3. Ensuring memory services are available across the country and accredited.
  4. Improving end of life care for people with dementia.
  5. Improving housing and social care accommodation: supporting people with dementia to continue to live at home.
  6. Promoting partnership working between primary and secondary health services and local government.
  7. Reducing the inappropriate use of antipsychotics for people with dementia.

Read more: Transforming health and social care for people with dementia.

Group Participants

Co-chairs: Sir Ian Carruthers (NHS South West) and Sarah Pickup (ADASS).

Group Members

  • Alistair Burns (Department of Health)
  • Gillian Ayling (Department of Health)
  • Andrew Prudames (Department of Health)
  • Jonathan Mason (NHS East London and the City)
  • Bruce Bovill (carer)
  • Alasdair Liddell (NHS Institute)
  • Anne Sutton (SE Dementia Group)
  • Andrew Dillon (NICE)
  • Sue Bailey (Royal College of Psychiatrists)
  • Sally Brearley (Nursing and Care Quality Forum)
  • Richard Gleave (NHS South West)
  • Martin Green (English Community Care Association)
  • Dame Jo Williams (CQC)
  • Bridget Warr (UK Home Care Association)
  • Kate Moore (Alzheimers Society)
  • Helena Herklots (Carers UK)
  • Iain MacBeath (Hertfordshire County Council)
  • Karen Harrison-Dening (Dementia UK)
  • Lisa Rodrigues (Sussex Partnership)
  • David Loughton (Royal Wolverhampton NHS Foundation Trust)
  • Professor Louise Robinson (Royal College of General Practitioners)
  • Dr Jill Rasmussen (Royal College of General Practitioners)
  • Joanna Killian (Essex County Council)

Other Champion Groups

The Dementia Health and Care Group is one of three set up through the Prime Minister’s Dementia Challenge. The other two are:

Champions of dementia-friendly communities:

Co-chairs: Jeremy Hughes (Alzheimer’s Society) and Angela Rippon.

Champions of better research:

Led by the Ministerial Advisory Group on Dementia Research (MAGDR).
Co-chairs: Dame Sally C. Davies and Sir Mark Walport (Wellcome Trust).

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About Dementia and Elderly Care News

Dementia and Elderly Care News. Wolverhampton Medical Institute: WMI. (jh)
This entry was posted in Acute Hospitals, ADASS, Alzheimer's Society, Antipsychotics, Carers UK, Community Care, Department of Health, Diagnosis, End of Life Care, For Carers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, National, NHS, Patient Care Pathway, Quick Insights, Royal College of Psychiatrists, Royal Wolverhampton NHS Trust, UK, Universal Interest and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink.

8 Responses to Transforming Health and Social Care for People with Dementia (Department of Health, Dementia Health and Care Champion Group)

  1. normc1957 says:

    I cannot believe that the top group has nobody (unless i have missed something) with a diagnosis participating in that group, after all that was said at the conference, this is a huge step backwards!! sorry, but as anybody who know me i always say it as it is, Norman Mc Namara, Speaker at the conference in London earlier this year, and very disillusioned
    e mail norrms@gmail.com

  2. Trudy Dillaway says:

    I think people in this group missed the point of the meeting!!
    Surely people with dementia and their carers should be the highest number of participants to decide and talk about the changes needed?
    Norman McNamara was at this meeting and thought he had managed to speak for all of us carers, relatives and sufferers? What a shame it seems it was yet another ‘keep them quiet’ task!!
    The above mentioned names of those in office jobs cannot have any understanding of what living with dementia is truly like or the experience of all the major failings of so called care, support and help.

    Please rally a committee of sufferers and their carers to really make the difference that is needed.
    There is so much that needs changing that currently makes this a 100times more stressful than it need to be. There is so little information and support available for the sufferer or the carer and as relatives you only want what is best for your loved one, and that information to access the little services available are a mind field. I really hoped that things were changing but yet again the list is full of people who really have no idea.

    • normc1957 says:

      Thank you for your comments and as you say, no one is immune to such human frailities as Dementia, i should know, i was diagnosed four years ago. My comments were not a critism on those pepole working together or those in HIGH office,i was merely stating that WITHOUT the voice of some one who lives with this awful disease on a day to day basis, how will anybody every learn ?? here is the Video i made this morning and published on the web, i hope it explains things a little better, best wishes, Norrms and family
      Video
      VIDEO MESSAGE FROM ME
      Hiya, please take a look at this as this is my reply to yesterdays press release by the Dept of Health which was headed “Transforming Lives” , i commened on it yesterday and promised a video, here it is xxxxx

  3. Linda Giorgilli Rice says:

    Norms, I live here in the U.S., but am so moved by your video. My dad had Parkinson’s disease and dementia, and I was his caregiver after my mom could not longer do it alone. I think that we cannot do without our foundations, and I appreciate all of the information and resources that they add to our lives, but I believe they have a long way to go yet. I am a very avid advocate, but have experienced presentations done that do not involve anyone who has the disease. I have also not been allowed to speak at presentations to provide a caregiver’s view because I was told of “liability issues.” Please, what do they mean? I so support how you feel and I also think that many people with diseases feel removed from the various foundation and medical care groups, because of this inability to consider that someone with the disease or the caregiver might have something important to add, like the ability to really “know” the particular disease firsthand. For you, who has dementia, who is it that can really get “into” your head, but you? For me, who was a caregiver, who is it, unless they have provided care to someone 24/7, who really knows what this means. I also want to send you an article I wrote about Empathy & Dignity in Caregiving that you may wish to see. It was published by the National Parkinson Foundation in their online site. You are welcome to share it. I add this with regard to your P.S. above. You are a remarkable man, Norms, and have my complete respect. Sincerely, Linda

  4. Carers UK and major businesses have set up Employers for Carers offering help to employers to retain the 1 in 7 employees who are caring for a family member. http://www.carersuk.org/professionals/employers-for-carers

  5. lynrr says:

    We need more people like Norman to work with the “champions” to raise awareness of dementia and sort out the care services. People suffering from the illness truly understand what needs to be changed. Its the difference between virtual and real. By not including “real champions” then the DOH is perpetrating the stigma that surrounds this disease. It need not be devastating for sufferers or wreck the lives of their carers. Just my humble opinion but one which has been formed through “knowing Norman”.

  6. Marla says:

    Sorry, but I do not see the comment of “wrecking a not half bad career in the process before resuming work in a much lower position in the general status hierarchy”, as being as ‘negative’ as others are perceiving it to be. The reality is that, as carers, our lives change, and our lives take a turn away from the plans and goals that we have set for ourselves. I do not see the comment as being ‘mean’ or ‘uncaring’. The comment is simply explaining that a career change was necessary, so that they could take on the responsibility of being a carer, and putting a career on hold. After taking time off to care for their loved one they now had to start over again, at a lower position, and lower salary (which, if it was in my field of expertise, I would be quite pissed to start at a smaller wage and lower position). The bottom line is that they CHOSE to be a caregiver, and thus, you really should give them credit where credit is due. This person could have easily decided that their career was more important, and thus, could have institutionalized their loved one……..but they didn’t. Please do not be so hard on other carers. We all have chosen to put our lives on hold to care for our loved ones, and, as we all know, with our daily challenges, it can be sometimes be exhausting and difficult. Please do not judge others by their words!!!!

    • lynrr says:

      Without wishing to upset anyone at all on this valuable website, I Just wanted to add that it must be borne in mind that not everyone is able to be a full time carer. And not all homes institutionalise those taken into their care. The policy makers need to take into account the realities that face us all in so many different ways, that’s the problem, there are so many big and complex issues and I guess that’s why we’re so sensitive about who is guiding the top group.

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