Stronger Collective Voice for People With Dementia (Joseph Rowntree Foundation)

[A version of this item features in Dementia: the Latest Evidence Newsletter (Royal Wolverhampton NHS Trust), Volume 3 Issue 4, November 2012].


This report from the Joseph Rowntree Foundation (JRF) summarises a one-year investigation into groups and projects involving people with dementia. The report offers potential solutions for organisations wishing to engage with people with dementia.

The one-year investigation took place under the name of the Dementia Engagement & Empowerment Project (DEEP), which has been reported briefly earlier. Research found that:

  1. There are currently few groups led by, or actively involving, people with dementia which influence services and policies.
  2. “Influencing” work includes national lobbying and meeting with government officials, local lobbying of services, media work, training and education, participating in advisory groups, awareness-raising, and speaking at events.
  3. Most of these groups perform their “influencing” work alongside peer support and social activities. They tend to be local and relatively informal.

Full Text Link


Williamson, T. (2012). A stronger collective voice for people with dementia. York: Joseph Rowntree Foundation, October 2012.

There is also an Executive Summary.

About Dementia and Elderly Care News

Dementia and Elderly Care News. Wolverhampton Medical Institute: WMI. (jh)
This entry was posted in Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Joseph Rowntree Foundation, Mental Health Foundation, National, Patient Care Pathway, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, UK, Universal Interest and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink.

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