[A version of this item features in Dementia: the Latest Evidence Newsletter (Royal Wolverhampton NHS Trust), Volume 3 Issue 4, November 2012].
This report from the Joseph Rowntree Foundation (JRF) summarises a one-year investigation into groups and projects involving people with dementia. The report offers potential solutions for organisations wishing to engage with people with dementia.
The one-year investigation took place under the name of the Dementia Engagement & Empowerment Project (DEEP), which has been reported briefly earlier. Research found that:
- There are currently few groups led by, or actively involving, people with dementia which influence services and policies.
- “Influencing” work includes national lobbying and meeting with government officials, local lobbying of services, media work, training and education, participating in advisory groups, awareness-raising, and speaking at events.
- Most of these groups perform their “influencing” work alongside peer support and social activities. They tend to be local and relatively informal.
Williamson, T. (2012). A stronger collective voice for people with dementia. York: Joseph Rowntree Foundation, October 2012.
There is also an Executive Summary.