[A version of this item features in Dementia: the Latest Evidence Newsletter (Royal Wolverhampton NHS Trust), Volume 3 Issue 4, November 2012].
The Alzheimer’s Society’s “My life until the end: dying well with dementia” report gives an overview of end of life planning and end of life care, from the perspective of people with dementia. Evidence shows that many people with dementia are not dying in the place of their choice, and that their families are often unaware of their end of life wishes; this results from a double stigma around dementia and death preventing discussions taking place.
This report discusses the importance of planning end of life care in advance. It makes recommendations on planning for end of life and the facilitation of coordinated care through to the end of life.
Kane, M. Alzheimer’s Society (2012). My life until the end : dying well with dementia. London: Alzheimer’s Society, October 2012. 48p.