The “A road less rocky: supporting people with dementia” report, from the Carers Trust, found that only 51% of carers questioned had received an opportunity to talk about their needs and the level of care they were able to offer. 56% of carers questioned received no information about medicine management and 52% were not given information on coping with incontinence.
Other common problems in support included 52% of carers having difficulties in obtaining a dementia diagnosis for the person they look after, and in getting information about legal matters (such as Lasting Power of Attorney) and money management. Many carers are ill-equipped to deal with agitation and disturbed behaviour.
82% of the carers questioned reported that caring adversely affected their ability to work.
The report identifies critical points in carers’ journeys where information and support would be most useful:
- When dementia is diagnosed.
- When the capacity of the person with dementia declines.
- When the carer needs emotional support and / or a break from caring.
- When the person with dementia loses their mobility.
- When the carer has to cope with behaviour problems.
- When the carer’s own circumstances change.
- When the person with dementia becomes incontinent.
Note: The Princess Royal Trust for Carers and Crossroads Care are now part of The Carers Trust.
Newbronner, L. Chamberlain, R. Borthwick, R. [et al] (2013). A road less rocky: supporting carers of people with dementia. London: Carers Trust, September 2013.
There is also an Executive Summary.
[A brief reference to this item features in Dementia: the Latest Evidence Newsletter, Volume 3 Issue 10, September 2013].