Supporting Carers of People with Dementia (Carers Trust)


The “A road less rocky: supporting people with dementia” report, from the Carers Trust, found that only 51% of carers questioned had received an opportunity to talk about their needs and the level of care they were able to offer. 56% of carers questioned received no information about medicine management and 52% were not given information on coping with incontinence.

Other common problems in support included 52% of carers having difficulties in obtaining a dementia diagnosis for the person they look after, and in getting information about legal matters (such as Lasting Power of Attorney) and money management. Many carers are ill-equipped to deal with agitation and disturbed behaviour.

82% of the carers questioned reported that caring adversely affected their ability to work.

The report identifies critical points in carers’ journeys where information and support would be most useful:

  1. When dementia is diagnosed.
  2. When the capacity of the person with dementia declines.
  3. When the carer needs emotional support and / or a break from caring.
  4. When the person with dementia loses their mobility.
  5. When the carer has to cope with behaviour problems.
  6. When the carer’s own circumstances change.
  7. When the person with dementia becomes incontinent.

Read more: Carers of people with dementia not receiving support they need. Carers Trust.

Note: The Princess Royal Trust for Carers and Crossroads Care are now part of The Carers Trust.

Full Text Link


Newbronner, L. Chamberlain, R. Borthwick, R. [et al] (2013). A road less rocky: supporting carers of people with dementia. London: Carers Trust, September 2013.

There is also an Executive Summary.

[A brief reference to this item features in Dementia: the Latest Evidence Newsletter, Volume 3 Issue 10, September 2013].

About Dementia and Elderly Care News

Dementia and Elderly Care News. Wolverhampton Medical Institute: WMI. (jh)
This entry was posted in Charitable Bodies, Commissioning, Community Care, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, National, Patient Care Pathway, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink.

Leave a Reply

Fill in your details below or click an icon to log in: Logo

You are commenting using your account. Log Out /  Change )

Google photo

You are commenting using your Google account. Log Out /  Change )

Twitter picture

You are commenting using your Twitter account. Log Out /  Change )

Facebook photo

You are commenting using your Facebook account. Log Out /  Change )

Connecting to %s

This site uses Akismet to reduce spam. Learn how your comment data is processed.