The “Join Dementia Research” website assists people with dementia to learn about, and become involved in, dementia research. A new enhancement to this service allows people with dementia (or their families / carers for example, acting on their behalf) to register an interest in participating in research studies. This is hoped to remove barriers to public and patient engagement in research trials, while helping researchers find suitable participants as and when required.
Functions of Join Dementia Research include:
- Finding studies matching a person’s profile.
- Connecting with researchers.
- Discovering / learning about new studies.
- Helping to find better treatments and improvements in dementia care (to help future generations).
“Join Dementia Research is a collaboration between the National Institute for Health Research (NIHR), Alzheimer’s Research UK, Alzheimer’s Society, Alzheimer Scotland and UCL Partners, and has been funded by the Department of Health and NHS England through the Small Business Research Initiative for Healthcare (SBRI) Healthcare Programme”.
Scheme launches to help people take part in dementia research. London: Department of Health / Dementia Challenge, February 24th 2015.
Possibly also of interest:
Dementia research matchmaker scheme. London: BBC Health News, February 24th 2015.
August 2019 Update
Over 20,000 research participants recruited through Join Dementia Research. [Online]: Join Dementia Research / National Institute for Health Research (NIHR), August 5th 2019.
NIHR Research Activity League Table
The NIHR Clinical Research Network (CRN) publishes the NIHR Research Activity League Table, annually.
A History of the Origins of the NIHR
Atkinson, P. Sheard, S. [and] Walley, T. (2019. ‘All the stars were aligned’? The origins of England’s National Institute for Health Research. Health Research Policy and Systems. December 4th 2019; Vol.17(1): 95.