Summary
The NHS Five Year Forward View requires more support for people with long term conditions, enabling them to manage their own health. The NHS England “Realising the Value Programme” is about putting such plans into action.
“NHS England is pleased to announce that a consortium led by NESTA and the Health Foundation in partnership with Voluntary Voices (National Voices, Regional Voices, NAVCA and CSV), the Behavioural Insights Team and Newcastle University, has been selected to take forward this work to empower patients and engage communities in their own health and care. The consortium will work collaboratively with NHS England, the Coalition for Collaborative Care and other stakeholders to deliver this programme of work”.
Reference
Realising the value: a new relationship with patients and communities. London [Online]: NHS England, March 2015.
This relates to:
Reference
Realising the Value: a new relationship with patients and communities. Leeds: NHS England, December 1st 2014.
The Realising the Value Programme involves:
- Self-management education.
- Peer support.
- Health coaching.
- Group based activities to support health and wellbeing.
- Asset based approaches in the health and wellbeing context.
It is connected to the New Care Models Programme, and local Sustainability and Transformation Plans.
Reference
The future means investing in people, patients and communities – Anu Singh. London: NHS England, May 9th 2016.
The Relevance of Prescribed DisengagementTM (Particularly in the Earlier Stages of Dementia)
Kate Swaffer has introduced the concept of Prescribed DisengagementTM to focus attention on the potentially negative aspects of a dementia diagnosis (usually unintentional, but no less damaging) in terms of the increased level of stigma and discrimination experienced by people with dementia. Prescribed DisengagementTM carries ensuing risks of disempowerment, lower self-esteem, isolation, reduced autonomy / self-efficacy and loss of self-identity. Kate Swaffer is in favour of empowering dementia patients and promoting patient voice. She has, further, made recommendations for better support services to provide rehabilitation / reablement in dementia, as a component of living well with dementia.
Reference
Swaffer, K. (2015). Dementia and Prescribed Dis-engagement. Dementia. January 2015; 14(1): 3-6.
There is a related article, touching on the pejorative influence (again predominantly unintentional) of language and medical terminology which permeates the official literature:
Reference
Swaffer, K. (2014). Dementia: stigma, language, and dementia-friendly. Dementia. November 2014; 13(6): 709-16.
See also:
Reference
Swaffer, K. (2015). The power of language. Australian Journal of Dementia Care. February 6th 2015. [Epub ahead of print].
