A Compendium of Patient Information on Parkinson’s Disease (Patient.co.uk / Parkinson’s UK / USA: Multiple)

Summary

Just in time for Parkinson’s Awareness Week 2015 (April 20th -26th 2015), here is a collection of information on Parkinson’s Disease written primarily for patients and the general public.

From Patient.co.uk (UK Independent Health Site)

Parkinson’s Disease. Leeds: Patient.co.uk / ©E M I S (Egton Medical Information Systems Ltd), October 23rd 2014 [2013].

From Parkinson’s UK (UK Charity)

Parkinson’s UK produces a wide range of information leaflets, fact sheets and guides. Here is a list of some of the most recent (presented in date order, newest first):

Resources guide for newly diagnosed people with Parkinson’s. London: Parkinson’s UK, March 2015. [Reference No. B023]. (With the sub-title “A guide to our information resources”, this document maps other Parkinson’s UK guides and information sheets in multiple formats and languages).

Occupational therapy and Parkinson’s. London: Parkinson’s UK, March 2015. [Reference No. FS97].

Anxiety and Parkinson’s. London: Parkinson’s UK, March 2015. [Reference No. FS96].

Muscle cramps and dystonia. London: Parkinson’s UK, October 2014. [Reference No. FS43].

Low blood pressure and Parkinson’s. London: Parkinson’s UK, September 2014. [Reference No. FS50].

Restless Legs Syndrome and Parkinson’s. London: Parkinson’s UK, September 2014. [Reference No. FS83].

Parkinsonism. London: Parkinson’s UK, September 2014. [Reference No. FS83].

Talking to Children About Parkinson’s. London: Parkinson’s UK, August 2014. [Reference No. FS66].

Apomorphine. London: Parkinson’s UK, July 2014. [Reference No. FS26].

Diagnosing Parkinson’s. London: Parkinson’s UK, July 2014. [Reference No. FS48].

Talking to people about Parkinson’s. London: Parkinson’s UK, June 2014. [Reference No. FS88].

Wearing off and involuntary movements. London: Parkinson’s UK, June 2014. [Reference No. FS73].

Physiotherapy and Parkinson’s. London: Parkinson’s UK, May 2014. [Reference No. FS42].

International travel and Parkinson’s. London: Parkinson’s UK, April 2014. [Reference No. FS28].

Using computers and the internet. London: Parkinson’s UK, April 2014. [Reference No. FS60].

Depression and Parkinson’s. London: Parkinson’s UK, April 2014. [Reference No. FS56].

Pain in Parkinson’s. London: Parkinson’s UK, March 2014. [Reference No. FS37].

Foot care and Parkinson’s. London: Parkinson’s UK, March 2014. [Reference No. FS51].

Dental and oral health in Parkinson’s. London: Parkinson’s UK, February 2014. [Reference No. FS98].

Fatigue and Parkinson’s. London: Parkinson’s UK, February 2014. [Reference No. FS72].

The carer’s guide. London: Parkinson’s UK, January 2014. [Reference No. B071].

Falls and Parkinson’s. London: Parkinson’s UK, October 2013. [Reference No. FS39].

Eating, swallowing and saliva control in Parkinson’s. London: Parkinson’s UK, October 2013. [Reference No. FS22].

Impulsive and compulsive behaviour in Parkinson’s. London: Parkinson’s UK, August 2013. [Reference No. FS77].

Hallucinations and delusions in Parkinson’s. London: Parkinson’s UK, June 2013. [Reference No. FS11].

Freezing in Parkinson’s. London: Parkinson’s UK, April 2013. [Reference No. FS63].

Eyes and Parkinson’s. London: Parkinson’s UK, April 2013. [Reference No. FS27].

Tremor and Parkinson’s. London: Parkinson’s UK, April 2013. [Reference No. FS94].

Mild memory problems. London: Parkinson’s UK, March 2013. [Reference No. FS95].

Dementia with Lewy bodies. London: Parkinson’s UK, March 2013. [Reference No. FS33].

Drug-induced Parkinsonism. London: Parkinson’s UK, March 2013. [Reference No. FS38].

Parkinson’s dementia. London: Parkinson’s UK, March 2013. [Reference No. FS58].

Skin and sweating problems in Parkinson’s. London: Parkinson’s UK, January 2013. [Reference No. FS40].

Juvenile Parkinson’s. London: Parkinson’s UK, November 2012. [Reference No. FS85].

Communication and Parkinson’s. London: Parkinson’s UK, October 2012. [Reference No. FS06].

Gene therapy for Parkinson’s. London: Parkinson’s UK, August 2012. [Reference No. FS49].

Stem cell research and Parkinson’s. London: Parkinson’s UK, June 2012. [Reference No. FS78].

Inherited Parkinson’s and genetic testing. London: Parkinson’s UK, June 2012. [Reference No. FS86].

Pregnancy and Parkinson’s. London: Parkinson’s UK, November 2011. [Reference No. FS19].

Best practice guideline for dietitians on the management of Parkinson’s. London: Parkinson’s UK, March 2011.

Keeping a Diary: For Carers. London: Parkinson’s UK, July 2010. [Reference No. FS70].

Keeping a Diary: People with Parkinson’s. London: Parkinson’s UK, July 2010. [Reference No. FS69].

Antioxidants and Parkinson’s. London: Parkinson’s UK, May 2010. [Reference No. FS67]. (Note: External non-Parkinson’s UK source, currently).

Co-enzyme Q10. London: Parkinson’s UK, May 2010. [Reference No. FS74]. (Note: External non-Parkinson’s UK source, currently).

Conductive Education and Parkinson’s. London: Parkinson’s UK, May 2010. [Reference No. FS41].

Equipment and Disability Aids. London: Parkinson’s UK, May 2010. [Reference No. FS59].

Webber, R. [and] Ramaswamy, B. (2010). Keeping Moving: Exercise and Parkinson’s. London: Parkinson’s UK, May 2010.

Living Alone with Parkinson’s. London: Parkinson’s UK, December 2009. [Reference No. FS29].

International Resources (United States)

Parkinson’s Disease: Hope Through Research. [Online]: National Institute of Neurological Disorders and Stroke (NINDS).

Depression and Parkinson’s Disease. [Online]: US Department of Health and Human Services / National Institute of Mental Health, 2011.

Parkinson’s Disease. [Online]: Mayo Clinic.

Parkinson’s Disease. [Online]: Massachusetts General Hospital.

Some other information resources, in the USA, of potential interest:

  1. Michael J. Fox Foundation for Parkinson’s Research. [Online].
  2. Parkinson’s Disease Foundation. [Online].
  3. National Parkinson’s Foundation. [Online].
  4. American Parkinson Disease Association, Inc. [Online].
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Dementia and Elderly Care News. Wolverhampton Medical Institute: WMI. (jh)
This entry was posted in Charitable Bodies, Depression, Diagnosis, Falls, Falls Prevention, For Carers (mostly), For Nurses and Therapists (mostly), In the News, International, Management of Condition, Mental Health, Non-Pharmacological Treatments, Pain, Parkinson's Disease, Patient Information, Person-Centred Care, Pharmacological Treatments, Practical Advice, Quick Insights, UK, Universal Interest and tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , . Bookmark the permalink.

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