A new film is available online from the Social Care Institute for Excellence (SCIE) via SCIE’s Dementia Gateway. It offers an attempt to simulate the subjective experience of how it feels to live with dementia, thereby allowing viewers to better appreciate the individual’s perspective. The film provides insights into confusion, the inability to cope with or communicate personal frustrations, and the growing agitation which may arise; all from the insider’s perspective.
This film is recommended by SCIE as a valuable empathic training opportunity for people who work with, support or care for people with dementia.
Take-home messages from SCIE include:
- People with dementia may interpret situations and things that happen differently to other people.
- People with dementia may have unanticipated periods of confusion and periods of lucidity.
- People with dementia may sometimes not recognise people or places they knew well.
- People with dementia may become frustrated with themselves and people who are incapable of understanding their viewpoint.
- People with dementia may not be able to articulate or communicate their anxieties, fears and frustrations.
- People with dementia live with varying degrees unpredictability and uncertainty (for example regarding time and place).
Dementia from the inside. London [Online]: Social Care Institute for Excellence (SCIE), June 2015.