Alzheimer’s Research UK commissioned Opinion Leader to investigate all aspects of the impact of caring for a relative with dementia.
“Opinion Leader worked with families to produce a rich description of individual experiences, by conducting a series of four ethnographic studies of family carers for people with dementia”. (p.5)
Topics covered include changing family relationships, increased social isolation, coping with behaviour change, the influence on carers’ psychological and physical health, and the many hidden financial costs involved.
Researchers identified only a limited desire to understand how the disease would affect loved ones in the future.
Dementia in the family: the impact on carers. Cambridge: Alzheimer’s Research UK, December 14th 2015.
“The selflessness shown by the carers we spoke to is impossible to put into words… ”. (p.35)
Possibly also of interest:
‘I do my crying in the shower’. London: BBC Health News, December 15th 2015.