The controversial care.data data-sharing project has been scrapped, after a delay of two years. The Department of Health has conducted a public consultation, in addition to two independent reviews from the National Data Guardian for Health and Care (NDG) and the CQC. There is to be further consultation concerning patients’ options for consent / opting-out of sharing their data, and about ten security standards proposed by Dame Fiona Caldicott (the National Data Guardian) for NHS organisations.
“The care.data project, led NHS England, together with the Health and Social Care Information Centre, was designed to bring health and social care information from different settings together to see what was working well and what could be done better”.
Mundasad, S. (2016). NHS data-sharing project scrapped. London: BBC Health News, July 6th 2016.
This relates to:
Review of health and care data security and consent. London: Department of Health and George Freeman MP, July 6th 2016.