Summary
The following article explores the lifeworlds (i.e. the subjective experiences, stresses and adaptive coping strategies) of spouses after their partners have been diagnosed with Alzheimer’s Disease.
Reference
Bergman, M. Graff, C. Eriksdotter, M. [et al] (2016). The meaning of living close to a person with Alzheimer disease. Medicine, Health Care and Philosophy. September 2016; 19(3): 341-9.
Possibly also of interest:
Reference
Reed, J. (2018). ‘My husband can no longer remember my name’. London: BBC Health News / BBC’s Victoria Derbyshire Programme, March 1st 2018.
Similar, regarding young onset dementia / early-onset Alzheimer’s (and inadequacies in social care funding aka. the dementia tax):
Reference
Bell, C. (2018). ‘My mum thinks I’m an MP, she has early-onset Alzheimer’s’. London: BBC Health News, June 11th 2018.
Further personal experiences and comments on the inequity and unfairness of means tested social care:
Reference
Holt, A. (2014). ‘It’s like Michael walking into a fog’. London: BBC Health News, June 26th 2018.
Further “expert by experience” perspectives:
Reference
EastEnders star Barbara Windsor diagnosed with Alzheimer’s. London: BBC Health News, May 10th 2018.
More on “going public”:
Reference
Alzheimer’s: How much should you reveal? London: BBC Health News, May 11th 2018.
Signs and symptoms of early dementia:
Reference
Five ways to spot if someone has Alzheimer’s. London: BBC Health News, May 10th 2018.
Further, NHS England’s Valentine’s Day advice to “check your mate”:
Reference
Barbara Windsor’s husband issues Valentine’s Day call for people to check loved ones for dementia. [Online]: NHS England, February 14th 2019.
National Dementia Ambassadors
Dame Barbara Windsor, and her husband Scott Mitchell, appointed as Alzheimer’s Society Ambassadors:
Reference
Alzheimer’s Society appoints Dame Barbara Windsor and husband Scott Mitchell Ambassadors. [Online]: Alzheimer’s Society, August 6th 2019.
See further:
Reference
Dame Barbara Windsor urges Johnson to ‘sort out’ dementia care. London: BBC Health News, August 6th 2019.
Further Personal Experiences
Possibly also of interest:
Reference
Rosney, D. (2018). ‘Dad’s dementia broke me and I find him hard to love’. London: BBC Health News / BBC Radio 1 Newsbeat, November 29th 2018.
Experiences of Dementia in the Southern Asian Community
It is reported that an unhelpful combination of social stigma, language barriers and cultural differences may be stopping some of the UK’s South Asian community from seeking help in coping with dementia:
Reference
Datar, R. (2019). ‘What my dad’s dementia taught me’. London: BBC Health News / BBC’s Victoria Derbyshire Programme, March 1st 2019.
