Lifeworld Perspectives on the Experience of Living Close to a Person With Dementia (Medicine, Health Care and Philosophy / BBC News)

Summary

The following article explores the lifeworlds (i.e. the subjective experiences, stresses and adaptive coping strategies) of spouses after their partners have been diagnosed with Alzheimer’s Disease.

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Reference

Bergman, M. Graff, C. Eriksdotter, M. [et al] (2016). The meaning of living close to a person with Alzheimer disease. Medicine, Health Care and Philosophy. September 2016; 19(3): 341-9.

Possibly also of interest:

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Reference

Reed, J. (2018). ‘My husband can no longer remember my name’. London: BBC Health News / BBC’s Victoria Derbyshire Programme, March 1^st 2018.

Similar, regarding young onset dementia / early-onset Alzheimer’s (and inadequacies in social care funding aka. the dementia tax):

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Reference

Bell, C. (2018). ‘My mum thinks I’m an MP, she has early-onset Alzheimer’s’. London: BBC Health News, June 11^th 2018.

Further personal experiences and comments on the inequity and unfairness of means tested social care:

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Holt, A. (2014). ‘It’s like Michael walking into a fog’. London: BBC Health News, June 26^th 2018.

Further “expert by experience” perspectives:

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EastEnders star Barbara Windsor diagnosed with Alzheimer’s. London: BBC Health News, May 10^th 2018.

More on “going public”:

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Alzheimer’s: How much should you reveal? London: BBC Health News, May 11^th 2018.

Signs and symptoms of early dementia:

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Five ways to spot if someone has Alzheimer’s. London: BBC Health News, May 10^th 2018.

Further, NHS England’s Valentine’s Day advice to “check your mate”:

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Reference

Barbara Windsor’s husband issues Valentine’s Day call for people to check loved ones for dementia. [Online]: NHS England, February 14^th 2019.

Further Personal Experiences

Possibly also of interest:

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Reference

Rosney, D. (2018). ‘Dad’s dementia broke me and I find him hard to love’. London: BBC Health News / BBC Radio 1 Newsbeat, November 29^th 2018.

Experiences of Dementia in the Southern Asian Community

It is reported that an unhelpful combination of social stigma, language barriers and cultural differences may be stopping some of the UK’s South Asian community from seeking help in coping with dementia:

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Reference

Datar, R. (2019). ‘What my dad’s dementia taught me’. London: BBC Health News / BBC’s Victoria Derbyshire Programme, March 1^st 2019.

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