Recent Resources on Carers and Caring (Compiled 2014)


The following collection of articles was assembled during 2014 as a contribution to a bulletin intended to be produced specially on behalf of the West Midlands Current Awareness Group.

The Bibliographic Citations

Helvik, AS. Engedal, K. Benth, JS. [et al] (2014). A 52 month follow-up of functional decline in nursing home residents: degree of dementia contributes. BMC Geriatrics. April 10th 2014; 14(1): 45. Full Text Link.

Tan, EC. Visvanathan, R. Hilmer, SN. [et al] (2014). Analgesic use, pain and daytime sedation in people with and without dementia in aged care facilities: a cross-sectional, multisite, epidemiological study protocol. BMJ Open. June 19th 2014; 4(6): e005757. Full Text Link.

Moens, K. Higginson, IJ. Harding, R.; EURO IMPACT. (2014). Are there differences in the prevalence of palliative care-related problems in people living with advanced cancer and eight non-cancer conditions? a systematic review. Journal of Pain and Symptom Management. May 3rd 2014. [Epub ahead of print]. Review. Full Text Link.

Reisberg, B. Monteiro, I. Torossian, C. [et al] (2014). The BEHAVE-AD Assessment System: a perspective, a commentary on new findings, and a historical review. Dementia and Geriatric Cognitive Disorders. 2014; 38(1-2): 89-146. Full Text Link.

Williams, V. Boyle, G. Jepson, M. [et al] (2014). Best interests decisions: professional practices in health and social care. Health and Social Care in the Community. January 2014; 22(1): 78-86. Full Text Link.

Pezzati, R. Molteni, V. Bani, M. [et al] (2014). Can Doll therapy preserve or promote attachment in people with cognitive, behavioral, and emotional problems? A pilot study in institutionalized patients with dementia. Frontiers in Psychology. April 21st 2014; 5: 342. Full Text Link.

Iavarone, A. Ziello, AR. Pastore, F. [et al] (2014). Caregiver burden and coping strategies in caregivers of patients with Alzheimer’s Disease. Neuropsychiatric Disease and Treatment. July 29th 2014; 10: 1407-13. Full Text Link.

Khanassov, V. Vedel, I. Pluye, P. (2014). Case management for dementia in primary health care: a systematic mixed studies review based on the diffusion of innovation model. Clinical Interventions in Aging. June 11th 2014; 9: 915-28. Full Text Link.

Vu, M. Hogan, DB. Patten, SB. [et al] (2014). A comprehensive profile of the sociodemographic, psychosocial and health characteristics of Ontario home care clients with dementia. Chronic Diseases and Injuries in Canada. July 2014; 34(2-3): 132-44. English, French.

Bass, DM. Judge, KS. Snow, AL. [et al] (2014). A controlled trial of Partners in Dementia Care: veteran outcomes after six and twelve months. Alzheimer’s Research & Therapy. February 28th 2014; 6(1): 9. Full Text Link.

Singh, P. Hussain, R. Khan, A. [et al] (2014). Irwin L, Foskey R. Dementia care: intersecting informal family care and formal care systems. Journal of Aging Research. 2014: 486521. Full Text Link.

Reuther, S. Holle, D. Buscher, I. [et al] (2014). Effect evaluation of two types of dementia-specific case conferences in German nursing homes (FallDem) using a stepped-wedge design: study protocol for a randomized controlled trial. Trials. August 12th 2014; 15(1): 319. Full Text Link.

Watne, LO. Torbergsen, AC. Conroy, S. [et al] (2014). The effect of a pre- and postoperative orthogeriatric service on cognitive function in patients with hip fracture: randomized controlled trial (Oslo Orthogeriatric Trial). BMC Medicine. April 15th 2014; 12: 63. Full Text Link.

Goodman, C. Gordon, AL. Martin, F. [et al] (2014). Effective health care for older people resident in care homes: the optimal study protocol for realist review. Systematic Reviews. May 24th 2014; 3(1): 49. Full Text Link.

Kwok, T. Au, A. Wong, B. [et al] (2014). Effectiveness of online cognitive behavioral therapy on family caregivers of people with dementia. Clinical Interventions in Aging. April 11th 2014; 9: 631-6. Full Text Link.

Razani, J. Corona, R. Quilici, J. [et al] (2014). The effects of declining functional abilities in dementia patients and increases psychological distress on caregiver burden over a one-year period. Clinical Gerontologist. 2014; 37(3): 235-252. Full Text Link.

Davies, SL. Goodman, C. Manthorpe, J. [et al] (2014). Enabling research in care homes: an evaluation of a national network of research ready care homes. BMC Medical Research Methodology. April 5th 2014; 14: 47. Full Text Link.

Mayston, R. Guerra, M. Huang, Y. [et al] (2014). Exploring the economic and social effects of care dependence in later life: protocol for the 10/66 research group INDEP study. SpringerPlus. July 28th 2014; 3: 379. Full Text Link.

Kang, HS. Myung, W. Na, DL. [et al] (2014). Factors associated with caregiver burden in patients with Alzheimer’s Disease. Psychiatry Investigation. April 2014; 11(2): 152-9. Full Text Link.

Poole, M. Bond, J. Emmett, C. [et al] (2014). Going home? An ethnographic study of assessment of capacity and best interests in people with dementia being discharged from hospital. BMC Geriatrics. April 23rd 2014; 14: 56. Full Text Link.

Gridley, K. Brooks, J. Glendinning, C. (2014). Good practice in social care for disabled adults and older people with severe and complex needs: evidence from a scoping review. Health and Social Care in the Community. May 2014; 22(3): 234-48. Full Text Link.

Zwijsen, SA. Smalbrugge, M. Eefsting, JA. [et al] (2014). Gerritsen DL, Hertogh CM, Pot AM. Grip on challenging behavior: process evaluation of the implementation of a care program. Trials. July 25th 2014; 15(1): 302. Full Text Link.

Aguirre, E. Spector, A. Orrell, M. (2014). Guidelines for adapting cognitive stimulation therapy to other cultures. Clinical Interventions in Aging. June 26th 2014; 9 :1003-7. Full Text Link.

Vollmar, HC. Goluchowicz, K. Beckert, B. [et al] (2014). Health care for people with dementia in 2030: results of a multidisciplinary scenario process. Health Policy. February 2014, 114(2-3): 254-62.

Mathews, SB. Arnold, SE. Epperson, CN. (2014). Hospitalization and cognitive decline: can the nature of the relationship be deciphered? American Journal of Geriatric Psychiatry. May 2014; 22(5): 465-80. Full Text Link.

Krumm, N. Larkin, P. Connolly, M. [et al] (2014). Improving dementia care in nursing homes: experiences with a palliative care symptom-assessment tool (MIDOS). International Journal of Palliative Nursing. April 2014; 20(4): 187-92.

Regan, A. Tapley, M. Jolley, D. (2014). Improving end of life care for people with dementia. Nursing Standard. July 30th 2014; 28(48): 37-43.

Handley, A. (2014). Investing in wellbeing. Nursing Standard. January 29th – February 4th 2014; 28(22): 20-1.

Zweig, YR. Galvin, JE. (2014). Lewy body dementia: the impact on patients and caregivers. Alzheimer’s Research & Therapy. April 25th 2014 ;6(2): 21. Full Text Link.

Strivens, E. Craig, D. (2014). Managing dementia-related cognitive decline in patients and their caregivers. Australian Family Physician. April 2014; 43(4): 170-4. Full Text Link.

James, I. Blomberg, K. Kihlgren, A. (2014). A meaningful daily life in nursing homes – a place of shelter and a space of freedom: a participatory appreciative action reflection study. BMC Nursing. July 10th 2014; 13: 19. Full Text Link.

Ask, H. Langballe, EM. Holmen, J. [et al] (2014). Mental health and wellbeing in spouses of persons with dementia: the Nord-Trøndelag Health Study. BMC Public Health. May 1st 2014; 14: 413. Full Text Link.

Caljouw, MA. Cools, HJ. Gussekloo, J. (2014). Natural course of care dependency in residents of long-term care facilities: prospective follow-up study. BMC Geriatrics. May 22nd 2014; 14: 67. Full Text Link.

Odbehr, L. Kvigne, K. Hauge, S. [et al] (2014). Nurses’ and care workers’ experiences of spiritual needs in residents with dementia in nursing homes: a qualitative study. BMC Nursing. April 15th 2014; 13: 12. Full Text Link.

Fortinsky, RH. Downs, M. (2014). Optimizing person-centered transitions in the dementia journey: a comparison of national dementia strategies. Health Affairs. April 2014; 33(4): 566-73.

Poland, F. Mapes, S. Pinnock, H. [et al] (2014). Perspectives of carers on medication management in dementia: lessons from collaboratively developing a research proposal. BMC Research Notes. July 21st 2014; 7: 463. Full Text Link.

Mayo-Wilson, E. Grant, S. [and] Burton, J. [et al] (2014). Preventive home visits for mortality, morbidity, and institutionalization in older adults: a systematic review and meta-analysis. PLoS One. March 12th 2014; 9(3): e89257. eCollection 2014. Full Text Link.

Elliott, M. Harrington, J. Moore, K. [et al] (2014). A protocol for an exploratory phase I mixed-methods study of enhanced integrated care for care home residents with advanced dementia: the Compassion Intervention. BMJ Open. June 17th 2014; 4(6): e005661. Full Text Link.

Galvin, JE. Tolea, MI. George, N. [et al] (2014). Public-private partnerships improve health outcomes in individuals with early stage Alzheimer’s Disease. Clinical Interventions in Aging. April 10th 2014; 9: 621-30. Full Text Link.

Davies, N. Maio, L. Rait, G. [et al] (2014). Quality end-of-life care for dementia: what have family carers told us so far? A narrative synthesis. Palliative Medicine. March 13th 2014; 28(7): 919-930. [Epub ahead of print]. Review. Full Text Link.

Guarnieri, B. Musicco, M. Caffarra, P. [et al] (2014). Recommendations of the Sleep Study Group of the Italian Dementia Research Association (SINDem) on clinical assessment and management of sleep disorders in individuals with mild cognitive impairment and dementia: a clinical review. Neurological Sciences. July 19th 2014. [Epub ahead of print]. Full Text Link.

Davies, N. Iliffe, S. (2014). Response: Compassion in healthcare: lessons from a qualitative study of the end-of-life care of people with dementia. Journal of the Royal Society of Medicine. April 2014; 107(4): 134.

Wickson-Griffiths, A. Kaasalainen, S. Ploeg, J. [et al] (2014). A review of advance care planning programs in long-term care homes: are they dementia friendly? Nursing Research and Practice. 2014; 875897. Full Text Link.

Phillipson, L. Jones, SC. Magee, C. (2014). A review of the factors associated with the non-use of respite services by carers of people with dementia: implications for policy and practice. Health and Social Care in the Community. January 2014; 22(1): 1-12. Full Text Link.

Orpin, P. Stirling, C. Hetherington, S. [et al] (2014). Rural dementia carers: formal and informal sources of support. Ageing and Society. February 2014; 34(2): 185-208. Full Text Link.

Dal Bello-Haas, VP. Cammer, A. Morgan, D. (2014). Rural and remote dementia care challenges and needs: perspectives of formal and informal care providers residing in Saskatchewan, Canada. Rural and Remote Health. July – September 2014; 14(3): 2747. Full Text Link.

van Dalen, MT. Suijker, JJ. [and] MacNeil-Vroomen, J. [et al] (2014). Self-report of healthcare utilization among community-dwelling older persons: a prospective cohort study. PLoS One. April 7th 2014; 9(4): e93372. Full Text Link.

Lykkeslet, E. Gjengedal, E. Skrondal, T. [et al] (2014). Sensory stimulation. A way of creating mutual relations in dementia care. International Journal of Qualitative Studies on Health and Well-being. July 8th 2014; 9: 23888. Full Text Link.

Sommerlad, A. Manela, M. Cooper, C. [et al] (2014). START (STrAtegies for RelaTives) coping strategy for family carers of adults with dementia: qualitative study of participants’ views about the intervention. BMJ Open. June 4th 2014; 4(6): e005273. Full Text Link.

Gresham, M. Tsang, RS. Heffernan, M. [et al] (2014). Study protocol of the Going to Stay at Home program: evaluation of a residential carer training program to reduce dementia carer distress and burden. Springerplus. July 1st 2014; 3: 330. Full Text Link.

Livingston, G. Kelly, L. Lewis-Holmes, E. [et al]. (2014). A systematic review of the clinical effectiveness and cost-effectiveness of sensory, psychological and behavioural interventions for managing agitation in older adults with dementia. Health Technology Assessment. June 2014; 18(39): 1-226. Full Text Link.

Boots, LM. de Vugt, ME. [and] van Knippenberg, RJ. [et al] (2014). A systematic review of Internet-based supportive interventions for caregivers of patients with dementia. International Journal of Geriatric Psychiatry. April 2014; 29(4): 331-44. See also Summary / Appraisal.

Bradley, P. Akehurst, R. Ballard, C. [et al] (2014). Taking stock: A multistakeholder perspective on improving the delivery of care and the development of treatments for Alzheimer’s disease. Alzheimer’s and Dementia: the Journal of the Alzheimer’s Association. April 18th 2014. [Epub ahead of print]. Full Text Link.

Van Mierlo, LD. Meiland, FJ. Van Hout, HP. [et al] (2014). Towards personalized integrated dementia care: a qualitative study into the implementation of different models of case management. BMC Geriatrics. July 8th 2014; 14: 84. Full Text Link.

Milne, H. van der Pol, M. [and] McCloughan, L. [et al] (2014). The use of global positional satellite location in dementia: a feasibility study for a randomised controlled trial. BMC Psychiatry. May 30th 2014; 14: 160. Full Text Link.

Perry, J. Bell, F. Shaw, T. [et al] (2014). The use of PDSA methodology to evaluate and optimise an inner city memory clinic: a quality improvement project. BMC Geriatrics. January 15th 2014; 14: 4. Full Text Link.

Tedim Cruz, V. Pais, J. Alves, I. [et al] (2014). Web-based cognitive training: patient adherence and intensity of treatment in an outpatient memory clinic. Journal of Medical Internet Research. May 7th 2014; 16(5): e122. Full Text Link.


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