Experiences of the Challenges Faced by People Living With Dementia in the UK (Alzheimer’s Society)

Summary

The following report covers results from the latest Alzheimer’s Society’s survey of the views and experiences of 966 people with dementia, 500 unpaid carers and 2,356 adults aged 16-75 in the United Kingdom. The stark costs of the “dementia tax” are exposed.

Full Text Link

Reference

Impossible cost: dementia care bill would take 125 years to save for. [Online]: Alzheimer’s Society, May 11th 2017.

This relates to:

Full Text Link

Reference

Carter, D. [and] Rigby, A. (2017). Turning Up the Volume: unheard voices of people with dementia. A groundbreaking look at the real challenge of living with dementia in the UK today. London: Alzheimer’s Society, May 2017.

Section headings comprise:

  • Turning Up the Volume.
  • Key statistics.
  • Chapter 1: The challenge of living with dementia today.
    • Fear of the unknown.
    • A disrupted world.
    • Who pays the price?
  • Chapter 2: The Dementia Statements.
  • Chapter 3: Delivering a new deal for people with dementia.
  • Appendix 1: Methodology.
  • References.
Posted in Alzheimer's Society, Charitable Bodies, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, National, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Separation of Elderly Couples Condemned as Inhuman and Potentially Fatal (BBC News)

Summary

The involuntary separation of elderly couples, when one or both parties moves into a care home, should cease according to Sir James Munby (Family Judge). Social workers have been strongly advised to apply a “common decency” test in these circumstances and strive harder to keep couples together in shared accommodation, instead of following rules and regulations blindly.

Full Text Link

Reference

Judge criticises ‘inhuman’ separation of elderly couples. London: BBC Health News, May 10th 2017.

Posted in BBC News, Commissioning, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, Mental Health, National, Person-Centred Care, Personalisation, Quick Insights, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , | Leave a comment

Questioning the Disproportionate Flood of Publications Praising the Benefits of Early Detection: Too Much of a Good Thing? (BMJ)

Summary

A brief Norwegian review has highlighted an unbalanced surge in publications about the benefits of the earlier detection of diseases (which are typically taken unquestioningly as a “given”). The authors allege that articles discussing the benefits of early detection appear to occur twice as often as those mentioning the potential harms.

“The damage of the surge is unknown. We do not fully know the benefits and harms of early detection, in terms of lives saved and avoided suffering, increased health anxiety, more disease (overdiagnosis, medicalisation), and unnecessary and harmful treatment”.

Full Text Link (Note: This article may require a suitable Athens password, a journal subscription or payment for access).

Reference

Hofmann, B [and] Skolbekken, J-A. (2017). Surge in publications on early detection. British Medical Journal (BMJ). May 8th 2017; 356: j2102.

Posted in Acute Hospitals, Community Care, Diagnosis, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, International, Person-Centred Care, Quick Insights, Statistics, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Cochrane Review of Music Therapy for Emotional Wellbeing and/or BPSD Reduction (Cochrane Database)

Summary

A high-powered review has been conducted to assess the effectiveness of music-based interventions (“music therapy”), involving at least five sessions, for improving the emotional well-being of people with dementia. Outcomes investigated included alterations in quality of life, mood disturbance, behavioural problems, aspects of social behaviour, and cognition following the therapy.

The researchers were unable to draw many firm conclusions.

“Providing people with dementia with at least five sessions of a music-based therapeutic intervention probably reduces depressive symptoms but has little or no effect on agitation or aggression. There may also be little or no effect on emotional well-being or quality of life, overall behavioural problems and cognition. We are uncertain about effects on anxiety or social behaviour, and about any long-term effects”.

As often happens, this Cochrane Review points to the need for more well-conducted research, reminding the reader of the high level of vigilance required to minimise risks of bias when performing, or interpreting, primary research projects investigating non-pharmacological interventions.

Full Text Link

Reference

van der Steen, JT. van Soest-Poortvliet, MC. [and] van der Wouden, JC. [et al] (2017). Music-based therapeutic interventions for people with dementia. Cochrane Database of Systematic Reviews. May 2nd 2017; 5: CD003477. [Epub ahead of print].

There is also an Executive Summary.

Posted in Community Care, Depression, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), International, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Statistics on the Baby Boomer Generation’s Problem Drinking (BBC News / ONS)

Summary

The latest Office for National Statistics lifestyle survey indicates that although alcohol consumption is declining in the UK generally, rates of drinking remain high among some age groups.

Full Text Link

Reference

Triggle, N. (2017). Are Britons falling out of love with booze? London: BBC Health News, May 3rd 2017.

This relates to:

Full Text Link

Reference

Adult drinking habits in Great Britain: 2005 to 2016. London: Office for National Statistics, May 3rd 2017.

Posted in BBC News, Community Care, For Nurses and Therapists (mostly), For Researchers (mostly), In the News, Mental Health, National, Quick Insights, Statistics, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Updated Compendium of Patient Information on Parkinson’s Disease (Michael J. Fox Foundation / Parkinson’s UK)

Summary

It is two years since the previous version of this collection, and some significant new patient guides have come to light, from both the USA and the UK.

The Michael J. Fox Foundation for Parkinson’s Research offers an interesting comprehensive introduction:

Full Text Link

Reference

Parkinson’s 360º: Real Talk for Patients and Families. USA: The Michael J. Fox Foundation for Parkinson’s Research, December 2016.

In addition to the online book there is a Parkinson’s 360 multimedia resource website with short films.

Topic-Centred Guides From Parkinson’s UK (UK Charity)

Parkinson’s UK continues to produce (and update) a wide range of information leaflets, fact sheets and guides. These guides were identified using NHS Evidence.

Local group finance guide: a guide for all volunteers with responsibility for local group financial activity. London: Parkinson’s UK, March 2017.

Introduction to taking part in research leaflet. London: Parkinson’s UK, January 2017.

Diet and Parkinson’s. London: Parkinson’s UK, July 2016. [Reference No. B065].

Looking after your bladder and bowels when you have Parkinson’s. London: Parkinson’s UK, July 2016. [Reference No. B060].

Using computers and the internet. London: Parkinson’s UK, July 2016. [Reference No. FS60].

Tremor and Parkinson’s. London: Parkinson’s UK, July 2016.  [Reference No. FS94].

Carer’s Allowance. London: Parkinson’s UK, May 2016.  [Reference No. WB08].

Drug treatments for Parkinson’s. London: Parkinson’s UK, May 2016.  [Reference No. B013].

Further details to follow…

Posted in Charitable Bodies, Diagnosis, For Carers (mostly), For Nurses and Therapists (mostly), International, Management of Condition, Non-Pharmacological Treatments, Parkinson's Disease, Patient Information, Person-Centred Care, Personalisation, Pharmacological Treatments, Practical Advice, Quick Insights, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment