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Tag Archives: Barriers to Self-Management for People with Dementia
A Model for Enhancing Independence and Self-Management for People Living With Dementia (JGCR)
Summary An article from Japan proposes a model for self-management support, entitled “Self-Management of Autonomous Interdependent Life Empowerment (SMILE)”. Five factors for helping to preserve social function include: A focus on individuals’ retained functions and strengths, rather than their deficits. … Continue reading →
Posted in Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Universal Interest
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Tagged Ageing Population, Anosognosia, Autonomous Decision Making, Autonomous Interdependence, Autonomous Interdependent Life Empowerment, Autonomy and Choice, Autonomy and Self-Determination, Barriers to Self-Management for People with Dementia, Co-Beneficial Relationships, Communication Support, Decision-Making Capacity, Declining Social Cognition, Deterioration in Social Cognition, Easing Decision-Making, Empowerment, Empowerment and Dementia, Empowerment and Support, Encouraging Independence and Social Interaction, Functional Independence of Older Adults, Gratitude, Gratitude and Appreciation, Habituation of Gratitude, Health Wellbeing and Independence, Healthy Ageing, Independence, Independence and Relationships, Independence and Wellbeing, Independence in Older Adults, Information Flow in Alzheimer’s Disease, International Classification of Functioning Disability and Participation, Japan, Journal of Geriatric Care and Research (JGCR), Maintaining Good Relationships With Others, Maintaining Independence, Maintaining Relationships, Metacognition and Perspective-Taking in Alzheimer’s Disease, National Center for Geriatrics and Gerontology (Japan), Ottawa Charter for Health Promotion (WHO), Patient Empowerment, Positive Relationships, Pragmatic Language, Progressive Theory of Mind Decay, Reablement and Rehabilitation, Reciprocal Relationships, Recovery and Rehabilitation, Regaining Independence, Rehabilitation, Respect for Autonomy, Self Care For Life, Self-Care, Self-Management, Self-Management in Early Stage Dementia, Self-Management of Autonomous Interdependent Life Empowerment (SMILE), Self-Management Support, Services Maximising Independence, Setting Goals for Rehabilitation, Shared Decision-Making, SMILE Model for Person-Centred Communication Support, Social Cognitive Deficits, Social Cognitive Deterioration, Social Relationships, Social Reserve, Strength-Based Conversations, Strengths-Based Approaches to Care, Supporting Decision-Making, Supporting Self-Care, Supporting the Independence of People With Dementia, Supporting Wellbeing Resilience and Independence, Supportive Relationships, Supportive Social Relationships, Sustaining Relationships, Theory of Mind, Theory of Mind and Social Reserve, User Empowerment
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A Framework of Promising Interventions for Improving the Support of People Living With Dementia (Age UK)
Summary An Age UK report investigates a variety of interventions which may be of assistance in the support of people with dementia and their families / carers. Case studies of services and projects designed to support wellbeing / living well … Continue reading →
Posted in Age UK, Alzheimer's Society, Assistive Technology, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Systematic Reviews, Telecare, UK, Universal Interest
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Tagged Accessible Transport, Active Daily Lives, Age UK Camden, Age UK Norfolk, Age UK South Staffordshire, Age-Friendly Environments, Alternatives to Hospital for People with Dementia, Alzheimer Scotland, Assistive Technology Supporting Independence of People With Dementia, Barriers to Self-Management for People with Dementia, Barriers: Discrimination, Befriending, Befriending Interventions, Befriending Services, Better Care for Older Patients With Dementia, Better Policies for People with Dementia, Blackburn With Darwen Connect, BUDS (Better Understanding for Dementia in Sandwell), BUDS Befriending Service, Built Environment, Butterfly Scheme, Care for People with Dementia, Care Pathways for People With Dementia, Carer Information and Support Programme (CrISP), Carer Support, Carer Support Services, Challenges of Living with Dementia, Circles of Support, Circles of Support for People with Dementia, Cognitive Stimulation Therapy, Cognitive Stimulation Therapy (CST), Cogs Clubs, Community Connections, Community Factors, Counselling for People with Dementia, Dance Well, Dance Well Project, DEEP2: Dementia Engagement and Empowerment Project, DEEP: Dementia Engagement and Empowerment Project, Dementia Action Alliance (DAA), Dementia Adventure, Dementia Engagement and Empowerment Project (DEEP), Dementia Experiences, Dementia Friendly GP Surgeries (iSPACE), Dementia Friendly Heathrow, Dementia Project at Thrive Trunkwell Gardens, Dementia Rights and the Social Model of Disability, Dementia Self-Help Project, Dementia Statements, Dementia Statements (Refreshed), Dementia Wellbeing Coordination, Dementia Wellbeing Coordination (Age UK Norfolk), Dementia-Friendly Communities, Dementia-Friendly Environments, Dementia-Friendly GP Surgeries, Dementia-Friendly Housing, Dementia-Friendly York, Dementia-Inclusive Communities, Dementia-Inclusive Society, Design and Built Environment, Enabling Services, Environmental Design, Experiences, Five Pillars of Post-Diagnostic Support, Five Pillars of Support, Focus on Abilities Instead of Losses, Housing and People with Dementia, iD: Innovations in Dementia, Improving Outcomes for People Living With Dementia, Inclusion, Innovations in Dementia, Institutional Factors, Intrapersonal Processes and Primary Groups, iSPACE – Dementia Friendly GP Surgeries, JABADAO, Kitwood Flower, Kitwood Flower (Six Psychological Needs: Attachment Love Comfort Identity Inclusion and Occupation), Liverpool Service User Reference Forum (SURF), Living Together With Dementia, Living Together with Dementia (LTwD) Programme, Living Well with Dementia, Living Well with Dementia Research, Maintenance Cognitive Stimulation Therapy (CST), Maintenance Cognitive Stimulation Therapy (M-CST), Marginalisation in Dementia, Marginalised Users, Mental Health Foundation (MHF), Patient and Carer Experiences, Peer Support, Person-Centred Planning, Personal Wellbeing, Positive Inclusion and Participation, Positive Relationships, Post Diagnosis Link Workers, Post-Diagnosis Support in Glasgow, Post-Diagnostic Support, Post-Diagnostic Support for People with Dementia, Pre-Diagnostic Support, Primary Care Navigators (Age UK Camden), Primary Care Navigators (PCNs), Promising Approaches to Living Well With Dementia (Age UK), Public Policy, Public Transport, Reducing Discrimination, Rights-Based Approaches to Dementia, Roller Mill: Day Opportunities From Age UK South Staffordshire, Salford Way, Shake Your Tail Feather, Shared Lives for Dementia, Six Psychological Needs: Attachment Love Comfort Identity Inclusion and Occupation (Kitwood Flower), Social Inclusion, Social Model of Disability (Mental Health Foundation), Sporting Memories, Sporting Memories Network CIC, Standing Together, Standing Together Project, Stigma and Discrimination, Support for Couple Relationships, Support for Living Well With Dementia, Tavistock Relationships, Tesco, Tesco Dementia Friendly Checkouts, Thrive, Tom Kitwood, Transport and Mobility, Vulnerable Adult Cards
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Improving the Management of Diabetes in People Living with Dementia (NIHR HTA)
Summary A realist review was conducted to identify features or mechanisms in various interventions likely to improve the management of diabetes in people with dementia. The full NIHR HTA report from this research, already summarised in a BMC Medicine article … Continue reading →
Posted in Assistive Technology, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, NIHR, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Personalisation, Pharmacological Treatments, Quick Insights, Systematic Reviews, UK, Universal Interest, Wales
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Tagged Ageing Population, Anticipatory Care Planning and Integration, Assistive Technology (AT), Assistive Technology Services, Attitudes Towards Dementia, Autonomy, Bangor University, Barriers to Self-Management for People with Dementia, Building Workforce Capability and Capacity, Cardiff University, Carers and Families, Caring for Family Carers, Case Management, Centre for Research in Primary and Community Care: University of Hertfordshire, CMOC: Context–Mechanism–Outcome Configuration, Cochrane Institute of Primary Care and Public Health: Cardiff University, Collaboration, Collaborative Communication, Context-Mechanism-Outcome Configuration, Dementia and Diabetes, Dementia Trajectory (Big Picture), Diabetes, Diabetes and Multiple Morbidities, Diabetes Frail Ltd (Luton UK), Diabetes Mellitus, Diabetes Self-Management Education and Support, Diabetes Self-Management Support (DSMS), Division of Population Medicine: Cardiff University, Family Carers, Flexible Care (+ 24 Hour Care), Fostering Confidence, Foundation for Diabetes Research in Older People (London), Foundation for Diabetes Research in Older People: Diabetes Frail Ltd, Health Technology Assessment (HTA) Programme, Health Technology Assessment Database, Health Technology Assessment in the UK, Health Technology Assessment Study, Health Technology Assessments, Improving the Management of Diabetes in People Living with Dementia, Living Alone, Living Alone with Dementia, Management of Diabetes in People Living with Dementia: Developing Skills to Provide Flexible and Tailored Care, Management of Diabetes in People Living with Dementia: Embedding Positive Attitudes to People Living With Dementia, Management of Diabetes in People Living with Dementia: Family Engagement, Management of Diabetes in People Living with Dementia: Person-Centred Approaches to Care Planning, Management of Diabetes in People Living with Dementia: Regular Contact, Management of Diabetes in People Living with Dementia: Usability of Assistive Technology, Managing Diabetes in People Living With Dementi, Minimally Disruptive Medicine, National Institute for Health Research (NIHR), National Institute for Health Research (NIHR) Health Technology Assessment (HTA) Programme, National Institute for Health Research: Health Technology Assessment Programme, NIHR Health Technology Assessment (HTA) Programme, NIHR HTA: Health Technology Assessment Programme, Organisational Structure, Patient and Family Engagement, Patient Autonomy, People Living With Dementia Without Family Carers or Support (Living Alone), Personalised Care Planning, Poor Identification of People’s Capacity For Involvement in Their Care Planning and Management (Barriers to Involvement), Realist Analyses, Realist Approaches, Realist Reviews, Regular Contact with Families, Research Department of Primary Care and Population Health: UCL Medical School (Royal Free Campus), Research Department of Primary Care and Population Health: University College London Medical School, School of Healthcare Sciences: Bangor University, Self Management From Patient Perspective, Self Management of Chronic Disease, Self-Care, Self-Management, Self-Management Support, Shared Decision-Making, Support for Carers, Support for Self Management, Systematic Reviews and Meta-Analyses, Type 2 Diabetes Mellitus (T2DM), UCL Medical School (Royal Free Campus), University College London Medical School, University of Hertfordshire, Usability of Assistive Devices, Usability of Assistive Technology, Use and Awareness of Assistive Technology in Community Care, Use and Awareness of Assistive Technology in Dementia Care, Workforce Competencies, Workforce Development
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Suggestions for Improving the Management of Diabetes in People Living with Dementia (BMC Medicine)
Summary The results of recent research into this topic. Full Text Link Reference Bunn, F. Goodman, C. [and] Reece Jones, P. [et al] (2017). What works for whom in the management of diabetes in people living with dementia: a realist … Continue reading →
Posted in Assistive Technology, Commissioning, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, NHS, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Systematic Reviews, UK, Universal Interest
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Tagged Assistive Technology (AT), Assistive Technology Services, Bangor University, Barriers to Self-Management for People with Dementia, BMC Medicine, Cardiff University, Carers and Families, Caring for Family Carers, Centre for Research in Primary and Community Care: University of Hertfordshire, CMOC: Context–Mechanism–Outcome Configuration, Dementia and Diabetes, Diabetes, Diabetes Frail Ltd (Luton UK), Diabetes Self-Management Education and Support, Diabetes Self-Management Support (DSMS), Division of Population Medicine: Cardiff University, Family Carers, Flexible Care (+ 24 Hour Care), Foundation for Diabetes Research in Older People (London), Foundation for Diabetes Research in Older People: Diabetes Frail Ltd, Improving the Management of Diabetes in People Living with Dementia, Patient and Family Engagement, Realist Analyses, Realist Approaches, Realist Reviews, Regular Contact with Families, Research Department of Primary Care and Population Health: UCL Medical School (Royal Free Campus), School of Healthcare Sciences: Bangor University, Self Management From Patient Perspective, Self Management of Chronic Disease, Self-Management, Self-Management Support, Support for Carers, Support for Self Management, Systematic Reviews and Meta-Analyses, Type 2 Diabetes Mellitus (T2DM), UCL Medical School (Royal Free Campus), University of Hertfordshire, Usability of Assistive Devices, Usability of Assistive Technology, Use and Awareness of Assistive Technology in Community Care, Use and Awareness of Assistive Technology in Dementia Care
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All-Party Parliamentary Group on Dementia Concerned About Disjointed and Substandard Care For Common Dementia Comorbidities (ILC-UK / Alzheimer’s Society / Pharma Times Online / APPG on Dementia)
Summary Inadequate care and systemic failures in the prevention, diagnosis and treatment of comorbidities experienced by people with dementia is believed to result in (i) unnecessary costs for the NHS, (ii) widespread and preventable reduced quality of life among patients … Continue reading →
Posted in Acute Hospitals, Alzheimer's Society, Charitable Bodies, Commissioning, Community Care, Depression, Diagnosis, Falls, Falls Prevention, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Hip Fractures, Hypertension, In the News, Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest
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Tagged All-Party Parliamentary Group (APPG), All-Party Parliamentary Group on Dementia, Amenable Mortality, APPG on Dementia, Average Annual Cost Per Person With Dementia, Average Annual Cost Per Person With Dementia: All Severity Levels, Average Annual Cost Per Person With Dementia: Mild Dementia, Average Annual Cost Per Person With Dementia: Moderate Dementia, Average Annual Cost Per Person With Dementia: People With Dementia Living in Residential Care, Average Annual Cost Per Person With Dementia: People With Dementia Living in the Community, Average Annual Cost Per Person With Dementia: Severe Dementia, Avoidable Hospital Mortality, Avoidable Mortality, Avoidable Premature Mortality, Baroness Sally Greengross (APPG on Dementia), Baroness Sally Greengross: Chief Executive of the International Longevity Centre UK, Barriers to Self-Management for People with Dementia, Barriers to Self-Management in Early Stage Dementia, Co-Morbidities, Co-Morbidities and Dementia, Co-Morbidities In Older Patients, Common Dementia Comorbidities, Comorbidities Framework, Complex Conditions, Cost of Co-Morbidities, Cost of Mismanaging Dementia and Diabetes Depression and Urinary Tract Infections (£1 Billion Per Year), Costs to the National Health Service (NHS): Type 2 Diabetes, CQC Inspection Regimes To Assess Quality of Care Pathways Across Health and Social Care Settings (Proposal), Deaths Associated with Hospitalisation, Debbie Abrahams MP: Co-Chair of APPG on Dementia, Dementia and Comorbidities: Ensuring Parity of Care (ILC-UK), Dementia and Depression, Dementia and Diabetes, Dementia and Mortality, Dementia and Urinary Tract Infections, Dementia Co-Morbidities, Dementia Comorbidities, Dementia Rarely Travels Alone: All-Party Parliamentary Group (APPG) on Dementia 2016 Report, Dementia Risk Factors, Depression and Dementia, Diabetes, Diabetes and Multiple Morbidities, Diabetes Self-Management Education and Support, Diabetes Self-Management Support (DSMS), Disjointed and Substandard Care, Elderly People With Complex Health and Social Care Needs, Health and Social Care Integration, Holistic Annual Health Review Coordinated by GPs (Proposal), Holistic Approaches, Holistic Assessments, Holistic Care, Holistic Care Assessments, Holistic Co-ordinated Care, Holistic Consolidated Review of Separate Conditions (Proposal), Holistic Medical Reviews, Holistic Needs Assessment (HNA), Hospital Mortality, ILC-UK, ILC-UK: International Longevity Centre UK, Impact of Dementia on Hospital Mortality, Integration of Health and Care, Integration of Health and Social Care, Integration of Health and Social Care for Older People, International Longevity Centre UK (ILC-UK), Management of Co-Morbidities, Medication Management, Mental Health Co-Morbidities, Multiple Long-Term Conditions, Multiple Medications (Polypharmacy), Parity of Care Report (ILC-UK), Perverse Incentives, Pharma Times Online, PharmaTimes, Premature Death, Preventable Deaths in English Acute Hospitals, Quality Outcomes Framework (QOF), Quality Outcomes Framework (QOF): Perverse Incentives, Quality Outcomes Framework (QOF): Tick-Box Culture, Reducing Catheter Associated Urinary Tract Infections, Revision of Quality Outcomes Framework Which Currently Incentivises Separate Reviews (Proposal), Risk Factors, Self-Care, Self-Management in Chronic Illness, Self-Management in People With Early Stage Dementia, Self-Management of Long-Term Illnesses, Self-Management Support, Standards To Avoid Perverse Incentives, Support for Self-Care, Supporting Self-Care, Type 2 Diabetes, Untreated Comorbidities, Urinary Tract Infections, Urinary Tract Infections (in Patients with Catheters), Urinary Tract Infections (UTIs), Urinary Tract Infections and Dementia
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Flipping Healthcare: a Parallel With Flipping Education? (BMJ / IHI / Healthcare)
Summary Two authors from the Institute for Healthcare Improvement (IHI) have proposed that it might be beneficial to “flip” medical thinking (i.e. introduce a 180º change and turn-around), in order to develop innovative models of care which can improve health … Continue reading →
Posted in Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, NHS, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Personalisation, Quick Insights, Standards, UK, Universal Interest
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Tagged Autonomy and Self-Determination, Barriers to Engagement, Barriers to Involvement, Barriers to Self-Management for People with Dementia, BMJ, British Medical Journal (BMJ), Buurtzorg (Neighbourhood Care), Buurtzorg: Dutch for Neighbourhood Care, Church Health Center (Memphis), Co-Production, Co-Production for Wellbeing, Collaboration, Collaborative Care, Collaborative Care Planning, Collaborative Commissioning, Collaborative Working, Cross-Boundary Care Pathway Redesign, Department of Medicine: Weill Cornell Medical College, Embedding Co-Production, Empowerment, Empowerment and Dementia, Engagement, Family Involvement, Flipping Education, Flipping Healthcare, Healthcare (Journal), IHI: Institute for Healthcare Improvement, Innovation, Innovation and Improvement, Innovative Commissioning, Innovative Models, Institute for Healthcare Improvement (IHI), Integrated and Specialist Teams, Integrated Care Teams, Integrated Teams, Interdisciplinary Teams, Involvement and Participation, Leeds Psychosocial Oncology and Clinical Practice Research Group, Local Empowerment, MDTs: Multidisciplinary Teams, Multiagency Teams, Multidisciplinary Teams in Rehabilitation, Neighbourhood Care, Openness and Collaboration, Partnership and Collaboration, Patient and Public Involvement (PPI), Patient Empowerment, Patient Engagement, Patient Involvement, Patient Reported Outcomes, Patient Reported Outcomes Measures (PROMS), Personal Commissioning (Self-Directed), Power Imbalance, Prevention, Primary Care, Psychosocial Oncology and Clinical Practice Research Group (POCPRG), Psychosocial Oncology and Clinical Practice Research Group: St James' Institute of Oncology, Quality Improvement, Quality Innovation, Quality of Life Research, Rancho Los Amigos National Rehabilitation Center: Los Angeles County, Redesigning Care Pathways, Redesigning Services, Rehabilitation and Self Management, Research Advisory Group (RAG), Self-Care, Self-Determination, Self-Directed Care, Self-Directed Services, Self-Directed Support, Self-Efficacy, Service Redesign, Service User Involvement, St James' Institute of Oncology: University of Leeds, St James’s University Hospital (Leeds), Staff Empowerment, Supported Self-Care, Teamwork, United States, University of Leeds, USA, User Involvement, Weill Cornell Medical College
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Commissioning Guidance on Care for Frail Older People (NHS England)
Summary NHS England has released practical guidance on the implementation of a care pathway for frail older people. This document summarises evidence on the effects of an integrated pathway of care. It also offers suggestions about using commissioning levers and … Continue reading →
Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, National, NHS, NHS England, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest
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Tagged Adult Social Care for People with Complex Needs, Avoidable Harm, Barriers to Integration, Barriers to Self-Management for People with Dementia, Care Closer to Home, Care Integration, Care Pathway Model, Care Pathways, Chronic and Severe Illness, Chronic Care, Chronic Illnesses, Commissioning Guidance, Commissioning Guides, Commissioning Levers, Commissioning Research, Commissioning Skills, Commissioning Support, Commissioning Task, Comorbidity and Dementia, Compassionate Care, Complex Care, Complex Chronic Conditions, Complex Needs, Comprehensive Geriatric Assessment (CGA), Cornwall and Isles of Scilly, CQUIN Payments, CQUINs, East London and City, Frail Elders, Frail Older People With Complex Needs, Health and Social Care Integration, Improving Care for Frail Older People, Independence, Independence at Home, Independent Living, Independent Living At Home, Integrated Care and Support, Integrated Care Pathway, Integrated Commissioning, Integration of Health and Social Care, Integration of Health and Social Care for Older People, Joint Emergency Team (JET), Kent, Kent County Council, Leeds, Long-Term Care (LTC), Long-Term Care and Support, Long-Term Conditions, Long-Term Treatment, Maintaining Independence, Multiple Chronic Disease, North West London, Older People With Complex Needs, Patient Experience, Quality of Life, Regaining Independence, Safe Compassionate Care for Frail Older People, Secondary Uses Service (SUS), Self-Care, Self-Determination, Self-Directed Services, Self-Directed Support, Self-Efficacy (Carers), Self-Efficacy (Patients), Self-Management, Self-Management in Chronic Illness, Self-Management Support, South Devon and Torbay, Southend, Support for People with Complex Needs, Waltham Forest, Waltham Forest East London and City (WELC)
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