Tag Archives: Carer Burden

Dementia Care Costs: UK Statistical Projections (LSE / CPEC / Age and Ageing / International Journal of Geriatric Psychiatry)

Posted on December 14, 2019 by Dementia and Elderly Care News

Summary The number of people with dementia in the UK is expected to roughly double to 1.6 million by 2040 yet, according to a report by the Care Policy and Evaluation Centre (CPEC), the cost of social care is projected … Continue reading →

Posted in Alzheimer's Society, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, National, Non-Pharmacological Treatments, Northern Ireland, Person-Centred Care, Quick Insights, Scotland, Statistics, UK, Universal Interest, Wales | Tagged Age and Ageing (Journal), Ageing Population, Alzheimer’s Society /LSE, Anita Patel Health Economics Consulting Ltd, Brighton and Sussex Medical School: University of Sussex, Burden of Dementia (Statistics), Burden on Caregivers, Care Policy and Evaluation Centre (CPEC), Care Policy and Evaluation Centre: London School of Economics and Political Science, Caregiver Burden, Carer Burden, Carer Burden in Dementia, Centre for Dementia Studies: University of Sussex, CFAS II Study, China, China Social Security Research Centre: Renmin University of China, Cost of Dementia Care in the UK (2019–2040), Costs of Dementia Care, Costs of Dementia in UK, CPEC Working Paper 5, Dementia Care: UK Statistical Projections to 2040, Department of Health Policy: London School of Economics and Political Science, English Local Authorities, Epidemiology, Epidemiology and Statistics, Faculty of Health: University of Plymouth, Financial Constraints, Financial Context, Financial Difficulties, Financial Pressures, Forecasting The Care Needs Of Older Population In England, Funding of Adult Social Care, Future Financial Sustainability, Future of NHS and Social Care, Health and Social Care, Health and Social Care in the Community, Health and Social Care Integration, Hidden Costs of Dementia, High Dependency, Independence at Home, Independent Living With Care, Institute for Ageing: Newcastle University, Integration of Health and Social Care for Older People, International Journal of Geriatric Psychiatry, Late-Life Dependency, Later Life, Local Authorities (LAs), London School of Economics and Political Science, London School of Economics and Political Science (LSE), Modelling Outcome and Cost Impacts of Interventions for Dementia (MODEM) Study, Modelling the Costs of Dementia, Modelling the Outcome and Cost Impacts of Interventions for Dementia Project (MODEM), MODEM (Modelling the Outcome and Cost Impacts of Interventions for Dementia) Project, MODEM Project, Neurological Disorders, Newcastle University, Office for National Statistics (ONS), Personal Social Services Research Unit (PSSRU): London School of Economics and Political Science, Population Ageing and Care Simulation (PACSim) Modelling, Population Health Sciences Institute: Newcastle University, Prevalence of Dementia, Prevalence of Dementia and Service Use, Projections of Older People Living with Dementia in the UK (2019–2040), Proportional Increase in Numbers of Older People by Age Groups Between (UK 2019-2040), Renmin University of China, School of Labour and Human Resources: Renmin University of China, Social Care, Social Care Expenditure, Social Care Funding, Social Care Funding Shortfalls, Social Care Needs of Older Population in England, Social Care Costs of Dementia, Social Epidemiology, Societal Costs of Dementia, Staying Independent, Sustainability, Sustainable Long-Term Funding of Adult Social Care, University of Plymouth, University of Sussex, Unpaid Care, Unpaid Care Costs of Dementia in England, Unpaid Care Costs of Dementia in Northern Ireland, Unpaid Care Costs of Dementia in Scotland, Unpaid Care Costs of Dementia in UK, Unpaid Care Costs of Dementia in Wales, Upward Spending Pressures | Leave a comment

User Feedback on Digital Platform for People With Dementia and Their Carers (JMIR Formative Research)

Posted on May 11, 2019 by Dementia and Elderly Care News

Summary CAREGIVERSPRO-MMD is Web-based platform, still a work-in-progress, developed with a view to: Improving the quality of life for persons living with dementia. Reducing carer burden. Reducing the costs for care. Reducing the administrative burden for health and social care staff. The following paper … Continue reading →

Posted in Universal Interest | Tagged ALADDIN Project, CAREGIVERSPRO-MMD HORIZON 2020 Project, CAREGIVERSPRO-MMD Platform, Carer Burden, Carer Burden in Dementia, Central University of Catalonia, Centre for Research and Technology Hellas (Thessaloniki), Cooperativa Sociale Onlus Marche Onlus (Ancona Italy), Department of Geriatrics: Rouen University Hospital, Department of Internal Medicine Geriatrics and Therapeutics: Rouen University Hospital, Digital Alzheimer Center (DAC), European Union’s Horizon 2020 Research and Innovation Programme (Grant No 690211), Evaluation Studies, Faculty of Health Sciences: University of Vic - Central University of Catalonia, France, Gamification, Gamification (Improved Engagement and Motivation), Gamification Approach, Greece, Horizon 2020 Programme, Improving Outcomes for People Living With Dementia, Information Technologies Institute: Centre for Research and Technology Hellas, Involving People Living with Dementia, Italy, JMIR Formative Research (Journal), Keeping In-Touch: Technology Supporting People Living With Dementia and Their Carers, Knowledge Engineering and Machine Learning Group: Universitat Politècnica de Catalunya, Living with Dementia, People Living With Dementia, People With Memory Problems and Their Carers, Rouen University Hospital, School of Engineering and Computer Science: University of Hull, School of Health and Social Work: University of Hull, Skills Training and Reskilling (STAR) Project, Social Media, Social Media Platforms, Social Networking, Social Networks and Organizations, Social Support, Social Support / Community Networks, Spain, Support for People Living With Dementia, Support for People Living with Dementia and Their Carers, Supportive Social Networks, Technology Supporting People Living With Dementia and Their Carers, Unfamiliar New technology: Technology Supporting People Living With Dementia and Their Carers, Universitat Politècnica de Catalunya, University of Hull, Unpaid Care, Unpaid Caregivers (Carers), Unpaid Carers, Usability Studies, Web-Based Platform for People With Memory Problems and Their Caregivers (CAREGIVERSPRO-MMD) | Leave a comment

Carers’ Coping Strategies (Trends in Psychiatry and Psychotherapy)

Posted on November 22, 2018 by Dementia and Elderly Care News

Summary A systematic review investigates the various strategies for coping adopted by unpaid carers. Full Text Link Reference Monteiro, AMF. Santos, RL. Kimura, N. [et al] (2018). Coping strategies among caregivers of people with Alzheimer Disease: a systematic review. Trends … Continue reading →

Posted in Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), International, Management of Condition, Mental Health, Person-Centred Care, Quick Insights, Systematic Reviews, Universal Interest | Tagged Brazil, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregivers of People With Alzheimer's Disease (PwAD), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Stress, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers’ Health and Wellbeing, Centro de Doença de Alzheimer: Universidade Federal do Rio de Janeiro (UFRJ), Coping Mechanisms, Coping Strategies, Dysfunctional Coping Strategies, Emotion-Focused Coping Strategies, Emotional and Personal Resilience, Emotional and Psychological Wellbeing, Instituto de Psiquiatria: Universidade Federal do Rio de Janeiro (UFRJ), Mental Well-Being, Personal Well-Being, Problem-Focused Coping Strategies, Psychological Coping Skills, Psychological Wellbeing, Support and Coping Mechanisms, Supportive Social Relationships, Sustainable Caring, Systematic Reviews and Meta-Analyses, Trends in Psychiatry and Psychotherapy, Universidade Federal do Rio de Janeiro (UFRJ) | Leave a comment

Evidence Gaps in the Implementation of eHealth Interventions for Informal Caregivers of People with Dementia (Internet Interventions)

Posted on September 19, 2018 by Dementia and Elderly Care News

Summary There is reported to be no shortage of evidence that eHealth interventions for informal carers of people living with dementia can be effective on numerous fronts, including: “ … improving a range of psychological outcomes in caregivers, such as … Continue reading →

Posted in Commissioning, Community Care, Depression, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Systematic Reviews, Telecare, Telehealth, Universal Interest | Tagged Alzheimer Centre Limburg: Maastricht University, CAPHRI School for Public Health and Primary Care: Maastricht University, Care in an Ageing Society, Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Consolidated Framework for Implementation Research (CFIR), Demands of Caring, Department of Family Practice: Maastricht University, Department of Psychiatry and Neuropsychology: Maastricht University, eHealth Interventions, eHealth Interventions for Informal Caregivers of People with Dementia, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Impact of Caring on Carers, Implementation of eHealth Interventions for Informal Caregivers of People with Dementia, Implementation Research, Improving Carer Health and Wellbeing, Improving Lives of Carers, Informal Carers of People With Dementia, Internet Interventions (Journal), Maastricht University, Netherlands, School for Mental Health and Neurosciences: Maastricht University, Stress Reduction, Stress Reduction for Unpaid Family Carers, Support for Carers, Support for Carers of People with Dementia, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Some Recent Systematic Reviews on the Quality of Life of Unpaid Carers for Persons Living With Dementia (PLoS One / BMC Health Services Research / JBI Database / Clinical Interventions in Aging)

Posted on March 22, 2018 by Dementia and Elderly Care News

Summary A recent review examines ten alternative tools for the assessment and measurement of the quality of life of carers for people with dementia. Full Text Link Reference Dow, J. Robinson, J. Robalino, S. [et al] (2018). How best to … Continue reading →

Posted in Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Systematic Reviews, UK, Universal Interest | Tagged Acceptance and Commitment Therapy (ACT) for Dementia Family Caregivers, Ageing Population, Australia, Australian Dementia Key Worker Models, Barts and the London School of Medicine and Dentistry: Queen Mary University of London, BMC Health Services Research, BMC Health Services Research / JBI Database of Systematic Reviews and Implementation Reports, Burden of Dementia, Burden on Caregivers, Canada, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Quality of Life Instrument (CQLI), Caregiver Styles and Caregiver Burden, Caregiver Well-Being Scale, Caregiver Well-Being Scale: Short-Form Rapid Assessment, Caregiver-Targeted Quality-of-Life Measure (CGQOL), Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Carer Well-Being and Support Questionnaire (CWS), Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers of Older People in Europe (COPE) Index, Carers’ Health and Wellbeing, Case Management, Case Management for Dementia, Case Managers (Carers), Central Clinical School: Monash University, China, Clinical Interventions in Aging (Journal), COPE Index, Coping Strategies, Coping With Stress, Dalhousie University (Nova Scotia), Demands of Caring, Dementia Support Workers, Department of Psychiatry: The Chinese University of Hong Kong, Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Faculty of Medicine: The Chinese University of Hong Kong, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Helping Disoriented People, Hong Kong SAR, Impact of Alzheimer's Disease on Caregiver Questionnaire (IADCQ), Impact of Caring on Carers, Improving Carer Health and Wellbeing, Improving Lives of Carers, Institute of Health and Society: Newcastle University, Kellogg Library: Dalhousie University, Key Worker Framework for People With Dementia Their Family and Caring Unit Living in Community, Key Worker Support Models, Lifeworld Perspectives, Lifeworlds, Lived Experience, Long Hours and Constant Demands, Medical Outcomes Study Short-Form Health Survey (SF-36), Medicine Nursing and Health Sciences: Monash University, Meditation-Based Interventions for Family Dementia Caregivers, Mindfulness Based Stress Reduction (MBSR), Mindfulness-Based Interventions, Monash University: Melbourne, Newcastle University, Older Persons Strategies, PLoS One, Proactive Case Management, Psychosocial Stress, Qualitative Health Research, Qualitative Research, Qualitative Studies, Quality of Life in Alzheimer's disease (QOL-AD) Questionnaire: Quality of Life of the Caregiver Version (CQOL), Quality of Life of Unpaid Carers for Persons Living With Dementia, Queen Mary University of London, RDNS Institute, Royal District Nursing Service Ltd (Australia), School of Medicine and Public Health: University of Newcastle (Callaghan Australia), School of Nursing: Dalhousie University, Social Isolation, Social Networks, Social Relationships, Social Support, Stress, Stress Reduction, Stress Reduction for Unpaid Family Carers, Stressful Life Experiences, Support for Carers, Support Workers, Supporting Persons With Dementia, Supportive Social Networks, Supportive Social Relationships, Sustainable Caring, Systematic Reviews and Meta-Analyses, Tai Po Hospital (Hong Kong), The Chinese University of Hong Kong, The Jockey Club School of Public Health and Primary Care: The Chinese University of Hong Kong, United Kingdom, University of Newcastle (Callaghan Australia), Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Lifeworld Perspectives on the Experience of Living Close to a Person With Dementia (Medicine, Health Care and Philosophy / BBC News)

Posted on March 5, 2018 by Dementia and Elderly Care News

Summary The following article explores the lifeworlds (i.e. the subjective experiences, stresses and adaptive coping strategies) of spouses after their partners have been diagnosed with Alzheimer’s Disease. Full Text Link Reference Bergman, M. Graff, C. Eriksdotter, M. [et al] (2016). … Continue reading →

Posted in BBC News, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, NHS England, Person-Centred Care, Quick Insights, Universal Interest | Tagged Ageing and Dementia, Ageing and Society, Ageing Population, Alzheimer’s Society Ambassadors, Asian and Minority Ethnic Communities, Barbara Windsor, BBC Health News, BBC Radio 1 Newsbeat, BBC’s Victoria Derbyshire Programme, Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers’ Health and Wellbeing, Case Managers (Carers), Center for Alzheimer Research: Karolinska Institutet, Check Your Mate: NHS England’s Valentine’s Day Advice, Chris Chapman: Councillor in Tower Hamlets, Coping Strategies, Coping With Stress, Dame Barbara Windsor, Demands of Caring, Dementia Ambassadors, Dementia Awareness, Dementia Recognition, Department of Geriatric Medicine: Karolinska University Hospital, Department of Neurobiology Care Sciences and Society: Karolinska Institutet, Department of Technology and Welfare: Red Cross University College (Stockholm), Disclosure of Diagnosis, Division of Neurogeriatrics: Karolinska Institutet, Division of Social Work: Karolinska University Hospital, Emotional Strategies, Experience of Being Evolved (Lost in Translation?), Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Helping Disoriented People, Hermeneutic Approaches, Hermeneutics, Impact of Caring on Carers, Imprisonment (Subjective), Improving Carer Health and Wellbeing, Improving Lives of Carers, Income and the Means-Test, Interpretative Phenomenology, Karolinska Institute, Karolinska Institutet, Karolinska University Hospital, Lifeworld Perspectives, Lifeworlds, Lived Experience, Long Hours and Constant Demands, Making Decisions and Planning For the Future, Management of Challenging Behaviour, Means Test, Means Tested Social Care, Medicine Health Care and Philosophy (Journal), Older Persons Strategies, Phenomenological Research, Psychosocial Stress, Qualitative Health Research, Qualitative Research, Qualitative Studies, Red Cross University College (Stockholm), Scott Mitchell, Sense of Imprisonment, Social Interaction, Social Isolation, Social Networks, Social Relationships, Social Support, South Asian Communities, Stress, Stress Reduction, Stress Reduction for Unpaid Family Carers, Stressful Life Experiences, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Supportive Social Networks, Supportive Social Relationships, Sustainable Caring, Sweden, Unpaid Caregivers (Carers), Unpaid Carers, Victoria Derbyshire Programme | Leave a comment

European Study of Unpaid Dementia Carer Burden (JAMDA)

Posted on October 16, 2017 by Dementia and Elderly Care News

Summary The following article covers a study of people with dementia and their informal carers supported by community services (whether living at home or receiving day care or respite care) across eight European countries. The investigation explored any association(s) between … Continue reading →

Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Personalisation, Quick Insights, UK, Universal Interest | Tagged Ageing Population, Behavioural and Psychological Symptoms of Dementia (BPSD), Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Case Managers (Carers), Challenges in Communication, Challenging Behaviour, Challenging Behaviour in Dementia, Commissioning Carer Support Services, Estonia, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Family Involvement, Family-Based Care, Finland, France, Germany, Hallucinations in People with Dementia, Health and Wellbeing of Adult Carers, Helping Disoriented People, Impact of Caring on Carers, Improving Carer Health and Wellbeing, Improving Lives of Carers, Informal Carers, Journal of the American Medical Directors Association, Journal of the American Medical Directors Association (JAMDA), Netherlands, On the Margins of Admission to Long-Term Care, Personalised Carer Support, RightTimePlaceCare - Seventh Framework European Project, RightTimePlaceCare Consortium, RightTimePlaceCare Study, Seventh Framework European Project: RightTimePlaceCare, Spain, Stress Reduction, Stress Reduction for Unpaid Family Carers, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Sustainable Caring, Sweden, Tailored Caregiver Assistance, United Kingdom, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

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