Tag Archives: Carer Burden

Evidence Gaps in the Implementation of eHealth Interventions for Informal Caregivers of People with Dementia (Internet Interventions)

Posted on September 19, 2018 by Dementia and Elderly Care News

Summary There is reported to be no shortage of evidence that eHealth interventions for informal carers of people living with dementia can be effective on numerous fronts, including: “ … improving a range of psychological outcomes in caregivers, such as … Continue reading →

Posted in Commissioning, Community Care, Depression, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Systematic Reviews, Telecare, Telehealth, Universal Interest | Tagged Alzheimer Centre Limburg: Maastricht University, CAPHRI School for Public Health and Primary Care: Maastricht University, Care in an Ageing Society, Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Consolidated Framework for Implementation Research (CFIR), Demands of Caring, Department of Family Practice: Maastricht University, Department of Psychiatry and Neuropsychology: Maastricht University, eHealth Interventions, eHealth Interventions for Informal Caregivers of People with Dementia, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Impact of Caring on Carers, Implementation of eHealth Interventions for Informal Caregivers of People with Dementia, Implementation Research, Improving Carer Health and Wellbeing, Improving Lives of Carers, Informal Carers of People With Dementia, Internet Interventions (Journal), Maastricht University, Netherlands, School for Mental Health and Neurosciences: Maastricht University, Stress Reduction, Stress Reduction for Unpaid Family Carers, Support for Carers, Support for Carers of People with Dementia, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Some Recent Systematic Reviews on the Quality of Life of Unpaid Carers for Persons Living With Dementia (PLoS One / BMC Health Services Research / JBI Database / Clinical Interventions in Aging)

Posted on March 22, 2018 by Dementia and Elderly Care News

Summary A recent review examines ten alternative tools for the assessment and measurement of the quality of life of carers for people with dementia. Full Text Link Reference Dow, J. Robinson, J. Robalino, S. [et al] (2018). How best to … Continue reading →

Posted in Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Systematic Reviews, UK, Universal Interest | Tagged Acceptance and Commitment Therapy (ACT) for Dementia Family Caregivers, Ageing Population, Australia, Australian Dementia Key Worker Models, Barts and the London School of Medicine and Dentistry: Queen Mary University of London, BMC Health Services Research, BMC Health Services Research / JBI Database of Systematic Reviews and Implementation Reports, Burden of Dementia, Burden on Caregivers, Canada, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Quality of Life Instrument (CQLI), Caregiver Styles and Caregiver Burden, Caregiver Well-Being Scale, Caregiver Well-Being Scale: Short-Form Rapid Assessment, Caregiver-Targeted Quality-of-Life Measure (CGQOL), Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Carer Well-Being and Support Questionnaire (CWS), Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers of Older People in Europe (COPE) Index, Carers’ Health and Wellbeing, Case Management, Case Management for Dementia, Case Managers (Carers), Central Clinical School: Monash University, China, Clinical Interventions in Aging (Journal), COPE Index, Coping Strategies, Coping With Stress, Dalhousie University (Nova Scotia), Demands of Caring, Dementia Support Workers, Department of Psychiatry: The Chinese University of Hong Kong, Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Faculty of Medicine: The Chinese University of Hong Kong, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Helping Disoriented People, Hong Kong SAR, Impact of Alzheimer's Disease on Caregiver Questionnaire (IADCQ), Impact of Caring on Carers, Improving Carer Health and Wellbeing, Improving Lives of Carers, Institute of Health and Society: Newcastle University, Kellogg Library: Dalhousie University, Key Worker Framework for People With Dementia Their Family and Caring Unit Living in Community, Key Worker Support Models, Lifeworld Perspectives, Lifeworlds, Lived Experience, Long Hours and Constant Demands, Medical Outcomes Study Short-Form Health Survey (SF-36), Medicine Nursing and Health Sciences: Monash University, Meditation-Based Interventions for Family Dementia Caregivers, Mindfulness Based Stress Reduction (MBSR), Mindfulness-Based Interventions, Monash University: Melbourne, Newcastle University, Older Persons Strategies, PLoS One, Proactive Case Management, Psychosocial Stress, Qualitative Health Research, Qualitative Research, Qualitative Studies, Quality of Life in Alzheimer's disease (QOL-AD) Questionnaire: Quality of Life of the Caregiver Version (CQOL), Quality of Life of Unpaid Carers for Persons Living With Dementia, Queen Mary University of London, RDNS Institute, Royal District Nursing Service Ltd (Australia), School of Medicine and Public Health: University of Newcastle (Callaghan Australia), School of Nursing: Dalhousie University, Social Isolation, Social Networks, Social Relationships, Social Support, Stress, Stress Reduction, Stress Reduction for Unpaid Family Carers, Stressful Life Experiences, Support for Carers, Support Workers, Supporting Persons With Dementia, Supportive Social Networks, Supportive Social Relationships, Sustainable Caring, Systematic Reviews and Meta-Analyses, Tai Po Hospital (Hong Kong), The Chinese University of Hong Kong, The Jockey Club School of Public Health and Primary Care: The Chinese University of Hong Kong, United Kingdom, University of Newcastle (Callaghan Australia), Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Lifeworld Perspectives on the Experience of Living Close to a Person With Dementia (Medicine, Health Care and Philosophy / BBC News)

Posted on March 5, 2018 by Dementia and Elderly Care News

Summary The following article explores the lifeworlds (i.e. the subjective experiences, stresses and adaptive coping strategies) of spouses after their partners have been diagnosed with Alzheimer’s Disease. Full Text Link Reference Bergman, M. Graff, C. Eriksdotter, M. [et al] (2016). … Continue reading →

Posted in BBC News, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Quick Insights, Universal Interest | Tagged Ageing and Dementia, Ageing and Society, Ageing Population, Barbara Windsor, BBC Health News, BBC’s Victoria Derbyshire Programme, Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers’ Health and Wellbeing, Case Managers (Carers), Center for Alzheimer Research: Karolinska Institutet, Chris Chapman: Councillor in Tower Hamlets, Coping Strategies, Coping With Stress, Dame Barbara Windsor, Demands of Caring, Dementia Awareness, Dementia Recognition, Department of Geriatric Medicine: Karolinska University Hospital, Department of Neurobiology Care Sciences and Society: Karolinska Institutet, Department of Technology and Welfare: Red Cross University College (Stockholm), Disclosure of Diagnosis, Division of Neurogeriatrics: Karolinska Institutet, Division of Social Work: Karolinska University Hospital, Emotional Strategies, Experience of Being Evolved (Lost in Translation?), Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Helping Disoriented People, Hermeneutic Approaches, Hermeneutics, Impact of Caring on Carers, Imprisonment (Subjective), Improving Carer Health and Wellbeing, Improving Lives of Carers, Income and the Means-Test, Interpretative Phenomenology, Karolinska Institute, Karolinska Institutet, Karolinska University Hospital, Lifeworld Perspectives, Lifeworlds, Lived Experience, Long Hours and Constant Demands, Making Decisions and Planning For the Future, Management of Challenging Behaviour, Means Test, Means Tested Social Care, Medicine Health Care and Philosophy (Journal), Older Persons Strategies, Phenomenological Research, Psychosocial Stress, Qualitative Health Research, Qualitative Research, Qualitative Studies, Red Cross University College (Stockholm), Scott Mitchell, Sense of Imprisonment, Social Interaction, Social Isolation, Social Networks, Social Relationships, Social Support, Stress, Stress Reduction, Stress Reduction for Unpaid Family Carers, Stressful Life Experiences, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Supportive Social Networks, Supportive Social Relationships, Sustainable Caring, Sweden, Unpaid Caregivers (Carers), Unpaid Carers, Victoria Derbyshire Programme | Leave a comment

European Study of Unpaid Dementia Carer Burden (JAMDA)

Posted on October 16, 2017 by Dementia and Elderly Care News

Summary The following article covers a study of people with dementia and their informal carers supported by community services (whether living at home or receiving day care or respite care) across eight European countries. The investigation explored any association(s) between … Continue reading →

Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Personalisation, Quick Insights, UK, Universal Interest | Tagged Ageing Population, Behavioural and Psychological Symptoms of Dementia (BPSD), Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Case Managers (Carers), Challenges in Communication, Challenging Behaviour, Challenging Behaviour in Dementia, Commissioning Carer Support Services, Estonia, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Family Involvement, Family-Based Care, Finland, France, Germany, Hallucinations in People with Dementia, Health and Wellbeing of Adult Carers, Helping Disoriented People, Impact of Caring on Carers, Improving Carer Health and Wellbeing, Improving Lives of Carers, Informal Carers, Journal of the American Medical Directors Association, Journal of the American Medical Directors Association (JAMDA), Netherlands, On the Margins of Admission to Long-Term Care, Personalised Carer Support, RightTimePlaceCare - Seventh Framework European Project, RightTimePlaceCare Consortium, RightTimePlaceCare Study, Seventh Framework European Project: RightTimePlaceCare, Spain, Stress Reduction, Stress Reduction for Unpaid Family Carers, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Sustainable Caring, Sweden, Tailored Caregiver Assistance, United Kingdom, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Exploring the Morality and Efficacy of White Lies and Deception in Dementia Care (MHF)

Posted on December 23, 2016 by Dementia and Elderly Care News

Summary The Mental Health Foundation (MHF)’s “Dementia: what is truth?” report explores strategies for handling the different realities and beliefs held by persons with dementia. It concludes, perhaps realistically, that judicious use of non-truths and half-truths may be justified if … Continue reading →

Posted in Acute Hospitals, Charitable Bodies, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Joseph Rowntree Foundation, Management of Condition, Mental Health, Mental Health Foundation, Models of Dementia Care, National, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, UK, Universal Interest | Tagged Agitation, Behavioural and Psychological Symptoms of Dementia (BPSD), BPSD: Behavioral and Psychological Symptoms of Dementia, Burden of Dementia, Carer Burden, Carer Experience, Carer Fatigue, Carer's Experience of Dementia, Confusion, Contented Dementia Trust, Coping Strategies, Coping With Dementia, Delusional Ideas, Delusions, Dementia Experiences, Dementiaville (Switzerland), Dolls Therapy, Employee Experience, End-User Experience, Ethical Considerations, Ethical Dilemmas, Ethical Issues of Dementia Care, Experiences, Family and Caregiver Experiences, Functional Analysis, Functional Analysis (FA), Habilitation Therapy in Dementia Care, Hallucinations, Hallucinations in People with Dementia, Hermeneutics, Home Care, Managing Agitation, Manner of Communication, Mental Health Foundation (MHF), Moral Principles, Moral Relativism, Needs Analysis, Psychological Coping Skills, Reality Orientation, Reducing Agitation and Distress, Reframing Dementia in the 21st Century (JRF), Residential Care, RO: Reality Orientation, SPECAL Approach, Specialised Early Care for Alzheimer’s (SPECAL) Approach, Spectrum of Truth and Lies: Truth Telling - Reframing – Distracting – Avoiding – Hiding - Going Along [With] - Lying, Truth and Lying in Dementia Care, Truth Telling, Uncommon Common-Sense, Unmet Needs, Untruths, What is Truth? Inquiry About Truth and Lying in Dementia Care, White Lies and Deception in Dementia Care | Leave a comment

A Typology of Carers? (Qualitative Health Research)

Posted on October 10, 2016 by Dementia and Elderly Care News

Summary Comments about difficult care-related problems experienced at home, made by spouses caring for their partners with Alzheimer’s Disease or Parkinson’s Disease, were analysed by researchers to identify generalisable themes in how carers tend to perceive challenges and manage their … Continue reading →

Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Parkinson's Disease, Person-Centred Care, Personalisation, Quick Insights, Universal Interest | Tagged Adapters (Carers), Broad Categories of Carer Types, Broad Categories of Carer Types: Adapters, Broad Categories of Carer Types: Case Managers, Broad Categories of Carer Types: Strugglers, Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Case Managers (Carers), Center for Nursing Discovery at the Duke University School of Nursing, Challenges in Communication, Challenging Behaviour, Challenging Behaviour in Dementia, Charles George VA Medical Center (North Carolina), Connecticut Community Care Inc. (Bristol: Connecticut), Duke University, Duke University School of Nursing, Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Hallucinations in People with Dementia, Health and Wellbeing of Adult Carers, Helping Disoriented People, Impact of Caring on Carers, Improving Carer Health and Wellbeing, Improving Lives of Carers, Making Decisions and Planning For the Future, Management of Challenging Behaviour, National Institute of Nursing Research (USA), National Institutes of Health, Personality Types of Carer (Proposed Hypothetically), Qualitative Health Research, Qualitative Health Research (Journal), Qualitative Research, Relationship Between Carer Style and Level of Burden, School of Health Sciences: Seattle Pacific University, Screen for Caregiver Burden (SCB), Seattle Pacific University, Stereotyping, Stress Reduction, Stress Reduction for Unpaid Family Carers, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Sustainable Caring, Tailored Caregiver Assistance, Types of Carer, Types of Spouse Carers, Typology of Carers, Typology of Spouse Caregivers, Typology of Spouse Carers: Adapters, Typology of Spouse Carers: Case Managers, Typology of Spouse Carers: Strugglers, United States, Unpaid Caregivers (Carers), Unpaid Carers, USA | Leave a comment

Dementia Evidence Toolkit Launched (PSSRU at LSE / MODEM / NIHR)

Posted on August 9, 2016 by Dementia and Elderly Care News

Summary The new Dementia Evidence Toolkit has been built on a database of 3,000 journal articles and 700 reviews of research studies. This ambitious and world-leading online resource aims to offer a one-stop “hub” from which to access the latest evidence … Continue reading →

Posted in Acute Hospitals, Antipsychotics, Assistive Technology, Commissioning, Community Care, Delirium, Depression, End of Life Care, Falls, Falls Prevention, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Guidelines, Hip Fractures, Hypertension, In the News, Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, NIHR, Non-Pharmacological Treatments, Nutrition, Pain, Parkinson's Disease, Patient Information, Person-Centred Care, Personalisation, Quick Insights, Standards, Systematic Reviews, Telecare, Telehealth, UK, Universal Interest | Tagged ADLs/IADLs, Advance Care Planning (ACP), Ageing Population, Alzheimer’s Disease, Care Home Admission Delay, Carer Burden, Carer Outcomes (Financial Burden and More), Carers’ Mental Health, Carers’ Physical Health, Choice in Health and Social Care, Co-Morbidities, Cognition, Cognitive Stimulation Therapy (CST), Community Settings, Consumer Experiences of Health and Social Care, Day Care, Dementia (General / Unspecified), Dementia Evidence Toolkit, Dementia Evidence Toolkit (MODEM): Evidence Database, Dementia Evidence Toolkit (MODEM): Evidence Summaries, Dementia Research, Dementia: What Works?, Depression and Anxiety, Early-Onset Dementia, Economic and Social Research Council (ESRC), Education and Staff Training, ESCR and NIHR’s Improving Dementia Care Initiative, Extra Care Housing, Fronto-Temporal Dementia, Global Leadership, Health and Social Care, Health and Social Care Services, Hospital Inpatient Care, Hospital Outpatient Care, Hospital Use Reduction, Huntingtons, Innovation in Health and Social Care, Instruments Measuring Carer Burden, Lewy Body Dementia, London School of Economics and Political Science (LSE), Long Term Residential Care Without Medically Trained Staff, LSE's Personal Social Services Research Unit (PSSRU), Maintenance Cognitive Stimulation Therapy (CST), Memory Clinics, Mild Cognitive Impairment (MCI), Modelling the Outcome and Cost Impacts of Interventions for Dementia Project (MODEM), MODEM, MODEM (Modelling the Outcome and Cost Impacts of Interventions for Dementia) Project, Museums, Music Therapy, National Institute for Health Research (NIHR), National Institute for Health Research (NIHR)’s Improving Dementia Care Initiative, Nursing Homes, Outcomes, Parkinson’s Dementia, Personal Social Services Research Unit (PSSRU), Personal Social Services Research Unit (PSSRU): London School of Economics and Political Science, Physical Health, Pick’s Disease, Prevention and/or Management of Co-morbidities, Primary Care, Professor Martin Knapp: Director of the Personal Social Services Research Unit at the London School of Economics and Political Science (LSE), PSSRU at LSE, Quality of Life of Carers, Quality Of Life Of Person With Dementia, Satisfaction With Care/services, Service Cost Reductions, Service Use, Specialist Dementia Centre Care / Memory Clinics, Staff Training, Staff Training in Assisted Living Residences (STAR), START: STrAtegies for RelaTives, STrAtegies for RelaTives (START), Supporting People with Dementia and Their Carers in Health and Social Care, Types of Dementia, Vascular Dementia, Workforce Training | Leave a comment

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