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Tag Archives: Challenges of Living with Dementia
A Framework of Promising Interventions for Improving the Support of People Living With Dementia (Age UK)
Summary An Age UK report investigates a variety of interventions which may be of assistance in the support of people with dementia and their families / carers. Case studies of services and projects designed to support wellbeing / living well … Continue reading →
Posted in Age UK, Alzheimer's Society, Assistive Technology, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Systematic Reviews, Telecare, UK, Universal Interest
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Tagged Accessible Transport, Active Daily Lives, Age UK Camden, Age UK Norfolk, Age UK South Staffordshire, Age-Friendly Environments, Alternatives to Hospital for People with Dementia, Alzheimer Scotland, Assistive Technology Supporting Independence of People With Dementia, Barriers to Self-Management for People with Dementia, Barriers: Discrimination, Befriending, Befriending Interventions, Befriending Services, Better Care for Older Patients With Dementia, Better Policies for People with Dementia, Blackburn With Darwen Connect, BUDS (Better Understanding for Dementia in Sandwell), BUDS Befriending Service, Built Environment, Butterfly Scheme, Care for People with Dementia, Care Pathways for People With Dementia, Carer Information and Support Programme (CrISP), Carer Support, Carer Support Services, Challenges of Living with Dementia, Circles of Support, Circles of Support for People with Dementia, Cognitive Stimulation Therapy, Cognitive Stimulation Therapy (CST), Cogs Clubs, Community Connections, Community Factors, Counselling for People with Dementia, Dance Well, Dance Well Project, DEEP2: Dementia Engagement and Empowerment Project, DEEP: Dementia Engagement and Empowerment Project, Dementia Action Alliance (DAA), Dementia Adventure, Dementia Engagement and Empowerment Project (DEEP), Dementia Experiences, Dementia Friendly GP Surgeries (iSPACE), Dementia Friendly Heathrow, Dementia Project at Thrive Trunkwell Gardens, Dementia Rights and the Social Model of Disability, Dementia Self-Help Project, Dementia Statements, Dementia Statements (Refreshed), Dementia Wellbeing Coordination, Dementia Wellbeing Coordination (Age UK Norfolk), Dementia-Friendly Communities, Dementia-Friendly Environments, Dementia-Friendly GP Surgeries, Dementia-Friendly Housing, Dementia-Friendly York, Dementia-Inclusive Communities, Dementia-Inclusive Society, Design and Built Environment, Enabling Services, Environmental Design, Experiences, Five Pillars of Post-Diagnostic Support, Five Pillars of Support, Focus on Abilities Instead of Losses, Housing and People with Dementia, iD: Innovations in Dementia, Improving Outcomes for People Living With Dementia, Inclusion, Innovations in Dementia, Institutional Factors, Intrapersonal Processes and Primary Groups, iSPACE – Dementia Friendly GP Surgeries, JABADAO, Kitwood Flower, Kitwood Flower (Six Psychological Needs: Attachment Love Comfort Identity Inclusion and Occupation), Liverpool Service User Reference Forum (SURF), Living Together With Dementia, Living Together with Dementia (LTwD) Programme, Living Well with Dementia, Living Well with Dementia Research, Maintenance Cognitive Stimulation Therapy (CST), Maintenance Cognitive Stimulation Therapy (M-CST), Marginalisation in Dementia, Marginalised Users, Mental Health Foundation (MHF), Patient and Carer Experiences, Peer Support, Person-Centred Planning, Personal Wellbeing, Positive Inclusion and Participation, Positive Relationships, Post Diagnosis Link Workers, Post-Diagnosis Support in Glasgow, Post-Diagnostic Support, Post-Diagnostic Support for People with Dementia, Pre-Diagnostic Support, Primary Care Navigators (Age UK Camden), Primary Care Navigators (PCNs), Promising Approaches to Living Well With Dementia (Age UK), Public Policy, Public Transport, Reducing Discrimination, Rights-Based Approaches to Dementia, Roller Mill: Day Opportunities From Age UK South Staffordshire, Salford Way, Shake Your Tail Feather, Shared Lives for Dementia, Six Psychological Needs: Attachment Love Comfort Identity Inclusion and Occupation (Kitwood Flower), Social Inclusion, Social Model of Disability (Mental Health Foundation), Sporting Memories, Sporting Memories Network CIC, Standing Together, Standing Together Project, Stigma and Discrimination, Support for Couple Relationships, Support for Living Well With Dementia, Tavistock Relationships, Tesco, Tesco Dementia Friendly Checkouts, Thrive, Tom Kitwood, Transport and Mobility, Vulnerable Adult Cards
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People With Dementia Living Alone in the Community (Journal of Alzheimer’s Disease)
Summary Research, based on experiences and outcomes concerning people with dementia living alone (with and without help from an informal caregiver) in Germany, indicates that it is possible – provided adequate support services are available – to survive without significant … Continue reading →
Posted in Commissioning, Community Care, Depression, Falls Prevention, For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Statistics, Universal Interest
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Tagged Bayer Activities of Daily Living Scale (B-ADL), Challenges of Living with Dementia, Community-Based Care, Community-Based Interventions, Community-Based Services, Community-Based Support, Community-Dwelling Older Adults, Community-Dwelling Older People with Dementia, Control and Independence, Culture Change in Health and Care, Dementia Care Management (DCM), DemTect, Department of Psychiatry and Psychotherapy: University Medicine Greifswald, Dignified Independent Living With Care, Evaluating Integrated and Community-Based Care, German Center for Neurodegenerative Diseases (DZNE), Germany, Health and Care of Older People, Help With Medication, Home Care, Home Support for People Living With Dementia, Home-Delivered Meals, Housekeeping Assistance, Improving Outcomes for People Living With Dementia, Improving the Quality of Life for People With Dementia, Independence, Independence and Wellbeing, Independence at Home, Independence in Older Adults, Independent Living, Informal Care, Informal Caregiving, Informal Carers, Institute for Community Medicine: University Medicine Greifswald, Integrated and Community-Based Care, Integration of Health and Care, International Comparisons, Journal of Alzheimer's Disease, Living Independently At Home, Living Well with Dementia, Living Well With Dementia: German Statistics, Living with Dementia, Living With Neurological Conditions, Maintaining Independence, Measures of Living Arrangements and Informal Care, People With Dementia Living Alone, Quality of Life-AD (QoL-AD), Screening For Dementia in GP Practices, Staying Independent, Support For Living Independently At Home, Sustainable Health and Care Services, Transforming Participation in Health and Care, University Medicine Greifswald, Unmet Needs of Community-Dwelling Primary Care Patients With Dementia in Germany, Utilization of Health and Nursing Care Services, What Works Resource Pack: Involving People Living with Dementia
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Healthcare Pathways For People Living With Dementia: World Alzheimer Report 2016 (Alzheimer’s Disease International)
Summary The World Alzheimer Report 2016, entitled “Improving healthcare for people living with dementia” reviews evidence on aspects of healthcare for people with dementia and suggests how improvements and efficiency savings can be made. The authors are against over-specialization of … Continue reading →
Posted in Acute Hospitals, Alzheimer’s Disease International (ADI), Charitable Bodies, Commissioning, Community Care, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Quick Insights, Standards, Statistics, Systematic Reviews, UK, Universal Interest
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Tagged 10/66 Dementia Research Group, Access to Palliative Care, ADI’s World Alzheimer Reports, Advance Care Planning (ACP), Ageing Population, Ageing Society, Alzheimer’s Disease International (ADI), Alzheimer’s Disease International’s 10/66 Dementia Research Group, Benefits of Case Management, Better Policies for People with Dementia, Canada, Canadian Centre for Family Medicine Family Health Team (CCFM-FHT) Ontario Memory Clinic, Canadian Comfort Care Booklet, Canadian Comfort Care Principles, Canadian Mild Dementia Knowledge Transfer Toolkit, Care Coordination / Case Management Approaches For People With Dementia Living at Home, Care Coordination and Navigation, Case Management for Dementia, Challenges of Living with Dementia, China, Clinical Practice Guidelines and Care Pathways for People with Dementia Living in the Community (Queensland University of Technology), Community Care, Community Care Services, Community-Based Care, Community-Based Care for People With Dementia, Cost Implications of Dementia Healthcare Pathways, Counter-Factual Service Modelling, Dedicated Care Coordination, Dementia Care in Acute General Hospitals, Dementia Care Pathways, Dementia Healthcare Pathways, Dementia Post-Diagnostic Care and Support, Dementia Research Priorities For Healthcare Sector (WHO Research Prioritization Exercise), Dementia Risk Reduction, Dementia Risk Reduction and Prevention, Dementia: Prevalence and Detection, Early Detection of Alzheimer’s Disease, European Association for Palliative Care White Paper, Global Action Against Dementia, Global Burden of Dementia, Global Context, Global Costs of Dementia, Global Dementia Crisis, Global Dementia Crisis: Adaptations to Services, Global Dementia Crisis: Re-Balancing of Funding For Services, Global Dementia Crisis: Re-Balancing of Services, Global Health, Global Observatory for Ageing and Dementia Care, Global Observatory for Ageing and Dementia Care: King’s College London, Global Outlook, Health Service and Population Research Department: King’s College London, Improving Healthcare For People Living With Dementia: World Alzheimer Report 2016, Improving Outcomes for People Living With Dementia, Indonesia, Integrated and Community-Based Care, Integration of Primary Secondary and Community Care, King’s College London, Living with Dementia, London School of Economics and Political Science (LSE), LSE's Personal Social Services Research Unit (PSSRU), Managing Comorbidity and Complexity, Mexico, Palliative Care, Personal Social Services Research Unit (PSSRU), Personal Social Services Research Unit (PSSRU): London School of Economics and Political Science, Primary Care, Professor Martin Knapp: Director of the Personal Social Services Research Unit at the London School of Economics and Political Science (LSE), PSSRU at London School of Economics and Political Science, Queensland University of Technology Clinical Practice Guidelines and Care Pathways for People with Dementia Living in the Community, South Africa, South Korea, Switzerland, Systematic Reviews and Meta-Analyses, Task-Sharing, Task-Shifting, Typical Duration of Care Inputs Across the Care Pathway, Typical Intensity / Frequency of Care Inputs Across the Care Pathway, World Alzheimer Report 2016, World Health Organization Mental Health Gap Action Programme (mhGAP) Evidence Based Guidelines
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SCIE Dementia Gateway: Useful Dementia-Related Information Resources (SCIE)
Summary The Social Care Institute for Excellence (SCIE) has produced, and maintains, an uptodate and impressively broad collection of links to dementia-related websites and information resources. A wide range of topics and themes in dementia care are covered, including: Dementia-Friendly … Continue reading →
Posted in Acute Hospitals, Age UK, All-Party Parliamentary Group (APPG) on Dementia, Alzheimer's Society, Alzheimer’s Disease International (ADI), Alzheimer’s Research UK, Antipsychotics, Assistive Technology, Carers UK, Charitable Bodies, Commissioning, Community Care, Dementia Action Alliance, Department of Health, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Housing LIN, Integrated Care, International, Joseph Rowntree Foundation, King's Fund, Local Interest, Management of Condition, Mental Health, Mental Health Foundation, Models of Dementia Care, National, National Voices, New Cross Dementia Project, NHS, NHS Digital (Previously NHS Choices), NIHR, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, RCN, Royal College of Psychiatrists, SCIE, Standards, Statistics, Telecare, Telehealth, UK, Universal Interest
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Tagged Action on Hearing Loss, Active Ageing, Activity in Care Homes, ADI’s World Alzheimer Reports, Admiral Nursing DIRECT, Admiral Nursing Service, Age-Friendly Environments, All-Party Parliamentary Group (APPG), All-Party Parliamentary Group on Dementia, Alzheimer Scotland, Alzheimer’s Disease International (ADI) Campaigns, Alzheimer’s Research UK (ARUK), Alzheimer’s Society Campaigners’ Network, AMCAT: Assessment of Mental Capacity Audit Tool, Arts 4 Dementia, Assessing Mental Capacity, Association for Dementia Studies, Association for Dementia Studies: University of Worcester, AT Dementia, Behavioural and Psychological Symptoms of Dementia (BPSD), Best Interest Decisions, BILT: British Institute of Learning Disabilities, Black and Minority Ethnic (BME), Black Asian and Minority Ethnic (BAME), Black Asian Minority Ethnic (BAME), BME Communities, BME People with Dementia, Bournemouth University Dementia Institute, Bradford Dementia Friendly Community Project, Bradford Dementia Group, Bradford Dementia Group Good Practice Guides, Building Dementia Friendly Communities, Built Environment, Care and Communication, Caregiver-Patient Communication, Caregiving (Carers), Carer Awareness, Carer Inclusion, Carer Involvement in Healthcare, Carer Support, Carer's Needs, Carer’s Perspective, Carers Direct, Carers for People with Dementia, Carers Trust, Caring Decisions, Caroline Walker Trust, Challenges of Living with Dementia, Clinical Research Network (NIHR), Clive Project, Communication, Communication Problems, Communication Skills, Communication-Friendly Communities, Concurrent Dementia and Sight Loss, Council of Occupational Therapists, Deaf Action, Deaf Action in Scotland, Deafness Cognition and Language Research Centre (UCL), Decision Making, DEEP: Dementia Engagement and Empowerment Project, Delegated Decision Making, Dementia Action Alliance (DAA), Dementia Adventure, Dementia Advocacy and Support Network International (DASNI), Dementia and Sensory Loss, Dementia and Sight Loss, Dementia and Sight Loss Interest Group, Dementia and the Health and Social Care System: Key Reports., Dementia Café, Dementia Centre, Dementia Centre: University of Stirling, Dementia Challenge, Dementia Challengers, Dementia Diagnosis, Dementia Diagnosis and Care in England, Dementia Engagement and Empowerment Project (DEEP), Dementia Friendly Action Plans, Dementia Friendly Extra Care Housing, Dementia Friends, Dementia Friends Campaign, Dementia Gateway, Dementia Information and Resource Centre, Dementia Information Prescription, Dementia Institute: Bournemouth University, Dementia Knowledge Centre, Dementia Partnerships, Dementia Prevalence Calculator, Dementia Research, Dementia Research Centre: National Hospital for Neurology and Neurosurgery, Dementia Service Development Centre: University of Stirling, Dementia Services Development Centre, Dementia Services Development Centre (DSDC), Dementia Services Development Centre (University of Stirling), Dementia UK, Dementia Web, Dementia Without Walls, Dementia Without Walls (York), Dementia Without Walls Project, Dementia-Friendly Cities, Dementia-Friendly Communities, Dementia-Friendly Environments, Dementia-Friendly Yorkshire, Dementia-Related Information Resources, Dementia-Related Internet Sites, Dementia-Related Websites, Dementias and Neurodegenerative Diseases Research Network (DeNDRoN), Department of Health Dementia Challenge, Department of Health National Dementia Strategy Implementation Group, Design and Built Environment, Design Resource Centre, Diagnosis and Assessment, Diagnosis and Support, Diagnosis Rates, Difficult Conversations, Difficult Situations, Disability Living Foundation, Diversity, Diversity and Dementia, DLF: Disability Living Foundation, DSDC Virtual Care Home, DSDC Virtual Hospital, Dying Matters Coalition, Early Diagnosis, Eating Well, EHE: Enhancing the Healing Environment, Elderly Malnutrition, Enhancing the Healing Environment (EHE), Equality and Diversity, Ethnic Minorities Dementia Advocacy Project (EMDAP), Exercise, Extra Care Housing, Extra Care Housing and Dementia, Extra Care Housing and Dementia Commissioning Checklist, Facing Dementia, Food for Thought, Foundation for Assistive Technology, Foundation for Assistive Technology (FAST), Foundations, Frontotemporal Dementia Support Group, Good Communication, Guideposts Trust, Healthtalkonline, Hearing and Sight Loss, Helen Hamlyn Centre, Horsesmouth, Housing and Dementia, Housing Learning & Improvement Network (Housing LIN), Housing Learning and Improvement Network (LIN), I CAN! I WILL! Library, iD: Innovations in Dementia, Innovations in Dementia, Journal of Dementia Care, King’s Fund Enhancing the Healing Environment Programme, Knowing the Person, Knowing the Person With Dementia, Learning Disabilities, LGA: Local Government Association, Life Story Network, Life Story Network (LSN), Living Well Through Activity in Care Homes (Toolkit), Living Well with Dementia, Living with Dementia, Local Government Association: LGA, Maintaining Identity After a Dementia Diagnosis, Making Involvement Count, Malnutrition, Malnutrition and Dementia Patients, Malnutrition Task Force, Malnutrition Task Force (MTF), Mealtime Difficulties, Meaningful Occupation, Memory and Alzheimer’s Cafes UK Directory, Memory Services, Mental Capacity Act (MCA), Mental Capacity Implementation Programme, Mental Health Foundation (MHF), National Council for Palliative Care (NCPC), National Dementia Declaration, National Dementia Strategy, National Housing Federation, NHS England (Formerly the NHS Commissioning Board), NHS Health Scotland, NHS National End Of Life Care Programme, NHS South West, NICE Pathways, NICE Support for Commissioning Dementia Care (CMG48), Non-Cognitive Behavioural and Psychological Symptoms of Dementia, Non-Verbal Communication, Northern Health and Social Care Trust in Northern Ireland, Occupation (Sense of Purpose), Our Health: Dementia Care, Peter and Rosemary Griffin, Physical Activity, Pick’s Disease Support Group, Post‐Diagnosis Support, Prime Minister’s Dementia Challenge, Proxy Decision Making, Quality Standard for Dementia, Race Equality Foundation, Remember the Person, Respectful Communication, Road Less Rocky, Royal College of Art, Royal College of Nursing (RCN), Royal College of Nursing (RCN) Dementia Resource, Royal College of Nursing: Dementia, SCIE Dementia Gateway, SCIE Mental Capacity Act Resource, Scottish Dementia Working Group, Scottish Dementia Working Group (SDWG), Sensory Impairment, Sensory Loss, Sight Loss, Skills for Care (SfC), Social Care Institute for Excellence (SCIE), South West Dementia Partnership, South West Dementia Partnership Learning and Education Resources, South West Dementia Partnership Learning Library, Stirling Dementia Services Development Centre (DSDC), Stirling University: Dementia Services Development Centre, Support for Commissioning Dementia Care (NICE: CMG48), Talking Point, Telecare Learning and Improvement Network, Telecare LIN, This is Me, This is Me: Person-Centred Care, Timely Diagnosis, Trent Dementia Services Development Centre, UK Homecare Association (UKHCA), UKHCA: UK Homecare Association, United Kingdom Homecare Association (UKHCA), Uniting Carers, University of Bradford, University of Bradford Dementia Group, University of Stirling's Dementia Services Development Centre, University of Worcester: Association for Dementia Studies, Unlocking Diagnosis, Unusual Behaviour, Useful Dementia-Related Information Resourses (SCIE), Vision2020, Wolverhampton Medical Institute (WMI), Worcester Association for Dementia Studies, World Alzheimer Report (2012), World Alzheimer Report 2009, World Alzheimer Report 2010, World Alzheimer Report 2011, World Alzheimer Report 2013, York Dementia Without Walls, Young People With Dementia, Young-Onset Dementia, YoungDementia UK
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Dementia Action Alliance Webinars for 2014 (DAA)
Summary The Dementia Action Alliance (DAA) has organised a series of free webinars on dementia and related topics. The list of events, so far, includes: What Living With Dementia Is All About. Presented by Peter Ashley, Living With Dementia. Thursday … Continue reading →
Posted in Alzheimer's Society, Charitable Bodies, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, National, Patient Care Pathway, Person-Centred Care, Practical Advice, Quick Insights, UK, Universal Interest
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Tagged Awareness, Awareness and Understanding, Cancer and Dementia, Challenges of Living with Dementia, Co-Morbidities, College of Occupational Therapists (COT), Competent and Capable Staff, Complex Care, Complex Needs, COTSS-OP: College of Occupational Therapists Specialist Section for Older People, Cultural Relevance, Cultural Sensitivity, Culturally Competent Dementia Care, Culturally Sensitive Services, Dementia Action Alliance (DAA), Dementia Action Alliance Webinar Programme (2014), Dementia Action Alliance Webinar Registration, Dementia Advisers, Dementia Advisors, Dementia Awareness, Dementia Awareness Training, Dementia Co-Morbidities, Education and Training, Enabling Occupation, Free Webinars (DAA), Living with Dementia, Living With Dementia Group (LWDG), Long-Term Conditions, Long-Term Conditions (LTCs), Macmillan Cancer Support, Management of Co-Morbidities, Multiple Chronic Disease, Multiple Health Issues, Multiple Needs, Multiple-Morbidities, Older People With Complex Needs, Respect for Religious or Cultural Backgrounds, Training, University of Worcester, University of Worcester: Association for Dementia Studies, Worcester University, Workforce Competencies, Workforce Development, Workforce Training
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Salford Institute for Dementia (University of Salford)
Summary Introducing the University of Salford‘s Salford Institute for Dementia: “Working together with local, regional, national and international partners to make a positive difference to living with dementia”. Read more: Salford Institute for Dementia. School of Nursing, Midwifery & Social Work. University of Salford, … Continue reading →
Posted in Universal Interest
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Tagged Ageing With Dementia, Care for People with Dementia, Caring for People With Dementia, Challenges of Living with Dementia, Dementia Research, Dementia-Friendly Cities, Dementia-Friendly City, Dementia-Friendly Communities, Dementia-Friendly Environmental Design, Dementia-Friendly Universities, Design Thinking, Environmental Design, Improving Care for People with Dementia, Living Well with Dementia, Living Well with Dementia Research, Living with Dementia, Manchester, Salford Institute for Dementia, Salford Institute for Dementia (University of Salford), School of Nursing Midwifery & Social Work: University of Salford, University of Salford: Salford Institute for Dementia
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Perspectives On Ageing With Dementia (Joseph Rowntree Foundation)
Summary This Joseph Rowntree Foundation Perspectives paper explores the formation, development, benefits and challenges of the Scottish Dementia Working Group (SDWG). The views and experiences of people living with dementia are explored. Challenges faced by people living with dementia and … Continue reading →
Posted in Charitable Bodies, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Joseph Rowntree Foundation, National, Proposed for Next Newsletter, Quick Insights, Scotland, UK, Universal Interest
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Tagged Ageing, Ageing With Dementia, Alzheimer Scotland, Awareness, Awareness Raising, Campaigning, Challenges of Living with Dementia, Diagnosis, Diagnosis of Dementia, Early Diagnosis of Alzheimer's Disease, Independence and Relationships, Patient Information Factsheet, Political Campaigning, Post-Diagnostic Support, Scottish Dementia Forum, Scottish Dementia Working Group (SDWG), SDWG: Scottish Dementia Working Group, SNP Government, Spirituality, Staying Independent, Stigma
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