Tag Archives: Decision-Making Capacity

Review of Tube Feeding in Advanced Dementia (Journal of Aging Research)

Posted on December 22, 2019 by Dementia and Elderly Care News

Summary A narrative literature review has investigated tube feeding in persons with advanced dementia, offering a comprehensive and unbiased attempt to achieve a balanced assessment of the perceived benefits and common disadvantages of such interventons, in broad terms of quality … Continue reading →

Posted in Acute Hospitals, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), International, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Nutrition, Person-Centred Care, Personalisation, Quick Insights, Systematic Reviews, UK, Universal Interest | Tagged Abdominal Discomfort, American Geriatrics Society (AGS), Anticipatory Decision-Making, Artificial Nutrition in Dementia, Aspiration Pneumonia, Benefit-Harm Ratio of Tube Feeding in People with Advanced Dementia, Best Interests Decision-Making, Burdens of Tube Feeding in People with Advanced Dementia, Colonic Fistulae, Community Haywood Hospital (Stoke-on-Trent), Constipation, Costs of Tube Feeding, Decision-Making at End of Life, Decision-Making Capacity, Dementia Disease Progression, Diarrhoea, East Kent Hospitals University NHS Foundation Trust, Eating in Advanced Dementia, Eating Problems in Advanced Dementia, Electrolyte Imbalance and Fluid Retention, Enteral Tube Feeding, Feeding Tube Placement in Advanced Dementia, Infection Risk, Informed Decision-Making, Journal of Aging Research, Literature Reviews, Local Pain and Bleeding, MDTs: Multidisciplinary Teams, Multi-Disciplinary Team (MDT), Multidisciplinary Meetings, Multidisciplinary Teams, Nasogastric and Gastrostomy Tubes, Nasogatric Tube Feeding, Nutrition and Survival Benefits of Tube Feeding in Advanced Dementia, Oral Health-Related Problems, Parenteral and Enteral Nutrition, Perceived Benefits of Tube Feeding in Advanced Dementia Individuals, Percutaneous Endoscopic Gastrostomy (PEG), Peristomal Wound Leakage, Poor Oral Intake in Patients With Advanced Dementia, Pressure Sores, Proxy Decision Making, Radiologically Inserted Gastrostomy (RIG) Tube Feeding, Refeeding Syndrome, Reported Benefits of Tube Feeding in Advanced Dementia Individuals, Royal Stoke University Hospital (Previously City General), Sepsis From Abdominal Abscesses, Shared Decision-Making, Supporting Decision-Making, Surrogate Decision-Making, Survival Rates, Systematic Literature Reviews, Tube Feeding, Tube Feeding in Advanced Dementia, Tube Feeding in Advanced Dementia Versus Other Diseases, Tube Feeding Versus Oral Feeding, Tube Feeding: Cost-Effectiveness Studies, Tube Leaks or Blockages, William Harvey Hospital (Ashford) | Leave a comment

A Model for Enhancing Independence and Self-Management for People Living With Dementia (JGCR)

Posted on March 10, 2019 by Dementia and Elderly Care News

Summary An article from Japan proposes a model for self-management support, entitled “Self-Management of Autonomous Interdependent Life Empowerment (SMILE)”. Five factors for helping to preserve social function include: A focus on individuals’ retained functions and strengths, rather than their deficits. … Continue reading →

Posted in Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Universal Interest | Tagged Ageing Population, Anosognosia, Autonomous Decision Making, Autonomous Interdependence, Autonomous Interdependent Life Empowerment, Autonomy and Choice, Autonomy and Self-Determination, Barriers to Self-Management for People with Dementia, Co-Beneficial Relationships, Communication Support, Decision-Making Capacity, Declining Social Cognition, Deterioration in Social Cognition, Easing Decision-Making, Empowerment, Empowerment and Dementia, Empowerment and Support, Encouraging Independence and Social Interaction, Functional Independence of Older Adults, Gratitude, Gratitude and Appreciation, Habituation of Gratitude, Health Wellbeing and Independence, Healthy Ageing, Independence, Independence and Relationships, Independence and Wellbeing, Independence in Older Adults, Information Flow in Alzheimer’s Disease, International Classification of Functioning Disability and Participation, Japan, Journal of Geriatric Care and Research (JGCR), Maintaining Good Relationships With Others, Maintaining Independence, Maintaining Relationships, Metacognition and Perspective-Taking in Alzheimer’s Disease, National Center for Geriatrics and Gerontology (Japan), Ottawa Charter for Health Promotion (WHO), Patient Empowerment, Positive Relationships, Pragmatic Language, Progressive Theory of Mind Decay, Reablement and Rehabilitation, Reciprocal Relationships, Recovery and Rehabilitation, Regaining Independence, Rehabilitation, Respect for Autonomy, Self Care For Life, Self-Care, Self-Management, Self-Management in Early Stage Dementia, Self-Management of Autonomous Interdependent Life Empowerment (SMILE), Self-Management Support, Services Maximising Independence, Setting Goals for Rehabilitation, Shared Decision-Making, SMILE Model for Person-Centred Communication Support, Social Cognitive Deficits, Social Cognitive Deterioration, Social Relationships, Social Reserve, Strength-Based Conversations, Strengths-Based Approaches to Care, Supporting Decision-Making, Supporting Self-Care, Supporting the Independence of People With Dementia, Supporting Wellbeing Resilience and Independence, Supportive Relationships, Supportive Social Relationships, Sustaining Relationships, Theory of Mind, Theory of Mind and Social Reserve, User Empowerment | Leave a comment

Advance Care Planning for People With Dementia (NHS England)

Posted on April 21, 2018 by Dementia and Elderly Care News

Summary NHS England’s Dementia Team and End of Life Care Team have released a guide about advance care planning for people with dementia in all care settings. An aim featured in the Dementia Challenge 2020 was the requirement for all … Continue reading →

Posted in Acute Hospitals, Alzheimer's Society, Charitable Bodies, Commissioning, Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, National, NHS, NHS England, Person-Centred Care, Personalisation, Quick Insights, UK, Universal Interest | Tagged ACP and Capacity, ACP Conversation, Adults Lacking Capacity, Advance Care Planning, Advance Care Planning (ACP), Advance Care Planning for People With Dementia, Advance Decision, Advance Decision to Refuse Treatment (ADRT), Advance Decisions to Refuse Treatment, Advance Statement, Advance Statements and Decisions, Ageing and Dementia, Ambitions for Palliative and End of Life Care, Ambitions for Palliative and End of Life Care (2015), Ambitions for Palliative and End of Life Care Framework, Ambitions for Palliative and End of Life Care: National framework for Local Action 2015-2020 (Ambitions Framework), Barriers: Ineffective Advance Care Planning, Best Interest Decisions, Best Practice for ACP: Examples, Capacity and Advance Decisions, Capacity and Capability, Carer Support, Conversation Project (Institute for Healthcare Improvement), Decision-Making Capacity, Department of Health Dementia Challenge (2020), Difficult Conversations (Dying Matters), Difficult Conversations for Dementia (NCPC), Do Not Attempt Resuscitation (DNAR), Dying Well: Dementia, Electronic Palliative Care Co-ordination Systems (EPaCCS), Embedding ACP Into Commissioning Strategy, Empowerment, Empowerment and Dementia, Empowerment and Support, End of Life Care, End of Life Care Discussions, End of Life Care for People with Dementia, End of Life Care Plans, End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Gold Standards Framework (GSF), Information Sharing: Advance Care Plans, Key ACP Steps / Actions, Lasting Power of Attorney (LPA), Lasting Power of Attorney (LPoA), Lasting Power of Attorney for Health and Welfare, Louise Langham: Tide - Together in Dementia Everyday, Maria Nicolson: Expert by Experience, Mental Capacity, Mental Capacity Act 2005, My Future Wishes: Advance Care Planning (ACP) for People With Dementia, NHS England Dementia Team, NHS England’s End of Life Care Team, Older People's Mental Health and Dementia Team (NHS England), Patient Empowerment, Post-Diagnostic Support, Post-Diagnostic Support for People with Dementia, Preferred Place of Death, Prime Minister’s Challenge On Dementia 2020, Recommended Summary Plan for Emergency Care and Treatment (ReSPECT), Referral to Support Organisations, Respect, Respect for Autonomy, Respect for Identity, Respect For Patients, SDM: Shared Decision Making, Shared Decision-Making, Starting the Conversation (Compassion in Dying), Summary Care Records, Summary Care Records (SCRs), Summary Care Records: Extended to Cover Dementia and Learning Disabilities, Thinking Ahead - Advance Care Planning, Time to Talk (Dying Matters), Tina Wormley: Expert by Experience, Together in Dementia (tide - Trade Marked Acronym), Treatment Escalation Plans | Leave a comment

Facilitating Difficult Conversations About Encroaching Old Age (BBC News / Independent Age)

Posted on July 11, 2016 by Dementia and Elderly Care News

Summary Independent Age (using the services of ComRes) conducted a survey which indicates that many people avoid talking about getting old and planning for loss of independence in old age. People tend to find conversations about end-of-life care particularly difficult … Continue reading →

Posted in BBC News, Charitable Bodies, End of Life Care, For Carers (mostly), In the News, Management of Condition, National, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, UK, Universal Interest | Tagged Advance Care Planning, Advance Decision, Advance Statement, Ageing Population, Anticipatory Decision-Making, Barriers to Conversation (Difficult Conversations), Barriers to Talking About Ageing, Barriers: Ineffective Advance Care Planning, BBC Health News, Capacity and Advance Decisions, Care for People with Dementia in the Community, Care in an Ageing Society, Caregivers, Caregiving (Carers), Compassion in Dying, ComRes Polling, Decision Making, Decision-Making at End of Life, Decision-Making Capacity, Delayers, Delayers and Deniers, Delegated Decision Making, Deniers, Difficult Conversations, Difficult Conversations (Families and Carers), Difficult Conversations: Anticipating Reactions, Easing Decision-Making, End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Facilitating Difficult Conversations, Families, Family Caregivers, Family Carers, Health and Care Suitable for an Ageing Population, Home Care, Independent Age, Independent Age Helpline, Information Sharing: Advance Care Plans, Intergenerational Communication, Janet Morrison (Chief Executive of Independent Age), Lasting Power of Attorney for Health and Welfare, Let Me Decide (Advance Care Directive), Living with Dementia, Loss of Independence, Managing My Affairs If I Become Ill, Participatory Decision-Making, Planning Ahead, Power of Attorney, Proxy Decision Making, Shared Decision-Making, Supporting Health Wellbeing and Independence, Talking About End-of-Life Planning, Talking About Getting Extra Help at Home, Talking About Moving Home, Talking About Moving Out of Home, Tools For End of Life Care Planning, Unpaid Care Provision, Unpaid Caregivers (Carers), Unpaid Carers, Unwillingness to Consider Residential Care | Leave a comment

NICE Guideline SC1: Managing Medicines in Care Homes (NICE)

Posted on March 17, 2014 by Dementia and Elderly Care News

Summary The National Institute for Health and Care Excellence (NICE) has published the guideline “Managing medicines in care homes (SC1)”, which provides recommendations for good practice on the systems and processes for managing medicines in care homes. This guideline applies … Continue reading →

Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Management of Condition, National, NICE Guidelines, Patient Care Pathway, Person-Centred Care, Personalisation, Pharmacological Treatments, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Adult Safeguarding, Antipsychotic Prescribing in Care Homes, Antipsychotic Prescribing in Nursing Homes, Antipsychotics, Autonomy and Choice, Care Home Staff Administering Medicines, Care Home Use of Medicines Study (CHUMS), Care Homes, Cognitive Capacity and Consent, Consent, Consent to Treatment and CTOs, Decision-Making Capacity, Dispensing and Supplying Medicines, Human Rights in Care Homes, Improving Pharmaceutical Care in Care Homes, Inappropriate Prescribing, Independence, Independence Choice and Risk, Informed Decision-Making, Maintaining Independence, Managing Medicines, Managing Medicines in Care Homes, Managing Patients' Medicines After Discharge, Medication Reviews, Medicine Record-Keeping, Medicines Management, Medicines Reconciliation, National Institute for Health and Care Excellence (NICE), NHS Constitution, NO TEARS Tool (Need / Indication Open Questions Tests Evidence Adverse effects Risk Reduction Simplification / Switches), Patient Safety, Polypharmacy in the Elderly STOPP and START Criteria, Prescribing, Prescription Management, Prevention of Maladministration of Medication Checklist, Psychotropic Medicine Management for People in Care Homes with Dementia, Psychotropic Prescribing, Receiving Storing and Disposing of Medicines, Record-Keeping, Records Management: NHS Code of Practice, Regaining Independence, Respect for Autonomy, Reviewing Medicines, Safeguarding, Safeguarding Adults at Risk, Safeguarding Adults in Care Homes, Safeguarding and Medicines, Safety of Medicines in Care Homes, Self-Administration, Self-Care, Self-Determination, Seven Steps to Patient Safety, Shared Decision-Making, Standards for Medicines Management, START (Screening Tool to Alert Doctors to Right Treatment), Staying Independent, STOPP (Screening Tool of Older Person's Prescriptions), STOPP and START Criteria, Supporting Self-Care | Leave a comment

Living Well Through Activity in Care Homes (BAOT / COT)

Posted on September 16, 2013 by Dementia and Elderly Care News

Summary The British Association of Occupational Therapists (BAOT) and College of Occupational Therapists (COT) have produced a set of free online resources designed to help care home residents maintain health, their sense of purpose and involvement by continuing to engage … Continue reading →

Posted in Commissioning, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Joseph Rowntree Foundation, Management of Condition, National, Person-Centred Care, Physiotherapy, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Active Engagement, Activity, Activity in Care Homes, Adults with Incapacity Act (Scotland), Animals, Arts Crafts and Creative Activities, Balance, Balancing Risk and Choice, BAOT, Benefits of Activity, Best Practice in Care Homes, British Association of Occupational Therapists (BAOT), Care and Communication, Care Homes, Cognitive Activities, Cognitive Stimulation, College of Occupational Therapists (COT), Communication, Community Activities, Community Involvement, Companion Animals May Help People With Dementia, COT, Creative Activities, Creative Activity, Creativity, Decision-Making Capacity, Decision-Making: Talking Mats, Dolls and Soft Toys, Drama Activities, Easing Decision-Making, Encouraging Healthy Behaviour, Encouraging Independence and Social Interaction, Engagement, Folders and Scrapbooks, Friendship, Gardening, Hobbies and Interests, Hope and Encouragement, Ideas for Activities, Joseph Rowntree Foundation, Learning in Later Life, Leisure, Leisure Activities and Social Networks, Life History Information, Living Well in Care Homes, Living Well Through Activity in Care Homes (Toolkit), Making a Life History, MDS-HC (the Minimum Data Set Home Care), MDS-RAI (Minimum Data Set Resident Assessment Instrument for Long Term Care Facilities), MDS-RAI (the Minimum Data Set Resident Assessment Instrument), Meaningful Activity, Mental Capacity Act 2005, Minimum Data Set of the Resident Assessment Instrument (MDS-RAI) Pain Scale, Movement Activities, Multisensory Stimulation, Musical Activities, National Association for Providers of Activities for Older People (NAPA), Needs of Older People Living in Care Homes, Occupational Therapy, Occupational Therapy in Care Homes, Outings, Patient Engagement, Patient Involvement, Pets, Pets as Companions for People with Dementia, Physical Activity, Physical and Emotional Contact, Pool Activity Level (PAL) Instrument for Occupational Profiling, Posture, Preventing Isolation, Recreation, Reflex Ability Level, Relationships, Relatives and Residents Association, Relaxation, Reminiscence, Reminiscence Boxes, Resident Engagement, Residential Care Homes, Risk Management, Rowntree Foundation, Rummaging, Sensory Ability Level, Service User Involvement, Significant Dates (Reminiscence), Skills Mix, Social Activities, Social and Leisure Needs, Spiritual Needs, Supporting Derek, Supporting Older People in Care Homes At Night, Supporting Practice – Evidence and Research (SPEaR), Supporting Relationships, Talking Mats, U3A University of the 3rd Age, User Involvement, Weight Gain, Workforce Development | Leave a comment

Dying Well at Home: Integrated Working (SCIE)

Posted on May 23, 2013 by Dementia and Elderly Care News

Summary This Social Care Institute for Excellence (SCIE) guide is about enabling people to die at home when they wish, and improving the quality of their care. Sections of the guide, online, comprise: Recommendations. Choosing to die at home. Dying … Continue reading →

Posted in Commissioning, Community Care, End of Life Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Integrated Care, National, NEoLCIN, NEoLCP, NHS, Patient Care Pathway, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, SCIE, Standards, UK, Universal Interest | Tagged 24/7 Expert Support Services for Dying at Home, Accessing Equipment and Services, Advance Decision to Refuse Treatment (ADRT), Advance Directive, Advance Statement, AMBER Care Bundle, Anticipatory Decision-Making, Assessment of Pain for People Dying With / From Dementia, Autonomy and Choice, Bedfordshire Partnership for Excellence in Palliative Support (PEPS), Bungalow Beds: Sandwell, Care Integration, Caregiver Support, Caregiving (Carers), Carer Support, Carers, Central Lancashire Cancer Partnership Group, Choice, Choice and Control Over Decisions, CMC: Coordinate My Care, Community Intravenous Therapy Team, Comprehensive 24/7 Expert Support Services for the Dying, Coordinate My Care, Deaths in Usual Place of Residence (DiUPR), Decision Making, Decision-Making at End of Life, Decision-Making Capacity, Dementia UK, DiUPR: Deaths in Usual Place of Residence, Do Not Attempt Resuscitation (DNAR), Domiciliary Care, Dying at Home, Dying Doesn’t Work 9 to 5 Campaign, Dying Well at Home: Integrated Working, Easing Decision-Making, End of Life Care, EPaCCS, Extra Care Housing, Extra Care Scheme, Family Carers, Gold Standards Framework (GSF), Housing, Housing Adaptations, Housing for Older People, Housing Learning & Improvement Network (Housing LIN), Housing Learning and Improvement Network, Housing21, Integrated Care Pathway, Integrated Home and Community Care Services, Integration, Integration of Health and Social Care, Integration of Housing Care and Support, International Longevity Centre, International Longevity Centre UK, International Longevity Centre UK (ILC-UK), Lasting Power of Attorney (LPoA), Leicestershire & Rutland Organisation for the Relief of Suffering (LOMOS), Liverpool Care Pathway (LCP), Living Will, Macmillan Cancer Support, Macmillan Nurses, Macmillan Specialist Palliative Care Service, Majlish Homecare Services, Marie Curie Cancer Care, Mental Capacity Act, Message in a Bottle, Message in a Bottle: East Midlands, Midhurst Macmillan Specialist Palliative Care Service, National Council for Palliative Care, National End of Life Care Programme, National End of Life Care Programme (NEoLCP), National Gold Standards Framework Centre in End of Life Care, NEoLCN Resource, NHS National End Of Life Care Programme, Northamptonshire Healthcare NHS Foundation Trust, Partnership for Excellence in Palliative Support (PEPS), Pathways: GSF LCP and PPC, Place of Death, Preferred Priorities for Care (PPC), Sandwell, Sandwell and West Birmingham Hospital NHS Trust, Sheltered Housing Schemes, Skills for Care, Skills for Health, Social Care Institute for Excellence (SCIE), St. Catherine‟s Hospice: Carers' Befriending Service, Sue Ryder, Sue Ryder Care Centre, Sussex Community NHS Trust, Treatment at End of Life, Uniting Carers, University of Leicester, Unpaid Carers, Wirral Metropolitan College | Leave a comment

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