Tag Archives: Dying Matters Coalition

Government’s Plans For High Quality End Of Life Care (Department of Health / CQC / BBC News)

Posted on July 12, 2016 by Dementia and Elderly Care News

Summary The government is introducing care plans for people at the end of life, with a view to ensuring consistently high quality, compassionate care. Altogether, there are six commitments to end unacceptable variations in end of life care by 2020. … Continue reading →

Posted in Acute Hospitals, Commissioning, Community Care, CQC: Care Quality Commission, Department of Health, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Health Education England (HEE), In the News, Integrated Care, Management of Condition, National, NHS, NHS England, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, UK, Universal Interest | Tagged 24/7 Care, 24/7 Hospice at Home Service, 24/7 Service, 24/7 Specialised Nursing Services for End of Life Care, Accountability and Transparency, Airedale and Southend Pilots, Ambitions for Palliative and End of Life Care Framework, Ben Gummer: Health Minister, Ben Gummer: Parliamentary Under-Secretary of State for Care Quality, Care Coordinators, CCG Improvement and Assessment Framework (CCG IAF), Choice in End of Life Care, Claire Henry MBE, Clatterbridge Cancer Centre, Clatterbridge Cancer Centre NHS Foundation Trust, Clinical Commissioning Group Improvement and Assessment Framework, Commitment to Carers (NHS England), Commitment(s) For End of Life Care (2016), Community Care Pilots, Community Education Provider Networks (CEPNs), Community Resilience, Dying Matters Coalition, Dying Matters Coalition and Campaign, Dying Well Community Charter, Electronic Palliative Care Coordination Systems (EPaCCS), Electronic Patient Records: Recording and Sharing of End of Life Care Choices, End of Life Care For Infants Children and Young People (NICE Consultation), End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Faith at the End of Life, Family and Carers, Family Involvement, First Point of Contact (Main Contact), Generic Professional Capabilities (GPCs), Government Response to Review of Choice in End of Life Care, Guy's and St Thomas’s Hospital’s AMBER Care Bundle, Health and Care Voluntary Sector Strategic Partner Programme, High Quality End Of Life Care (2016), Honest Discussions With Care Professionals, ImproveCare: Management of Clinical Uncertainty, Informed Choices, Informed Choices About End of Life Care, Integrated Care Pioneers, Involvement, Involvement of Family and Carers, Involvement of Family Friends and Carers, James Lind Alliance, Local Education and Training Boards, Macmillan Cancer Support’s Building on the Best Programme, Meaningful Conversations With Dying People, Namaste Care Intervention to Improve Quality of Dying for People with Advanced Dementia in Care Homes, Named Care Coordinators, National Commitment For End of Life Care, National Council for Palliative Care (NCPC), NHS Clinical Services (Department of Health), NHS Electronic Patient Records, NHS England’s Commitment to Carers, NHS Five Year Forward View, NHS Mandate, Palliative and End of Life Care for Children and Young People, Palliative and End of Life Care Priority Setting Partnership, Personalised Care Planning, Point of Care Foundation’s Patient and Family Centred Care Programme, Poor Identification of People’s Capacity For Involvement in Their Care Planning and Management (Barriers to Involvement), Responsible Clinician (Main Contact), Review of Choice in End of Life Care, Serious Illness Care Programme UK, Shared Digital Palliative and End of Life Care Records, Skills for Care and Skills for Health, Specialist Support in End of Life Care (First Point of Contact), Summary Care Record (SCR), Supporting Family and Carers, Sustainability and Transformation Plans (STPs), Transforming End of Life Care Programme, Transforming Nursing for Community and Primary Care, Transparency and Accountability, Urgent and Emergency Care Hubs, Voluntary Sector Strategic Partner Programme | Leave a comment

Dying Matters Awareness Week 2015: Plus Related Information and Developments (Dying Matters Coalition / BBC News / PHSO / Nursing Times)

Posted on May 21, 2015 by Dementia and Elderly Care News

Summary The “Dying Matters Awareness Week”, this year having the theme “Talk, Plan, Live”, occurs between May 18th – 24th 2015. The aim is to support more open discussion about dying, death and bereavement. Making end of life wishes known, … Continue reading →

Posted in Acute Hospitals, BBC News, Charitable Bodies, Commissioning, Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, National, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Quick Insights, RCN, Standards, Statistics, UK, Universal Interest | Tagged BBC Health News, Canterbury Christ Church University, Comfort and Pain Management, Dame Julie Mellor: Parliamentary and Health Ombudsman Service, Dying Matters, Dying Matters Awareness Week, Dying Matters Awareness Week (2015), Dying Matters Awareness Week: Talk Plan Live (2015 Theme), Dying Matters Coalition, Dying Without Dignity (PHSO), East Kent Hospitals University Foundation Trust, End-of-Life Care at Home, End-of-Life Care Delivered At Home, End-of-Life Care in Acute Hospitals, End-of-Life Care Pathways, End-of-Life Dementia Care Barriers: Access to Palliative Care, End-of-Life Dementia Care Barriers: Inappropriate Hospital Admissions, End-of-Life Dementia Care Barriers: Inappropriate Interventions, End-of-Life Dementia Care Barriers: Inconsistency in Care Standards in Hospitals, End-of-Life Dementia Care Barriers: Lack of Continuity of Care, End-of-Life Dementia Care Barriers: Lack of Support for Carers, End-of-Life Dementia Care Barriers: Poor Pain Management, Good Death in Acute Hospitals, Lynda Thomas: Macmillan Cancer Support, Macmillan Cancer Support, Nursing Times, Pain Management, Pain Management in Older People with Dementia, Palliative and End-of-Life Care at Home, Palliative and End-of-Life Care in Hospitals, Palliative Care, Parliamentary and Health Service Ombudsman, Parliamentary and Health Service Ombudsman (PHSO), Preferred Place of Death, Professor Sir Mike Richards: Former Chief Inspector of Hospitals (CQC), Responsibility for End-of-Life Care in Care Homes, Royal College of Nursing (RCN), Time to Care | Leave a comment

End-of-Life Care: Under-Recognition of People With Dementia? (BBC News / Marie Curie Cancer Care)

Posted on December 1, 2014 by Dementia and Elderly Care News

Summary A report by Marie Curie Cancer Care and the Alzheimer’s Society asserts that dementia sufferers may not always get the quality of care needed, possibly because their condition is not recognised sufficiently (at a societal level and in commissioning … Continue reading →

SCIE Dementia Gateway: Useful Dementia-Related Information Resources (SCIE)

Posted on November 13, 2014 by Dementia and Elderly Care News

Summary The Social Care Institute for Excellence (SCIE) has produced, and maintains, an uptodate and impressively broad collection of links to dementia-related websites and information resources. A wide range of topics and themes in dementia care are covered, including: Dementia-Friendly … Continue reading →

Posted in Acute Hospitals, Age UK, All-Party Parliamentary Group (APPG) on Dementia, Alzheimer's Society, Alzheimer’s Disease International (ADI), Alzheimer’s Research UK, Antipsychotics, Assistive Technology, Carers UK, Charitable Bodies, Commissioning, Community Care, Dementia Action Alliance, Department of Health, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Housing LIN, Integrated Care, International, Joseph Rowntree Foundation, King's Fund, Local Interest, Management of Condition, Mental Health, Mental Health Foundation, Models of Dementia Care, National, National Voices, New Cross Dementia Project, NHS, NHS Digital (Previously NHS Choices), NIHR, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, RCN, Royal College of Psychiatrists, SCIE, Standards, Statistics, Telecare, Telehealth, UK, Universal Interest | Tagged Action on Hearing Loss, Active Ageing, Activity in Care Homes, ADI’s World Alzheimer Reports, Admiral Nursing DIRECT, Admiral Nursing Service, Age-Friendly Environments, All-Party Parliamentary Group (APPG), All-Party Parliamentary Group on Dementia, Alzheimer Scotland, Alzheimer’s Disease International (ADI) Campaigns, Alzheimer’s Research UK (ARUK), Alzheimer’s Society Campaigners’ Network, AMCAT: Assessment of Mental Capacity Audit Tool, Arts 4 Dementia, Assessing Mental Capacity, Association for Dementia Studies, Association for Dementia Studies: University of Worcester, AT Dementia, Behavioural and Psychological Symptoms of Dementia (BPSD), Best Interest Decisions, BILT: British Institute of Learning Disabilities, Black and Minority Ethnic (BME), Black Asian and Minority Ethnic (BAME), Black Asian Minority Ethnic (BAME), BME Communities, BME People with Dementia, Bournemouth University Dementia Institute, Bradford Dementia Friendly Community Project, Bradford Dementia Group, Bradford Dementia Group Good Practice Guides, Building Dementia Friendly Communities, Built Environment, Care and Communication, Caregiver-Patient Communication, Caregiving (Carers), Carer Awareness, Carer Inclusion, Carer Involvement in Healthcare, Carer Support, Carer's Needs, Carer’s Perspective, Carers Direct, Carers for People with Dementia, Carers Trust, Caring Decisions, Caroline Walker Trust, Challenges of Living with Dementia, Clinical Research Network (NIHR), Clive Project, Communication, Communication Problems, Communication Skills, Communication-Friendly Communities, Concurrent Dementia and Sight Loss, Council of Occupational Therapists, Deaf Action, Deaf Action in Scotland, Deafness Cognition and Language Research Centre (UCL), Decision Making, DEEP: Dementia Engagement and Empowerment Project, Delegated Decision Making, Dementia Action Alliance (DAA), Dementia Adventure, Dementia Advocacy and Support Network International (DASNI), Dementia and Sensory Loss, Dementia and Sight Loss, Dementia and Sight Loss Interest Group, Dementia and the Health and Social Care System: Key Reports., Dementia Café, Dementia Centre, Dementia Centre: University of Stirling, Dementia Challenge, Dementia Challengers, Dementia Diagnosis, Dementia Diagnosis and Care in England, Dementia Engagement and Empowerment Project (DEEP), Dementia Friendly Action Plans, Dementia Friendly Extra Care Housing, Dementia Friends, Dementia Friends Campaign, Dementia Gateway, Dementia Information and Resource Centre, Dementia Information Prescription, Dementia Institute: Bournemouth University, Dementia Knowledge Centre, Dementia Partnerships, Dementia Prevalence Calculator, Dementia Research, Dementia Research Centre: National Hospital for Neurology and Neurosurgery, Dementia Service Development Centre: University of Stirling, Dementia Services Development Centre, Dementia Services Development Centre (DSDC), Dementia Services Development Centre (University of Stirling), Dementia UK, Dementia Web, Dementia Without Walls, Dementia Without Walls (York), Dementia Without Walls Project, Dementia-Friendly Cities, Dementia-Friendly Communities, Dementia-Friendly Environments, Dementia-Friendly Yorkshire, Dementia-Related Information Resources, Dementia-Related Internet Sites, Dementia-Related Websites, Dementias and Neurodegenerative Diseases Research Network (DeNDRoN), Department of Health Dementia Challenge, Department of Health National Dementia Strategy Implementation Group, Design and Built Environment, Design Resource Centre, Diagnosis and Assessment, Diagnosis and Support, Diagnosis Rates, Difficult Conversations, Difficult Situations, Disability Living Foundation, Diversity, Diversity and Dementia, DLF: Disability Living Foundation, DSDC Virtual Care Home, DSDC Virtual Hospital, Dying Matters Coalition, Early Diagnosis, Eating Well, EHE: Enhancing the Healing Environment, Elderly Malnutrition, Enhancing the Healing Environment (EHE), Equality and Diversity, Ethnic Minorities Dementia Advocacy Project (EMDAP), Exercise, Extra Care Housing, Extra Care Housing and Dementia, Extra Care Housing and Dementia Commissioning Checklist, Facing Dementia, Food for Thought, Foundation for Assistive Technology, Foundation for Assistive Technology (FAST), Foundations, Frontotemporal Dementia Support Group, Good Communication, Guideposts Trust, Healthtalkonline, Hearing and Sight Loss, Helen Hamlyn Centre, Horsesmouth, Housing and Dementia, Housing Learning & Improvement Network (Housing LIN), Housing Learning and Improvement Network (LIN), I CAN! I WILL! Library, iD: Innovations in Dementia, Innovations in Dementia, Journal of Dementia Care, King’s Fund Enhancing the Healing Environment Programme, Knowing the Person, Knowing the Person With Dementia, Learning Disabilities, LGA: Local Government Association, Life Story Network, Life Story Network (LSN), Living Well Through Activity in Care Homes (Toolkit), Living Well with Dementia, Living with Dementia, Local Government Association: LGA, Maintaining Identity After a Dementia Diagnosis, Making Involvement Count, Malnutrition, Malnutrition and Dementia Patients, Malnutrition Task Force, Malnutrition Task Force (MTF), Mealtime Difficulties, Meaningful Occupation, Memory and Alzheimer’s Cafes UK Directory, Memory Services, Mental Capacity Act (MCA), Mental Capacity Implementation Programme, Mental Health Foundation (MHF), National Council for Palliative Care (NCPC), National Dementia Declaration, National Dementia Strategy, National Housing Federation, NHS England (Formerly the NHS Commissioning Board), NHS Health Scotland, NHS National End Of Life Care Programme, NHS South West, NICE Pathways, NICE Support for Commissioning Dementia Care (CMG48), Non-Cognitive Behavioural and Psychological Symptoms of Dementia, Non-Verbal Communication, Northern Health and Social Care Trust in Northern Ireland, Occupation (Sense of Purpose), Our Health: Dementia Care, Peter and Rosemary Griffin, Physical Activity, Pick’s Disease Support Group, Post‐Diagnosis Support, Prime Minister’s Dementia Challenge, Proxy Decision Making, Quality Standard for Dementia, Race Equality Foundation, Remember the Person, Respectful Communication, Road Less Rocky, Royal College of Art, Royal College of Nursing (RCN), Royal College of Nursing (RCN) Dementia Resource, Royal College of Nursing: Dementia, SCIE Dementia Gateway, SCIE Mental Capacity Act Resource, Scottish Dementia Working Group, Scottish Dementia Working Group (SDWG), Sensory Impairment, Sensory Loss, Sight Loss, Skills for Care (SfC), Social Care Institute for Excellence (SCIE), South West Dementia Partnership, South West Dementia Partnership Learning and Education Resources, South West Dementia Partnership Learning Library, Stirling Dementia Services Development Centre (DSDC), Stirling University: Dementia Services Development Centre, Support for Commissioning Dementia Care (NICE: CMG48), Talking Point, Telecare Learning and Improvement Network, Telecare LIN, This is Me, This is Me: Person-Centred Care, Timely Diagnosis, Trent Dementia Services Development Centre, UK Homecare Association (UKHCA), UKHCA: UK Homecare Association, United Kingdom Homecare Association (UKHCA), Uniting Carers, University of Bradford, University of Bradford Dementia Group, University of Stirling's Dementia Services Development Centre, University of Worcester: Association for Dementia Studies, Unlocking Diagnosis, Unusual Behaviour, Useful Dementia-Related Information Resourses (SCIE), Vision2020, Wolverhampton Medical Institute (WMI), Worcester Association for Dementia Studies, World Alzheimer Report (2012), World Alzheimer Report 2009, World Alzheimer Report 2010, World Alzheimer Report 2011, World Alzheimer Report 2013, York Dementia Without Walls, Young People With Dementia, Young-Onset Dementia, YoungDementia UK | Leave a comment

What We Know Now 2013: End of Life Care (Public Health England / NEoLCIN)

Posted on November 5, 2013 by Dementia and Elderly Care News

Summary This Public Health England / National End of Life Care Intelligence Network (NEoLCIN) report summarises research during the past year from a range of organisations and charities. There remain large variations in the proportion of deaths in hospital between local … Continue reading →

Posted in Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, National, NEoLCIN, Patient Care Pathway, Person-Centred Care, Public Health England, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged Acute Care, Acute Hospitals, Association of Palliative Medicine / Specialist Advisory Council, Black Asian and Minority Ethnic (BAME), Care Homes: Last Year of Life, Care in General Hospitals, Cicely Saunders Institute, Costs of Care, Deaths in Usual Place of Residence (DiUPR), Dignity, DiUPR: Deaths in Usual Place of Residence, Dying Matters, Dying Matters Coalition, Electronic Palliative Care Co-ordination Systems (EPaCCS), Emergency Admissions, Emergency Readmissions, Emergency Readmissions to Hospital, End of Life Care, End of Life Care for People with Dementia, End of Life Care Pathway, End of Life Care Plans, End of Life Care Profiles Summary Statistics, End of Life Care Research, Environments for Care at End of Life, EOL, EPaCCS, General Hospitals, Gold Standards Framework (GSF), Gold Standards Framework After Death Analysis, Gold Standards Framework Centre, Hospice Care, Hospital Admissions Ending in Death, Hospital Episode Statistics (HES), Inpatient Hospital Care: Last Year of Life, Kings College London, Liverpool Care Pathway for the Dying Patient (LCP), Marie Curie Nursing Service (MCNS), Marie Curie Palliative Care Research Unit: University College London, Methylnaltrexone, NatCen Social Research, National Bereavement Survey (VOICES), National Care of the Dying Audit Hospitals (NCDAH) Round 3, National End of Life Care Intelligence Network, National End of Life Care Programme (NEoLCP), National Survey of Patient Activity Data for Specialist Palliative Care Services, NEoLCIN: Part of Public Health England (PHE), New Intelligence on End of Life Care in England (2012), Office for National Statistics, Palliative Care, Palliative Care Funding Review, PHE: Public Health England, Place of Death, Preferred Place of Death, Preventable Hospital Admissions, Primary Care: Last Year of Life, Public Health England (PHE), Quality and Outcome Framework (QOF), Quality Innovation Productivity and Prevention (QIPP), Quality of Care, Services and Support for BAME Communities, Social Care, Specialist Palliative Care, University College London, What We Know Now 2013 (NEoLCIN) | Leave a comment

Dying Matters (Dying Matters Coalition)

Posted on April 23, 2013 by Dementia and Elderly Care News

Summary The Dying Matters Coalition was set up in 2009. They have created a wide range of resources to help people start conversations about dying, death and bereavement. “Dying Matters is a broad-based and inclusive national coalition of 28,000 members, which aims to … Continue reading →

Posted in Charitable Bodies, End of Life Care, National, UK, Universal Interest | Tagged Bereavement, Death, Decision-Making at End of Life, Difficult Conversations, Dying, Dying Matters, Dying Matters Awareness Week, Dying Matters Coalition, End of Life Care Discussions, End of Life Care for People with Dementia, Find Your 1% Campaign, Hospice Care, National Council for Palliative Care, National Council for Palliative Care (NCPC), National End of Life Care Programme, Palliative Care, Treatment at End of Life | Leave a comment

Dying Well With Dementia (Alzheimer’s Society)

Posted on November 9, 2012 by Dementia and Elderly Care News

[A version of this item features in Dementia: the Latest Evidence Newsletter (Royal Wolverhampton NHS Trust), Volume 3 Issue 4, November 2012]. Summary The Alzheimer’s Society’s “My life until the end: dying well with dementia” report gives an overview of … Continue reading →

Posted in Acute Hospitals, Alzheimer's Society, Charitable Bodies, Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), National, Pain, Person-Centred Care, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Advance Care Planning (ACP), Advance Directive, Anticipatory Decision-Making, Care Fit For VIPS, Care Homes, Care Planning, Care Planning and Proxy Decision Making, Communication, Cornwall Council, Decision Making, Decision-Making at End of Life, Decision-Making Capacity, Delegated Decision Making, Difficult Coversations, Dignity, Dignity in Dementia, Doloplus-2 Pain Scale, Dying Matters Coalition, Easing Decision-Making, End of Life Care, End of Life Care for People with Dementia, End of Life Care Strategy, Lasting Power of Attorney (LPA), Liverpool Care Pathway, Mental Capacity Act 2005, National Council for Palliative Care, National End of Life Care Intelligence Network, National End of Life Care Programme, National End of Life Care Programme (NEoLCP), NHS Cornwall and the Isles of Scilly, NHS National End Of Life Care Programme, Nursing Homes, Pain Management, Pain Relief, Person-Centred Care, Personalised Care Planning, Place of Death, Proxy Decision Making, Pseudo-Autonomous Decision Making, Public Awareness (EOL), Quality of Life (Ethical Framework for Decision-Making), Relationship-Centred Care, Shared Decision-Making, Talking Point, Treatment at End of Life, VIPS Framework of Dementia Care, VIPS Standards, VOICES Survey, Withholding and Withdrawing Treatment | Leave a comment

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