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Tag Archives: Dystonia
Pan-Neurological Statistics for England (Neurological Alliance)
Summary The Neurological Alliance’s latest report provides a round-up of estimates for the prevalence of a range of neurological disorders. There are about 14.7 million neurological cases (one in six people) in the UK, and yet: “ …the NHS Long … Continue reading →
Posted in Acute Hospitals, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), Management of Condition, National, NHS, NHS England, Person-Centred Care, Public Health England, Quick Insights, Statistics, UK, Universal Interest
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Tagged Acoustic Neuroma, Action Duchenne, Action for M.E., Alzheimer’s Research UK, Ataxia, Ataxia UK, Autism, Autistica, Avoidable Premature Mortality, Awareness, Awareness and Campaigns, Awareness of Neurological Conditions, Awareness Raising, Batten Disease, Batten Disease Family Association, Brain Awareness Week, Brain Awareness Week (2019), Brain Tumour Charity, British Acoustic Neuroma Association, Carpal Tunnel Syndrome, Cavernoma, Cavernoma Alliance UK, Cerebral Palsy, Charcot-Marie-Tooth Disease, Charcot-Marie-Tooth UK, Chronic Fatigue Syndrome (ME), Chronic Inflammatory Demyelinating Polyneuropathy, Cluster Headache, CNS and Other Intracranial Tumours, Cost(s) of Neurological Conditions, Daisy Garland, Dementia, Different Strokes, Dystonia, Dystonia Society, Encephalitis, Encephalitis Society, Epidemiology of Major Neurological Disorders, Epidemiology of Major Neurological Disorders in United Kingdom, Epilepsy, Epilepsy Action, Epilepsy Research UK, Essential Tremor, Fibromyalgia, FND Action, FND Hope, Functional Neurological Disorder, Geographical Variations, Getting It Right First Time (GIRFT), Guillain-Barré Syndrome, Guillain-Barre and Associated Inflammatory Neuropathies, Health Inequalities, Health Inequalities in England, Hemihelp, Hemiplegia, Huntington’s Disease, Huntington’s Disease Association, Hydrocephalus, Idiopathic Intracranial Hypertension, IIH UK, Improving Healthcare to Reduce Premature Mortality in People with Neurological Disorders, Katharine McIntosh: Senior Policy Advisor at Neurological Alliance, Living With Neurological Conditions, Local Health Services: Variations, Long Term Neurological Conditions, Meningitis, Migraine, Migraine Trust, Motor Neurone Disease, Motor Neurone Disease Association, MS Society, Multiple Sclerosis, Multiple System Atrophy, Multiple System Atrophy Trust, Muscular Dystrophy, Muscular Dystrophy UK, Myasthenias, Myaware, Myelopathy, Myelopathy.org, Narcolepsy, Narcolepsy UK, National Neuro Advisory Group, National Tremor Foundation, Nerve Tumours UK, Neurofibromatosis, Neurological Alliance, Neurological Conditions, Neurological Disorders, Neurological Disorders and Health Inequalities, Neurology Intelligence Collaborative, Neurology Intelligence Network (NIN), Neuromyelitis Optica, NHS Outcomes Framework (NHSOF), NHS Outcomes Framework Domains, Organisation for the Understanding of Cluster Headache (OUCH UK), Other Neurological Conditions, Pan-Neurological Priorities for Commissioning, Parkinson's Disease, Parkinson’s UK, PHE Neurology Intelligence Network (NIN), Polio Survivors Network, Post-Polio Syndrome, Premature Mortality, Prevalence and / or Incidence of Acoustic Neuroma, Prevalence and / or Incidence of Ataxia, Prevalence and / or Incidence of Autism, Prevalence and / or Incidence of Batten Disease, Prevalence and / or Incidence of Carpal Tunnel Syndrome, Prevalence and / or Incidence of Cavernoma, Prevalence and / or Incidence of Cerebral Palsy, Prevalence and / or Incidence of Charcot-Marie-Tooth Disease, Prevalence and / or Incidence of Chronic Fatigue Syndrome (ME), Prevalence and / or Incidence of Chronic Inflammatory Demyelinating Polyneuropathy, Prevalence and / or Incidence of Cluster Headache, Prevalence and / or Incidence of CNS and Other Intracranial Tumours, Prevalence and / or Incidence of Dementia, Prevalence and / or Incidence of Dystonia, Prevalence and / or Incidence of Encephalitis, Prevalence and / or Incidence of Epilepsy, Prevalence and / or Incidence of Essential Tremor, Prevalence and / or Incidence of Fibromyalgia, Prevalence and / or Incidence of Functional Neurological Disorder, Prevalence and / or Incidence of Guillain-Barre Syndrome, Prevalence and / or Incidence of Hemiplegia, Prevalence and / or Incidence of Huntington’s Disease, Prevalence and / or Incidence of Hydrocephalus, Prevalence and / or Incidence of Idiopathic Intracranial Hypertension, Prevalence and / or Incidence of Meningitis, Prevalence and / or Incidence of Migraine, Prevalence and / or Incidence of Motor Neurone Disease, Prevalence and / or Incidence of Multiple Sclerosis, Prevalence and / or Incidence of Multiple System Atrophy, Prevalence and / or Incidence of Muscular Dystrophy, Prevalence and / or Incidence of Myasthenias, Prevalence and / or Incidence of Myelopathy, Prevalence and / or Incidence of Narcolepsy, Prevalence and / or Incidence of Neurofibromatosis, Prevalence and / or Incidence of Neuromyelitis Optica, Prevalence and / or Incidence of Parkinsons Disease, Prevalence and / or Incidence of Post-Polio Syndrome, Prevalence and / or Incidence of Progressive Supranuclear Palsy, Prevalence and / or Incidence of Restless Legs Syndrome, Prevalence and / or Incidence of Rett Syndrome, Prevalence and / or Incidence of Spina Bifida, Prevalence and / or Incidence of Spinal Cord Injury, Prevalence and / or Incidence of Spinal Muscular Atrophy, Prevalence and / or Incidence of Stroke - Ischaemic and Haemorrhagic, Prevalence and / or Incidence of Tourette Syndrome, Prevalence and / or Incidence of Transverse Myelitis, Prevalence and / or Incidence of Traumatic Brain Injury, Prevalence and / or Incidence of Trigeminal Neuralgia, Prevalence and / or Incidence of Tuberous Sclerosis Complex, Prevalence and Incidence of Neurological Conditions, Prevalence of Neurological Conditions, Prevalence of Neurological Disorders, Progressive Supranuclear Palsy, PSP Association, Public Health England (PHE) Neurology Intelligence Network (NIN), Reducing Avoidable Premature Mortality, Reducing Health Inequalities, Reducing Premature Mortality, Reducing Variation, Restless Legs Syndrome, Restless Legs Syndrome UK, Rett Syndrome, Rett UK, Sarah Vibert: Chief Executive of Neurological Alliance, Scope, Shine Charity, SMA Support UK, Spina Bifida, Spinal Cord Injury, Spinal Injuries Association, Spinal Muscular Atrophy, Spotlight Young Onset Parkinsons, Stroke - Ischaemic and Haemorrhagic, Stroke Association, SUDEP Action, Tourette Syndrome, Tourettes Action, Transverse Myelitis, Tranverse Myelitis Society, Traumatic Brain Injury, Trigeminal Neuralgia, Trigeminal Neuralgia Association UK, Tuberous Sclerosis Association, Tuberous Sclerosis Complex, UKABIF, Unacceptable Variations, Variations in Service, Variety of Neurological Conditions, Versus Arthritis
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Neurological Care in England: Recommended Improvements (BBC News / House of Commons)
Summary The House of Commons Public Accounts Committee’s earlier report (2012) made recommendations for improving services and delivering better outcomes for people with neurological conditions. Their latest follow-up report points to the continued existence of long delays in diagnosis, poorly … Continue reading →
Posted in Acute Hospitals, BBC News, Commissioning, Community Care, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, National, NHS, Non-Pharmacological Treatments, Parkinson's Disease, Person-Centred Care, Quick Insights, Scotland, Standards, UK, Universal Interest
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Tagged Access to Health and Social Care Support, Access to Neurologists, Access to Services, Accountability in Health and Social Care, Agreed Care Plans, Arlene Wilkie: Chief Executive of Neurological Alliance, Association of British Neurologists, BBC Health News, BBC Scotland, Care Planning, Commissioning for Value, Commissioning for Value Packs, Commissioning Local Services, Commissioning Neurological Services, Committee of Public Accounts, Coordinated Health and Social Care, Dementia and Neurological Conditions, Department of Health Spending on Neurological Services, Dr David Bateman: National Clinical Director, Dystonia, Emergency Admissions, Emergency Admissions of Epilepsy Patients, Epilepsy, Factors Behind Increasing Emergency Admissions, Geographical Variations, Health and Social Care, Health and Social Care Integration, Health Inequalities, Hospital Inpatient Admissions: Neurology, House of Commons, House of Commons Committee of Public Accounts, House of Commons Public Accounts Committee, Inappropriate Hospital Admissions, Integrating Health and Social Care, Linking of Health and Social Care Data, Local Services, Local Variations, Long Term Neurological Conditions, Long-Term Conditions (LTCs), Meg Hiller MP: Chair of Public Accounts Committee, Mental Health Dementia and Neurology Intelligence Networks, Motor Neurone Disease (MND), Multiple System Atrophy Trust, National Clinical Director for Adult Neurology, National Mental Health Dementia and Neurology Intelligence Networks, Neurological Alliance, Neurological Care in England, Neurological Conditions, Neurological Conditions: Data on Service Quality, Neurological Disorders, Neurology Waiting Times, Parliamentarians, Patient Experience, Personal Care Plans, Personalised Care Planning, Personalised Care Plans, Preventable Hospital Admissions, Prevention of Avoidable Emergency Admissions: Case Management, Prevention of Avoidable Emergency Admissions: Intermediate Care, Prevention of Avoidable Emergency Admissions: Telehealth, Proactive Care Plans, Quality Standards Relating to Neurological Conditions, Reducing Emergency Admissions Through Community-Based Interventions, Regional Variations, Services and Outcomes for People With Neurological Conditions, Strategic Clinical Networks, Strategic Clinical Networks (SCNs), Strategic Clinical Networks for Mental Health Dementia and Neurological Conditions, Sue Ryder, Sue Ryder Foundation, Support From Local Services, Unacceptable Variations, Unnecessary Hospital Admissions, Unplanned Hospital Admissions, Unwarranted Variations, Variations in Care, Variations in Quality of Care, Variations in Spending
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A Compendium of Patient Information on Parkinson’s Disease (Patient.co.uk / Parkinson’s UK / USA: Multiple)
Summary Just in time for Parkinson’s Awareness Week 2015 (April 20th -26th 2015), here is a collection of information on Parkinson’s Disease written primarily for patients and the general public. From Patient.co.uk (UK Independent Health Site) Parkinson’s Disease. Leeds: Patient.co.uk … Continue reading →
Posted in Charitable Bodies, Depression, Diagnosis, Falls, Falls Prevention, For Carers (mostly), For Nurses and Therapists (mostly), In the News, International, Management of Condition, Mental Health, Non-Pharmacological Treatments, Pain, Parkinson's Disease, Patient Information, Person-Centred Care, Pharmacological Treatments, Practical Advice, Quick Insights, UK, Universal Interest
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Tagged Addictive Gambling, Advice and Information, American Parkinson Disease Association, Antioxidants and Parkinson’s Disease, Antioxidants and Parkinson’s: Parkinson’s UK Fact Sheet No.67, Anxiety, Anxiety and Parkinson's: Parkinson’s UK Fact Sheet No.96, Anxiety Disorders and Dementia, APDA: American Parkinson Disease Association, Apomorphine, Apomorphine: Parkinson’s UK Fact Sheet No.26, Caregiving (Carers), Co-Enzyme Q10, Co-enzyme Q10: Parkinson’s UK Fact Sheet No.74, Communication and Parkinson's Disease, Communication and Parkinson's: Parkinson’s UK Fact Sheet No.06, Conductive Education and Parkinson's Disease, Conductive Education and Parkinson's: Parkinson’s UK Fact Sheet No.41, Delusional Ideas, Delusions, Dementia in Parkinson's Disease, Dementia with Lewy Bodies, Dementia With Lewy Bodies (DLB), Dementia With Lewy Bodies: Parkinson’s UK Fact Sheet No.33, Dental and Oral Health, Dental and Oral Health in Parkinson's: Parkinson’s UK Fact Sheet No.98, Depression and Parkinson's: Parkinson’s UK Fact Sheet No.56, Depression and Parkinson’s Disease, Diagnosing Parkinson's: Parkinson’s UK Fact Sheet No.48, DLB: Dementia with Lewy Bodies, Drug-Induced Parkinsonism, Drug-Induced Parkinsonism: Parkinson’s UK Fact Sheet No.38, Dystonia, E M I S: Egton Medical Information Systems Ltd., Eating Swallowing and Saliva Control in Parkinson's Disease, Eating Swallowing and Saliva Control in Parkinson's: Parkinson’s UK Fact Sheet No.22, Equipment and Disability Aids, Equipment and Disability Aids: Parkinson’s UK Fact Sheet No.59, Exercise and Parkinson's Disease, Eyes and Parkinson's Disease, Eyes and Parkinson's: Parkinson’s UK Fact Sheet No.27, Falls and Parkinson's: Parkinson’s UK Fact Sheet No.39, Falls in Parkinson's Disease, Fatigue and Parkinson's Disease, Fatigue and Parkinson's: Parkinson’s UK Fact Sheet No.72, Foot Care, Foot Care and Parkinson's: Parkinson’s UK Fact Sheet No.51, Freezing in Parkinson's: Parkinson’s UK Fact Sheet No.63, Freezing in Parkinson’s Disease, Gene Therapy for Parkinson's Disease, Gene Therapy for Parkinson's: Parkinson’s UK Fact Sheet No.49, Guideline for Dietitians on Management of Parkinson's Disease, Hallucinations, Hallucinations and Delusions in Parkinson's Disease, Hallucinations and Delusions in Parkinson's: Parkinson’s UK Fact Sheet No.11, Hypersexuality, Hypotension, Impulsive and Compulsive Behaviour in Parkinson's: Parkinson’s UK Fact Sheet No.77, Information and Advice Services, Information and Signposting Services, Information Needs of Carers, Information Needs of Patients, Inherited Parkinson's And Genetic Testing: Parkinson’s UK Fact Sheet No.86, Inherited Parkinson's Disease and Genetic Testing, International travel and Parkinson's Disease, International Travel and Parkinson's: Parkinson’s UK Fact Sheet No.28, Involuntary Movements, Juvenile Parkinson's Disease, Juvenile Parkinson's: Parkinson’s UK Fact Sheet No.85, Keeping a Diary: For Carers, Keeping a Diary: For Carers: Parkinson’s UK Fact Sheet No.70, Keeping a Diary: People with Parkinson's Disease, Keeping a Diary: People with Parkinson's: Parkinson’s UK Fact Sheet No.69, Kindness, Living Alone With Parkinson's Disease, Living Alone With Parkinson's: Parkinson’s UK Fact Sheet No.29, Low Blood Pressure, Low Blood Pressure and Parkinson's: Parkinson’s UK Fact Sheet No.50, Massachusetts General Hospital, Mayo Clinic, Michael J. Fox Foundation for Parkinson’s Research, Mild Memory Problems: Parkinson’s UK Fact Sheet No.95, Muscle Cramps and Dystonia, Muscle Cramps And Dystonia: Parkinson’s UK Fact Sheet No.43, National Institute of Mental Health (NIMH), National Institute of Neurological Disorders and Stroke, National Institute of Neurological Disorders and Stroke (NINDS), Obsessive Shopping, Occupational Therapy, Occupational Therapy and Parkinson's: Parkinson’s UK Fact Sheet No.97, Occupational Therapy and Parkinson’s, Oral Health, Oral Healthcare, Pain in Parkinson's: Parkinson’s UK Fact Sheet No.37, Parkinson's Awareness Month, Parkinson's Awareness Week, Parkinson's dementia: Parkinson’s UK Fact Sheet No.58, Parkinson's Disease: Hope Through Research, Parkinson’s Awareness Week (2015), Parkinson’s Dementia, Parkinson’s Disease Awareness Week (2015), Parkinson’s Disease Diagnosis, Parkinson’s UK, Parkinson’s UK (Parkinsons Disease Society), Parkinsonism, Parkinsonism and Related Disorders, Parkinsonism: Parkinson’s UK Fact Sheet No.83, Patient Information on Parkinson’s Disease, Patient.co.uk, Physiotherapy, Physiotherapy and Parkinson's Disease, Physiotherapy and Parkinson's: Parkinson’s UK Fact Sheet No.42, Physiotherapy for Parkinson's Disease, Pregnancy and Parkinson's Disease, Pregnancy and Parkinson's: Parkinson’s UK Fact Sheet No.19, Public Awareness (Parkinson's Disease), Punding, Restless Legs Syndrome, Restless Legs Syndrome and Parkinson's: Parkinson’s UK Fact Sheet No.83, Saliva Control, Signposting, Signposting Patient Information, Signposting Services and Knowledge, Signposting to Sources of Practical Help, Skin and Sweating Problems in Parkinson's Disease, Skin and Sweating Problems in Parkinson's: Parkinson’s UK Fact Sheet No.40, Speech and Language Therapy and Parkinson's: Parkinson’s UK Fact Sheet No.07, Stem Cell Research and Parkinson's Disease, Stem Cell Research and Parkinson's: Parkinson’s UK Fact Sheet No.78, Swallowing, Sweating in Parkinson's Disease, Talking to Children About Parkinson's Disease, Talking to Children About Parkinson's: Parkinson’s UK Fact Sheet No.66, Talking to People About Parkinson's: Parkinson’s UK Fact Sheet No.88, The Carer's Guide: Parkinson’s UK, Tremor and Parkinson's Disease, Tremor and Parkinson's: Parkinson’s UK Fact Sheet No.94, Unpaid Caregivers (Carers), Unpaid Carers, Up Your Friendly Challenge: Parkinson’s Awareness Week (2015), US Department of Health and Human Services, US National Institute of Mental Health, US National Institute of Neurological Disorders and Stroke, Using Computers and the Internet: Parkinson’s UK Fact Sheet No.60, Wearing Off, Wearing Off and Involuntary Movements, Wearing Off and Involuntary Movements: Parkinson’s UK Fact Sheet No.73, [Reference No.B071
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Exploring the Potential of Deep Brain Stimulation (TED Talk by Neurosurgeon Andres Lozano)
Summary Neurosurgeon Andres Lozano discusses recent developments in the potential uses of deep brain stimulation (DBS) for the alleviation of symptoms across many different neurological / neuropsychological conditions, including Parkinson’s Disease, dystonia, depression and other mental illnesses, and possibly even … Continue reading →
Posted in Depression, International, Mental Health, Non-Pharmacological Treatments, Parkinson's Disease, Quick Insights, Universal Interest
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Tagged Alzheimer's Disease, Andres Lozano (Neurosurgeon), Brain Imaging, Deep Brain Stimulation (DBS), Deep Brain Stimulation for the Treatment of Alzheimer Disease, Deep Brain Stimulation for the Treatment of Dementia, Dystonia, Fornix, Lewy Body Society, Magnetic Resonance Imaging (MRI), MCI, MCI: Mild Cognitive Impairment, Mild Cognitive Impairment (MCI), MRI, MRI Scans, Neurodegeneration, Neurodegenerative Diseases, Neuroimaging, Neuroimaging of Dementia, Neurological Disease, Neurology, Neuropsychology, Nucleus Basalis of Meynert, Pre-Dementia (MCI), TED Conference, TED Talks, TEDTalks, TEDxCaltech, Toronto, Toronto Western Hospital, Treatment of Alzheimer's Disease, University of Toronto, YouTube
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