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Tag Archives: End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning
Advance Care Planning for People With Dementia (NHS England)
Summary NHS England’s Dementia Team and End of Life Care Team have released a guide about advance care planning for people with dementia in all care settings. An aim featured in the Dementia Challenge 2020 was the requirement for all … Continue reading →
Posted in Acute Hospitals, Alzheimer's Society, Charitable Bodies, Commissioning, Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, National, NHS, NHS England, Person-Centred Care, Personalisation, Quick Insights, UK, Universal Interest
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Tagged ACP and Capacity, ACP Conversation, Adults Lacking Capacity, Advance Care Planning, Advance Care Planning (ACP), Advance Care Planning for People With Dementia, Advance Decision, Advance Decision to Refuse Treatment (ADRT), Advance Decisions to Refuse Treatment, Advance Statement, Advance Statements and Decisions, Ageing and Dementia, Ambitions for Palliative and End of Life Care, Ambitions for Palliative and End of Life Care (2015), Ambitions for Palliative and End of Life Care Framework, Ambitions for Palliative and End of Life Care: National framework for Local Action 2015-2020 (Ambitions Framework), Barriers: Ineffective Advance Care Planning, Best Interest Decisions, Best Practice for ACP: Examples, Capacity and Advance Decisions, Capacity and Capability, Carer Support, Conversation Project (Institute for Healthcare Improvement), Decision-Making Capacity, Department of Health Dementia Challenge (2020), Difficult Conversations (Dying Matters), Difficult Conversations for Dementia (NCPC), Do Not Attempt Resuscitation (DNAR), Dying Well: Dementia, Electronic Palliative Care Co-ordination Systems (EPaCCS), Embedding ACP Into Commissioning Strategy, Empowerment, Empowerment and Dementia, Empowerment and Support, End of Life Care, End of Life Care Discussions, End of Life Care for People with Dementia, End of Life Care Plans, End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Gold Standards Framework (GSF), Information Sharing: Advance Care Plans, Key ACP Steps / Actions, Lasting Power of Attorney (LPA), Lasting Power of Attorney (LPoA), Lasting Power of Attorney for Health and Welfare, Louise Langham: Tide - Together in Dementia Everyday, Maria Nicolson: Expert by Experience, Mental Capacity, Mental Capacity Act 2005, My Future Wishes: Advance Care Planning (ACP) for People With Dementia, NHS England Dementia Team, NHS England’s End of Life Care Team, Older People's Mental Health and Dementia Team (NHS England), Patient Empowerment, Post-Diagnostic Support, Post-Diagnostic Support for People with Dementia, Preferred Place of Death, Prime Minister’s Challenge On Dementia 2020, Recommended Summary Plan for Emergency Care and Treatment (ReSPECT), Referral to Support Organisations, Respect, Respect for Autonomy, Respect for Identity, Respect For Patients, SDM: Shared Decision Making, Shared Decision-Making, Starting the Conversation (Compassion in Dying), Summary Care Records, Summary Care Records (SCRs), Summary Care Records: Extended to Cover Dementia and Learning Disabilities, Thinking Ahead - Advance Care Planning, Time to Talk (Dying Matters), Tina Wormley: Expert by Experience, Together in Dementia (tide - Trade Marked Acronym), Treatment Escalation Plans
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Government’s Plans For High Quality End Of Life Care (Department of Health / CQC / BBC News)
Summary The government is introducing care plans for people at the end of life, with a view to ensuring consistently high quality, compassionate care. Altogether, there are six commitments to end unacceptable variations in end of life care by 2020. … Continue reading →
Posted in Acute Hospitals, Commissioning, Community Care, CQC: Care Quality Commission, Department of Health, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Health Education England (HEE), In the News, Integrated Care, Management of Condition, National, NHS, NHS England, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, UK, Universal Interest
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Tagged 24/7 Care, 24/7 Hospice at Home Service, 24/7 Service, 24/7 Specialised Nursing Services for End of Life Care, Accountability and Transparency, Airedale and Southend Pilots, Ambitions for Palliative and End of Life Care Framework, Ben Gummer: Health Minister, Ben Gummer: Parliamentary Under-Secretary of State for Care Quality, Care Coordinators, CCG Improvement and Assessment Framework (CCG IAF), Choice in End of Life Care, Claire Henry MBE, Clatterbridge Cancer Centre, Clatterbridge Cancer Centre NHS Foundation Trust, Clinical Commissioning Group Improvement and Assessment Framework, Commitment to Carers (NHS England), Commitment(s) For End of Life Care (2016), Community Care Pilots, Community Education Provider Networks (CEPNs), Community Resilience, Dying Matters Coalition, Dying Matters Coalition and Campaign, Dying Well Community Charter, Electronic Palliative Care Coordination Systems (EPaCCS), Electronic Patient Records: Recording and Sharing of End of Life Care Choices, End of Life Care For Infants Children and Young People (NICE Consultation), End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Faith at the End of Life, Family and Carers, Family Involvement, First Point of Contact (Main Contact), Generic Professional Capabilities (GPCs), Government Response to Review of Choice in End of Life Care, Guy's and St Thomas’s Hospital’s AMBER Care Bundle, Health and Care Voluntary Sector Strategic Partner Programme, High Quality End Of Life Care (2016), Honest Discussions With Care Professionals, ImproveCare: Management of Clinical Uncertainty, Informed Choices, Informed Choices About End of Life Care, Integrated Care Pioneers, Involvement, Involvement of Family and Carers, Involvement of Family Friends and Carers, James Lind Alliance, Local Education and Training Boards, Macmillan Cancer Support’s Building on the Best Programme, Meaningful Conversations With Dying People, Namaste Care Intervention to Improve Quality of Dying for People with Advanced Dementia in Care Homes, Named Care Coordinators, National Commitment For End of Life Care, National Council for Palliative Care (NCPC), NHS Clinical Services (Department of Health), NHS Electronic Patient Records, NHS England’s Commitment to Carers, NHS Five Year Forward View, NHS Mandate, Palliative and End of Life Care for Children and Young People, Palliative and End of Life Care Priority Setting Partnership, Personalised Care Planning, Point of Care Foundation’s Patient and Family Centred Care Programme, Poor Identification of People’s Capacity For Involvement in Their Care Planning and Management (Barriers to Involvement), Responsible Clinician (Main Contact), Review of Choice in End of Life Care, Serious Illness Care Programme UK, Shared Digital Palliative and End of Life Care Records, Skills for Care and Skills for Health, Specialist Support in End of Life Care (First Point of Contact), Summary Care Record (SCR), Supporting Family and Carers, Sustainability and Transformation Plans (STPs), Transforming End of Life Care Programme, Transforming Nursing for Community and Primary Care, Transparency and Accountability, Urgent and Emergency Care Hubs, Voluntary Sector Strategic Partner Programme
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Facilitating Difficult Conversations About Encroaching Old Age (BBC News / Independent Age)
Summary Independent Age (using the services of ComRes) conducted a survey which indicates that many people avoid talking about getting old and planning for loss of independence in old age. People tend to find conversations about end-of-life care particularly difficult … Continue reading →
Posted in BBC News, Charitable Bodies, End of Life Care, For Carers (mostly), In the News, Management of Condition, National, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, UK, Universal Interest
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Tagged Advance Care Planning, Advance Decision, Advance Statement, Ageing Population, Anticipatory Decision-Making, Barriers to Conversation (Difficult Conversations), Barriers to Talking About Ageing, Barriers: Ineffective Advance Care Planning, BBC Health News, Capacity and Advance Decisions, Care for People with Dementia in the Community, Care in an Ageing Society, Caregivers, Caregiving (Carers), Compassion in Dying, ComRes Polling, Decision Making, Decision-Making at End of Life, Decision-Making Capacity, Delayers, Delayers and Deniers, Delegated Decision Making, Deniers, Difficult Conversations, Difficult Conversations (Families and Carers), Difficult Conversations: Anticipating Reactions, Easing Decision-Making, End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Facilitating Difficult Conversations, Families, Family Caregivers, Family Carers, Health and Care Suitable for an Ageing Population, Home Care, Independent Age, Independent Age Helpline, Information Sharing: Advance Care Plans, Intergenerational Communication, Janet Morrison (Chief Executive of Independent Age), Lasting Power of Attorney for Health and Welfare, Let Me Decide (Advance Care Directive), Living with Dementia, Loss of Independence, Managing My Affairs If I Become Ill, Participatory Decision-Making, Planning Ahead, Power of Attorney, Proxy Decision Making, Shared Decision-Making, Supporting Health Wellbeing and Independence, Talking About End-of-Life Planning, Talking About Getting Extra Help at Home, Talking About Moving Home, Talking About Moving Out of Home, Tools For End of Life Care Planning, Unpaid Care Provision, Unpaid Caregivers (Carers), Unpaid Carers, Unwillingness to Consider Residential Care
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Improving the Quality of Care For Care Home Residents With Dementia (NHS England / Clinical Medicine / BBC News)
Summary Professor Alistair Burns, NHS England’s National Clinical Director for Dementia, discusses multi-pronged progress to improve the quality of care – and to enhance health and wellbeing – for people with dementia living in care homes. It has been estimated … Continue reading →
Posted in Acute Hospitals, Alzheimer's Society, Commissioning, Community Care, Delirium, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, NHS England, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Quick Insights, Royal College of Physicians, Standards, UK, Universal Interest
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Tagged 5YFV: NHS Five Year Forward View, Advance Care Planning, Agreed Care Plans, Alistair Burns, Alistair Burns: NHS England’s National Clinical Director for Dementia, Alistair Burns: NHS England’s National Clinical Director for Older People’s Mental Health, Australia, Avoidable Hospital Admissions, Barbican Consensus: Care and Support for People With Dementia in Care Homes, BBC Health News, BBC Panorama, BBC Panorama: Nursing Homes Under Cover, BBC’s Panorama, Behind Closed Doors: Elderly Care Exposed: Panorama (BBC One), Best Practice in Care Homes, Boston (UK), Bromhead Care Home Service, Care and Compassion, Care and Support for People With Dementia in Care Homes, Care England, Care Home Liaison Service: Pilgrim Hospital (Boston UK), Care Home Liaison Service: United Lincolnshire Hospitals NHS Trust, Care Integration, Care Planning, Care Staff Education, CLAHRC East Midlands, CLAHRC East Midlands Caring for Older People and Stroke Survivors Theme, CLAHRC: Collaboration for Leadership in Applied Health Research and Care, Collaborations for Leadership in Applied Health Research and Care (CLAHRCs), Collaborative Care Planning, Commissioning for Excellence in Care Homes, Commissioning for Maximum Value, Commissioning for Older People, Commissioning for Outcomes, Commissioning for Quality, Commissioning for Transformation, Confusion in Care Homes, Coordinated Care, Cracks in the Pathway (CQC), Culture of Compassionate Care, Delirium in Care Homes, Dementia Care in Care Homes, Dementia In-Reach Teams, Dementia Outreach Services, Dementia Outreach Team, Dementia Primer for General Practice, Dementia Revealed: Dementia Guide for GPs, Dementia Support Services in Care Homes, Dementia Toolkit for GP Commissioners, Dementia Toolkit for GPs, Dementia: People With Dementia in Care Homes, Dignity, Dignity and Respect, Dignity in Care, Discontinuation of Antipsychotics, East Midlands AHSN Frail Older People Programme, Emergency Admissions from Care Homes, End of Life Care in Care Homes, End of Life Care Plans, End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Enhanced Health in Care Homes, Enhanced Personalised Care Plans, Five Year Forward View (NHS England), Gill Garden: Consultant for Older People’s Services at United Lincolnshire Hospitals Trust, Gold Standards Framework (GSF), Good Practice in Care Homes, Hospital Admission Versus Preferred Place of Care, Hospital Admission Versus Preferred Place of Death, Improving Standards in Care Homes, In Reach, Inappropriate Hospital Admissions, Influence of Primary Care Quality Upon Hospital Admissions by People with Dementia in England, Information Sharing: Advance Care Plans, Integrated Care and Support, Integrated Care for Older People With Complex Needs, Integrated Commissioning, Integrated Primary and Acute Care Systems (PACS) Vanguard Sites, Let Me Decide (Advance Care Directive), Living Well in Care Homes, Mental Wellbeing of Older People in Care Homes, Models of Care: Age-Related Models, Models of Care: Integrated Models, Models of Enhanced Health in Care Homes, Models of Enhanced Health in Care Homes - Vanguard Site: Airedale NHS Foundation, Models of Enhanced Health in Care Homes - Vanguard Site: East and North Hertfordshire CCG, Models of Enhanced Health in Care Homes - Vanguard Site: Newcastle Gateshead Alliance, Models of Enhanced Health in Care Homes - Vanguard Site: NHS Wakefield CCG, Models of Enhanced Health in Care Homes - Vanguard Site: Nottingham City CCG, Models of Enhanced Health in Care Homes - Vanguard Site: Sutton CCG, Models of Enhanced Health in Care Homes Vanguard Sites, New Care Models: Vanguard Sites, New Models of Care, Newcastle Gateshead Alliance, NHS England, NHS England’s Five Year Forward View, NHS Five Year Forward View (5YFV), NHS Nottingham City CCG, NHS Sutton CCG, NHS Vanguard Projects, NHS Wakefield CCG, NIHR CLAHRC East Midlands, Out-Reach Dementia Teams, Outreach Dementia Service, Outreach Services, Panorama (BBC TV), Partnership Working, Patients Admitted to Hospitals From Care Homes, People with Dementia in Care Homes, Personalised Care Planning, Post-Diagnosis Support, Post-Diagnostic Dementia Support, Post-Diagnostic Support, Preferred Place of Death, Preventable Hospital Admissions, Preventing Acute Admissions from Care Homes, Prince of Wales Hospital: Post Acute Care Services (Sydney Australia), Proactive Care Plans, Proactive Specialist In-Reach, Professor Alistair Burns, Prognostic Indicator Guidance: Gold Standards Framework, Queens Medical Centre: Nottingham, Red Bags, Redesigning Local Healthcare Systems, Redesigning Services, Reducing Hospital Admissions Without Increasing Mortality, Reducing Inappropriate Use of Antipsychotics, Reducing Unplanned Hospital Admissions, Safe and Compassionate Care, Staff Education, Staff Training, Stop Delirium! (University of Leeds), Terminal Care for Persons With Advanced Dementia in Nursing Homes and Care Homes, Timely Diagnosis, United Lincolnshire Hospitals NHS Trust, United Lincolnshire Hospitals NHS Trust: Pilgrim Hospital (Boston UK), United Lincolnshire Hospitals Trust (ULHT), Unnecessary Hospital Admissions, Unplanned Hospital Admissions, Workforce Competencies
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End-of-Life Care: Under-Recognition of People With Dementia? (BBC News / Marie Curie Cancer Care)
Summary A report by Marie Curie Cancer Care and the Alzheimer’s Society asserts that dementia sufferers may not always get the quality of care needed, possibly because their condition is not recognised sufficiently (at a societal level and in commissioning … Continue reading →
Posted in Acute Hospitals, Alzheimer's Society, BBC News, Charitable Bodies, Commissioning, Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, Models of Dementia Care, National, Patient Care Pathway, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest
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Tagged Access to Funding, Access to Palliative Care, Advance Care Planning, Ageing Population, Awareness, Awareness and Understanding, Awareness Campaigns, Awareness Raising, Barriers: Access to Funding, Barriers: Access to Hospice Care, Barriers: Access to Palliative Care, Barriers: Discrimination, Barriers: Failure to Adapt Practice to Reflect the Different Nature of Dementia, Barriers: Failure to Identify Dementia as a Cause of Death, Barriers: Inappropriate Hospital Admissions, Barriers: Inappropriate Interventions, Barriers: Inconsistency in Care Standards in Hospitals, Barriers: Ineffective Advance Care Planning, Barriers: Lack of Continuity of Care, Barriers: Lack of Recognition of Dementia as a Terminal Condition, Barriers: Lack of Support for Carers, Barriers: Lack of Timely and Appropriate Diagnosis, Barriers: Poor Pain Management, BBC Health News, Black Asian and Minority Ethnic (BAME), Black Asian and Minority Ethnic Communities (UK), Care Standards in Hospitals, Carer Support, Cause of Death, Continuing Care, Continuity of Care, Decision Support Tools, Dementia as Cause of Death, Dementia Awareness Training, Dementia Severity, Discrimination, Dying Matters, Dying Matters Coalition, End Stage Dementia, End-of-Life Care Pathways, End-of-Life Dementia Care Barriers: Access to Funding, End-of-Life Dementia Care Barriers: Access to Hospice Care, End-of-Life Dementia Care Barriers: Access to Palliative Care, End-of-Life Dementia Care Barriers: Discrimination, End-of-Life Dementia Care Barriers: Failure to Adapt Practice to Reflect the Different Nature of Dementia, End-of-Life Dementia Care Barriers: Failure to Identify Dementia as a Cause of Death, End-of-Life Dementia Care Barriers: Inappropriate Hospital Admissions, End-of-Life Dementia Care Barriers: Inappropriate Interventions, End-of-Life Dementia Care Barriers: Inconsistency in Care Standards in Hospitals, End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, End-of-Life Dementia Care Barriers: Lack of Continuity of Care, End-of-Life Dementia Care Barriers: Lack of Recognition of Dementia as a Terminal Condition, End-of-Life Dementia Care Barriers: Lack of Support for Carers, End-of-Life Dementia Care Barriers: Lack of Timely and Appropriate Diagnosis, End-of-Life Dementia Care Barriers: Poor Pain Management, End-of-Life Nursing Services, End-of-Life Transitions, European Association for Palliative Care’s White Paper, Funding of Continuing Care, Hospice Care, Inappropriate Hospital Admissions, Inappropriate Interventions, Kings College London, Local Dementia Prevalence, Marie Curie Cancer Care, Marie Curie’s and Alzheimer’s Society’s Dementia Report, My Life Until the End: Dying Well With Dementia (Alzheimer’s Society), National Audit of Dementia (Care in General Hospitals), National Care of the Dying Audit for Hospitals, National Council for Palliative Care (NCPC), National Dementia Prevalence, NHS Continuing Care, Pain Assessment in Advanced Dementia (PAINAD), Pain Management, PAINAD (Pain Assessment in Advanced Dementia) Tool, Palliative and End of Life Care for Black Asian and Minority Ethnic Groups in UK, Palliative Care, Palliative Care in Dementia (and Dementia Severity), Recognition of Dementia as a Terminal Condition, Recorded Dementia Prevalence, Stigma, Support for Carers, Terminal Illness, Terminal Trajectories Typical of Cancer and Dementia (adapted from (Sachs [et al] 2004), Timely Diagnosis, UK Black Asian and Minority Ethnic Communities
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