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Recent Posts
- Dementia-Friendly Communities Provision, Viewed as a Social Determinant of Health (JGCR / NHS England / WHO)
- International Perspectives on the Possible Impact of the COVID-19 Pandemic and Lockdown on Abuse of the Elderly (JGCR / American Journal of Geriatric Psychiatry / JAGS)
- Updates Relating to the Lancet Commission on Dementia Prevention, Intervention, and Care (Lancet / Alzheimer’s Research and Therapy / Alzheimer’s and Dementia)
- A Brief Review of How the COVID-19 Pandemic Relates to Elderly Care and Research (JGCR)
- Some Speculated / Potential Benefits of COVID-19 (JGCR / BBC Radio 4’s Rethink / BGS)
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Tag Archives: Experiences of Diagnosis
The Subjective Impact of Cognitive Impairment Upon People with Parkinson’s Disease (Parkinson’s Disease)
Summary Qualitative research which explores the subjective impact of cognitive impairment on people with Parkinson’s Disease and their carers / families. Full Text Link Reference Lawson, RA. Collerton, D. [and] Taylor, JP. [et al] (2018). Coping with cognitive impairment in … Continue reading →
Posted in Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Person-Centred Care, Quick Insights, UK, Universal Interest
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Tagged Australia, Behavioural and Clinical Neuroscience Institute: University of Cambridge, Carer Experience, Centre for Human Psychopharmacology: Swinburne University, Challenges to Coping in People with Parkinson's Disease, Characterizing Mild Cognitive Impairment in Incident Parkinson Disease: ICICLE-PD Study, Cognitive Decline, Cognitive Decline Studies, Cognitive Impairment, Cognitive Impairment in People With Parkinson's Disease, Coping and Adjustment, Coping Strategies, Dementia in Parkinson's Disease, Department of Clinical Neurosciences: University of Cambridge, Department of Medicine: Imperial College London, Department of Nursing Midwifery and Health: Northumbria University, Departments of Psychiatry and Psychology: University of Cambridge, Diseases and Medical Conditions Associated With Increased Risk of Mild Cognitive Impairment (MCI), Experiences, Experiences of Diagnosis, Experiences of the Transition to Dementia, Family and Caregiver Experiences, Finding Meaning in Caring, Göttingen University; Institute for Neuropathology: University Medical Centre Göttingen, Germany, Hermeneutics, ICICLE-PD, ICICLE-PD Study Group, Imperial College London, Incidence of Cognitive Impairment in Cohorts with Longitudinal Evaluation–PD (ICICLE-PD), Industrial Statistics Research Unit: Newcastle University, Institute for Ageing and Health: Newcastle University, Institute of Genetic Medicine: Newcastle University, Institute of Neuroscience: Newcastle University, John van Geest Centre for Brain Repair: University of Cambridge, Lockhart Parkinson's Disease Research Fund, Loss in Carers of People with Parkinson's and Cognitive Impairment, Loss of Confidence, Loss of Independence, Loss of Mutuality, Loss of Purpose, Memory Problems, Mild Cognitive Impairment (MCI), MRC Cognition and Brain Sciences Unit: University of Cambridge, National Institute for Health Research (NIHR) Newcastle Biomedical Research Unit, Neurology (Journal), Newcastle University, Northumbria University, Paracelsus-Elena-Klinik (Kassel), Parkinson's Disease (Journal), Parkinson’s Dementia, Parkinson’s Disease Dementia (PDD), Parkinson’s Disease: Non-Motor Symptoms, Patient and Carer Experiences of Diagnosis, Patient Experience Research, PD-MCI, PDD: Parkinson's Disease with Dementia, Predeath Grief, Prion and Dementia Research Unit: University Medical Centre Göttingen, Qualitative Research, School of Medicine: Griffith University (Australia), Self-Perception, Stressors (in Cognitive Impairment), Swinburne University (Melbourne), University Medical Centre Göttingen, University of Cambridge
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Government Listening to People With Dementia / Their Carers (Department of Health)
Summary More on the Department of Health’s “listening programme”, which aims to learn more about the experiences of people with dementia and their carers in England. This will help assess the impact of the Dementia Challenge 2020 Implementation Plan. The … Continue reading →
Posted in Commissioning, Department of Health, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Management of Condition, Mental Health, Models of Dementia Care, National, NHS, Non-Pharmacological Treatments, Patient Information, Person-Centred Care, Personalisation, Quick Insights, Standards, UK, Universal Interest
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Tagged Active Engagement, Carer Experience, Carer's Experience of Dementia, Carers’ Experiences of the Dementia Journey, Challenge on Dementia 2020, Citizen Participation, Citizens' Engagement Programme Toolkit (Dementia 2020), Community Engagement, Consultation and Enagement, Dementia Challenge 2020, Dementia Challenge 2020 Implementation Plan, Dementia Engagement and Empowerment Project (DEEP), Dementia Experiences, Dementia Groups, Embedding Patient Experience in Service Delivery, Embedding Patient Experience in Service Design, Engagement, Engagement and Co-Production, Engaging With People Having Experience of Dementia, Experience Based Co-Design, Experience Based Design, Experiences of Diagnosis, Experiences of Health Care Services, Experiences of Social Care Services, Experiences of the Transition to Dementia, Experts by Experience, Family and Caregiver Experiences, Improving Patient Experience, Improving the Experience of Dementia, Involvement and Participation, Listening to People With Dementia and Their Carers (Department of Health), Participation, Patient and Family Engagement, Patient and Public Engagement (PPE), Patient and Public Participation, Patient Participation, Personal Experience of Dementia, Prime Minister’s Challenge On Dementia 2020, Principles for Engagement, Public Consultation (Dementia Experience), Public Engagement, Public Engagement Exercises, User Participation
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Dementia 2020 Citizens’ Engagement Programme Toolkit (Department of Health)
Summary A new toolkit, aimed at dementia groups and networks, offers guidance and advice on facilitating conversations with persons affected by dementia and their carers concerning the Government’s work on dementia. An online survey, open to persons (and their families … Continue reading →
Posted in Alzheimer's Society, Alzheimer’s Research UK, Charitable Bodies, Commissioning, Community Care, Department of Health, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, Patient Care Pathway, Patient Information, Person-Centred Care, Quick Insights, Standards, UK, Universal Interest
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Tagged Active Engagement, Advisory Group for Dementia 2020 Citizens' Engagement Programme (Department of Health), Ageing and Disability Division (Department of Health), Alzheimer Experience, Alzheimer’s Research UK (ARUK), ARUK: Alzheimer’s Research UK, Carer Experience, Carer's Experience of Dementia, Carers’ Experiences of the Dementia Journey, Challenge on Dementia 2020, Citizens' Engagement Programme Toolkit (Dementia 2020), Community Care Group / Social Care (Department of Health), Community Engagement, Consent to Share Information, DEEP Guide: Collecting the Views of People With Dementia, DEEP Guides, DEEP Guides: Supporting Involvement of People With Dementia, DEEP2: Dementia Engagement and Empowerment Project, DEEP: Dementia Engagement and Empowerment Project, Dementia 2020 Citizens' Engagement Programme, Dementia 2020 Citizens' Engagement Programme: Group Discussion Template, Dementia 2020 Citizens' Engagement Programme: Template for Feedback, Dementia 2020 Citizens' Engagement Programme: Toolkit, Dementia and Disabilities Branch (Department of Health), Dementia Engagement and Empowerment Project (DEEP), Dementia Experiences, Dementia Groups, Dementia Networks, Dementia Words Matter: Guideline, Dementia-Friendly Meeting Spaces, Department of Health Consultation Regarding UK Government’s Work on Dementia, Department of Health: Dementia Policy Team, Department of Health’s Advisory Group for the Dementia 2020 Citizens' Engagement Programme, Disclosing Information and Consent, Embedding Patient Experience in Service Delivery, Embedding Patient Experience in Service Design, Engagement, Engagement and Co-Production, Engagement Facilitation: DEEP Recommendations on Facilitating Focus Groups for People With Dementia, Engagement Facilitation: Hints and Tips, Engagement Facilitation: Organising Group Discussions, Engagement Facilitation: Organising One to One Discussions, Engaging With People Having Experience of Dementia, Experience Based Co-Design, Experience Based Design, Experiences of Diagnosis, Experiences of Health Care Services, Experiences of Social Care Services, Experiences of the Transition to Dementia, Experts by Experience, Facilitating Discussions Effectively and Sensitively, Facilitating Focus Groups for People With Dementia (DEEP Recommendations), Family and Caregiver Experiences, Focus Groups, Group Discussions (Focus Groups), iD: Innovations in Dementia, Improving Patient Experience, Improving the Experience of Dementia, Informed Consent, Innovations in Dementia, Innovations in Dementia: a CIC, Patient and Family Engagement, Patient and Public Engagement (PPE), Personal Experience of Dementia, Prime Minister’s Challenge On Dementia 2020, Principles for Engagement, Public Engagement, Public Engagement Exercises, Together in Dementia (tide - Trade Marked Acronym)
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Dementia Care, Patient Experience and Risk Reduction Are Priorities for World Dementia Council (Department of Health / Dementia Challenge / WDC)
Summary It has been agreed at the World Dementia Council‘s third meeting in London (held at the Foreign and Commonwealth Office on Friday October 17th 2014) that dementia care (i.e. health and social care) and risk reduction should be added … Continue reading →
Posted in Alzheimer’s Disease International (ADI), Charitable Bodies, Commissioning, Community Care, Department of Health, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, National, NIHR, Non-Pharmacological Treatments, Person-Centred Care, Pharmacological Treatments, Quick Insights, Standards, UK, Universal Interest, World Health Organization (WHO)
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Tagged Achieving Dementia Friendly Acute care, Alzheimer's Research UK, Alzheimer’s Disease International (ADI), Behavioural Risk Factors, Behavioural Risk Factors and Dementia, Challenge on Dementia (David Cameron), Collaborative Projects, Community Rehabilitation, Continuity Plans (WDC and GAAD Agenda), Conversion to Dementia From Prodromal Disease, Cross-Sector Partnerships, Danish Health and Medicines Authority, Dementia Alliance International, Dementia Awareness, Dementia Challenge, Dementia Risk Factors, Dennis Gillings: Former World Dementia Envoy, Department of Health Dementia Challenge, Department of Health's Digital Health Blog, Digital Engagement, Dr Kiyoshi Kurokawa: Professor of the National Graduate Institute for Policy Studies and Science Advisor to the Cabinet of Japan, Dr Margaret Chan: WHO Director-General, European Medicines Agency, Experiences, Experiences of Diagnosis, Experts by Experience, F ederal Institute for Drugs and Medical Devices Germany, Finance and Incentives, Fourth World Dementia Council Meeting (February 2015), G7 Countries, G7 Global Dementia Summit, G8 Dementia Summit, GADAA Toolkit: Global Alzheimer’s and Dementia Action Alliance, Geoff Huggins: Scottish Government, Global Action Against Dementia, Global Alzheimer’s and Dementia Action Alliance (GADAA), Global Envoy for Dementia Innovation, Global Leadership, Global Outlook, Global Social Investment for Dementia, Harry Johns: President and CEO of Alzheimer’s Association, Harry Johns: World Dementia Council Member, Health Canada, Healthy Behaviours, Healthy Communities, Healthy Lifestyles, Hilary Doxford: World Dementia Council Member, Innovation in Care and Prevention (Japan Legacy Event), Innovative Technology, Integrated Development, International Collaborations, International Dementia Research Inventories, International Programmes, Italian Medicines Agency, Japan Legacy Event, Japan Legacy Event: Innovation in Care and Prevention, Japan’s G7 Legacy Event on Dementia Care and Prevention, JP Morgan, Kate Swaffer: Chair of Dementia Alliance International, Legacy Event in March 2015, Lifestyle Risk Factors, Lived Experience, Living Well with Dementia, Living Well with Dementia Research, Maintaining Independence, Medicines and Healthcare Products Regulatory Authority UK, Medicines Evaluation Board Netherlands, Modifiable Risk Factors, Open Science and Data, Organisation for Economic Co-operation and Development (OECD), Organisation for Economic Cooperation and Development, Partnership and Collaboration, Partnership Working, Patient Experience, Personal Experience of Dementia, Peter Paniccia, Pharmaceutical and Medical Devices Agency Japan, Pharmaceutical Industry, Pharmaceutical Regulators, Pre-Clinical Fund, Pre-Clinical Space, Prescribed Disengagement, Prime Minister's Challenge on Dementia, Prime Minister’s Dementia Challenge, Prodromal Alzheimer's Disease, Professor Martin Rossor: Former Director of the NIHR Dementia and Neurodegenerative Disease Research Network (DeNDRoN), Professor Martin Rossor: NIHR National Director for Dementia Research, Professor Martin Rossor: UCL Institute of Neurology, Raj Long: Senior Regulatory Officer for Integrated Development in Global Health at the Bill & Melinda Gates Foundation, Reablement, Reablement Services, Regaining Independence, Rehabilitation, Rehabilitation and Self Management, Research and Innovation, Resource and Incentives, Risk Factors, Risk Factors for Alzheimer's Diseease, Risk Reduction (Formerly Termed Prevention by WDC), Science and Innovation, Service User Experience, Sir Mark Walport, Sir Mark Walport (Wellcome Trust), Specialist Rehabilitation Services, Staying Independent, Support for Carers, Sustainable Care, Tackling Barriers to Innovation, Third Global Dementia Legacy Event, Third Global Dementia Legacy Event (Japan: November 2014), Third World Dementia Council Meeting Communique, Unhealthy Behaviours, Unhealthy Lifestyles, Unhealthy Living, US Food and Drug Administration, WDC Dementia Risk Reduction Statement, WDC: World Dementia Council, World Dementia Council, World Health Organisation (WHO), World Health Organization (WHO)
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Recent Systematic Reviews and Meta-Analyses on Diagnosis, Screening, Assessment and Symptoms
Some of the following articles are available freely. The full-text of the other articles may need a suitable Athens password, a journal subscription or payment for access. The Bibliographic Citations Zhang, J. Zhang, CH. Li, RJ. [et al] (2013). Accuracy … Continue reading →
Posted in Diagnosis, For Doctors (mostly), For Researchers (mostly), International, Quick Insights, Systematic Reviews
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Tagged Alzheimer's Disease: Diagnosis, Assessment and Diagnosis, Biomarkers, Blood Proteome Markers, Cerebral Vascular Disease, Cerebrospinal Fluid (CSF), Cerebrospinal Fluid (CSF) Biomarkers, Dementia Diagnosis, Dementia Screening, Diagnosis and Assessment, Diagnosis of Alzheimer's Disease, Disclosure of Diagnosis, Early Diagnosis, Early Diagnosis of Alzheimer's Disease, Emotions (Upon Disclosure of Diagnosis, Experiences of Diagnosis, GRECOG-VASC Study Group, Impact of Diagnosis, Improving Diagnosis, Mild Cognitive Impairment (MCI), Prodromal Alzheimer's Disease, Screening, Screening for Dementia, Systematic Reviews and Meta-Analyses, Urinary AD7c-NTP
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Experiences of the Patient Journey into Alzheimer’s Disease (Alzheimer’s Society)
Summary This research report, from Lilly UK and the Alzheimer’s Society, explores the experience of progression through stages in the development of dementia, from the early signs to diagnosis and beyond. Full Text Link Reference The ‘patient journey’ for people … Continue reading →
Posted in Acute Hospitals, Alzheimer's Society, Charitable Bodies, Community Care, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Management of Condition, National, Patient Care Pathway, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, UK, Universal Interest
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Tagged Age-Related Memory Loss, Alzheimer Experience, Anger (Upon Disclosure of Diagnosis, Assessment and Diagnosis, Barriers to Early Diagnosis, Carer's Experience of Dementia, Carers’ Experiences of the Dementia Journey, Coping Mechanisms, Coping Strategies, Coping with Memory Loss, Dementia Diagnosis, Diagnosis and Referral, Diagnosis of Alzheimer's Disease, Diagnosis of Dementia, Disclosure, Disclosure of Diagnosis, Eli Lilly, Emotions (Upon Disclosure of Diagnosis, Experiences, Experiences of Diagnosis, Experiences of the Transition to Dementia, Fear (Upon Disclosure of Diagnosis, Frustration (Upon Disclosure of Diagnosis, Impact of Diagnosis, Initial Onset and Diagnosis, Lilly, Lilly UK, Living Well After Diagnosis, Loss (Upon Disclosure of Diagnosis, Mapping the Patient Journey, Memory Clinics, Memory Lapses, Memory Loss, Memory Services, Mild Memory Problems, NHS Memory Clinics, Patient Experience, Patient Journey into Alzheimer's Disease, Post-Diagnosis Support, Psychological Coping Skills, Service User Experience, Support and Coping Mechanisms, upon, User Experience
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Understanding the Person with Dementia (SCIE Social Care TV)
Summary This SCIE Social Care TV video examines how getting to know and understanding the perspective of individuals with a recent diagnosis of dementia helps to provide person-centred care and support to help them live well and independently for as long … Continue reading →
Posted in Community Care, Diagnosis, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Management of Condition, National, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, SCIE, Standards, UK, Universal Interest
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Tagged Coping Mechanisms, Coping Strategies, Coping with Memory Loss, Diagnosis, Dignity, Dignity in Dementia, Disclosure of Diagnosis, Driving and Dementia, Experiences of Diagnosis, Family Support, Fear (Upon Disclosure of Diagnosis, Frustration (Upon Disclosure of Diagnosis, Impact of Diagnosis, Independence, Independent Living, Living Well After Diagnosis, Living Well with Dementia, Loss (Upon Disclosure of Diagnosis, Memory Loss, Post-Diagnosis Support, Recent Diagnosis, SCIE Social Care TV, Social Care TV, Staying Independent, Support and Coping Mechanisms, Understanding the Person with Dementia
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GP’s Dementia Guide: Living Well After Diagnosis (Alzheimer’s Society)
Summary A Dementia Guide has been produced for GPs and psychiatrists to help them provide more support to patients diagnosed with the condition (and better support for their carers). This free booklet, produced by the Alzheimer’s Society and sponsored by … Continue reading →
Posted in ADASS, Alzheimer's Society, Charitable Bodies, Community Care, Department of Health, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Pharmacological Treatments, Practical Advice, Quick Insights, Royal College of Psychiatrists, Standards, UK, Universal Interest
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Tagged All-Party Parliamentary Group on Dementia, Alzheimer's Society, Anger (Upon Disclosure of Diagnosis, Anxiety, APPG on Dementia, Association of Directors of Adult Social Services (ADASS), Barriers to Early Diagnosis, Care and Support Planning, Care Planning, Caregiver Support, Carer Support, Community Support, Coping with Memory Loss, Dementia and Driving Guidance, Dementia Research, Depression, Disclosure of Diagnosis, Driving, Driving and Dementia, Early Diagnosis, Experiences of Diagnosis, Family Support, Fear (Upon Disclosure of Diagnosis, Financial Issues, Financial Planning, Frustration (Upon Disclosure of Diagnosis, GP’s Dementia Guide, GPs, Living Well After Diagnosis, Living Well with Dementia, Loss (Upon Disclosure of Diagnosis, Medical Research, Memory Loss, Post-Diagnosis Support, RCGP, Recent Diagnosis, Royal College of General Practitioners (RCGP), Signposting, Support, Support for Carers, Support Networks, Supportive Environments, Timely Diagnosis, Unlocking Diagnosis
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First Recorded UK Case of Assisted Suicide for Dementia (BBC News / JRCPE)
Summary The first case has been reported of a British person electing to end his own life at the Dignitas facility in Zürich (Switzerland) after being diagnosed as having the early stages of dementia. The 83-year-old was assessed to be mentally competent to make the decision. Reactions … Continue reading →
Posted in Alzheimer's Society, BBC News, Diagnosis, For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, National, Patient Care Pathway, Quick Insights, UK, Universal Interest
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Tagged Alzheimer’s Disease Biomarkers, Assessment and Diagnosis, Assisted Dying, Assisted Dying and the Law: International Comparisons, Assisted Suicide, Assisted Suicide for Dementia, BBC Health News, Belgium, Biomarkers, Canada, Care Not Killing Alliance, Colombia, Conversion to Dementia From Prodromal Disease, Declaration of Helsinki, Dementia Diagnosis, Diagnosis of Alzheimer's Disease, Diagnosis of Dementia, Diagnosis Rates, Dignitas (Zurich), Dignity in Dementia, Disclosure of Diagnosis, Dutch Regional Review Committees, Early Dementia Diagnosis: Risk of Suicide and Euthanasia, Early Diagnosis, Ethical Dilemmas, Ethics and Decision-Making, Euthanasia and the Law: International Comparisons, Experiences of Diagnosis, Living and Dying with Alzheimer's (BBC Stories), Luxembourg, Medical Ethics, Netherlands, Post-Diagnosis Support, Pre-Emptive Suicide, Pre-Symptomatic Diagnosis of Alzheimer’s Disease, Pre-Symptomatic Diagnosis of Dementia, Prodromal Alzheimer's Disease, Protection of Research Participants, Rational Suicide, Rational Suicide and Dementia, Recent Diagnosis, Safeguarding, Safeguarding of Vulnerable Adults (SOVA), Safeguarding Older People, Stigma, Suicide, Unintended Consequences, University of New South Wales, World Medical Association: WMA Declaration of Helsinki
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Factors in Patients’ and Carers’ Experiences of Dementia Diagnosis and Treatment (PLoS Medicine)
Summary Early diagnosis and intervention for people with dementia is becoming a priority, as has been reflected in the “Dementia Case Finding Scheme”. Some GPs are concerned about the effects of early diagnosis and disclosure on patients and carers, however. … Continue reading →
Posted in Community Care, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Quick Insights, Systematic Reviews, UK, Universal Interest
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Tagged Anger (Upon Disclosure of Diagnosis, Assessment and Diagnosis, Autonomy and Safety, Barriers to the Diagnosis and Management of Patients with Dementia in Primary Care, Breaking Bad News, Burden of Dementia, Burden on Caregivers, Care Transitions, Case Finding for Patients with Dementia, Centre for Research in Primary and Community Care: University of Hertfordshire, Coping Strategies, Dementia Case Finding, Dementia Case Finding Scheme, Dementia Diagnosis, Diagnosis, Diagnosis and Assessment, Diagnosis of Alzheimer's Disease, Disclosure, Disclosure of Diagnosis, Early Diagnosis, Emotional Strategies, Experiences of Diagnosis, Experiences of the Transition to Dementia, Family Support, Fear (Upon Disclosure of Diagnosis, Feelings of Loss Anger Fear and Frustration, Frustration (Upon Disclosure of Diagnosis, Identity, Loss (Upon Disclosure of Diagnosis, Maintaining Identity, Managing Transitions, Patient and Carer Experiences of Dementia Diagnosis and Treatment, Patient and Carer Experiences of Diagnosis, Patient Experience, PLoS Medicine, Positive Mindsets, Practical Strategies, Reminders, Sense of Identity, Social Strategies, Strategies for Living, Survival After Diagnosis of Dementia, Transition, Transition from Cognitive Impairment to Dementia, Transition to Dementia: Individual and Family Experiences, Unequal Relationships, University of Hertfordshire
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