Tag Archives: Family Involvement

Christmas and Dementia: Some Benefits and Coping Strategies (BBC News / NHS England)

Posted on December 23, 2019 by Dementia and Elderly Care News

Summary Professor Alistair Burns, NHS England’s National Clinical Director for Dementia and Older Peoples’ Mental Health, has released his traditional Christmas-time message to families and carers. Some simple coping strategies are provided. It is noted, on the positive side, that TV … Continue reading →

Posted in Alzheimer's Society, BBC News, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, NHS England, Non-Pharmacological Treatments, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, UK, Universal Interest | Tagged Advice and Information, Advice and Support, Alistair Burns: NHS England’s National Clinical Director for Dementia, Alistair Burns: NHS England’s National Clinical Director for Older People’s Mental Health, Alzheimer’s Society National Dementia Helpline, Awareness Raising, Christmas and Dementia: Coping Strategies, Coping Strategies, Dementia Awareness, Dementia Awareness Campaign, Dementia Friendly Christmas, Dementia Helpline, Emotion-Focused Coping Strategies, Family Involvement, Family Meetings, Festive Music, Festive Popular Music Hits, Festive Season, Festive Season Repeats, Festive Songs, Identification and Referral, Information and Advice, Kathryn Smith: Chief Operating Officer at Alzheimer’s Society, Mental Wellbeing and Older People, National Dementia Helpline, Problem-Focused Coping Strategies, Professor Alistair Burns, Reminiscence, Significant Arts (Reminiscence), Significant Events (Reminiscence), Significant Music (Reminiscence), Significant Persons (Reminiscence), Social Networks, Spotting the Signs of Dementia, Supportive Social Networks, Timely Diagnosis, TV Repeats | Leave a comment

Signs of Dementia or Depression Often First Detected at Christmas? (NHS England / BBC News)

Posted on December 25, 2018 by Dementia and Elderly Care News

Summary Professor Alistair Burns, NHS England’s National Clinical Director for Dementia and Older Peoples’ Mental Health, has again written briefly about the role of family and friends in identifying early signs of dementia or depression when meeting older people / … Continue reading →

Posted in Community Care, Depression, Diagnosis, For Carers (mostly), For Nurses and Therapists (mostly), National, NHS England, Patient Information, Quick Insights, UK, Universal Interest | Tagged Advice and Information, Advice and Support, Alistair Burns: NHS England’s National Clinical Director for Dementia, Alistair Burns: NHS England’s National Clinical Director for Older People’s Mental Health, Awareness Raising, Barbara Windsor, BBC Health News, Check Your Mate: NHS England’s Valentine’s Day Advice, Community Involvement, Community Participation, Dame Barbara Windsor, Dementia and Age-Friendly Neighbourhoods, Dementia Awareness, Dementia Awareness Campaign, Dementia Friendly Christmas, Dementia Friends, Dementia Friends Campaign, Dementia Friends Programme, Disorientation, Early Diagnosis, Family Involvement, Family Meetings, Festive Music, Festive Popular Music Hits, Festive Season, Festive Season Repeats, Festive Songs, Identification and Referral, Information and Advice, Mental Wellbeing and Older People, Professor Alistair Burns, Reducing Delays in Dementia Diagnosis, Reminiscence, Scott Mitchell, Significant Arts (Reminiscence), Significant Events (Reminiscence), Significant Music (Reminiscence), Significant Persons (Reminiscence), Social Networks, Spatial Disorientation, Spotting the Signs of Dementia, Supportive Social Networks, Timely Diagnosis, TV Repeats, Valentine’s Day | Leave a comment

Signs of Dementia Often First Detected at Christmas? (BBC News / NHS England)

Posted on December 23, 2017 by Dementia and Elderly Care News

Summary Professor Alistair Burns, NHS England’s National Clinical Director for Dementia and Older Peoples’ Mental Health, has written briefly about the role of family and friends in identifying early signs of dementia when meeting older people / relatives over Christmas. … Continue reading →

Posted in BBC News, Community Care, Diagnosis, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, Mental Health, Models of Dementia Care, National, NHS, NHS England, Person-Centred Care, Quick Insights, UK, Universal Interest | Tagged Advice and Information, Advice and Support, Alistair Burns: NHS England’s National Clinical Director for Dementia, Alistair Burns: NHS England’s National Clinical Director for Older People’s Mental Health, Alzheimer’s Society Helpline, Awareness and Campaigns, Awareness Raising, BBC Health News, Community Involvement, Community Participation, Dementia and Age-Friendly Neighbourhoods, Dementia Awareness, Dementia Awareness Campaign, Dementia Friendly Christmas, Dementia Friends, Dementia Friends Campaign, Difficult Conversations in Dementia, Disorientation, Early Diagnosis, Erika Aldridge: Head of Advice at Alzheimer’s Society, Family Involvement, Family Meetings, Festive Season, Fiona Phillips, Identification and Referral, Information and Advice, Mental Wellbeing and Older People, National Dementia Helpline, Professor Alistair Burns, Reducing Delays in Dementia Diagnosis, Repeatedly Forgetting Names of Family Members or Everyday Objects, Social Networks, Spatial Disorientation, Spotting the Signs of Dementia, Supportive Social Networks, Timely Diagnosis | Leave a comment

European Study of Unpaid Dementia Carer Burden (JAMDA)

Posted on October 16, 2017 by Dementia and Elderly Care News

Summary The following article covers a study of people with dementia and their informal carers supported by community services (whether living at home or receiving day care or respite care) across eight European countries. The investigation explored any association(s) between … Continue reading →

Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Personalisation, Quick Insights, UK, Universal Interest | Tagged Ageing Population, Behavioural and Psychological Symptoms of Dementia (BPSD), Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Case Managers (Carers), Challenges in Communication, Challenging Behaviour, Challenging Behaviour in Dementia, Commissioning Carer Support Services, Estonia, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Family Involvement, Family-Based Care, Finland, France, Germany, Hallucinations in People with Dementia, Health and Wellbeing of Adult Carers, Helping Disoriented People, Impact of Caring on Carers, Improving Carer Health and Wellbeing, Improving Lives of Carers, Informal Carers, Journal of the American Medical Directors Association, Journal of the American Medical Directors Association (JAMDA), Netherlands, On the Margins of Admission to Long-Term Care, Personalised Carer Support, RightTimePlaceCare - Seventh Framework European Project, RightTimePlaceCare Consortium, RightTimePlaceCare Study, Seventh Framework European Project: RightTimePlaceCare, Spain, Stress Reduction, Stress Reduction for Unpaid Family Carers, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Sustainable Caring, Sweden, Tailored Caregiver Assistance, United Kingdom, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Government’s Plans For High Quality End Of Life Care (Department of Health / CQC / BBC News)

Posted on July 12, 2016 by Dementia and Elderly Care News

Summary The government is introducing care plans for people at the end of life, with a view to ensuring consistently high quality, compassionate care. Altogether, there are six commitments to end unacceptable variations in end of life care by 2020. … Continue reading →

Posted in Acute Hospitals, Commissioning, Community Care, CQC: Care Quality Commission, Department of Health, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Health Education England (HEE), In the News, Integrated Care, Management of Condition, National, NHS, NHS England, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, UK, Universal Interest | Tagged 24/7 Care, 24/7 Hospice at Home Service, 24/7 Service, 24/7 Specialised Nursing Services for End of Life Care, Accountability and Transparency, Airedale and Southend Pilots, Ambitions for Palliative and End of Life Care Framework, Ben Gummer: Health Minister, Ben Gummer: Parliamentary Under-Secretary of State for Care Quality, Care Coordinators, CCG Improvement and Assessment Framework (CCG IAF), Choice in End of Life Care, Claire Henry MBE, Clatterbridge Cancer Centre, Clatterbridge Cancer Centre NHS Foundation Trust, Clinical Commissioning Group Improvement and Assessment Framework, Commitment to Carers (NHS England), Commitment(s) For End of Life Care (2016), Community Care Pilots, Community Education Provider Networks (CEPNs), Community Resilience, Dying Matters Coalition, Dying Matters Coalition and Campaign, Dying Well Community Charter, Electronic Palliative Care Coordination Systems (EPaCCS), Electronic Patient Records: Recording and Sharing of End of Life Care Choices, End of Life Care For Infants Children and Young People (NICE Consultation), End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Faith at the End of Life, Family and Carers, Family Involvement, First Point of Contact (Main Contact), Generic Professional Capabilities (GPCs), Government Response to Review of Choice in End of Life Care, Guy's and St Thomas’s Hospital’s AMBER Care Bundle, Health and Care Voluntary Sector Strategic Partner Programme, High Quality End Of Life Care (2016), Honest Discussions With Care Professionals, ImproveCare: Management of Clinical Uncertainty, Informed Choices, Informed Choices About End of Life Care, Integrated Care Pioneers, Involvement, Involvement of Family and Carers, Involvement of Family Friends and Carers, James Lind Alliance, Local Education and Training Boards, Macmillan Cancer Support’s Building on the Best Programme, Meaningful Conversations With Dying People, Namaste Care Intervention to Improve Quality of Dying for People with Advanced Dementia in Care Homes, Named Care Coordinators, National Commitment For End of Life Care, National Council for Palliative Care (NCPC), NHS Clinical Services (Department of Health), NHS Electronic Patient Records, NHS England’s Commitment to Carers, NHS Five Year Forward View, NHS Mandate, Palliative and End of Life Care for Children and Young People, Palliative and End of Life Care Priority Setting Partnership, Personalised Care Planning, Point of Care Foundation’s Patient and Family Centred Care Programme, Poor Identification of People’s Capacity For Involvement in Their Care Planning and Management (Barriers to Involvement), Responsible Clinician (Main Contact), Review of Choice in End of Life Care, Serious Illness Care Programme UK, Shared Digital Palliative and End of Life Care Records, Skills for Care and Skills for Health, Specialist Support in End of Life Care (First Point of Contact), Summary Care Record (SCR), Supporting Family and Carers, Sustainability and Transformation Plans (STPs), Transforming End of Life Care Programme, Transforming Nursing for Community and Primary Care, Transparency and Accountability, Urgent and Emergency Care Hubs, Voluntary Sector Strategic Partner Programme | Leave a comment

Visiting Persons With Dementia: On the Role of the Public in Promoting Social Engagement and Meaningful Activity (BBC News / Alzheimer’s Society / NHS England)

Posted on January 1, 2016 by Dementia and Elderly Care News

Summary The Alzheimer’s Society has called on members of the public to visit friends and relatives with dementia regularly, to preserve some level of social engagement and help them to participate in meaningful activities. Full Text Link Reference Dementia loved … Continue reading →

Posted in Acute Hospitals, Alzheimer's Society, BBC News, Charitable Bodies, Community Care, Depression, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, UK, Universal Interest | Tagged Active Engagement, Activities, Activities and Engagement, Activities and Hobbies, Activity in Care Homes, Activity Levels Among People With Dementia in Care Homes, Approaches to Reducing Loneliness and Isolation in Later Life, Barriers to Involvement, Benefits of Activity, Boredom, Cognitive Inactivity, Community Involvement, Depression in Older Adults, Dignity and Wellbeing, Emotional and Social Isolation, Emotional Memory: Patient Benefits From Visits, Engagement, Family Involvement, Family Visits: Stimulating Feelings of Happiness Comfort and Security, Happiness Comfort and Security (Role of Visiting), Help Age India, Hobbies and Interests, India, Involvement and Participation, Isolation, Journal of Geriatric Care and Research (JGCR), Living Well After Diagnosis, Loneliness and Social Isolation, Meaningful Activity, Meaningful Activity and Occupation, Meaningful Activity in the Community, Meaningful Occupation, Medical Director of NHS England: Professor Sir Bruce Keogh, Mental Wellbeing and Older People, NHS Stay Well This Winter Campaign, Non-Involvement, Patient Benefits From Visits, Patient Engagement, Preventing Isolation, Professor Sir Bruce Keogh, Public Engagement, Recreational Activities, Skills and Hobbies, Social Activities, Social Engagement, Social Isolation, Stay Well This Winter Campaign, Survey of Public on Visiting Persons With Dementia Who No Longer Recognise Them, Visiting Friends and Loved Ones With Dementia, Visiting Relatives With Dementia | Leave a comment

Concerning the Handling of Health Inequalities and Premature Mortality in Learning Disabilities and Mental Health Patients: An Isolated Institution or Indications of a Broader Culture? (BBC News / Mazars / NHS England)

Posted on December 9, 2015 by Dementia and Elderly Care News

Summary If experience at Southern Health NHS Foundation Trust is anything to go by, there is plenty of scope for progress. According to a report by Mazars, and commissioned by NHS England, examining deaths at this trust in particular, the … Continue reading →

Cracks in the Dementia Care Pathway (CQC)

Posted on October 13, 2014 by Dementia and Elderly Care News

Summary The Care Quality Commission (CQC) inspected care of people with dementia in 129 care homes and 20 hospitals across England during 2013 and 2014, in their thematic review of the care people living with dementia. There are examples of excellent … Continue reading →

Flipping Healthcare: a Parallel With Flipping Education? (BMJ / IHI / Healthcare)

Posted on October 8, 2014 by Dementia and Elderly Care News

Summary Two authors from the Institute for Healthcare Improvement (IHI) have proposed that it might be beneficial to “flip” medical thinking (i.e. introduce a 180º change and turn-around), in order to develop innovative models of care which can improve health … Continue reading →

Posted in Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, NHS, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Personalisation, Quick Insights, Standards, UK, Universal Interest | Tagged Autonomy and Self-Determination, Barriers to Engagement, Barriers to Involvement, Barriers to Self-Management for People with Dementia, BMJ, British Medical Journal (BMJ), Buurtzorg (Neighbourhood Care), Buurtzorg: Dutch for Neighbourhood Care, Church Health Center (Memphis), Co-Production, Co-Production for Wellbeing, Collaboration, Collaborative Care, Collaborative Care Planning, Collaborative Commissioning, Collaborative Working, Cross-Boundary Care Pathway Redesign, Department of Medicine: Weill Cornell Medical College, Embedding Co-Production, Empowerment, Empowerment and Dementia, Engagement, Family Involvement, Flipping Education, Flipping Healthcare, Healthcare (Journal), IHI: Institute for Healthcare Improvement, Innovation, Innovation and Improvement, Innovative Commissioning, Innovative Models, Institute for Healthcare Improvement (IHI), Integrated and Specialist Teams, Integrated Care Teams, Integrated Teams, Interdisciplinary Teams, Involvement and Participation, Leeds Psychosocial Oncology and Clinical Practice Research Group, Local Empowerment, MDTs: Multidisciplinary Teams, Multiagency Teams, Multidisciplinary Teams in Rehabilitation, Neighbourhood Care, Openness and Collaboration, Partnership and Collaboration, Patient and Public Involvement (PPI), Patient Empowerment, Patient Engagement, Patient Involvement, Patient Reported Outcomes, Patient Reported Outcomes Measures (PROMS), Personal Commissioning (Self-Directed), Power Imbalance, Prevention, Primary Care, Psychosocial Oncology and Clinical Practice Research Group (POCPRG), Psychosocial Oncology and Clinical Practice Research Group: St James' Institute of Oncology, Quality Improvement, Quality Innovation, Quality of Life Research, Rancho Los Amigos National Rehabilitation Center: Los Angeles County, Redesigning Care Pathways, Redesigning Services, Rehabilitation and Self Management, Research Advisory Group (RAG), Self-Care, Self-Determination, Self-Directed Care, Self-Directed Services, Self-Directed Support, Self-Efficacy, Service Redesign, Service User Involvement, St James' Institute of Oncology: University of Leeds, St James’s University Hospital (Leeds), Staff Empowerment, Supported Self-Care, Teamwork, United States, University of Leeds, USA, User Involvement, Weill Cornell Medical College | Leave a comment

Recent Systematic Reviews and Meta-Analyses on Caring and Carers

Posted on August 22, 2014 by Dementia and Elderly Care News

Some of the following articles may be available freely where indicated (depending on local circumstances). Access to the full-text of the other articles will require a suitable Athens password, a journal subscription or payment. The Bibliographic Citations Moens, K. Higginson, … Continue reading →

Posted in Acute Hospitals, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), International, Management of Condition, Models of Dementia Care, Pain, Person-Centred Care, Personalisation, Systematic Reviews, Universal Interest | Tagged Behavioural and Psychological Symptoms of Dementia (BPSD), Black and Minority Ethnic (BME), Black and Minority Ethnic Older People, BPSD: Behavioral and Psychological Symptoms of Dementia, Burden on Caregivers, Care Homes, Carer Burden in Dementia, Carers’ Experiences of the Dementia Journey, Computer-Mediated Interventions for Informal Carers, Decision Making, Elderly Malnutrition, EURO IMPACT: European Intersectorial and Multidisciplinary Palliative Care Research Training, Family Caregivers, Family Carers, Family Involvement, Family-Based Care, Informal Carers, Internet-Based Support for Carers, Malnutrition, Mealtime Difficulties, Mealtime Interventions, Nutrition Support, Pain Management, Palliative Care, Person-Centred Care at Home, Physical Activity, Poor Nutrition, Preventive Home Visits, Resistance-to-Care Behaviours, Sleep Disorders, Sleep Study Group of the Italian Dementia Research Association (SINDem), Supporting People at Home, Systematic Reviews and Meta-Analyses, Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

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