Tag Archives: Lived Experience

Some Recent Systematic Reviews on the Quality of Life of Unpaid Carers for Persons Living With Dementia (PLoS One / BMC Health Services Research / JBI Database / Clinical Interventions in Aging)

Summary A recent review examines ten alternative tools for the assessment and measurement of the quality of life of carers for people with dementia. Full Text Link Reference Dow, J. Robinson, J. Robalino, S. [et al] (2018). How best to … Continue reading

Posted in Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Systematic Reviews, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Lifeworld Perspectives on the Experience of Living Close to a Person With Dementia (Medicine, Health Care and Philosophy / BBC News)

Summary The following article explores the lifeworlds (i.e. the subjective experiences, stresses and adaptive coping strategies) of spouses after their partners have been diagnosed with Alzheimer’s Disease. Full Text Link Reference Bergman, M. Graff, C. Eriksdotter, M. [et al] (2016). … Continue reading

Posted in BBC News, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Quick Insights, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Experiences of the Challenges Faced by People Living With Dementia in the UK (Alzheimer’s Society / BBC News)

Summary The following report covers results from the latest Alzheimer’s Society’s survey of the views and experiences of 966 people with dementia, 500 unpaid carers and 2,356 adults aged 16-75 in the United Kingdom. The stark costs of the “dementia tax” are exposed. … Continue reading

Posted in Alzheimer's Society, BBC News, Charitable Bodies, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, National, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Quality Checkers: Efforts to Reduce Learning Disabilities-Related Barriers to Accessing NHS Services (NHS England)

Summary The NHS Quality Checkers Programme will involve people with learning disabilities helping to inspect their local NHS services and offer advice on how these can be re-designed to better meet their needs (and the needs of other patients). Tools … Continue reading

Posted in Acute Hospitals, Charitable Bodies, Commissioning, Community Care, Enhancing the Healing Environment, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, National, NHS, NHS Employers, NHS England, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Suppose I Lose It: An Update by Joan Bakewell (BBC Radio 4)

Summary Joan Bakewell, today on BBC Radio 4, explored the subject of dementia, how dementia affects people and their families, the importance of early diagnosis, various aspects of person-centered care, the services available post-diagnosis, and the importance of dementia-friendly communities. … Continue reading

Posted in Acute Hospitals, Alzheimer's Society, Antipsychotics, Charitable Bodies, Commissioning, Community Care, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Exploration of Dementia Carers’ Lived Experience (BBC News / ARUK)

Summary Alzheimer’s Research UK commissioned Opinion Leader to investigate all aspects of the impact of caring for a relative with dementia. “Opinion Leader worked with families to produce a rich description of individual experiences, by conducting a series of four … Continue reading

Posted in Alzheimer’s Research UK, BBC News, Charitable Bodies, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Quick Insights, Statistics, UK | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

SCIE’s Video Simulation of the Dementia Experience (SCIE)

Summary A new film is available online from the Social Care Institute for Excellence (SCIE) via SCIE’s Dementia Gateway. It offers an attempt to simulate the subjective experience of how it feels to live with dementia, thereby allowing viewers to … Continue reading

Posted in Acute Hospitals, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Management of Condition, Mental Health, Models of Dementia Care, National, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, SCIE, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment