Tag Archives: Lived Experience

Some Recent Systematic Reviews on the Quality of Life of Unpaid Carers for Persons Living With Dementia (PLoS One / BMC Health Services Research / JBI Database / Clinical Interventions in Aging)

Posted on March 22, 2018 by Dementia and Elderly Care News

Summary A recent review examines ten alternative tools for the assessment and measurement of the quality of life of carers for people with dementia. Full Text Link Reference Dow, J. Robinson, J. Robalino, S. [et al] (2018). How best to … Continue reading →

Lifeworld Perspectives on the Experience of Living Close to a Person With Dementia (Medicine, Health Care and Philosophy / BBC News)

Posted on March 5, 2018 by Dementia and Elderly Care News

Summary The following article explores the lifeworlds (i.e. the subjective experiences, stresses and adaptive coping strategies) of spouses after their partners have been diagnosed with Alzheimer’s Disease. Full Text Link Reference Bergman, M. Graff, C. Eriksdotter, M. [et al] (2016). … Continue reading →

Posted in BBC News, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Quick Insights, Universal Interest | Tagged Ageing and Dementia, Ageing and Society, Ageing Population, Barbara Windsor, BBC Health News, BBC’s Victoria Derbyshire Programme, Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers’ Health and Wellbeing, Case Managers (Carers), Center for Alzheimer Research: Karolinska Institutet, Coping Strategies, Coping With Stress, Dame Barbara Windsor, Demands of Caring, Dementia Awareness, Dementia Recognition, Department of Geriatric Medicine: Karolinska University Hospital, Department of Neurobiology Care Sciences and Society: Karolinska Institutet, Department of Technology and Welfare: Red Cross University College (Stockholm), Disclosure of Diagnosis, Division of Neurogeriatrics: Karolinska Institutet, Division of Social Work: Karolinska University Hospital, Emotional Strategies, Experience of Being Evolved (Lost in Translation?), Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Helping Disoriented People, Hermeneutic Approaches, Hermeneutics, Impact of Caring on Carers, Imprisonment (Subjective), Improving Carer Health and Wellbeing, Improving Lives of Carers, Interpretative Phenomenology, Karolinska Institute, Karolinska Institutet, Karolinska University Hospital, Lifeworld Perspectives, Lifeworlds, Lived Experience, Long Hours and Constant Demands, Making Decisions and Planning For the Future, Management of Challenging Behaviour, Medicine Health Care and Philosophy (Journal), Older Persons Strategies, Phenomenological Research, Psychosocial Stress, Qualitative Health Research, Qualitative Research, Qualitative Studies, Red Cross University College (Stockholm), Scott Mitchell, Sense of Imprisonment, Social Interaction, Social Isolation, Social Networks, Social Relationships, Social Support, Stress, Stress Reduction, Stress Reduction for Unpaid Family Carers, Stressful Life Experiences, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Supportive Social Networks, Supportive Social Relationships, Sustainable Caring, Sweden, Unpaid Caregivers (Carers), Unpaid Carers, Victoria Derbyshire Programme | Leave a comment

Experiences of the Challenges Faced by People Living With Dementia in the UK (Alzheimer’s Society / BBC News)

Posted on May 12, 2017 by Dementia and Elderly Care News

Summary The following report covers results from the latest Alzheimer’s Society’s survey of the views and experiences of 966 people with dementia, 500 unpaid carers and 2,356 adults aged 16-75 in the United Kingdom. The stark costs of the “dementia tax” are exposed. … Continue reading →

Posted in Alzheimer's Society, BBC News, Charitable Bodies, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, National, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged Adult Social Care, Adult Social Care Funding, Adult Social Care in England, Adult Social Care Services, Ageing and Dementia, Ageing and Society, Ageing Policy in the UK, Ageing Population, Alzheimer's Society’s Fix Dementia Care Campaign, Annual Survey of Hours and Earnings, Barker Commission, BBC Health News, BBC’s Victoria Derbyshire Programme, Care Costs: Cap and Means Test, Care Funding, Care Home Costs, Care Home Fees, Care Tax (So-Called Dementia Tax), Carers, Carers’ Health and Wellbeing, Caring and Family Finances, Commission on the Future of Health and Social Care in England (Barker Commission), Cost of Social Care for Older People, Council-Funded Services, Dementia Care: Dementia Tax (Estimated), Dementia Care: NHS Care, Dementia Care: Paid For By Councils, Dementia Care: Paid For By Individual, Dementia Programme Board, Dementia Statements, Dementia Tax, Dementia Tax (Alzheimer's Society), Dimensions of Inequity, Eligibility for Care, Fees for Accommodation, Financial Assessment, Financial Constraints, Financial Context, Financial Issues, Financial Planning, Fix Dementia Care Campaign, Health and Social Care Services, Home and Community Care Services, Home Care, Home Care Services, Home Care Shortfall, Inequity, Ipsos Mori, Ipsos MORI i-Omnibus Survey, Jeremy Hughes CBE: Chief Executive of the Alzheimer’s Society, Lived Experience, Means Test, Modelling the Costs of Dementia, National Dementia Declaration, Office for National Statistics, Paying for Care, Paying for Care and Support, Paying for Long-Term Care, Poverty, Self-Funders, Self-Funding, Social Care Crisis, State Funded Social Care, Sustainability, Turning Up the Volume (Alzheimer’s Society), United Against Dementia (Re-Branding of Alzheimer’s Society), United Against Dementia Campaign, Victoria Derbyshire Programme, Victoria Derbyshire Programme (BBC Two), Voices of People With Dementia | Leave a comment

Quality Checkers: Efforts to Reduce Learning Disabilities-Related Barriers to Accessing NHS Services (NHS England)

Posted on May 13, 2016 by Dementia and Elderly Care News

Summary The NHS Quality Checkers Programme will involve people with learning disabilities helping to inspect their local NHS services and offer advice on how these can be re-designed to better meet their needs (and the needs of other patients). Tools … Continue reading →

Suppose I Lose It: An Update by Joan Bakewell (BBC Radio 4)

Posted on May 10, 2016 by Dementia and Elderly Care News

Summary Joan Bakewell, today on BBC Radio 4, explored the subject of dementia, how dementia affects people and their families, the importance of early diagnosis, various aspects of person-centered care, the services available post-diagnosis, and the importance of dementia-friendly communities. … Continue reading →

Posted in Acute Hospitals, Alzheimer's Society, Antipsychotics, Charitable Bodies, Commissioning, Community Care, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Advance Care Planning, Advance Planning, Advance Statements and Decisions, Advice and Information, Age-Friendly Cities, Age-Friendly Communities, Age-Friendly Environments, Age-Related Memory Loss, Alternatives to Medication for Agitation, Awareness and Understanding, BBC Radio 4, BBC Radio Four, Carer's Experience of Dementia, Challenge on Dementia, Cognitive Exercises, Cognitive Stimulation, Cognitive Stimulation Therapy (CST), Communication and Information, Coping with Memory Loss, Crawley Dementia Action Alliance, Crawley Dementia Alliance, Crawley Forward Thinking, Creating Dementia Friendly Environments, Creating Dementia Friendly Hospitals, Dementia and Age-Friendly Neighbourhoods, Dementia Awareness, Dementia Care in Acute District General Hospitals, Dementia Care in Acute General Hospitals, Dementia Care in General Hospitals, Dementia Diagnosis, Dementia Diagnosis and Care in England, Dementia Experiences, Dementia Friends, Dementia Friends Programme, Dementia Sufferers, Dementia Sufferers (Alzheimer's Society), Dementia-Friendly Cities, Dementia-Friendly Communities, Dementia-Friendly Environments, Dementia-Friendly Hospitals, Dementia-Friendly Information, Dementia-Friendly Organisations, Diagnosis, Diagnosis and Assessment, Diagnosis and Referral, Diagnosis and Support, Early Diagnosis, Family and Caregiver Experiences, Family and Carers, Family Carers, Forgetfulness, G8 Dementia Summit, Improving Patient Experience, Information About Services, Information and Advice Services, Information and Support for Patients and Carers, Joan Bakewell (BBC Radio 4, Lasting Power of Attorney (LPA), Lived Experience, Living Well After Diagnosis, Living Well with Dementia, Memory Aids, Memory and Support Services, Memory Assessment Services, Memory Clinics, Memory Lapses, Memory Loss, Memory Problems, Mild Memory Problems, Moderate Exercise, Occupational Therapy, Older Carers, Physical Care in Dementia, Physical Exercise, Post-Diagnosis Support, Post-Diagnostic Dementia Support, Post-Diagnostic Support, Power of Attorney, Prime Minister's Challenge on Dementia, Professor Rowan Harwood, Professor Sube Banerjee, Prunella Scales, Recovery Rehabilitation and Reablement (RRR), Reducing Stigma, Rehabilitation in Dementia, Staying Healthy for Longer, Staying Independent, Stigma of Dementia, Stigma-Free Environments, Sube Banerjee: Centre for Dementia Studies at Brighton and Sussex Medical School, Suppose I Lose It: Joan Bakewell, Timely Diagnosis, Timothy West | Leave a comment

Exploration of Dementia Carers’ Lived Experience (BBC News / ARUK)

Posted on December 19, 2015 by Dementia and Elderly Care News

Summary Alzheimer’s Research UK commissioned Opinion Leader to investigate all aspects of the impact of caring for a relative with dementia. “Opinion Leader worked with families to produce a rich description of individual experiences, by conducting a series of four … Continue reading →

Posted in Alzheimer’s Research UK, BBC News, Charitable Bodies, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Quick Insights, Statistics, UK | Tagged Ageing and Dementia, Ageing and Society, Ageing Population, Alzheimer's Research UK, Alzheimer’s Research UK (ARUK), ARUK: Alzheimer’s Research UK, Awareness, Awareness and Understanding, Balancing Work With Caring, BBC Health News, Behavioural and Psychological Symptoms of Dementia (BPSD), Behavioural Symptoms, BPSD: Behavioral and Psychological Symptoms of Dementia, Burden of Alzheimer’s Disease, Burden of Dementia (Statistics), Burden on Caregivers, Caregiver Assessments, Caregiver Burden, Caregiver Distress, Caregiver Support, Caregivers, Caregiving (Carers), Carer Awareness, Carer Experience, Carer Fatigue, Carer Isolation, Carer Satisfaction, Carer Support, Carer Support Services, Carer's Experience of Dementia, Carer's Needs, Carer’s Needs Assessment, Carer’s Perspective, Carers, Carers and Families, Carers Direct, Carers for People with Dementia, Carers’ Health and Wellbeing, Caring for Carers, Caring: Hidden Costs, Caring: Impact on Personal Goals, Caring: Psychological Health of Carers, Changing Behaviours, Dementia Awareness, Dementia in the Family (ARUK Report), Differential Impact of Dementia (Gender-Related), Disease Burden, Disproportionate Burden of Dementia on Women, Disproportionate Impact of Dementia on Women, Ethnographic Analysis, Ethnographic Approaches, Ethnographic Research, Experiences, Family and Caregiver Experiences, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Impact of Caring on Ability to Work, Impact of Caring on Carers, Informal Caregiving, Informal Carers, Informal Workforce, Information and Support for Carers, Lived Experience, Mental and Physical Health, Opinion Leader, Personal Experience of Dementia, Positive Care Experiences, Prevalence of Dementia, Prevalence of Unpaid Care, Raising the Profile of Carers, Social Isolation, Support for Carers, Unexpected Positives in Caring, Unpaid Caregivers (Carers), Unpaid Carers, Valuing Carers, Views of Informal Carers, Working and Caring, Working Carers | Leave a comment

SCIE’s Video Simulation of the Dementia Experience (SCIE)

Posted on June 8, 2015 by Dementia and Elderly Care News

Summary A new film is available online from the Social Care Institute for Excellence (SCIE) via SCIE’s Dementia Gateway. It offers an attempt to simulate the subjective experience of how it feels to live with dementia, thereby allowing viewers to … Continue reading →

Posted in Acute Hospitals, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Management of Condition, Mental Health, Models of Dementia Care, National, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, SCIE, UK, Universal Interest | Tagged Care Managers, Care Staff, Carers, Community Nurses, Compassionate Care, Culture of Compassionate Care, Delivering Dignity, Dementia Experiences, Dementia Friends, Dementia Gateway, Dementia-Friendly Care Homes, Dementia-Friendly Cities, Dementia-Friendly Communities, Dementia-Friendly Employers, Dementia-Friendly Hospitals, Dementia-Friendly Neighbourhoods, Dementia-Friendly Organisations, Dementia-Friendly Workplaces, Dignity, Dignity and Respect, Dignity in Dementia, Empathic Curiosity, Empathy, Empathy and Understanding, Empathy Training, Employers, Experiences, Experiences of the Transition to Dementia, Families, Friends, Lived Experience, Managers, Neighbours, Nursing Staff, Occupational Therapists, Patient Experiences, People Who Use Services, People With Dementia, Registered Managers, SCIE Dementia Gateway, Service Providers, Social Care Institute for Excellence (SCIE), Social Care Institute of Excellence: Dementia Gateway, Social Workers, Societal Empathy, Staff Training, Trainers, Training and Education, Training for Carers, Video Simulation of the Dementia Experience (SCIE), Workforce Training | Leave a comment

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