Tag Archives: Lived Experience

Blueprint for Complex Care: Care for Individuals with Complex Health and Social Needs (National Center for Complex Health and Social Needs / IHI / Duke University / NIHR)

Posted on December 29, 2018 by Dementia and Elderly Care News

Summary The latest Institute for Healthcare Improvement (IHI) report covers multi-disciplinary and multi-agency approaches to better coordination in the provision of care for individuals with complex health and social needs, from a USA perspective. “The Blueprint for Complex Care is a joint … Continue reading →

Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Health Foundation, Integrated Care, International, Local Interest, Management of Condition, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Royal Wolverhampton NHS Trust, Standards, Universal Interest, Wolverhampton | Tagged Accountable Care Organisations (ACOs), Accountable Care Organisations (in United States and England), Accountable Health Communities, Adult Social Care for People with Complex Needs, Advancing Integrated Care in England: Practical Path for Care Transformation, Ageing Population, Barriers to Integrated Care, Barriers to Integration, Barriers to Integration: Different Funding Models, Barriers to Integration: Different Workforce Cultures, Barriers to Integration: Difficulties in Effective Information Sharing, Barriers to Integration: Organisational Integration, Blueprint for Complex Care, Bridgespan Group: Strong Field Framework, Camden Coalition of Healthcare Providers (CCHP), Care of Frail Older People With Complex Needs, Center for Health Care Strategies, Center for Medicare and Medicaid Innovation (CMMI), Commonwealth Fund, Community Outreach, Complex Care, Complex Care and Multimorbidity, Complex Care Champions, Complex Care Ecosystem, Complex Chronic Conditions, Complex Comorbidities, Complex Conditions, Complex Needs, Complex Patients at Risk of Hospital Admission, Conceptual Model: Starter Taxonomy for High-Need Patients, Cross-Sector Partnerships, Data Sharing, Data Sharing for Better Health, Dr Robin Miller: Deputy Director of Health Services Management Centre at University of Birmingham, Duke University, Duke-Margolis Center for Health Policy, Effective Care for High Need Patients: National Academy of Medicine (NAM) Report, Global Health Innovation Center: Duke University, Health Care Innovation Awards, Health Services Management Centre (HSMC): University of Birmingham, Health Services Management Centre: University of Birmingham, HSMC: University of Birmingham, IHI: Institute for Healthcare Improvement, Innovation Accelerator Program, Institute for Healthcare Improvement, Institute for Healthcare Improvement (IHI), Integrated Care Partnerships and Accountable Care Organisations, Integrated Multi-Agency Care, Lived Experience, Medication Management, Multi-Agency Collaboration, Multi-Agency Integration, Multi-Agency Working, Multi-Disciplinary and Multi-Agency Working, National Center for Complex Health and Social Needs, National Institute for Health Research (NIHR), National Institute for Health Research Health Services and Delivery Research Programme, National Institute for Health Research Signal, NIHR Signal, Organisational Competencies to Accelerate Care Improvements, Outreach Services, Quality Improvement, Quality Measures, Robert and Lisa Margolis Family Foundation, Robert Wood Johnson Foundation, Robert Wood Johnson Foundation (RWJF), SCAN Foundation, School of Health and Related Research (ScHARR): University of Sheffield, Strong Field Framework, United States, University of Sheffield, USA, Value-Based Payments (VBP), Variability in Implementation (of Integrated Care), Vertical Integration, Vertical Integration (of Primary and Secondary Care) | Leave a comment

Overcoming Barriers to Timely Adoption of Home Adaptations (Centre for Ageing Better / Northumbria University / University of the West of England)

Posted on July 12, 2018 by Dementia and Elderly Care News

Summary Research into the lived experience of users home adaptations (and the professionals who work with these users) suggests that people sometimes delay adaptations to their homes due to a perceived “stigma” associated with handrails, ramps etc. Full Text Link … Continue reading →

Posted in Assistive Technology, Charitable Bodies, Commissioning, Community Care, Falls Prevention, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Integrated Care, Management of Condition, National, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Standards, Systematic Reviews, Telecare, Telehealth, UK, Universal Interest | Tagged Ageing and Re-Entry Into the Community, Ageing Population, Appearance and Perceptions of Age and Disability, Barriers to Timely Adoption of Home Adaptations, Big Lottery Fund’s Ageing Better Programme, Big Lottery Funding, Bristol Centre for Public Health and Wellbeing (UWE), Building Research Establishment (BRE), CAPABLE Trial (USA): Reable-Repair-Adapt, Centre for Ageing Better, Centre for Ageing Better (CfAB), Control and Independence, Coping Strategies, Disabled Facilities Grant (DFG), Elders Council of Newcastle, Embedding Patient Experience in Service Delivery, Embedding Patient Experience in Service Design, End-User Experience, Experience Based Co-Design, Experience-Based Co-Design (EBCD), Experienced Based Design (EBD), Experiences, Experts by Experience, Facilitating Independence Grant (Proposal), HAIL Study (Australia), HIPI Trial (New Zealand), Home Adaptations, Independence and Wellbeing, Independence at Home, Independence Choice and Risk, Independence in Older Adults, Industrial Strategy Challenge Fund, Lived Experience, Lived Experiences of Home Adaptations, Loss of Independence, Maintaining Independence, Maintaining Independence: Technology Supporting People Living With Dementia and Their Carers (SCIE), Major Adaptations Trial (Sweden), Newcastle City Council, Newcastle University, North Tyneside Council, Northumbria University, Participant Lived Experiences, Practitioner Experiences, Realist Approaches, Realist Reviews, Realist Syntheses, Regaining Independence, Role of Home Adaptations in Improving Later Life, Services Maximising Independence, Smart Home Adaptations, Staying Independent, Staying Independent: Technology Supporting People Living With Dementia and Their Carers (SCIE), Stigma, Stigma of Ugly Home Adaptations, Supporting Health Wellbeing and Independence, Supporting Wellbeing Resilience and Independence, Timely Adoption of Home Adaptations, Triggers and Tipping Points (in Housing Adaptation), University of the West of England | Leave a comment

Some Recent Systematic Reviews on the Quality of Life of Unpaid Carers for Persons Living With Dementia (PLoS One / BMC Health Services Research / JBI Database / Clinical Interventions in Aging)

Posted on March 22, 2018 by Dementia and Elderly Care News

Summary A recent review examines ten alternative tools for the assessment and measurement of the quality of life of carers for people with dementia. Full Text Link Reference Dow, J. Robinson, J. Robalino, S. [et al] (2018). How best to … Continue reading →

Posted in Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, International, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Systematic Reviews, UK, Universal Interest | Tagged Acceptance and Commitment Therapy (ACT) for Dementia Family Caregivers, Ageing Population, Australia, Australian Dementia Key Worker Models, Barts and the London School of Medicine and Dentistry: Queen Mary University of London, BMC Health Services Research, BMC Health Services Research / JBI Database of Systematic Reviews and Implementation Reports, Burden of Dementia, Burden on Caregivers, Canada, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Quality of Life Instrument (CQLI), Caregiver Styles and Caregiver Burden, Caregiver Well-Being Scale, Caregiver Well-Being Scale: Short-Form Rapid Assessment, Caregiver-Targeted Quality-of-Life Measure (CGQOL), Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Carer Well-Being and Support Questionnaire (CWS), Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers of Older People in Europe (COPE) Index, Carers’ Health and Wellbeing, Case Management, Case Management for Dementia, Case Managers (Carers), Central Clinical School: Monash University, China, Clinical Interventions in Aging (Journal), COPE Index, Coping Strategies, Coping With Stress, Dalhousie University (Nova Scotia), Demands of Caring, Dementia Support Workers, Department of Psychiatry: The Chinese University of Hong Kong, Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Faculty of Medicine: The Chinese University of Hong Kong, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Helping Disoriented People, Hong Kong SAR, Impact of Alzheimer's Disease on Caregiver Questionnaire (IADCQ), Impact of Caring on Carers, Improving Carer Health and Wellbeing, Improving Lives of Carers, Institute of Health and Society: Newcastle University, Kellogg Library: Dalhousie University, Key Worker Framework for People With Dementia Their Family and Caring Unit Living in Community, Key Worker Support Models, Lifeworld Perspectives, Lifeworlds, Lived Experience, Long Hours and Constant Demands, Medical Outcomes Study Short-Form Health Survey (SF-36), Medicine Nursing and Health Sciences: Monash University, Meditation-Based Interventions for Family Dementia Caregivers, Mindfulness Based Stress Reduction (MBSR), Mindfulness-Based Interventions, Monash University: Melbourne, Newcastle University, Older Persons Strategies, PLoS One, Proactive Case Management, Psychosocial Stress, Qualitative Health Research, Qualitative Research, Qualitative Studies, Quality of Life in Alzheimer's disease (QOL-AD) Questionnaire: Quality of Life of the Caregiver Version (CQOL), Quality of Life of Unpaid Carers for Persons Living With Dementia, Queen Mary University of London, RDNS Institute, Royal District Nursing Service Ltd (Australia), School of Medicine and Public Health: University of Newcastle (Callaghan Australia), School of Nursing: Dalhousie University, Social Isolation, Social Networks, Social Relationships, Social Support, Stress, Stress Reduction, Stress Reduction for Unpaid Family Carers, Stressful Life Experiences, Support for Carers, Support Workers, Supporting Persons With Dementia, Supportive Social Networks, Supportive Social Relationships, Sustainable Caring, Systematic Reviews and Meta-Analyses, Tai Po Hospital (Hong Kong), The Chinese University of Hong Kong, The Jockey Club School of Public Health and Primary Care: The Chinese University of Hong Kong, United Kingdom, University of Newcastle (Callaghan Australia), Unpaid Caregivers (Carers), Unpaid Carers | Leave a comment

Lifeworld Perspectives on the Experience of Living Close to a Person With Dementia (Medicine, Health Care and Philosophy / BBC News)

Posted on March 5, 2018 by Dementia and Elderly Care News

Summary The following article explores the lifeworlds (i.e. the subjective experiences, stresses and adaptive coping strategies) of spouses after their partners have been diagnosed with Alzheimer’s Disease. Full Text Link Reference Bergman, M. Graff, C. Eriksdotter, M. [et al] (2016). … Continue reading →

Posted in BBC News, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, NHS England, Person-Centred Care, Quick Insights, Universal Interest | Tagged Ageing and Dementia, Ageing and Society, Ageing Population, Alzheimer’s Society Ambassadors, Asian and Minority Ethnic Communities, Barbara Windsor, BBC Health News, BBC Radio 1 Newsbeat, BBC’s Victoria Derbyshire Programme, Burden of Alzheimer’s Disease, Burden of Dementia, Burden on Caregivers, Care for People with Dementia in the Community, Care in an Ageing Society, Caregiver Burden, Caregiver Distress, Caregiver Styles and Caregiver Burden, Caregiving (Carers), Carer Awareness, Carer Burden, Carer Burden in Dementia, Carer Experience, Carer Fatigue, Carer Friendly Communities, Carer Isolation, Carer Quality of Life: Demands of Caring, Carer Stress, Carer Support, Carer Support Services, Carer's Needs, Carer’s Perspective, Carers, Carers and Families, Carers for People with Dementia, Carers’ Health and Wellbeing, Case Managers (Carers), Center for Alzheimer Research: Karolinska Institutet, Check Your Mate: NHS England’s Valentine’s Day Advice, Chris Chapman: Councillor in Tower Hamlets, Coping Strategies, Coping With Stress, Dame Barbara Windsor, Demands of Caring, Dementia Ambassadors, Dementia Awareness, Dementia Recognition, Department of Geriatric Medicine: Karolinska University Hospital, Department of Neurobiology Care Sciences and Society: Karolinska Institutet, Department of Technology and Welfare: Red Cross University College (Stockholm), Disclosure of Diagnosis, Division of Neurogeriatrics: Karolinska Institutet, Division of Social Work: Karolinska University Hospital, Emotional Strategies, Experience of Being Evolved (Lost in Translation?), Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Families, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Helping Disoriented People, Hermeneutic Approaches, Hermeneutics, Impact of Caring on Carers, Imprisonment (Subjective), Improving Carer Health and Wellbeing, Improving Lives of Carers, Income and the Means-Test, Interpretative Phenomenology, Karolinska Institute, Karolinska Institutet, Karolinska University Hospital, Lifeworld Perspectives, Lifeworlds, Lived Experience, Long Hours and Constant Demands, Making Decisions and Planning For the Future, Management of Challenging Behaviour, Means Test, Means Tested Social Care, Medicine Health Care and Philosophy (Journal), Older Persons Strategies, Phenomenological Research, Psychosocial Stress, Qualitative Health Research, Qualitative Research, Qualitative Studies, Red Cross University College (Stockholm), Scott Mitchell, Sense of Imprisonment, Social Interaction, Social Isolation, Social Networks, Social Relationships, Social Support, South Asian Communities, Stress, Stress Reduction, Stress Reduction for Unpaid Family Carers, Stressful Life Experiences, Strugglers (Carers), Support for Carers, Supporting Persons With Dementia, Supportive Social Networks, Supportive Social Relationships, Sustainable Caring, Sweden, Unpaid Caregivers (Carers), Unpaid Carers, Victoria Derbyshire Programme | Leave a comment

Experiences of the Challenges Faced by People Living With Dementia in the UK (Alzheimer’s Society / BBC News)

Posted on May 12, 2017 by Dementia and Elderly Care News

Summary The following report covers results from the latest Alzheimer’s Society’s survey of the views and experiences of 966 people with dementia, 500 unpaid carers and 2,356 adults aged 16-75 in the United Kingdom. The stark costs of the “dementia tax” are exposed. … Continue reading →

Posted in Alzheimer's Society, BBC News, Charitable Bodies, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, National, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged Adult Social Care, Adult Social Care Funding, Adult Social Care in England, Adult Social Care Services, Ageing and Dementia, Ageing and Society, Ageing Policy in the UK, Ageing Population, Alzheimer's Society’s Fix Dementia Care Campaign, Annual Survey of Hours and Earnings, Barker Commission, BBC Health News, BBC’s Victoria Derbyshire Programme, Care Costs: Cap and Means Test, Care Funding, Care Home Costs, Care Home Fees, Care Tax (So-Called Dementia Tax), Carers, Carers’ Health and Wellbeing, Caring and Family Finances, Commission on the Future of Health and Social Care in England (Barker Commission), Cost of Social Care for Older People, Council-Funded Services, Dementia Care: Dementia Tax (Estimated), Dementia Care: NHS Care, Dementia Care: Paid For By Councils, Dementia Care: Paid For By Individual, Dementia Programme Board, Dementia Statements, Dementia Tax, Dementia Tax (Alzheimer's Society), Dimensions of Inequity, Eligibility for Care, Fees for Accommodation, Financial Assessment, Financial Constraints, Financial Context, Financial Issues, Financial Planning, Fix Dementia Care Campaign, Health and Social Care Services, Home and Community Care Services, Home Care, Home Care Services, Home Care Shortfall, Inequity, Ipsos Mori, Ipsos MORI i-Omnibus Survey, Jeremy Hughes CBE: Chief Executive of the Alzheimer’s Society, Lived Experience, Means Test, Modelling the Costs of Dementia, National Dementia Declaration, Office for National Statistics, Paying for Care, Paying for Care and Support, Paying for Long-Term Care, Poverty, Self-Funders, Self-Funding, Social Care Crisis, State Funded Social Care, Sustainability, Turning Up the Volume (Alzheimer’s Society), United Against Dementia (Re-Branding of Alzheimer’s Society), United Against Dementia Campaign, Victoria Derbyshire Programme, Victoria Derbyshire Programme (BBC Two), Voices of People With Dementia | Leave a comment

Quality Checkers: Efforts to Reduce Learning Disabilities-Related Barriers to Accessing NHS Services (NHS England)

Posted on May 13, 2016 by Dementia and Elderly Care News

Summary The NHS Quality Checkers Programme will involve people with learning disabilities helping to inspect their local NHS services and offer advice on how these can be re-designed to better meet their needs (and the needs of other patients). Tools … Continue reading →

Suppose I Lose It: An Update by Joan Bakewell (BBC Radio 4)

Posted on May 10, 2016 by Dementia and Elderly Care News

Summary Joan Bakewell, today on BBC Radio 4, explored the subject of dementia, how dementia affects people and their families, the importance of early diagnosis, various aspects of person-centered care, the services available post-diagnosis, and the importance of dementia-friendly communities. … Continue reading →

Posted in Acute Hospitals, Alzheimer's Society, Antipsychotics, Charitable Bodies, Commissioning, Community Care, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Advance Care Planning, Advance Planning, Advance Statements and Decisions, Advice and Information, Age-Friendly Cities, Age-Friendly Communities, Age-Friendly Environments, Age-Related Memory Loss, Alternatives to Medication for Agitation, Awareness and Understanding, BBC Radio 4, BBC Radio Four, Carer's Experience of Dementia, Challenge on Dementia, Cognitive Exercises, Cognitive Stimulation, Cognitive Stimulation Therapy (CST), Communication and Information, Coping with Memory Loss, Crawley Dementia Action Alliance, Crawley Dementia Alliance, Crawley Forward Thinking, Creating Dementia Friendly Environments, Creating Dementia Friendly Hospitals, Dementia and Age-Friendly Neighbourhoods, Dementia Awareness, Dementia Care in Acute District General Hospitals, Dementia Care in Acute General Hospitals, Dementia Care in General Hospitals, Dementia Diagnosis, Dementia Diagnosis and Care in England, Dementia Experiences, Dementia Friends, Dementia Friends Programme, Dementia Sufferers, Dementia Sufferers (Alzheimer's Society), Dementia-Friendly Cities, Dementia-Friendly Communities, Dementia-Friendly Environments, Dementia-Friendly Hospitals, Dementia-Friendly Information, Dementia-Friendly Organisations, Diagnosis, Diagnosis and Assessment, Diagnosis and Referral, Diagnosis and Support, Early Diagnosis, Family and Caregiver Experiences, Family and Carers, Family Carers, Forgetfulness, G8 Dementia Summit, Improving Patient Experience, Information About Services, Information and Advice Services, Information and Support for Patients and Carers, Joan Bakewell (BBC Radio 4, Lasting Power of Attorney (LPA), Lived Experience, Living Well After Diagnosis, Living Well with Dementia, Memory Aids, Memory and Support Services, Memory Assessment Services, Memory Clinics, Memory Lapses, Memory Loss, Memory Problems, Mild Memory Problems, Moderate Exercise, Occupational Therapy, Older Carers, Physical Care in Dementia, Physical Exercise, Post-Diagnosis Support, Post-Diagnostic Dementia Support, Post-Diagnostic Support, Power of Attorney, Prime Minister's Challenge on Dementia, Professor Rowan Harwood, Professor Sube Banerjee, Prunella Scales, Recovery Rehabilitation and Reablement (RRR), Reducing Stigma, Rehabilitation in Dementia, Staying Healthy for Longer, Staying Independent, Stigma of Dementia, Stigma-Free Environments, Sube Banerjee: Centre for Dementia Studies at Brighton and Sussex Medical School, Suppose I Lose It: Joan Bakewell, Timely Diagnosis, Timothy West | Leave a comment

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