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Tag Archives: Motor Neurone Disease
Pan-Neurological Statistics for England (Neurological Alliance)
Summary The Neurological Alliance’s latest report provides a round-up of estimates for the prevalence of a range of neurological disorders. There are about 14.7 million neurological cases (one in six people) in the UK, and yet: “ …the NHS Long … Continue reading →
Posted in Acute Hospitals, Charitable Bodies, Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), Management of Condition, National, NHS, NHS England, Person-Centred Care, Public Health England, Quick Insights, Statistics, UK, Universal Interest
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Tagged Acoustic Neuroma, Action Duchenne, Action for M.E., Alzheimer’s Research UK, Ataxia, Ataxia UK, Autism, Autistica, Avoidable Premature Mortality, Awareness, Awareness and Campaigns, Awareness of Neurological Conditions, Awareness Raising, Batten Disease, Batten Disease Family Association, Brain Awareness Week, Brain Awareness Week (2019), Brain Tumour Charity, British Acoustic Neuroma Association, Carpal Tunnel Syndrome, Cavernoma, Cavernoma Alliance UK, Cerebral Palsy, Charcot-Marie-Tooth Disease, Charcot-Marie-Tooth UK, Chronic Fatigue Syndrome (ME), Chronic Inflammatory Demyelinating Polyneuropathy, Cluster Headache, CNS and Other Intracranial Tumours, Cost(s) of Neurological Conditions, Daisy Garland, Dementia, Different Strokes, Dystonia, Dystonia Society, Encephalitis, Encephalitis Society, Epidemiology of Major Neurological Disorders, Epidemiology of Major Neurological Disorders in United Kingdom, Epilepsy, Epilepsy Action, Epilepsy Research UK, Essential Tremor, Fibromyalgia, FND Action, FND Hope, Functional Neurological Disorder, Geographical Variations, Getting It Right First Time (GIRFT), Guillain-Barré Syndrome, Guillain-Barre and Associated Inflammatory Neuropathies, Health Inequalities, Health Inequalities in England, Hemihelp, Hemiplegia, Huntington’s Disease, Huntington’s Disease Association, Hydrocephalus, Idiopathic Intracranial Hypertension, IIH UK, Improving Healthcare to Reduce Premature Mortality in People with Neurological Disorders, Katharine McIntosh: Senior Policy Advisor at Neurological Alliance, Living With Neurological Conditions, Local Health Services: Variations, Long Term Neurological Conditions, Meningitis, Migraine, Migraine Trust, Motor Neurone Disease, Motor Neurone Disease Association, MS Society, Multiple Sclerosis, Multiple System Atrophy, Multiple System Atrophy Trust, Muscular Dystrophy, Muscular Dystrophy UK, Myasthenias, Myaware, Myelopathy, Myelopathy.org, Narcolepsy, Narcolepsy UK, National Neuro Advisory Group, National Tremor Foundation, Nerve Tumours UK, Neurofibromatosis, Neurological Alliance, Neurological Conditions, Neurological Disorders, Neurological Disorders and Health Inequalities, Neurology Intelligence Collaborative, Neurology Intelligence Network (NIN), Neuromyelitis Optica, NHS Outcomes Framework (NHSOF), NHS Outcomes Framework Domains, Organisation for the Understanding of Cluster Headache (OUCH UK), Other Neurological Conditions, Pan-Neurological Priorities for Commissioning, Parkinson's Disease, Parkinson’s UK, PHE Neurology Intelligence Network (NIN), Polio Survivors Network, Post-Polio Syndrome, Premature Mortality, Prevalence and / or Incidence of Acoustic Neuroma, Prevalence and / or Incidence of Ataxia, Prevalence and / or Incidence of Autism, Prevalence and / or Incidence of Batten Disease, Prevalence and / or Incidence of Carpal Tunnel Syndrome, Prevalence and / or Incidence of Cavernoma, Prevalence and / or Incidence of Cerebral Palsy, Prevalence and / or Incidence of Charcot-Marie-Tooth Disease, Prevalence and / or Incidence of Chronic Fatigue Syndrome (ME), Prevalence and / or Incidence of Chronic Inflammatory Demyelinating Polyneuropathy, Prevalence and / or Incidence of Cluster Headache, Prevalence and / or Incidence of CNS and Other Intracranial Tumours, Prevalence and / or Incidence of Dementia, Prevalence and / or Incidence of Dystonia, Prevalence and / or Incidence of Encephalitis, Prevalence and / or Incidence of Epilepsy, Prevalence and / or Incidence of Essential Tremor, Prevalence and / or Incidence of Fibromyalgia, Prevalence and / or Incidence of Functional Neurological Disorder, Prevalence and / or Incidence of Guillain-Barre Syndrome, Prevalence and / or Incidence of Hemiplegia, Prevalence and / or Incidence of Huntington’s Disease, Prevalence and / or Incidence of Hydrocephalus, Prevalence and / or Incidence of Idiopathic Intracranial Hypertension, Prevalence and / or Incidence of Meningitis, Prevalence and / or Incidence of Migraine, Prevalence and / or Incidence of Motor Neurone Disease, Prevalence and / or Incidence of Multiple Sclerosis, Prevalence and / or Incidence of Multiple System Atrophy, Prevalence and / or Incidence of Muscular Dystrophy, Prevalence and / or Incidence of Myasthenias, Prevalence and / or Incidence of Myelopathy, Prevalence and / or Incidence of Narcolepsy, Prevalence and / or Incidence of Neurofibromatosis, Prevalence and / or Incidence of Neuromyelitis Optica, Prevalence and / or Incidence of Parkinsons Disease, Prevalence and / or Incidence of Post-Polio Syndrome, Prevalence and / or Incidence of Progressive Supranuclear Palsy, Prevalence and / or Incidence of Restless Legs Syndrome, Prevalence and / or Incidence of Rett Syndrome, Prevalence and / or Incidence of Spina Bifida, Prevalence and / or Incidence of Spinal Cord Injury, Prevalence and / or Incidence of Spinal Muscular Atrophy, Prevalence and / or Incidence of Stroke - Ischaemic and Haemorrhagic, Prevalence and / or Incidence of Tourette Syndrome, Prevalence and / or Incidence of Transverse Myelitis, Prevalence and / or Incidence of Traumatic Brain Injury, Prevalence and / or Incidence of Trigeminal Neuralgia, Prevalence and / or Incidence of Tuberous Sclerosis Complex, Prevalence and Incidence of Neurological Conditions, Prevalence of Neurological Conditions, Prevalence of Neurological Disorders, Progressive Supranuclear Palsy, PSP Association, Public Health England (PHE) Neurology Intelligence Network (NIN), Reducing Avoidable Premature Mortality, Reducing Health Inequalities, Reducing Premature Mortality, Reducing Variation, Restless Legs Syndrome, Restless Legs Syndrome UK, Rett Syndrome, Rett UK, Sarah Vibert: Chief Executive of Neurological Alliance, Scope, Shine Charity, SMA Support UK, Spina Bifida, Spinal Cord Injury, Spinal Injuries Association, Spinal Muscular Atrophy, Spotlight Young Onset Parkinsons, Stroke - Ischaemic and Haemorrhagic, Stroke Association, SUDEP Action, Tourette Syndrome, Tourettes Action, Transverse Myelitis, Tranverse Myelitis Society, Traumatic Brain Injury, Trigeminal Neuralgia, Trigeminal Neuralgia Association UK, Tuberous Sclerosis Association, Tuberous Sclerosis Complex, UKABIF, Unacceptable Variations, Variations in Service, Variety of Neurological Conditions, Versus Arthritis
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Earlier Recognition of Motor Neurone Disease Achievable? (BBC News / NHS England / NHS Right Care)
Summary A MND Association report, based on a survey of 900 patients in England, Wales and Northern Ireland, indicates that approximately one fifth of people newly diagnosed with motor neurone disease (MND) experienced a delay of more than a year … Continue reading →
Posted in BBC News, Charitable Bodies, Commissioning, Community Care, Diagnosis, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, Integrated Care, Local Interest, National, NHS, NHS England, Person-Centred Care, Quick Insights, Standards, Statistics, UK, Universal Interest
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Tagged Arden Herefordshire and Worcestershire (NHS Right Care Neurological CVD and Respiratory Focus Packs), Assessment and Referral, Bath Gloucestershire Swindon and Wiltshire (NHS Right Care Neurological CVD and Respiratory Focus Packs), Bath Gloucestershire Swindon and Wiltshire (NHS Right Care Where to Look CCG Packs), BBC Health News, Birmingham and the Black Country (NHS Right Care Neurological CVD and Respiratory Focus Packs), Birmingham and the Black Country (NHS Right Care Where to Look CCG Packs), Bristol North Somerset Somerset and South Gloucestershire (NHS Right Care Neurological CVD and Respiratory Focus Packs), Bristol North Somerset Somerset and South Gloucestershire (NHS Right Care Where to Look CCG Packs), Cardiovascular Disease (CVD), Cheshire Warrington and Wirral (NHS Right Care Neurological CVD and Respiratory Focus Packs), Cheshire Warrington and Wirral (NHS Right Care Where to Look CCG Packs), Clinical Commissioning Groups (CCGs), Commissioning for Value, Commissioning for Value Explorer 2016, Commissioning for Value Maternity and Early Years Focus Packs, Commissioning for Value Packs, Commissioning for Value Tool 2016, Cumbria Northumberland Tyne and Wear (NHS Right Care Neurological CVD and Respiratory Focus Packs), Cumbria Northumberland Tyne and Wear (NHS Right Care Where to Look CCG Packs), CVD: Cardiovascular Disease, Derbyshire and Nottinghamshire (NHS Right Care Neurological CVD and Respiratory Focus Packs), Derbyshire and Nottinghamshire (NHS Right Care Where to Look CCG Packs), Devon Cornwall and Isles of Scilly (NHS Right Care Neurological CVD and Respiratory Focus Packs), Devon Cornwall and Isles of Scilly (NHS Right Care Where to Look CCG Packs), Durham Darlington and Tees (NHS Right Care Neurological CVD and Respiratory Focus Packs), Durham Darlington and Tees (NHS Right Care Where to Look CCG Packs), Early Diagnosis of Motor Neurone Disease, Early Recognition of Motor Neurone Disease, East Anglia (NHS Right Care Neurological CVD and Respiratory Focus Packs), East Anglia (NHS Right Care Where to Look CCG Packs), Essex (NHS Right Care Neurological CVD and Respiratory Focus Packs), Essex (NHS Right Care Where to Look CCG Packs), Greater Manchester (NHS Right Care Neurological CVD and Respiratory Focus Packs), Greater Manchester (NHS Right Care Where to Look CCG Packs), Health Inequalities, Health Informatics, Hertfordshire and the South Midlands (NHS Right Care Neurological CVD and Respiratory Focus Packs), Hertfordshire and the South Midlands (NHS Right Care Where to Look CCG Packs), Identification and Referral, Informatics, Kent and Medway (NHS Right Care Neurological CVD and Respiratory Focus Packs), Kent and Medway (NHS Right Care Where to Look CCG Packs), Lancashire (NHS Right Care Neurological CVD and Respiratory Focus Packs), Lancashire (NHS Right Care Where to Look CCG Packs), Leicestershire and Lincolnshire (NHS Right Care Neurological CVD and Respiratory Focus Packs), Leicestershire and Lincolnshire (NHS Right Care Where to Look CCG Packs), London Commissioning Region: Commissioning for Value Packs, London Region (NHS Right Care Neurological CVD and Respiratory Focus Packs), London Region (NHS Right Care Where to Look CCG Packs), Medical Informatics, Merseyside, Merseyside (NHS Right Care Neurological CVD and Respiratory Focus Packs), Midlands and East Commissioning Region: Commissioning for Value Packs, Midlands and East of England (NHS Right Care Neurological CVD and Respiratory Focus Packs), Midlands and East of England Arden Herefordshire and Worcestershire (NHS Right Care Where to Look CCG Packs), MND Association, Motor Neurone Disease, Motor Neurone Disease (MND), Motor Neurone Disease Association, NHS Airedale Wharfdale and Craven CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Airedale Wharfdale and Craven CCG (NHS Right Care Where To Look CCG Pack), NHS Ashford CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS 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Care Neurological CVD and Respiratory Focus Packs), NHS Canterbury and Coastal CCG (NHS Right Care Where To Look CCG Pack), NHS Castle Point and Rochford CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Castle Point and Rochford CCG (NHS Right Care Where To Look CCG Pack), NHS Central London (Westminster) CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Central London (Westminster) CCG (NHS Right Care Where To Look CCG Pack), NHS Central Manchester CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Central Manchester CCG (NHS Right Care Where To Look CCG Pack), NHS Chiltern CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Chiltern CCG (NHS Right Care Where To Look CCG Pack), NHS Chorley and South Ribble CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Chorley and South Ribble CCG (NHS Right Care Where To Look CCG Pack), NHS City and Hackney CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS City and Hackney CCG (NHS Right Care Where To Look CCG Pack), NHS Coastal West Sussex CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Coastal West Sussex CCG (NHS Right Care Where To Look CCG Pack), NHS Corby CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Corby CCG (NHS Right Care Where To Look CCG Pack), NHS Coventry and Rugby CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Coventry and Rugby CCG (NHS Right Care Where To Look CCG Pack), NHS Crawley CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Crawley CCG (NHS Right Care Where To Look CCG Pack), NHS Croydon CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Croydon CCG (NHS Right Care Where To Look CCG Pack), NHS Cumbria CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Cumbria CCG (NHS Right Care Where To Look CCG Pack), NHS Darlington CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Darlington CCG (NHS Right Care Where To Look CCG Pack), NHS Dartford Gravesham and Swanley CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Dartford Gravesham and Swanley CCG (NHS Right Care Where To Look CCG Pack), NHS Doncaster CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Doncaster CCG (NHS Right Care Where To Look CCG Pack), NHS Dorset CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Dorset CCG (NHS Right Care Where To Look CCG Pack), NHS Dudley CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Dudley CCG (NHS Right Care Where To Look CCG Pack), NHS Durham Dales Easington and Sedgefield CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Durham Dales Easington and Sedgefield CCG (NHS Right Care Where To Look CCG Pack), NHS Ealing CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Ealing CCG (NHS Right 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Look CCG Pack), NHS Eastbourne Hailsham and Seaford CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Eastbourne Hailsham and Seaford CCG (NHS Right Care Where To Look CCG Pack), NHS Eastern Cheshire CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Eastern Cheshire CCG (NHS Right Care Where To Look CCG Pack), NHS Enfield CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Enfield CCG (NHS Right Care Where To Look CCG Pack), NHS England’s Rightcare Programme, NHS Erewash CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Erewash CCG (NHS Right Care Where To Look CCG Pack), NHS Fareham and Gosport CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Fareham and Gosport CCG (NHS Right Care Where To Look CCG Pack), NHS Fylde and Wyre CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Fylde and Wyre CCG (NHS Right Care Where To Look CCG Pack), NHS Gloucestershire CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Gloucestershire CCG (NHS Right Care Where To Look CCG Pack), NHS Great Yarmouth and Waveney CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Great Yarmouth and Waveney CCG (NHS Right Care Where To Look CCG Pack), NHS Greater Huddersfield CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Greater Huddersfield CCG (NHS Right Care Where To Look CCG Pack), NHS Greater Preston CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Greater Preston CCG (NHS Right Care Where To Look CCG Pack), NHS Greenwich CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Greenwich CCG (NHS Right Care Where To Look CCG Pack), NHS Guildford and Waverley CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Guildford and Waverley CCG (NHS Right Care Where To Look CCG Pack), NHS Halton CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Halton CCG (NHS Right Care Where To Look CCG Pack), NHS Hambleton Richmondshire and Whitby CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hambleton Richmondshire and Whitby CCG (NHS Right Care Where To Look CCG Pack), NHS Hammersmith and Fulham CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hammersmith and Fulham CCG (NHS Right Care Where To Look CCG Pack), NHS Hardwick CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hardwick CCG (NHS Right Care Where To Look CCG Pack), NHS Haringey CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Haringey CCG (NHS Right Care Where To Look CCG Pack), NHS Harrogate and Rural District CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Harrogate and Rural District CCG (NHS Right Care Where To Look CCG Pack), NHS Harrow CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Harrow CCG (NHS Right Care Where To Look CCG Pack), NHS Hartlepool and Stockton-On-Tees CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hartlepool and Stockton-On-Tees CCG (NHS Right Care Where To Look CCG Pack), NHS Hastings and Rother CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hastings and Rother CCG (NHS Right Care Where To Look CCG Pack), NHS Havering CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Havering CCG (NHS Right Care Where To Look CCG Pack), NHS Herefordshire CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Herefordshire CCG (NHS Right Care Where To Look CCG Pack), NHS Herts Valleys CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Herts Valleys CCG (NHS Right Care Where To Look CCG Pack), NHS Heywood Middleton and Rochdale CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Heywood Middleton and Rochdale CCG (NHS Right Care Where To Look CCG Pack), NHS High Weald Lewes Havens CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS High Weald Lewes Havens CCG (NHS Right Care Where To Look CCG Pack), NHS Hillingdon CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hillingdon CCG (NHS Right Care Where To Look CCG Pack), NHS Horsham and Mid Sussex CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Horsham and Mid Sussex CCG (NHS Right Care Where To Look CCG Pack), NHS Hounslow CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hounslow CCG (NHS Right Care Where To Look CCG Pack), NHS Hull CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Hull CCG (NHS Right Care Where To Look CCG Pack), NHS Ipswich and East Suffolk CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Ipswich and East Suffolk CCG (NHS Right Care Where To Look CCG Pack), NHS Isle of Wight CCG (NHS Right Care Neurological CVD and Respiratory Focus Packs), NHS Isle of Wight CCG (NHS Right Care Where 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Dementias Platform UK (Department of Health / Dementia Challenge / World Dementia Council / MRC)
Summary A new multimillion-pound platform for dementia research, entitled the “Dementias Platform UK (DPUK)”, has been launched by the Medical Research Council. The aim is to ensure the UK is one of the best places in the world to research dementia. … Continue reading →
Posted in Charitable Bodies, Department of Health, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, International, Mental Health, Models of Dementia Care, National, NIHR, Non-Pharmacological Treatments, Parkinson's Disease, Pharmacological Treatments, Quick Insights, Standards, UK, Universal Interest
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Tagged Academia-Industry Partnerships, Age-Related Neurodegenerative and Neurovascular Diseases, Alzheimer's Disease and Dementia, Araclon, Challenge on Dementia (David Cameron), Charitable Funding, Clinical Research Infrastructure Award, Collaborative Projects, Cross-Sector Partnerships, Data Sharing, Dementia and Neurodegenerative Diseases Research Network, Dementia Challenge, Dementia Innovation, Dementia Risk Factors, Dementias Platform UK, Dementias Platform UK (DPUK), Dementias Research Platform UK (DPUK), Dennis Gillings: Former World Dementia Envoy, Department of Health Dementia Challenge, DPUK: Dementias Platform UK, Dr John Gallacher: University of Cardiff, George Freeman: Former Life Sciences Minister, Global Action Against Dementia, Global Envoy for Dementia Innovation, Global Leadership, Global Outlook, Global Social Investment for Dementia, GSK, Incentives and Investment, Incentives for Drug Development, Integrated Development Pathway, International Collaborations, International Dementia Research Inventories, International Programmes, IXICO, Janssen Research & Development, Johnson & Johnson Innovation, Medical Research Council (MRC), MedImmune (AstraZeneca), Motor Neurone Disease, MRC Dementias Research Platform UK (DPUK), MRC: Medical Research Council, Neurodegeneration, Neurodegenerative Disease Research, NIHR Dementia and Neurodegenerative Diseases Research Network (DeNDRoN), NIHR-MRC Dementia Deep and Frequent Phenotyping, Partnership Working, Prime Minister's Challenge on Dementia, Prime Minister’s Dementia Challenge, Research and Innovation, Resource and Incentives, SomaLogic, WDC: World Dementia Council, World Dementia Council
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