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Recent Posts
- A Brief Review of How the COVID-19 Pandemic Relates to Elderly Care and Research (JGCR)
- Some Speculated / Potential Benefits of COVID-19 (JGCR / BBC Radio 4’s Rethink / BGS)
- Timeless Good Advice? (Action for Happiness)
- The Diversionary Value of Music Playlists for Patients With Dementia in Accident and Emergency Settings (Nurses.co.uk / BBC News)
- More on the Possible Role of Neuroinflammation in Frontotemporal Dementia (Bazian / Brain)
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Tag Archives: Patient Experience Research
The Subjective Impact of Cognitive Impairment Upon People with Parkinson’s Disease (Parkinson’s Disease)
Summary Qualitative research which explores the subjective impact of cognitive impairment on people with Parkinson’s Disease and their carers / families. Full Text Link Reference Lawson, RA. Collerton, D. [and] Taylor, JP. [et al] (2018). Coping with cognitive impairment in … Continue reading
Posted in Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Person-Centred Care, Quick Insights, UK, Universal Interest
Tagged Australia, Behavioural and Clinical Neuroscience Institute: University of Cambridge, Carer Experience, Centre for Human Psychopharmacology: Swinburne University, Challenges to Coping in People with Parkinson's Disease, Characterizing Mild Cognitive Impairment in Incident Parkinson Disease: ICICLE-PD Study, Cognitive Decline, Cognitive Decline Studies, Cognitive Impairment, Cognitive Impairment in People With Parkinson's Disease, Coping and Adjustment, Coping Strategies, Dementia in Parkinson's Disease, Department of Clinical Neurosciences: University of Cambridge, Department of Medicine: Imperial College London, Department of Nursing Midwifery and Health: Northumbria University, Departments of Psychiatry and Psychology: University of Cambridge, Diseases and Medical Conditions Associated With Increased Risk of Mild Cognitive Impairment (MCI), Experiences, Experiences of Diagnosis, Experiences of the Transition to Dementia, Family and Caregiver Experiences, Finding Meaning in Caring, Göttingen University; Institute for Neuropathology: University Medical Centre Göttingen, Germany, Hermeneutics, ICICLE-PD, ICICLE-PD Study Group, Imperial College London, Incidence of Cognitive Impairment in Cohorts with Longitudinal Evaluation–PD (ICICLE-PD), Industrial Statistics Research Unit: Newcastle University, Institute for Ageing and Health: Newcastle University, Institute of Genetic Medicine: Newcastle University, Institute of Neuroscience: Newcastle University, John van Geest Centre for Brain Repair: University of Cambridge, Lockhart Parkinson's Disease Research Fund, Loss in Carers of People with Parkinson's and Cognitive Impairment, Loss of Confidence, Loss of Independence, Loss of Mutuality, Loss of Purpose, Memory Problems, Mild Cognitive Impairment (MCI), MRC Cognition and Brain Sciences Unit: University of Cambridge, National Institute for Health Research (NIHR) Newcastle Biomedical Research Unit, Neurology (Journal), Newcastle University, Northumbria University, Paracelsus-Elena-Klinik (Kassel), Parkinson's Disease (Journal), Parkinson’s Dementia, Parkinson’s Disease Dementia (PDD), Parkinson’s Disease: Non-Motor Symptoms, Patient and Carer Experiences of Diagnosis, Patient Experience Research, PD-MCI, PDD: Parkinson's Disease with Dementia, Predeath Grief, Prion and Dementia Research Unit: University Medical Centre Göttingen, Qualitative Research, School of Medicine: Griffith University (Australia), Self-Perception, Stressors (in Cognitive Impairment), Swinburne University (Melbourne), University Medical Centre Göttingen, University of Cambridge
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Variable Standards of Hospital Dementia Care in England (BBC News / Alzheimer’s Society)
Summary The Alzheimer’s Society may have found further evidence of poor and variable care in a review of acute hospital care for dementia patients. Their report is based on Freedom of Information (FOI) requests, to which not all Trusts were … Continue reading
Posted in Acute Hospitals, Alzheimer's Society, BBC News, Commissioning, Department of Health, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, Local Interest, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, Patient Care Pathway, Quick Insights, Standards, Statistics, UK, Universal Interest
Tagged Acute Care, Acute Care For Patients With Dementia (CHKS Analyses), Acute Hospital Care, Acute Hospitals, Adult Inpatients Who Need Help with Eating, Adult Inpatients Who Need Help with Eating: Patients Who Do Not Receive Enough Help from Staff with Eating Meals, Alzheimer's Society’s Fix Dementia Care Campaign, Alzheimer’s Society's Call for All Hospitals to Publish Annual Dementia Statements, Annual Dementia Statements (Recommendation), Antipsychotics in Elderly People with Dementia, Antipsychotics Limitation in Dementia, Avoidable Harm, BBC Health News, Care Quality Commission (CQC), Carer Friendly Hospitals, CHKS, CHKS Ltd, Compliance With Core Standards, Consequences of the Francis Inquiry Report, Creating Dementia Friendly Hospitals, Dangerous and Inadequate Care in Hospitals in England, Dehydration, Delayed Transfers of Care, Delayed Transfers of Care (DTOC), Dementia and Falls, Dementia Awareness Training, Dementia Care in Acute District General Hospitals, Dementia Care in Acute General Hospitals, Dementia Care in Acute Settings, Dementia Friendly Hospital Charter (DAA), Dementia-Friendly Hospitals, Dementia-Friendly Wards, Dignity and Respect, Dignity and Wellbeing, Dignity Factors, Dignity on the Ward, Discharge Coordination, Elderly Malnutrition, Emergency Readmissions Within 30 Days (For People With Dementia), End-User Experience, Excess Costs for Acute Care From Patients With Dementia, Excess Costs of Acute Care For Patients With Dementia, Excessive Force, Falls in Hospitals, Falls in Older People, Falls Prevention, Fix Dementia Care Campaign, Fix Dementia Care: Hospitals, Fix Dementia Care: Hospitals (Alzheimer’s Society), FOI: Freedom of information, Freedom of Information, Health Education England’s (HEE’s) Dementia Awareness Training Programme, Help With Eating, Hip Fractures After Falls in Hospital, Hospital Care for People with Dementia, Hospital Episode Statistics (HES), Impact of Dementia on Length of Stay, Improving Patient Safety, Inappropriate Care, Inpatient Falls, Inpatient Survey, Jeremy Hughes (Alzheimer’s Society Chief Executive), Length of Stay, Length of Stay (LoS), National Audit of Dementia Care in Hospitals, Not Being Treated With Dignity and Respect During Hospital Stays, Nurse Staffing Levels, Nutrition and Hydration, Overnight Discharge, Patient Experience, Patient Experience Research, Patient Safety, Patient Safety in the NHS, Patients Not Receiving Help When Needed During Hospital Stays, Patients Treated With Excessive Force, Patients Who Do Not Receive Enough Help from Staff with Eating, Personalised Dementia Care, Physical Restraint, Poor or Inconsistent Standards of Dignity and Help With Eating During Hospital Stays, Poor Patient Experience, Prevalence of Inconsistent and Poor Standards of Dignity and Help With Eating, Readmissions, Reducing Inappropriate Use of Antipsychotics in Dementia, Reducing Re-Admissions NHS Hospitals, Relative Risks in Older Hospital Patient Population, Repercussions From the Francis Inquiry Report, Service User Experience, Staff and Board Training, Support With Eating in Hospitals, Supporting Patients With Dementia, This is Me: Person-Centred Care, Transparency and Accountability, Transparency and Accountability in Governance, Unacceptable Variations, Unwarranted Variations, User Experience, Variations in Care, Variations in Hospital Care for People With Dementia, Variations in Quality of Care
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Care Quality Commission and Age UK Collaboration Explores Patient Experience of Care (CQC)
Summary The Care Quality Commission has entered into a six-month partnership with Age UK in an effort to discover, and act upon, older people’s experiences of care. This work may also help to identify examples of best practice. Full Text … Continue reading
Posted in Acute Hospitals, Age UK, Carers UK, Charitable Bodies, Commissioning, Community Care, CQC: Care Quality Commission, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, Local Interest, Management of Condition, National, Non-Pharmacological Treatments, Person-Centred Care, Quick Insights, Standards, UK, Universal Interest
Tagged Action against Medical Accidents (AvMA), Adult Social Care, Andrea Sutcliffe: Chief Inspector of Adult Social Care, Care Homes, Care Quality Commission, Care Quality Commission (CQC), Collaboration, Collaborative Projects, Collaborative Research, Collaborative Working, CQC's Tell Us About Your Care Partnership Projects, CQC’s Tell Us About Your Care Partnership With Action Against Medical Accidents (AvMA), CQC’s Tell Us About Your Care Partnership With Age UK, CQC’s Tell Us About Your Care Partnership With Carers UK, CQC’s Tell Us About Your Care Partnership With Mind, CQC’s Tell Us About Your Care Partnership With Patients Association, CQC’s Tell Us About Your Care Partnership With Relatives and Residents Association (R&RA), Experiences, Experiences of Health Care Services, Experiences of Social Care Services, Improving Patient Experience, Measuring Patient Experience, Mind, Negative Experiences of Care, Negative Experiences of Hospital Care, Patient Experience, Patient Experience Research, Patient Experiences, Patients Association, Poor Patient Experience, Positive Care Experiences, Public and Patient Experience and Engagement, Quality of Care, Quality of Care and Support, Relatives and Residents Association, Relatives and Residents Association (R&RA), Residential Care, Tell Us About Your Care Partnerships (CQC), Transforming Patient Experience, Variations in Quality of Care
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Engagement Cycle: Updated and Under New Ownership (InHealth Associates / Centre for Patient Leadership)
Summary The engagement cycle is a commissioning tool aimed at promoting better engagement with patients and the public. The online “Engagement Cycle” resource helps commissioners to engage patients, carers and the public in decisions about local health services. It has … Continue reading
Posted in Commissioning, Community Care, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Local Interest, National, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest
Tagged Care in Local Communities, CCGs, Centre for Patient Leadership, Citizen Participation, Clinical Commissioning Groups (CCGs), Co-Production, Collaborative Working in Local Communities, Commissioning Local Services, Community Empowerment, Community Engagement, Community Involvement, Empowerment, Engagement, Engagement Cycle: an Online Resource for Commissioners, Health and Social Care Reform, Holistic Quality Improvement, InHealth Associates, Local Empowerment, Monitoring, Monitoring and Oversight, NHS Institute for Innovation and Improvement, Outcomes and Monitoring, Participatory and Citizen Involvement, Patient and Public Involvement, Patient Empowerment, Patient Engagement, Patient Experience, Patient Experience Research, Patient Rated Experience Measures (PREMs), Patient Rated Outcome Measures (PROMs), Patient Reported Outcomes Measures (PROMS), Patient-reported Experience Measures (PREMs), PROMS and PREMS, Public Engagement Exercises, Quality and Sustainability, Quality Improvement, Quality Improvement Approaches, Quality Monitoring, Redesigning Local Healthcare Systems, Redesigning Services, Seldom Heard Groups, Service Redesign, Service Transformation, Service User Experience, Service User Involvement, SLAs: Service Level Agreements, Sustainability, Sustainability Model, Transformational Commissioning, Transformational Leadership, Transforming Patient Experience, Transforming Services, User Experience, User Involvement
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Potential Conflict of Interests in Staff Assistance with Patient Feedback Reviews (BBC Newsnight)
Summary Staff often help patients to post reviews of their experiences of hospital care on the Patient Opinion site. Patient Opinion does support trusts in allowing staff to assist patients in submitting their feedback when these people may suffer from … Continue reading
Posted in Acute Hospitals, BBC News, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, National, NHS, NHS Digital (Previously NHS Choices), NHS England, Quick Insights, Standards, UK, Universal Interest
Tagged BBC Health News, BBC Newsnight, Care Connect, Care Connect (NHS England's Patient Feedback Site), Conflict of Interests, Experiences, FFT: Friends and Family Test, Friends and Family Test (FFT), Hospital Computer Networks, Negative Experiences of Hospital Care, Neil Churchill: National Director of Patient Experience (NHS England), Nottinghamshire Healthcare Trust, Openness and Transparency, Patient Experience, Patient Experience Research, Patient Opinion, Posting on Behalf of Patients, Service User Experience, Speaking on Behalf of Patients, Staff Assistance with Patient Feedback, Transparency, User Experience, Whistleblowing
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Measuring People’s Self-Reported Experiences of Integrated Care (Picker Institute)
Summary A report from the Picker Institute Europe includes 18 questions for measuring patient experience when using health and social care services. It recommends the introduction of a number of these questions into relevant national surveys; this would enable local service … Continue reading
Posted in Charitable Bodies, Commissioning, Community Care, Department of Health, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, King's Fund, Local Interest, Management of Condition, Mental Health, National, National Voices, NHS, Nuffield Trust, Patient Care Pathway, Person-Centred Care, Quick Insights, Standards, UK, Universal Interest
Tagged Abuse of Vulnerable Adults Dataset, Aggregate Level Data Sources, ASCS: Personal Social Services Adult Social Care Survey, Care Integration, Carers Survey, Clinical Commissioning Group Outcomes Indicator Set (CCGOIS), Commissioning Outcomes Indicator Set (COIS), Community Care Statistics, Community Mental Health Service Users Survey, Coordinated Care, Coordination, Department of Health Datasets, English Longitudinal Survey of Aging (ELSA), Experiences, Friends and Family Test (FFT), General Practice Extraction Service (GPES), General Practice Patient Survey (GPPS), GP Patient Survey (GPPS), Health and Social Care Integration, Health Survey for England (HSE), Healthcare Surveys, Hospital Episode Statistics (HES), Integrated Care and Support, Integrated Performance Measures Monitoring (Previously Vital Signs), Integration of Health and Social Care, Long-Term Care (LTC), Long-Term Conditions, Long-Term Conditions (LTCs), Measures of Integrated Care, Measuring Patient Experience, Mental Health Community Teams Activity Information, Mental Health Minimum Data Set (MHMDS), Millennium Cohort Survey (MCS), National Cancer Survey, National End of Life Care Intelligence Network (NEoLCIN), National Minimum Data Set for Social Care (NMDS-SC), New Approaches to Coordinating Care, NHS Inpatients Survey, Patient Experience, Patient Experience Research, Patient Reported Outcomes Measures (PROMS), Personal Social Services Adult Social Care Survey (ASCS), Personal Social Services Carers Survey, Picker Institute, Picker Institute Europe, Quality and Outcomes Framework (QOF), Service Reported Information, Service-Reported Mechanisms, Stroke National Service Framework Survey, Think Local Act Personal (TLAP), TLAP: Think Local Act Personal, Transforming Patient Experience, User- Reported Information, VOICES: National Bereavement Survey
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Health Policy Under the Coalition Government (King’s Fund)
Summary This review examines the coalition government’s policies on health care and summarises emerging performance issues. Full Text Link Reference Gregory, S. Dixon, A. Ham, C. [Eds] (2012). Health policy under the coalition government: a mid-term assessment. London: The King’s … Continue reading
Posted in For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), King's Fund, National, NHS, Quick Insights, Standards, UK, Universal Interest
Tagged Ageing and Long-Term Care: Projections, Alcohol Consumption, Care Quality Commission, Care Quality Commission (CQC), Clinical Effectiveness, Coalition Government, CQUIN Frameworks, Efficiency, Equity, Future Healthcare, Future Long-Term Care Costs, Health and Social Care Act (2012), Health Policy, Health Promotion, Length of Stay (LoS), Long-Term Care (LTC), Long-Term Conditions, Long-Term Conditions (LTCs), Mandate to the NHS Commissioning Board, Mortality, Mortality Rates, National Dementia CQUIN, NHS Health and Social Care Act (2012), NHS Mandate, NHS Outcomes Framework, Obesity, Patient Experience, Patient Experience Research, Patient Safety, QIPP, Quality Innovation Productivity and Prevention (QIPP), Smoking, Strategic Clinical Networks, User Experience
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Failings in the Complaints System in Health and Social Care? (Healthwatch England / CQC)
Summary An estimated 250,000 incidents of poor care were unreported last year. There are concerns that NHS and local authority “red tape” make it difficult to complain, that there is insufficient independent advice and support to help those who need … Continue reading →