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Recent Posts
- A Brief Review of How the COVID-19 Pandemic Relates to Elderly Care and Research (JGCR)
- Some Speculated / Potential Benefits of COVID-19 (JGCR / BBC Radio 4’s Rethink / BGS)
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- The Diversionary Value of Music Playlists for Patients With Dementia in Accident and Emergency Settings (Nurses.co.uk / BBC News)
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Tag Archives: Personal Experience of Dementia
Government Listening to People With Dementia / Their Carers (Department of Health)
Summary More on the Department of Health’s “listening programme”, which aims to learn more about the experiences of people with dementia and their carers in England. This will help assess the impact of the Dementia Challenge 2020 Implementation Plan. The … Continue reading →
Posted in Commissioning, Department of Health, For Carers (mostly), For Nurses and Therapists (mostly), For Social Workers (mostly), Management of Condition, Mental Health, Models of Dementia Care, National, NHS, Non-Pharmacological Treatments, Patient Information, Person-Centred Care, Personalisation, Quick Insights, Standards, UK, Universal Interest
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Tagged Active Engagement, Carer Experience, Carer's Experience of Dementia, Carers’ Experiences of the Dementia Journey, Challenge on Dementia 2020, Citizen Participation, Citizens' Engagement Programme Toolkit (Dementia 2020), Community Engagement, Consultation and Enagement, Dementia Challenge 2020, Dementia Challenge 2020 Implementation Plan, Dementia Engagement and Empowerment Project (DEEP), Dementia Experiences, Dementia Groups, Embedding Patient Experience in Service Delivery, Embedding Patient Experience in Service Design, Engagement, Engagement and Co-Production, Engaging With People Having Experience of Dementia, Experience Based Co-Design, Experience Based Design, Experiences of Diagnosis, Experiences of Health Care Services, Experiences of Social Care Services, Experiences of the Transition to Dementia, Experts by Experience, Family and Caregiver Experiences, Improving Patient Experience, Improving the Experience of Dementia, Involvement and Participation, Listening to People With Dementia and Their Carers (Department of Health), Participation, Patient and Family Engagement, Patient and Public Engagement (PPE), Patient and Public Participation, Patient Participation, Personal Experience of Dementia, Prime Minister’s Challenge On Dementia 2020, Principles for Engagement, Public Consultation (Dementia Experience), Public Engagement, Public Engagement Exercises, User Participation
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Dementia 2020 Citizens’ Engagement Programme Toolkit (Department of Health)
Summary A new toolkit, aimed at dementia groups and networks, offers guidance and advice on facilitating conversations with persons affected by dementia and their carers concerning the Government’s work on dementia. An online survey, open to persons (and their families … Continue reading →
Posted in Alzheimer's Society, Alzheimer’s Research UK, Charitable Bodies, Commissioning, Community Care, Department of Health, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, Patient Care Pathway, Patient Information, Person-Centred Care, Quick Insights, Standards, UK, Universal Interest
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Tagged Active Engagement, Advisory Group for Dementia 2020 Citizens' Engagement Programme (Department of Health), Ageing and Disability Division (Department of Health), Alzheimer Experience, Alzheimer’s Research UK (ARUK), ARUK: Alzheimer’s Research UK, Carer Experience, Carer's Experience of Dementia, Carers’ Experiences of the Dementia Journey, Challenge on Dementia 2020, Citizens' Engagement Programme Toolkit (Dementia 2020), Community Care Group / Social Care (Department of Health), Community Engagement, Consent to Share Information, DEEP Guide: Collecting the Views of People With Dementia, DEEP Guides, DEEP Guides: Supporting Involvement of People With Dementia, DEEP2: Dementia Engagement and Empowerment Project, DEEP: Dementia Engagement and Empowerment Project, Dementia 2020 Citizens' Engagement Programme, Dementia 2020 Citizens' Engagement Programme: Group Discussion Template, Dementia 2020 Citizens' Engagement Programme: Template for Feedback, Dementia 2020 Citizens' Engagement Programme: Toolkit, Dementia and Disabilities Branch (Department of Health), Dementia Engagement and Empowerment Project (DEEP), Dementia Experiences, Dementia Groups, Dementia Networks, Dementia Words Matter: Guideline, Dementia-Friendly Meeting Spaces, Department of Health Consultation Regarding UK Government’s Work on Dementia, Department of Health: Dementia Policy Team, Department of Health’s Advisory Group for the Dementia 2020 Citizens' Engagement Programme, Disclosing Information and Consent, Embedding Patient Experience in Service Delivery, Embedding Patient Experience in Service Design, Engagement, Engagement and Co-Production, Engagement Facilitation: DEEP Recommendations on Facilitating Focus Groups for People With Dementia, Engagement Facilitation: Hints and Tips, Engagement Facilitation: Organising Group Discussions, Engagement Facilitation: Organising One to One Discussions, Engaging With People Having Experience of Dementia, Experience Based Co-Design, Experience Based Design, Experiences of Diagnosis, Experiences of Health Care Services, Experiences of Social Care Services, Experiences of the Transition to Dementia, Experts by Experience, Facilitating Discussions Effectively and Sensitively, Facilitating Focus Groups for People With Dementia (DEEP Recommendations), Family and Caregiver Experiences, Focus Groups, Group Discussions (Focus Groups), iD: Innovations in Dementia, Improving Patient Experience, Improving the Experience of Dementia, Informed Consent, Innovations in Dementia, Innovations in Dementia: a CIC, Patient and Family Engagement, Patient and Public Engagement (PPE), Personal Experience of Dementia, Prime Minister’s Challenge On Dementia 2020, Principles for Engagement, Public Engagement, Public Engagement Exercises, Together in Dementia (tide - Trade Marked Acronym)
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Exploration of Dementia Carers’ Lived Experience (BBC News / ARUK)
Summary Alzheimer’s Research UK commissioned Opinion Leader to investigate all aspects of the impact of caring for a relative with dementia. “Opinion Leader worked with families to produce a rich description of individual experiences, by conducting a series of four … Continue reading →
Posted in Alzheimer’s Research UK, BBC News, Charitable Bodies, Community Care, For Carers (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, Person-Centred Care, Quick Insights, Statistics, UK
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Tagged Ageing and Dementia, Ageing and Society, Ageing Population, Alzheimer's Research UK, Alzheimer’s Research UK (ARUK), ARUK: Alzheimer’s Research UK, Awareness, Awareness and Understanding, Balancing Work With Caring, BBC Health News, Behavioural and Psychological Symptoms of Dementia (BPSD), Behavioural Symptoms, BPSD: Behavioral and Psychological Symptoms of Dementia, Burden of Alzheimer’s Disease, Burden of Dementia (Statistics), Burden on Caregivers, Caregiver Assessments, Caregiver Burden, Caregiver Distress, Caregiver Support, Caregivers, Caregiving (Carers), Carer Awareness, Carer Experience, Carer Fatigue, Carer Isolation, Carer Satisfaction, Carer Support, Carer Support Services, Carer's Experience of Dementia, Carer's Needs, Carer’s Needs Assessment, Carer’s Perspective, Carers, Carers and Families, Carers Direct, Carers for People with Dementia, Carers’ Health and Wellbeing, Caring for Carers, Caring: Hidden Costs, Caring: Impact on Personal Goals, Caring: Psychological Health of Carers, Changing Behaviours, Dementia Awareness, Dementia in the Family (ARUK Report), Differential Impact of Dementia (Gender-Related), Disease Burden, Disproportionate Burden of Dementia on Women, Disproportionate Impact of Dementia on Women, Ethnographic Analysis, Ethnographic Approaches, Ethnographic Research, Experiences, Family and Caregiver Experiences, Family Caregivers, Family Carers, Health and Wellbeing of Adult Carers, Impact of Caring on Ability to Work, Impact of Caring on Carers, Informal Caregiving, Informal Carers, Informal Workforce, Information and Support for Carers, Lived Experience, Mental and Physical Health, Opinion Leader, Personal Experience of Dementia, Positive Care Experiences, Prevalence of Dementia, Prevalence of Unpaid Care, Raising the Profile of Carers, Social Isolation, Support for Carers, Unexpected Positives in Caring, Unpaid Caregivers (Carers), Unpaid Carers, Valuing Carers, Views of Informal Carers, Working and Caring, Working Carers
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Emerging Leaders In Dementia: Communiqué for the First WHO Ministerial Conference on Global Action Against Dementia (World Dementia Council)
Summary A group of “young leaders in dementia” will take part in the First Global Ministerial Conference on Global Action Against Dementia, which is to be hosted by the World Health Organisation (WHO) in Geneva on March 16th – 17th … Continue reading →
Posted in Acute Hospitals, Assistive Technology, Charitable Bodies, Commissioning, Community Care, Department of Health, Diagnosis, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, Patient Care Pathway, Person-Centred Care, Pharmacological Treatments, Quick Insights, Standards, UK, Universal Interest, World Health Organization (WHO)
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Tagged Ageing and Dementia, Ageing and Society, Ageing Population, American Association for the Advancement of Sciences, Awareness Raising, Burden of Dementia, Care Standards, Care Standards in Hospitals, Carer Experience, Carer's Experience of Dementia, Carers’ Experiences of the Dementia Journey, Center for Public Engagement with Science and Technology (the American Association for the Advancement of Sciences), Challenge on Dementia (David Cameron), Collaboration, Collaborative Projects, Cross Sector Working, Cross-Sector Partnerships, Dementia Challenge, Dementia Diagnosis, Dementia Grand Challenge Proposal (WDC or G7 Sponsorship for Jumpstarting Radical Breakthroughs in Prevention Cure and Care of Dementia)), Dementia Narrative (Qualitative Research), Dementia Research, Dementia-Friendly Communities, Dementia-Friendly Design, Dementia-Friendly Products, Disease Modifying Treatment by 2025 (Aim), Disease-Modifying Therapies, Disease-Modifying Therapies for Dementia, Disproportionate Burden of Dementia on Women, Drug Discovery Programmes, Drug Identification, Drug Regulation, Drug-Development Pipeline, Emerging Leaders In Dementia (aka Young Leaders in Dementia), Experiences, First Global Ministerial Conference on Global Action Against Dementia, First WHO Ministerial Conference on Global Action Against Dementia, G7 Countries, G7 Dementia Summit, G7 Global Dementia Summit, G8 Dementia Summit, G8 Dementia Summit: Global Action Against Dementia, GAAD: Global Action Against Dementia, Global Action Against Dementia, Global Action Against Dementia (GAAD), Global Dementia Framework, Global Ministerial Conference on Global Action Against Dementia (WHO), Global Outlook, Global Toolbox for Dementia Research (Proposal), Government Research Funding, Group of 7 (G7), Home Care Standards, Intergenerational Cohesion, Intergenerational Mingling, Intergenerational Relations, Intergenerational Solidarity, Intergenerational Work, International Collaborations, International Dementia-Friendly Symbol (Proposal), International Programmes, Interventions: Outcomes and Cost Savings, Knowledge Translation, Leadership, Lived Experience, London, Mobile Technology, Multi-Generational Approaches, Multisectoral Collaboration, OECD, One-Stop Shops, Organisation for Economic Co-operation and Development (OECD), Organisation for Economic Co-operation and Development (OECD) Countries, Ottawa, Outcomes and Monitoring, Outcomes Benchmarking, Partnership, Partnership and Collaboration, Partnership Working, Patient Experience, Personal Experience of Dementia, Prevalence of Dementia, Prevention, Prevention Programmes, Prime Minister’s Dementia Challenge, Purple Angel Logo, Quality of Care, Quality of Care and Support, Quality of Care for People With Dementia, Reducing Stigma, Research and Development, Research and Innovation, Research Commitment, Research Funding, Science and Innovation Network (SIN), Service User Experience, Social Care Standards, Stigma, Stigma of Dementia, Stigma-Free Environments, Tokyo, UK Science and Innovation Network, UK Science and Innovation Network (SIN), Voluntary and SME Sectors, Washington DC, Working With Professionals From Other Sectors, World Health Organisation (WHO), World Health Organisation (WHO) Regional Office for Europe, Young Leaders in Dementia (#YLDementia), Young Leaders in Dementia (Canada Japan USA Europe), Young Leaders in Dementia Group
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Dementia Care, Patient Experience and Risk Reduction Are Priorities for World Dementia Council (Department of Health / Dementia Challenge / WDC)
Summary It has been agreed at the World Dementia Council‘s third meeting in London (held at the Foreign and Commonwealth Office on Friday October 17th 2014) that dementia care (i.e. health and social care) and risk reduction should be added … Continue reading →
Posted in Alzheimer’s Disease International (ADI), Charitable Bodies, Commissioning, Community Care, Department of Health, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, International, Management of Condition, Mental Health, Models of Dementia Care, National, NIHR, Non-Pharmacological Treatments, Person-Centred Care, Pharmacological Treatments, Quick Insights, Standards, UK, Universal Interest, World Health Organization (WHO)
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Tagged Achieving Dementia Friendly Acute care, Alzheimer's Research UK, Alzheimer’s Disease International (ADI), Behavioural Risk Factors, Behavioural Risk Factors and Dementia, Challenge on Dementia (David Cameron), Collaborative Projects, Community Rehabilitation, Continuity Plans (WDC and GAAD Agenda), Conversion to Dementia From Prodromal Disease, Cross-Sector Partnerships, Danish Health and Medicines Authority, Dementia Alliance International, Dementia Awareness, Dementia Challenge, Dementia Risk Factors, Dennis Gillings: Former World Dementia Envoy, Department of Health Dementia Challenge, Department of Health's Digital Health Blog, Digital Engagement, Dr Kiyoshi Kurokawa: Professor of the National Graduate Institute for Policy Studies and Science Advisor to the Cabinet of Japan, Dr Margaret Chan: WHO Director-General, European Medicines Agency, Experiences, Experiences of Diagnosis, Experts by Experience, F ederal Institute for Drugs and Medical Devices Germany, Finance and Incentives, Fourth World Dementia Council Meeting (February 2015), G7 Countries, G7 Global Dementia Summit, G8 Dementia Summit, GADAA Toolkit: Global Alzheimer’s and Dementia Action Alliance, Geoff Huggins: Scottish Government, Global Action Against Dementia, Global Alzheimer’s and Dementia Action Alliance (GADAA), Global Envoy for Dementia Innovation, Global Leadership, Global Outlook, Global Social Investment for Dementia, Harry Johns: President and CEO of Alzheimer’s Association, Harry Johns: World Dementia Council Member, Health Canada, Healthy Behaviours, Healthy Communities, Healthy Lifestyles, Hilary Doxford: World Dementia Council Member, Innovation in Care and Prevention (Japan Legacy Event), Innovative Technology, Integrated Development, International Collaborations, International Dementia Research Inventories, International Programmes, Italian Medicines Agency, Japan Legacy Event, Japan Legacy Event: Innovation in Care and Prevention, Japan’s G7 Legacy Event on Dementia Care and Prevention, JP Morgan, Kate Swaffer: Chair of Dementia Alliance International, Legacy Event in March 2015, Lifestyle Risk Factors, Lived Experience, Living Well with Dementia, Living Well with Dementia Research, Maintaining Independence, Medicines and Healthcare Products Regulatory Authority UK, Medicines Evaluation Board Netherlands, Modifiable Risk Factors, Open Science and Data, Organisation for Economic Co-operation and Development (OECD), Organisation for Economic Cooperation and Development, Partnership and Collaboration, Partnership Working, Patient Experience, Personal Experience of Dementia, Peter Paniccia, Pharmaceutical and Medical Devices Agency Japan, Pharmaceutical Industry, Pharmaceutical Regulators, Pre-Clinical Fund, Pre-Clinical Space, Prescribed Disengagement, Prime Minister's Challenge on Dementia, Prime Minister’s Dementia Challenge, Prodromal Alzheimer's Disease, Professor Martin Rossor: Former Director of the NIHR Dementia and Neurodegenerative Disease Research Network (DeNDRoN), Professor Martin Rossor: NIHR National Director for Dementia Research, Professor Martin Rossor: UCL Institute of Neurology, Raj Long: Senior Regulatory Officer for Integrated Development in Global Health at the Bill & Melinda Gates Foundation, Reablement, Reablement Services, Regaining Independence, Rehabilitation, Rehabilitation and Self Management, Research and Innovation, Resource and Incentives, Risk Factors, Risk Factors for Alzheimer's Diseease, Risk Reduction (Formerly Termed Prevention by WDC), Science and Innovation, Service User Experience, Sir Mark Walport, Sir Mark Walport (Wellcome Trust), Specialist Rehabilitation Services, Staying Independent, Support for Carers, Sustainable Care, Tackling Barriers to Innovation, Third Global Dementia Legacy Event, Third Global Dementia Legacy Event (Japan: November 2014), Third World Dementia Council Meeting Communique, Unhealthy Behaviours, Unhealthy Lifestyles, Unhealthy Living, US Food and Drug Administration, WDC Dementia Risk Reduction Statement, WDC: World Dementia Council, World Dementia Council, World Health Organisation (WHO), World Health Organization (WHO)
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Consultation on NICE Social Care Standards (Department of Health)
Summary The Department of Health is consulting care users, families and carers, service commissioners, care providers and staff about all aspects of social care. This is part of a review of the topics for inclusion in NICE social care guidance and standards. The comprehensive set of NICE … Continue reading →
Posted in Antipsychotics, Community Care, Department of Health, Falls, Falls Prevention, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, National, NICE Guidelines, Non-Pharmacological Treatments, Pain, Patient Care Pathway, Person-Centred Care, Pharmacological Treatments, Practical Advice, Quick Insights, Standards, UK, Universal Interest
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Tagged Adult Social Care, Adult Social Care Services, Attachment and Permanence, Community Rehabilitation, Continuing Care, Deprivation of Liberty Safeguards, Deprivation of Liberty Safeguards (DoLS), Experiences, Health and Social Care, Health and Social Care Services, Homeless Older People, Homelessness and Ill-Health, Incontinence, Integration of Health and Social Care, Learning Disabilities, Loneliness and Social Isolation, Medicines Management, National Institute for Health and Clinical Excellence (NICE), NICE, NICE Quality Standards, NICE Social Care Guidance and Standards, NICE Social Care Standards, Patient Experience, Personal Experience of Dementia, Pressure Sores, Reablement, Reablement Services, Service User Experience, Sexuality, Social Care, Social Care Provision, Social Care Quality Standards, Social Care Standards, Social Isolation, Substance Misuse, Urinary Incontinence, User Experience, Vision for Social Care, Young Carers
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SCIE Blog (Carer Caroline Odgen’s Personal Experience of Dementia)
Summary The Social Care Institute for Excellence (SCIE) website offers access to the latest news, insights and opinions from people of a wide range of backgrounds. The latest such blog entry is written by carer Caroline Ogden: Dementia creeps up … Continue reading →
