Tag Archives: Proxy Decision Making

Review of Tube Feeding in Advanced Dementia (Journal of Aging Research)

Posted on December 22, 2019 by Dementia and Elderly Care News

Summary A narrative literature review has investigated tube feeding in persons with advanced dementia, offering a comprehensive and unbiased attempt to achieve a balanced assessment of the perceived benefits and common disadvantages of such interventons, in broad terms of quality … Continue reading →

Posted in Acute Hospitals, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), International, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Nutrition, Person-Centred Care, Personalisation, Quick Insights, Systematic Reviews, UK, Universal Interest | Tagged Abdominal Discomfort, American Geriatrics Society (AGS), Anticipatory Decision-Making, Artificial Nutrition in Dementia, Aspiration Pneumonia, Benefit-Harm Ratio of Tube Feeding in People with Advanced Dementia, Best Interests Decision-Making, Burdens of Tube Feeding in People with Advanced Dementia, Colonic Fistulae, Community Haywood Hospital (Stoke-on-Trent), Constipation, Costs of Tube Feeding, Decision-Making at End of Life, Decision-Making Capacity, Dementia Disease Progression, Diarrhoea, East Kent Hospitals University NHS Foundation Trust, Eating in Advanced Dementia, Eating Problems in Advanced Dementia, Electrolyte Imbalance and Fluid Retention, Enteral Tube Feeding, Feeding Tube Placement in Advanced Dementia, Infection Risk, Informed Decision-Making, Journal of Aging Research, Literature Reviews, Local Pain and Bleeding, MDTs: Multidisciplinary Teams, Multi-Disciplinary Team (MDT), Multidisciplinary Meetings, Multidisciplinary Teams, Nasogastric and Gastrostomy Tubes, Nasogatric Tube Feeding, Nutrition and Survival Benefits of Tube Feeding in Advanced Dementia, Oral Health-Related Problems, Parenteral and Enteral Nutrition, Perceived Benefits of Tube Feeding in Advanced Dementia Individuals, Percutaneous Endoscopic Gastrostomy (PEG), Peristomal Wound Leakage, Poor Oral Intake in Patients With Advanced Dementia, Pressure Sores, Proxy Decision Making, Radiologically Inserted Gastrostomy (RIG) Tube Feeding, Refeeding Syndrome, Reported Benefits of Tube Feeding in Advanced Dementia Individuals, Royal Stoke University Hospital (Previously City General), Sepsis From Abdominal Abscesses, Shared Decision-Making, Supporting Decision-Making, Surrogate Decision-Making, Survival Rates, Systematic Literature Reviews, Tube Feeding, Tube Feeding in Advanced Dementia, Tube Feeding in Advanced Dementia Versus Other Diseases, Tube Feeding Versus Oral Feeding, Tube Feeding: Cost-Effectiveness Studies, Tube Leaks or Blockages, William Harvey Hospital (Ashford) | Leave a comment

Facilitating Difficult Conversations About Encroaching Old Age (BBC News / Independent Age)

Posted on July 11, 2016 by Dementia and Elderly Care News

Summary Independent Age (using the services of ComRes) conducted a survey which indicates that many people avoid talking about getting old and planning for loss of independence in old age. People tend to find conversations about end-of-life care particularly difficult … Continue reading →

Posted in BBC News, Charitable Bodies, End of Life Care, For Carers (mostly), In the News, Management of Condition, National, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, UK, Universal Interest | Tagged Advance Care Planning, Advance Decision, Advance Statement, Ageing Population, Anticipatory Decision-Making, Barriers to Conversation (Difficult Conversations), Barriers to Talking About Ageing, Barriers: Ineffective Advance Care Planning, BBC Health News, Capacity and Advance Decisions, Care for People with Dementia in the Community, Care in an Ageing Society, Caregivers, Caregiving (Carers), Compassion in Dying, ComRes Polling, Decision Making, Decision-Making at End of Life, Decision-Making Capacity, Delayers, Delayers and Deniers, Delegated Decision Making, Deniers, Difficult Conversations, Difficult Conversations (Families and Carers), Difficult Conversations: Anticipating Reactions, Easing Decision-Making, End-of-Life Dementia Care Barriers: Ineffective Advance Care Planning, Facilitating Difficult Conversations, Families, Family Caregivers, Family Carers, Health and Care Suitable for an Ageing Population, Home Care, Independent Age, Independent Age Helpline, Information Sharing: Advance Care Plans, Intergenerational Communication, Janet Morrison (Chief Executive of Independent Age), Lasting Power of Attorney for Health and Welfare, Let Me Decide (Advance Care Directive), Living with Dementia, Loss of Independence, Managing My Affairs If I Become Ill, Participatory Decision-Making, Planning Ahead, Power of Attorney, Proxy Decision Making, Shared Decision-Making, Supporting Health Wellbeing and Independence, Talking About End-of-Life Planning, Talking About Getting Extra Help at Home, Talking About Moving Home, Talking About Moving Out of Home, Tools For End of Life Care Planning, Unpaid Care Provision, Unpaid Caregivers (Carers), Unpaid Carers, Unwillingness to Consider Residential Care | Leave a comment

Benefits of Timely Diagnosis and Early Intervention in Dementia (BMJ)

Posted on June 17, 2015 by Dementia and Elderly Care News

Summary A wide-ranging literature review, clinical review and educational update on these topics. Full Text Link Reference Robinson, L. Tang, E. [and] Taylor J-P. (2015). Dementia: timely diagnosis and early intervention. BMJ. June 16th 2015; 350: h3029.

Posted in Commissioning, Diagnosis, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), Integrated Care, International, Management of Condition, Models of Dementia Care, National, NHS, Non-Pharmacological Treatments, Patient Care Pathway, Person-Centred Care, Pharmacological Treatments, Quick Insights, Statistics, UK, Universal Interest | Tagged Additional Educational Resources, Advance Care Planning, Advance Directive for Refusal of Treatment (or “Living Will”), Alcohol-Related Dementia, Alzheimer's Society, Alzheimer’s Disease International: Help for Caregivers, Assessment and Diagnosis, AT Dementia, Barriers to Early Diagnosis, Best Practice, Best Practice for Dementia Care, BMJ, BMJ Learning (Free Resource), Brain Scans, Brief Cognitive Assessment Tools for Dementia in Primary Care, British Medical Journal (BMJ), Care Planning, Caregiver Support, Carer Support, Carer Support Services, Carers UK Factsheets, Caring for Family Carers, Corticobasal Syndrome, Creutzfeldt-Jakob Disease, Dementia with Lewy Bodies, Diagnosis: Saying The “D” Word, Frontotemporal Dementia, FTD Talk, HIV Related Cognitive Impairment, Huntington’s Chorea, Imaging, Information and Advice, Information Provision, Institute of Health and Society, Institute of Health and Society: Newcastle University, Institute of Neuroscience: Newcastle University, Lewy Body Society, Movement Related Dementias (Example: Progressive Supranuclear Palsy), Multiple Sclerosis, Newcastle University, Niemann-Pick Disease Type C, Normal-Pressure Hydrocephalus, Parkinson’s Disease With Dementia, Personalised Care Planning, Post-Diagnosis Support, Post-Diagnostic Dementia Support, Post-Diagnostic Support, Posterior Cortical Atrophy, Power of Attorney, Prevalence of Dementia, Primary Care, Proxy Decision Making, Resources for Patients and Carers, SCIE’s Dementia Gateway, Secondary Care, Social Care Institute for Excellence: Dementia Gateway, Statement of Wishes and Preferences, Vascular Dementia | Leave a comment

SCIE Dementia Gateway: Useful Dementia-Related Information Resources (SCIE)

Posted on November 13, 2014 by Dementia and Elderly Care News

Summary The Social Care Institute for Excellence (SCIE) has produced, and maintains, an uptodate and impressively broad collection of links to dementia-related websites and information resources. A wide range of topics and themes in dementia care are covered, including: Dementia-Friendly … Continue reading →

Posted in Acute Hospitals, Age UK, All-Party Parliamentary Group (APPG) on Dementia, Alzheimer's Society, Alzheimer’s Disease International (ADI), Alzheimer’s Research UK, Antipsychotics, Assistive Technology, Carers UK, Charitable Bodies, Commissioning, Community Care, Dementia Action Alliance, Department of Health, Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Housing, Housing LIN, Integrated Care, International, Joseph Rowntree Foundation, King's Fund, Local Interest, Management of Condition, Mental Health, Mental Health Foundation, Models of Dementia Care, National, National Voices, New Cross Dementia Project, NHS, NHS Digital (Previously NHS Choices), NIHR, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, RCN, Royal College of Psychiatrists, SCIE, Standards, Statistics, Telecare, Telehealth, UK, Universal Interest | Tagged Action on Hearing Loss, Active Ageing, Activity in Care Homes, ADI’s World Alzheimer Reports, Admiral Nursing DIRECT, Admiral Nursing Service, Age-Friendly Environments, All-Party Parliamentary Group (APPG), All-Party Parliamentary Group on Dementia, Alzheimer Scotland, Alzheimer’s Disease International (ADI) Campaigns, Alzheimer’s Research UK (ARUK), Alzheimer’s Society Campaigners’ Network, AMCAT: Assessment of Mental Capacity Audit Tool, Arts 4 Dementia, Assessing Mental Capacity, Association for Dementia Studies, Association for Dementia Studies: University of Worcester, AT Dementia, Behavioural and Psychological Symptoms of Dementia (BPSD), Best Interest Decisions, BILT: British Institute of Learning Disabilities, Black and Minority Ethnic (BME), Black Asian and Minority Ethnic (BAME), Black Asian Minority Ethnic (BAME), BME Communities, BME People with Dementia, Bournemouth University Dementia Institute, Bradford Dementia Friendly Community Project, Bradford Dementia Group, Bradford Dementia Group Good Practice Guides, Building Dementia Friendly Communities, Built Environment, Care and Communication, Caregiver-Patient Communication, Caregiving (Carers), Carer Awareness, Carer Inclusion, Carer Involvement in Healthcare, Carer Support, Carer's Needs, Carer’s Perspective, Carers Direct, Carers for People with Dementia, Carers Trust, Caring Decisions, Caroline Walker Trust, Challenges of Living with Dementia, Clinical Research Network (NIHR), Clive Project, Communication, Communication Problems, Communication Skills, Communication-Friendly Communities, Concurrent Dementia and Sight Loss, Council of Occupational Therapists, Deaf Action, Deaf Action in Scotland, Deafness Cognition and Language Research Centre (UCL), Decision Making, DEEP: Dementia Engagement and Empowerment Project, Delegated Decision Making, Dementia Action Alliance (DAA), Dementia Adventure, Dementia Advocacy and Support Network International (DASNI), Dementia and Sensory Loss, Dementia and Sight Loss, Dementia and Sight Loss Interest Group, Dementia and the Health and Social Care System: Key Reports., Dementia Café, Dementia Centre, Dementia Centre: University of Stirling, Dementia Challenge, Dementia Challengers, Dementia Diagnosis, Dementia Diagnosis and Care in England, Dementia Engagement and Empowerment Project (DEEP), Dementia Friendly Action Plans, Dementia Friendly Extra Care Housing, Dementia Friends, Dementia Friends Campaign, Dementia Gateway, Dementia Information and Resource Centre, Dementia Information Prescription, Dementia Institute: Bournemouth University, Dementia Knowledge Centre, Dementia Partnerships, Dementia Prevalence Calculator, Dementia Research, Dementia Research Centre: National Hospital for Neurology and Neurosurgery, Dementia Service Development Centre: University of Stirling, Dementia Services Development Centre, Dementia Services Development Centre (DSDC), Dementia Services Development Centre (University of Stirling), Dementia UK, Dementia Web, Dementia Without Walls, Dementia Without Walls (York), Dementia Without Walls Project, Dementia-Friendly Cities, Dementia-Friendly Communities, Dementia-Friendly Environments, Dementia-Friendly Yorkshire, Dementia-Related Information Resources, Dementia-Related Internet Sites, Dementia-Related Websites, Dementias and Neurodegenerative Diseases Research Network (DeNDRoN), Department of Health Dementia Challenge, Department of Health National Dementia Strategy Implementation Group, Design and Built Environment, Design Resource Centre, Diagnosis and Assessment, Diagnosis and Support, Diagnosis Rates, Difficult Conversations, Difficult Situations, Disability Living Foundation, Diversity, Diversity and Dementia, DLF: Disability Living Foundation, DSDC Virtual Care Home, DSDC Virtual Hospital, Dying Matters Coalition, Early Diagnosis, Eating Well, EHE: Enhancing the Healing Environment, Elderly Malnutrition, Enhancing the Healing Environment (EHE), Equality and Diversity, Ethnic Minorities Dementia Advocacy Project (EMDAP), Exercise, Extra Care Housing, Extra Care Housing and Dementia, Extra Care Housing and Dementia Commissioning Checklist, Facing Dementia, Food for Thought, Foundation for Assistive Technology, Foundation for Assistive Technology (FAST), Foundations, Frontotemporal Dementia Support Group, Good Communication, Guideposts Trust, Healthtalkonline, Hearing and Sight Loss, Helen Hamlyn Centre, Horsesmouth, Housing and Dementia, Housing Learning & Improvement Network (Housing LIN), Housing Learning and Improvement Network (LIN), I CAN! I WILL! Library, iD: Innovations in Dementia, Innovations in Dementia, Journal of Dementia Care, King’s Fund Enhancing the Healing Environment Programme, Knowing the Person, Knowing the Person With Dementia, Learning Disabilities, LGA: Local Government Association, Life Story Network, Life Story Network (LSN), Living Well Through Activity in Care Homes (Toolkit), Living Well with Dementia, Living with Dementia, Local Government Association: LGA, Maintaining Identity After a Dementia Diagnosis, Making Involvement Count, Malnutrition, Malnutrition and Dementia Patients, Malnutrition Task Force, Malnutrition Task Force (MTF), Mealtime Difficulties, Meaningful Occupation, Memory and Alzheimer’s Cafes UK Directory, Memory Services, Mental Capacity Act (MCA), Mental Capacity Implementation Programme, Mental Health Foundation (MHF), National Council for Palliative Care (NCPC), National Dementia Declaration, National Dementia Strategy, National Housing Federation, NHS England (Formerly the NHS Commissioning Board), NHS Health Scotland, NHS National End Of Life Care Programme, NHS South West, NICE Pathways, NICE Support for Commissioning Dementia Care (CMG48), Non-Cognitive Behavioural and Psychological Symptoms of Dementia, Non-Verbal Communication, Northern Health and Social Care Trust in Northern Ireland, Occupation (Sense of Purpose), Our Health: Dementia Care, Peter and Rosemary Griffin, Physical Activity, Pick’s Disease Support Group, Post‐Diagnosis Support, Prime Minister’s Dementia Challenge, Proxy Decision Making, Quality Standard for Dementia, Race Equality Foundation, Remember the Person, Respectful Communication, Road Less Rocky, Royal College of Art, Royal College of Nursing (RCN), Royal College of Nursing (RCN) Dementia Resource, Royal College of Nursing: Dementia, SCIE Dementia Gateway, SCIE Mental Capacity Act Resource, Scottish Dementia Working Group, Scottish Dementia Working Group (SDWG), Sensory Impairment, Sensory Loss, Sight Loss, Skills for Care (SfC), Social Care Institute for Excellence (SCIE), South West Dementia Partnership, South West Dementia Partnership Learning and Education Resources, South West Dementia Partnership Learning Library, Stirling Dementia Services Development Centre (DSDC), Stirling University: Dementia Services Development Centre, Support for Commissioning Dementia Care (NICE: CMG48), Talking Point, Telecare Learning and Improvement Network, Telecare LIN, This is Me, This is Me: Person-Centred Care, Timely Diagnosis, Trent Dementia Services Development Centre, UK Homecare Association (UKHCA), UKHCA: UK Homecare Association, United Kingdom Homecare Association (UKHCA), Uniting Carers, University of Bradford, University of Bradford Dementia Group, University of Stirling's Dementia Services Development Centre, University of Worcester: Association for Dementia Studies, Unlocking Diagnosis, Unusual Behaviour, Useful Dementia-Related Information Resourses (SCIE), Vision2020, Wolverhampton Medical Institute (WMI), Worcester Association for Dementia Studies, World Alzheimer Report (2012), World Alzheimer Report 2009, World Alzheimer Report 2010, World Alzheimer Report 2011, World Alzheimer Report 2013, York Dementia Without Walls, Young People With Dementia, Young-Onset Dementia, YoungDementia UK | Leave a comment

National Bereavement Survey 2012 (Office for National Statistics)

Posted on July 28, 2013 by Dementia and Elderly Care News

Summary The National Bereavement Survey (VOICES) 2012 relates to end of life care provided at home, out of hours, by district and community nurse providers, in care homes, in hospitals or in hospices. The overall quality of care (across all … Continue reading →

Posted in Acute Hospitals, Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, National, Pain, Patient Care Pathway, Person-Centred Care, Quick Insights, Standards, Statistics, UK | Tagged Acute Care, Acute Hospital Care, Care Homes, Care in General Hospitals, Caregiver Support, Carer Support, Community Nursing, Community Support, Coordination of Care, Decision Making, Delegated Decision Making, Dementia Care in Acute General Hospitals, Dementia Care in the Acute Hospital, Demographics, Dignity, Dignity and Respect, Dignity in Care, End of Life Care, End of Life Care Strategy, Evaluation of Services (VOICES) Short-Form, Family Support, General Hospital Care, General Hospitals, Home Support, Hospice Care, Hospices, Integrated Care and Support, Integration, National Bereavement Survey (VOICES), National Bereavement Survey (VOICES) 2012, Office for National Statistics (ONS), Pain Relief, Place of Death, Preferences and Choice at End of Life, Preferred Place of Death, Proxy Decision Making, Quality of Care for People With Dementia, Service Integration, Social Demographics, Support for Relatives Friends or Carers, Views of Informal Carers, VOICES-SF Questionnaire, VOICES: National Bereavement Survey | Leave a comment

Dying Well With Dementia (Alzheimer’s Society)

Posted on November 9, 2012 by Dementia and Elderly Care News

[A version of this item features in Dementia: the Latest Evidence Newsletter (Royal Wolverhampton NHS Trust), Volume 3 Issue 4, November 2012]. Summary The Alzheimer’s Society’s “My life until the end: dying well with dementia” report gives an overview of … Continue reading →

Posted in Acute Hospitals, Alzheimer's Society, Charitable Bodies, Community Care, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), National, Pain, Person-Centred Care, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Advance Care Planning (ACP), Advance Directive, Anticipatory Decision-Making, Care Fit For VIPS, Care Homes, Care Planning, Care Planning and Proxy Decision Making, Communication, Cornwall Council, Decision Making, Decision-Making at End of Life, Decision-Making Capacity, Delegated Decision Making, Difficult Coversations, Dignity, Dignity in Dementia, Doloplus-2 Pain Scale, Dying Matters Coalition, Easing Decision-Making, End of Life Care, End of Life Care for People with Dementia, End of Life Care Strategy, Lasting Power of Attorney (LPA), Liverpool Care Pathway, Mental Capacity Act 2005, National Council for Palliative Care, National End of Life Care Intelligence Network, National End of Life Care Programme, National End of Life Care Programme (NEoLCP), NHS Cornwall and the Isles of Scilly, NHS National End Of Life Care Programme, Nursing Homes, Pain Management, Pain Relief, Person-Centred Care, Personalised Care Planning, Place of Death, Proxy Decision Making, Pseudo-Autonomous Decision Making, Public Awareness (EOL), Quality of Life (Ethical Framework for Decision-Making), Relationship-Centred Care, Shared Decision-Making, Talking Point, Treatment at End of Life, VIPS Framework of Dementia Care, VIPS Standards, VOICES Survey, Withholding and Withdrawing Treatment | Leave a comment

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