Tag Archives: Public Participation in Research

Following a Diagnosis of Dementia: Information for Patients / Families and Friends Who are Carers (DHSC / SCIE)

Summary Patient information is available, from the Department of Health and Social Care (DHSC), for persons diagnosed with dementia and those who care for them. Guidance on the support which can be expected covers: The care plan. The health care … Continue reading

Posted in Age UK, Alzheimer's Society, Charitable Bodies, Commissioning, Community Care, Department of Health, Department of Health and Social Care (DHSC), Diagnosis, End of Life Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Mental Health, Models of Dementia Care, National, NHS, NICE Guidelines, Non-Pharmacological Treatments, Patient Care Pathway, Patient Information, Person-Centred Care, Personalisation, Quick Insights, SCIE, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Non-Pharmacological Community-Based Interventions for Persons With Dementia: Deciding What Works and What Does Not (Trials)

Summary Work is underway in developing a standardised Core Outcome Set (COS) for use in the evaluation of non-pharmacological health and social care interventions for people living with dementia at home. “ …this study will move closer to providing researchers … Continue reading

Posted in Commissioning, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), Integrated Care, Management of Condition, Models of Dementia Care, Non-Pharmacological Treatments, Person-Centred Care, Personalisation, Quick Insights, Standards, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Earlier Diagnosis Research: the Deep and Frequent Phenotyping Study (BBC News / GtR)

Summary The Deep and Frequent Phenotyping Study aims to discover new ways of diagnosing dementia, ideally decades before the symptoms become apparent in order to give future drug treatments the best chance of working. The Deep and Frequent Phenotyping Study … Continue reading

Posted in Alzheimer's Society, BBC News, Commissioning, Diagnosis, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, Mental Health, Models of Dementia Care, National, NIHR, Quick Insights, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Updated Compendium of Patient Information on Parkinson’s Disease (Michael J. Fox Foundation / Parkinson’s UK)

Summary It is two years since the previous version of this collection, and some significant new patient guides have come to light, from both the USA and the UK. The Michael J. Fox Foundation for Parkinson’s Research offers an interesting … Continue reading

Posted in Charitable Bodies, Diagnosis, For Carers (mostly), For Nurses and Therapists (mostly), International, Management of Condition, Non-Pharmacological Treatments, Parkinson's Disease, Patient Information, Person-Centred Care, Personalisation, Pharmacological Treatments, Practical Advice, Quick Insights, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

The Dementia Citizens Project (Knowledge Hub / Nesta)

Summary The National Endowment for Science Technology and the Arts (Nesta) has launched the Dementia Citizens website. This project aims to bring together researchers and people with dementia (and their carers and families) with a view to discovering novel ways … Continue reading

Posted in Acute Hospitals, Alzheimer's Society, Alzheimer’s Research UK, Assistive Technology, Community Care, For Carers (mostly), For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Management of Condition, Mental Health, Models of Dementia Care, National, Non-Pharmacological Treatments, Patient Information, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Scotland, Telecare, Telehealth, UK, Universal Interest, Wales | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

New Drugs for Dementia (POST Note PN 535)

Summary The Parliamentary Office of Science and Technology (POST) has produced a briefing outlining some of the challenges in developing new drugs for dementia, explained in the context of ongoing UK and international research programmes. There is an extensive bibliography, … Continue reading

Posted in Alzheimer's Society, Alzheimer’s Research UK, Antipsychotics, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), International, Models of Dementia Care, National, Pharmacological Treatments, Quick Insights, Statistics, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | Leave a comment

Deep and Frequent Phenotyping Study: Dementia Early Detection and Biomarkers Research Programme (MRC / NIHR)

Summary The Deep and Frequent Phenotyping Study will explore improvements in biomarker research and the development of tests to detect Alzheimer’s Disease early on. This research programme will be funded by the National Institute of Health Research (NIHR) and the … Continue reading

Posted in Alzheimer's Society, Charitable Bodies, Commissioning, Diagnosis, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, National, NIHR, Quick Insights, UK, Universal Interest | Tagged , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , | 1 Comment