Tag Archives: Transparency and Open Data

NHS and Social Care Data Sharing: at the Crossroads – Again? (BBC News / Department of Health)

Posted on July 7, 2016 by Dementia and Elderly Care News

Summary The controversial care.data data-sharing project has been scrapped, after a delay of two years. The Department of Health has conducted a public consultation, in addition to two independent reviews from the National Data Guardian for Health and Care (NDG) … Continue reading →

Posted in BBC News, Commissioning, CQC: Care Quality Commission, Department of Health, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), In the News, Integrated Care, National, NHS, NHS England, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged Aggregate Level Data Sources, Aggregated Data, Analytics, Anonymised Patient Medical Records, Anonymising Data, Applications of Big Data, BBC Health News, Big Data, Big Data Analytics, Caldicott Principles, Caldicott Review of Information Governance, Care Quality Commission (CQC), care.data, Care.data: Modern Data Service for the NHS, Confidentiality, Controlling the Release of Data, Dame Fiona Caldicott: Chair of the Independent Information Governance Oversight Panel (IIGOP), Dame Fiona Caldicott: National Data Guardian for Health and Care, Dame Fiona Caldicott: National Data Guardian for Health and Care (NDG), Data Extraction, Data Extraction and Linkage, Data Linkage and Extract Service, Data Linkage to Support Surveillance, Data Protection, Data Protection Act, Data Protection Act (1998), Data Quality and Accuracy, Data Security and Identifiability, Data Security Techniques, Data Sharing Review, Digital Care Records, Digital NHS, Electronic Care Records, Epidemiology, Epidemiology and Statistics, Fair Processing, George Freeman MP: Former Life Sciences Minister, Governance of Data Access, Health and Social Care Information Centre, Health and Social Care Information Centre (HSCIC), Health Improvement, Health Informatics, HSCIC: Health and Social Care Information Centre, Increasing Efficiency, Informatics, Information Governance Reviews, Information Sharing, Information Strategy, Interoperability, Interoperability Standards, Legal Basis for Data Extraction, Legislation and Governance, Leveraging Big Data, Management of Big Data, Medical Informatics, Medical Research, National Data Guardian for Health and Care (NDG), New Data Security Standards (2016), NHS Constitution, NHS Electronic Patient Records, NHS Health and Social Care Information Centre (IC), NHS Records, Opt Out Procedures, Opting Out, Opting Out (care.data), Patient Confidentiality, Patient Identifiable Data, Personal Confidential Data, Pseudonymised Data, Public Health, Public Health and Health Improvement, Public Health Improvement, Public Health Informatics, Public Health Monitoring, Publicly-Funded UK Big Data Research, Records Management: NHS Code of Practice, Records Standards in Health and Social Care, Secondary Uses Service (SUS), Summary Care Records, Summary Level Statistics, Transparency, Transparency and Accountability, Transparency and Open Data, Transparency and Public Trust, Trust and Data Sharing, Uses of Data, Uses of Medical Records | Leave a comment

Big Data Portal for Alzheimer’s Dementia Drug Discovery (NIH / Synapse AMP-AD)

Posted on March 8, 2015 by Dementia and Elderly Care News

Summary The National Institutes of Health (NIH) in the USA has opened a public-private partnership online resource to facilitate neurodegenerative research and drug development. The launch of the Alzheimer’s Big Data Portal provides an open-source “public knowledge portal” for the … Continue reading →

Posted in Charitable Bodies, For Doctors (mostly), For Researchers (mostly), In the News, International, Pharmacological Treatments, Quick Insights | Tagged Academia-Industry Partnerships, Academia-Industry Synergies, Accelerating Alzheimer's Research and Drug Development, Accelerating Medicine Partnership for Alzheimer's Disease (NIA-AMP AD) Target Discovery and Preclinical Validation Project, Accelerating Medicines Partnership (AMP), Accelerating Medicines Partnership-Alzheimer's Disease (AMP-AD), Alfred P. Sloan Foundation, Alzheimer’s Disease Biomarkers, Alzheimer’s Disease Cooperative Study, Alzheimer’s Disease Neuroimaging Initiative (ADNI), AMP-AD Program, Big Data, Big Data Portal for Alzheimer’s Dementia Drug Discovery, Big Pharma, Biomarkers, Biopharmaceutical Companies, Broad Institute of MIT and Harvard, Collaboration, Collaborative Drug Discovery Programmes, Collaborative Projects, Cross-Sector Partnerships, Dementia Research, Drug Development for Alzheimer's Disease, Drug Discovery Programmes, Drug Identification, Drug Target Validation, Drug-Development Pipeline, Drugs for Treatment of Alzheimer’s Disease, Emory University, Foundation for the NIH (FNIH), Genetic Research, Genetic Testing, Genetic Triggers, Genetics of Alzheimer's Disease, Global Open Data Initiative, Human Epigenome Atlas, Icahn School of Medicine at Mount Sinai, Institute for Systems Biology (Seattle), International Alzheimer's Disease Research Portfolio (IADRP), International Collaborations, International Organisations, International Programmes, Market Failure (Dementia Research and Drug Development), Mayo Clinic in Jacksonville, Medical Research, Multidisciplinary Research Teams, National Institutes of Health (NIH), Neurodegeneration, Neurodegenerative Disease Research, Neurodegenerative Diseases, NIA Genetics of Alzheimer’s Data Storage Site (NIAGADS), NIH Big Data to Knowledge (BD2K) Initiative, NIH Network for Excellence in Neuroscience Clinical Trials, Non-Profit Collaborations, Novel Targets in Neurodegeneration, Open Data, Open Data and Big Data, Open Data in Health and Social Care, Open Data Learning Capacity and Culture, Open Data: Unlocking Innovation, Open Source Solutions, Pharmaceutical Industry, Pharmacological Research, Potential of Open Data in Health and Social Care, Pre-Competitive Collaboration, Precision Medicine Initiative, Preclinical Biomarkers in Alzheimer's Disease, Public-Private Partnership (PPP), Public-Private Partnerships, Research and Development, Research and Innovation, Research Commitment, Research Consortia, Research Culture, Research Networks, Research Programmes, Roadmap Epigenomics Project, Rush University Medical Center: Chicago, Sage Bionetworks, Synapse, Synapse Access and Compliance Team, Target Discovery and Preclinical Validation, Technology Transfer, Temporal Evolution of Alzheimer’s Disease Biomarkers, Therapeutic Target(s): Identification, Translational Research, Transparency and Open Data, United States, University of California, University of Florida, US National Institute of Aging, US National Institutes of Health (NIH), USA | Leave a comment

The Ongoing March Towards NHS Transparency (BBC News / CQC / MyNHS)

Posted on November 19, 2014 by Dementia and Elderly Care News

Summary Two further major developments have been announced this week in the drive to improve transparency and standards across the NHS. GP Surgeries (CQC) The Care Quality Commission now ranks GP surgeries in England for various criteria of excellence and … Continue reading →

Mental Health Service Providers on MyNHS Comparison and Transparency Site (NHS Choices / Department of Health / NHS England)

Posted on October 11, 2014 by Dementia and Elderly Care News

Summary Coinciding with World Mental Health Day (October 10th 2014) NHS Choices launched a section of easy-to-access ratings for mental health hospitals on MyNHS. Data covers general quality indicators, patient safety, efficiency and hospital food standards. Everyone can view this quality … Continue reading →

MyNHS Comparison and Transparency Site (Department of Health / NHS England / NHS Choices)

Posted on September 23, 2014 by Dementia and Elderly Care News

Summary NHS England and partners – including the Department of Health, Public Health England (PHE), the Care Quality Commission (CQC) and the Health and Social Care Information Centre (HSCIC) – have developed the MyNHS comparison website, which enables readers to … Continue reading →

Big Data and Public Health (Parliamentary Office of Science and Technology POST Note PN 474 / PN 468)

Posted on August 5, 2014 by Dementia and Elderly Care News

Summary This Parliamentary Office of Science & Technology (POST) note on “Big Data and Public Health” considers the growing use of patients’ health records and large-scale medical and administrative datasets as valuable sources of information for the study and improvement … Continue reading →

Posted in Commissioning, Department of Health, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), National, NHS, NHS England, Public Health England, Quick Insights, Standards, Statistics, UK, Universal Interest | Tagged Academic Research, Administrative Data, Administrative Data Research Network, Administrative Datasets, Aggregate Level Data Sources, Aggregated Data, Analytics, Anonymised Patient Medical Records, Applications of Big Data, Arts and Humanities Research Council, Avon Longitudinal Study of Parents & Children (ALSPAC), Be Clear on Cancer (BCOC), Big Data, Big Data Analytics, Big Data Funding and Research, Big Data Overview, Big Data: One of UK Government's Eight Great Technologies, Biotechnology and Biological Sciences Research Council, Care Act 2014, care.data, Care.data: Modern Data Service for the NHS, Clinical Audits, Clinical Commissioning Groups (CCGs), Clinical Practice Research Datalink (CPRD), Common Law Duty of Confidentiality, Data Extraction and Linkage, Data Linkage and Extract Service, Data Linkage to Support Surveillance, Data Protection Act (1998), Data Quality and Accuracy, Data Security and Identifiability, Data Security Techniques, Digital Care Records, Economic and Social Research Council, Eight Great Technologies, Electronic Care Records, Epidemiology, Epidemiology and Statistics, EU Data Protection Regulation, European Data Protection Regulation, Farr Institute, General Practice Extraction Service (GPES), Governance of Data Access, GPES Independent Advisory Group (IAG), Health and Social Care Act (2012), Health and Social Care Information Centre (HSCIC), Health Improvement, Health Informatics, Health Protection (Notification) Regulations 2010, Health Protection Agency, Health Service (Control of Patient Information) Regulations 2002, Healthcare Planning, Hospital Episode Statistics (HES), House of Commons Library, House of Commons Library POST Note PN 474, Human Rights Act (HRA), Increasing Efficiency, Informatics, Information Sharing, Innovation in Bioinformatics, Interoperability, Interoperability Standards, Legislation and Governance, Leveraging Big Data, Management of Big Data, Medical Informatics, Medical Research, National Cancer Data Repository, National Cancer Intelligence Network (NCIN), National Pupil Database, Natural Environment Research Council, NHS Electronic Patient Records, NHS Records, Office of National Statistics (ONS), Office of National Statistics Mortality Data, Office of Science & Technology POSTnote, Open Data, Open Data and Big Data, Open Data in Health and Social Care, Open Data in the NHS, Parliament, Parliamentary Office of Science & Technology, Parliamentary Office of Science & Technology (POST), Patient Records, Population Risk Stratification, POST Note PN 468, POST Note PN 474, POSTnote No.468, POSTnote No.474, POSTnotes, Primary Use Within the NHS, Pseudonymised Data, Public Health, Public Health and Health Improvement, Public Health England (PHE), Public Health Improvement, Public Health Informatics, Public Health Monitoring, Publicly-Funded UK Big Data Research, Records Management: NHS Code of Practice, Records Standards in Health and Social Care, Risk Stratification, Risk Stratification Programmes, Routes to Diagnosis (NCIN), Science and Technology Facilities Council, Secondary Use Beyond the NHS, Secondary Use Within the NHS, Secondary Uses Data Set, Secondary Uses Service (SUS), Social Epidemiology, Standardised Electronic Health Records, Summary Care Records, Summary Level Statistics, Transparency, Transparency and Accountability, Transparency and Open Data, Transparency and Public Trust, Use of Identifiable Records Without Consent: Section 251 of the National Health Service Act 2006, Uses of Data, Uses of Medical Records | Leave a comment

NHS Publishes Local Staffing and Patient Safety Data (NHS England / NHS Choices / National Quality Board)

Posted on June 27, 2014 by Dementia and Elderly Care News

Summary The NHS has started to published information about staffing levels, showing nurse, midwife and care staffing data down to ward level. This is part of the NHS commitment to openness and transparency, with a view informing the public and … Continue reading →

Open Data in Health and Social Care (NHS England / GovLab)

Posted on June 6, 2014 by Dementia and Elderly Care News

Summary NHS England and GovLab have defined a blueprint for the greater use of open data in health and care. NHS England plans to explore the ideas in this report, with the aim of achieving more consensus on the future … Continue reading →

Posted in Commissioning, For Doctors (mostly), For Researchers (mostly), National, NHS, NHS England, Quick Insights, Standards, UK | Tagged Access to Health Records Act, Access to Medical Reports Act, Active Engagement, Aidin, Anonymisation, Better Procurement, Big Data Taxonomies, Building Metrics-into-Design, Caldicott Review, Caldicott Standards, Camden Coalition of Healthcare Providers (CCHP), Camden Health Metrics Explorer, care.data, Care.data: Modern Data Service for the NHS, CDEC Open Health Data Platform, Challenges and Barriers to Open Data, Choice, Connected Digital Economy Catapult (CDEC), Cost-Effectiveness, Cost-Effectiveness in Health Care, Data Protection Act (1998), Data Sharing, Dollars for Docs Tool (Pro Publica), Dr Foster Intelligence, Efficiency, Empowering Patients, Empowerment, European Data Protection Directive, Friends and Family Test (FFT), Global Open Data Initiative, GovLab, GovLab Open Data Index, GovLab: New York University, Healthgrades (US), IMS Health, Increasing Efficiency, Information Sharing, Interoperability, Interoperability Standards, iTriage (US), Kaiser Permanente, McKinsey Global Institute, MedWatcher (US), National Institute for Cardiovascular Outcomes Research (NICOR), New York University, NHS Digital (Previously NHS Choices), NHS England (Formerly the NHS Commissioning Board), Open Data, Open Data and Big Data, Open Data Barometer, Open Data Definitions, Open Data in Health and Social Care, Open Data in the NHS, Open Data Index, Open Data Institute, Open Data Institute in Shoreditch, Open Data Learning Capacity and Culture, Open Data Learning Environment (ODLE), Open Data: Unlocking Innovation, Open Health Data, Open Health Data Ecology Map, Open Health Data Sets, Open Healthcare, Openness, Openness and Transparency, Organograms, Participatory and Citizen Involvement, Patient and Family Engagement, Patient Choice, Patient Engagement, Patient Involvement, Personal Choice Programme, Potential of Open Data in Health and Social Care, Pseudonymisation, Research Networks, Robust Consultation, Scottish Longitudinal Study (SLS), Sharing Knowledge and Information, Sharing Learning, Society for Cardiothoracic Surgery (SCTS), Transparency and Open Data, User Involvement, Wiser Health Platform (US), WiserTogether, World Bank Open Data Catalog | Leave a comment

Healthcare Providers Supplying Misleading Information: Consultation (Department of Health)

Posted on April 26, 2014 by Dementia and Elderly Care News

Summary The Care Bill 2014 will make it a criminal offence for healthcare providers to supply or publish false or misleading information. The offence in the Care Bill is wide in its areas of potential interpretation, so may be limited by … Continue reading →

Posted in Commissioning, Department of Health, In the News, Local Interest, National, NHS, Quick Insights, Standards, UK, Universal Interest | Tagged Accuracy of Public Information, Ambulance Response Rate Times, Applying FOMI to Quality Accounts, C.difficile Rates, Cancer Outcomes Dataset, Candour, Care Bill 2013-14, Commissioning Data Sets (CDS) and Quality Accounts, Consequences of the Francis Inquiry Report, Culture Change, Data Errors, False or Misleading Information, False or Misleading Information (FOMI), FOMI Offence, Friends and Family Test (FFT), Government Response to Francis Inquiry Report, Hard Truths, Healthcare Providers Supplying Misleading Information: Consultation, Honesty, Hospital and Community Health Services (HCHS) Complaints, Hospital Mortality Rates, Hospital Standardised Mortality Ratios (HSMRs), Implications of the Francis Inquiry Report, Improving Patient Safety, Incentivising Candour, Inspections by CQC, Liberating the NHS: Transparency in Outcomes, Mid Staffordshire NHS Foundation Trust, Mid Staffordshire NHS Foundation Trust Inquiry, Mid Staffordshire NHS Foundation Trust Public Inquiry, Misleading Information, Myocardial Infarction, National Cancer Waiting Times Dataset, National Maternity Services Dataset (NMDS), NHS Culture, NHS Managerial Self-Interest, NHS Trusts and Foundation Trusts, Open Culture, Openness, Openness and Transparency, Organisational and Professional Cultures, Organisational Culture and Climate, Patient Safety Incident Reporting, Patient-Centred Culture, Positive Culture, Provider Registration with CQC, Reporting Culture, Risk Assessment for Venous Thrombo-Embolism, Stroke, Summary Hospital-level Mortality indicator (SHMI), Transparency, Transparency and Accountability, Transparency and Open Data, Transparency and Public Trust | Leave a comment

Everyone Counts Guidance: Planning for Patients 2014/15 to 2018/19 (NHS England)

Posted on December 30, 2013 by Dementia and Elderly Care News

Summary The Everyone Counts: Planning for Patients 2014/15 to 2018/19 document presents NHS England’s guidance for achieving service transformation, integrated care and more convenient services, amidst financial challenges. It explains how commissioners can work with providers and local government to develop five-year … Continue reading →

Posted in Acute Hospitals, Commissioning, Community Care, For Doctors (mostly), For Nurses and Therapists (mostly), For Researchers (mostly), For Social Workers (mostly), In the News, Integrated Care, Management of Condition, National, NHS, NHS England, Patient Care Pathway, Person-Centred Care, Personalisation, Practical Advice, Quick Insights, Standards, UK, Universal Interest | Tagged Access to Services, and Refer (FAIR), Assess and Investigate, Better Care Fund, Better Care Fund (BCF), CCG Outcome Indicator Set (CCG OIS), CCG Outcomes Indicators Set, Citizen Inclusion, Clinical Digital Maturity Index (CDMI), Commissioning for Outcomes, Commissioning for Quality and Innovation (CQUIN), Commissioning for Transformation, Commissioning Outcomes Framework (COF), Compassion in Practice, Compassionate Care, Data Sharing, Direct Commissioning, Empowerment, Everyone Counts, Financial Constraints, Financial Context, Financial Planning, Financial Pressures, Financial Resilience, Find, Health and Social Care Integration, Health Care Reform, Health Inequalities, Health Inequalities in England, Inclusion, Inclusiveness, Innovation, Integrated Care and Support, Integrating Health and Social Care, Liaison and Diversion Programme, National and Local Metrics, National Quality Board (NQB), NHS Constitution, NHS Constitution Support Measures, NHS England (Formerly the NHS Commissioning Board), NHS Friends and Family Test (FFT), NHS Reform, NHS Reform in England, NHS Safety Thermometer, No Change Not an Option, Parity of Esteem, Patient Experience, Patient Safety, Personalised Care Planning, Personalised Care Plans, Planning Support Tools for Commissioners, Planning Templates, Primary Care Support Services, Productivity of Elective Care, Public Health, Quality Premium, Research and Innovation, Risk and Mitigation Strategies, Safeguarding, Service Integration, Service Transformation, Seven Day Services, Seven Day Services Improvement Programme, Specialised Services, Specialised Services Commissioning Innovation Fund, Strategic and Operational Planning 2014 to 2019, Sustainability, Transparency, Transparency and Open Data, Transparency in Outcomes, Urgent Care Working Groups (UCWGs), Value for Money | Leave a comment

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Healthcare Providers Supplying Misleading Information: Consultation (Department of Health)

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